Tag: Science

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

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#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

fibrofly73Leave a comment

#chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Thank you for your patience, & support, during this last few months, or so, whilst I have been moving house and dealing with big life-changes. Startup PlateJoy sends users personalized meal plans to help them achieve health goals |by Zach Winn | 22 November 2018 Quote from text“We’re building a new category to bridge the gap between medicine… Read More #chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

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Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

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#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

fibrofly73

#chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

We need you to support ARMA during Bone and Joint Week 2018
12-20 October 2018

Are you a #DisabilityGameChanger?
Scope | The fight for equality |  11 October 2018

#ArthritisAwareness  #WorldArthritisDay
Arthritis Foundation | You Can Make a Difference |  8 October 2019

Arthritis Foundation | Arthritis Therapies That Work | 9 October 2018

Digital Health Digest | 11 October 2018

Patient Newsletter  | Be kinder to yourself this World Mental Health Day |  10 October 2018

Psych Central Newsletter |  Psych Central Daily | 
11 October 2018

FibroFlutters supporting eyeforpharma as #PatientAdvocates  #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine |  RARE Round-up  |  11 October 2018

Download your entry pack for the eyeforpharma 2019 Awards

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  11 October 2018

… Read More #chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

fibrofly73

#chronicillnessVOICE | 11 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

FibroFlutters supporting eyeforpharma as #PatientAdvocates  #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine |  RARE Round-up  |  11 October 2018

Our Neglect of Chronic Pain Has Left Many Without an Identity |Scott McKinney Ph.D  |  National Pain Report | 11 October 2018

Welcome to the Samaritans Monthly Newsletter |Samaritans | 5 October 2018 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

Navigator Tool| Pain Concern |  October 2018

Download your entry pack for the eyeforpharma 2019 Awards

News and articles via eyeforpharma – Newsletter by Adam Chapman
Editor, eyeforpharma | 28 September 2018

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  10 October 2018

… Read More #chronicillnessVOICE | 11 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

fibrofly73

#chronicillnessVOICE | 8 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Your weekly roundup of STAT’s First Opinion | STAT: First Opinion | 7 October 2018

Welcome to the Samaritans Monthly Newsletter |Samaritans | 5 October 2018 

Download your entry pack for the eyeforpharma 2019 Awards
Watch the Most Valuable Collaboration award video showcasing the collaboration between Allergan, SonarMD and Illinois Gastroenterology Group (IGG). Their project ‘IBS-D Patient Engagement Platform’,

News and articles via eyeforpharma – Newsletter by Adam Chapman
Editor, eyeforpharma | 28 September 2018

Your weekly update from EDS UK! | The Ehlers-Danlos Support UK | 5 October 2018 

Trigeminal Neuralgia – Why Awareness Is So Important | Elizabeth Sirrell  |  National Pain Report | 7 October 2018 

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  7 October 2018

… Read More #chronicillnessVOICE | 8 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

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#chronicillnessVOICE | 4 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Tincture Takeaways 30 September 2018

Fibromyalgia News Today Weekly Columns | 3 October 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

New research from Pain Concern on easing pain appointments | Pain Concern |  October 2018

MSWorld, Inc. | Latest from MSWorld, News, Events & More!  |  1 October 2018

Mayo Clinic Social Media Network | 1 October 2018

Relief newsletter 27 September | BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM

UPDATED LIST
paper.li newsletters have also My favourite health related paper.lis and they update themselves.   … Read More #chronicillnessVOICE | 4 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

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