Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

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Pulse Magazine | All things technology & health | Pulse Publishing

Fibro Warrior Weekly
Drunk Kitty aka Julie Ryan/ Counting My Spoons … Read More Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Jul 10, 2019Nov 12, 2019 fibrofly739 Comments

#ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

Many thanks for taking a look and if you enjoy the content please can you share it with your peers and colleagues.
It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

May 28, 2019Sep 1, 2019 fibrofly732 Comments

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

Apr 22, 2019Apr 24, 2019 fibrofly73

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

Apr 18, 2019Apr 30, 2019 fibrofly73

#chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Thank you for your patience, & support, during this last few months, or so, whilst I have been moving house and dealing with big life-changes. Startup PlateJoy sends users personalized meal plans to help them achieve health goals |by Zach Winn | 22 November 2018 Quote from text“We’re building a new category to bridge the gap between medicine… Read More #chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 23, 2018Dec 21, 2018 fibrofly73

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

Nov 14, 2018Jan 27, 2019 fibrofly73

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 12, 2018May 16, 2019 fibrofly73

#chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A belated newsletter due to technical issues with my broadband connection intermittently going off all the time!… Read More #chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 6, 2018Nov 6, 2018 fibrofly73

#chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

We need you to support ARMA during Bone and Joint Week 2018
12-20 October 2018

Are you a #DisabilityGameChanger?
Scope | The fight for equality | 11 October 2018

#ArthritisAwareness #WorldArthritisDay
Arthritis Foundation | You Can Make a Difference | 8 October 2019

Arthritis Foundation | Arthritis Therapies That Work | 9 October 2018

Digital Health Digest | 11 October 2018

Patient Newsletter | Be kinder to yourself this World Mental Health Day | 10 October 2018

Psych Central Newsletter | Psych Central Daily |
11 October 2018

FibroFlutters supporting eyeforpharma as #PatientAdvocates #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine | RARE Round-up | 11 October 2018

Download your entry pack for the eyeforpharma 2019 Awards

Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018

Neuroscience Newsletter | 11 October 2018

Oct 12, 2018Oct 29, 2018 fibrofly73

#chronicillnessVOICE | 11 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

FibroFlutters supporting eyeforpharma as #PatientAdvocates #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine | RARE Round-up | 11 October 2018

Our Neglect of Chronic Pain Has Left Many Without an Identity |Scott McKinney Ph.D | National Pain Report | 11 October 2018

Welcome to the Samaritans Monthly Newsletter |Samaritans | 5 October 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance | October 2018

Navigator Tool| Pain Concern | October 2018

Download your entry pack for the eyeforpharma 2019 Awards

News and articles via eyeforpharma – Newsletter by Adam Chapman
Editor, eyeforpharma | 28 September 2018

Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018

Neuroscience Newsletter | 10 October 2018

Oct 11, 2018Oct 13, 2018 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Cranberry Blueberry Pie Nov 13, 2019
This cranberry blueberry pie is a delicious combination of sweet and tart, with a hint of cozy spices and a buttery flaky pie crust. It’s perfect for the holidays! This cranberry blueberry pie has been a favorite of mine for almost 10 years! It’s just that good. I love cranberries, but I’m absolutely crazy for the combination of blueberries and cranberries t […]
Completely Delicious - A little sweeter every day
My 52-Week Project – A Year Of Art Nov 13, 2019
One of my goals for 2020 is to create more art. In order to reach that goal, I've created the Chronically Hopeful 52-Week Art Project. It consists of 52 prompts, one for each week of the year, to guide my creativity, keeping me focused and inspired.Having a fluctuating chronic illness means that I'm not always […] The post My 52-Week Project – […]
Chronically Hopeful
The BEST Roasted Broccoli Nov 13, 2019
This is the BEST Roasted Broccoli! I make this recipe multiple times a week – it’s great on its own as a side dish, or tossed into pasta, a salad, or a bowl. This gluten-free and vegan recipe is made extra delicious with nutritional yeast. I make this roasted broccoli recipe more than anything else in my kitchen. ... Read More about The BEST Roasted Broccoli […]
Bakerita - Wholesome baking recipes for a happy soul.
Practicing Forgiveness Nov 13, 2019
When you hold on to past hurt, you’re actually trying to relieve your pain by put- ting other people down and building yourself up. You may imagine that nursing old wounds is the way to be in control and prevent the humiliating exposure of your imperfections. ...
Psych Central
Revisiting the Idea of Winning Nov 13, 2019
Linda: If you’ve ever been in the middle of a painful breakdown with your partner and felt overwhelmed with rage, fear, pain, despair, or some combination of the above, ...
Psych Central
Help with tartine sd. Nov 13, 2019
Help with tartine sd. Submitted by johnny boy on November 12, 2019 - 4:09pm. Hello, Having issues with tartine sd . I live in Tampa fl, so I am careful with the amount of h2o. I am following the recipe in the tartine bread book The dough is very difficult to form for first forming. Any and all help is greatly appreciated.
The Fresh Loaf
Italian bread Nov 13, 2019
Italian bread Submitted by Dsr303 on November 12, 2019 - 4:09pm. Will be starting sourdoughs again as it’s cooling off. This Italian boule came out great C95D54DD-7C73-4FF0-9DA7-95A11883051A.jpeg
The Fresh Loaf
Einkorn (50%) Nov 13, 2019
Einkorn (50%) Submitted by Hotbake on November 12, 2019 - 3:29pm. 20191112_161442.jpg 50%whole stoneground einkorn, 50% bf Lazy overnight version, turns our pretty good 20191112_161532.jpg 20191112_161713.jpg Pretty low hydration about 68%, I literally did 2 sets of mixing and that's it
The Fresh Loaf
The Porn Panic: Is Porn a ‘Public Health Crisis’? Nov 13, 2019
If it’s not the Gail Dines crowd screaming that porn is inherently anti-women and evil, it’s the David Ley crowd arguing that porn is great and wonderful and never a problem for anyone. One group thinks porn is a public health crisis; the other group thinks porn is every bit as awesome as sliced bread.
Psych Central
The Best Basic Cranberry Sauce Nov 12, 2019
Ready to ditch the creepy canned cranberry sauce but don’t know where to start?! This recipe for The Best Basic Cranberry Sauce is for you! Made with just 6 simple ingredients, this basic recipe is super easy and perfect for Thanksgiving dinner! Easy Cranberry Sauce Do you love cranberry sauce? I know a lot of people who only enjoy it once a year, but in our […]
Baker by Nature