Guest Post: The Mask of Invisible Illness and Fibromyalgia – Hope In Pain | My Fibro Team

One lady’s account of her battle with Invisible illness – chronic fibro pain & fatigue

She says:
“What nobody sees is the struggle it takes me to get out of bed each morning”

The Mask of Invisible Illness and Fibromyalgia- Finally I’m Home

This post was written by Elizabeth of Hope in Pain in Australia, and has been living with chronic pain for 22 years.

Posted on July 14, 2016 on My Fibro Team

“MyFibroTeam is the social network for those living with fibromyalgia. Get the emotional support you need from others like you, and gain practical advice and insights on managing treatment or therapies for fibromyalgia.”
https://www.myfibroteam.com/

We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

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Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!

FF & its CEO on Synapse

Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.

carole@fibroflutters.com

FibroFlutters are continuously…

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
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FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!

You all need to pitch in and be socially responsible for each other!!

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