PHARMA / SCIENCE / TECH / DIGITAL / AI


As an organisation we have been advocating for a multidisciplinary approach to all aspects of medical healthcare. In order for this to happen we must recognise that this includes the pharmaceutical industry, science and technology, digital health and artificial intelligence in medicine. PHARMA / SCIENCE / TECH / DIGITAL / AI is an important section to include on our site to reflect our commitment.

PHARMA / SCIENCE / TECH / DIGITAL / AI


Topics of importance >

drug development and clinical trials

medical devices and wearables

diagnostic technologies

data sharing

patient engagement

pharma – clinical – medical

connecting patients with HCP’s and clinicians

work towards patient-centred care

preventative medicine and also personalised medical care approaches

Market access / Patient access

AI in medicine and healthcare

med tech and health tech / digital health


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Disclaimer:

Please note that this section does include events and promotions for varying companies and organisations including product reviews, but there is no direct-selling. These types of partnerships that we have involve an exchange of service such as promotions, speaking opportunities, event tickets, product in exchange for review, or honorariums unless stated otherwise.

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The Pharmaceutical Marketing Group

The Pharmaceutical Marketing Group would like to invite you to visit their new Health and Life Sciences Directory website

Welcome to the Life Sciences Directories > Get listed today!

“The Guide is brought to you by The Pharmaceutical Marketing Group, a small boutique marketing agency. We established the first and largest professional pharma community of 200,000 members on LinkedIn.”


Patient Engagement

Patient Engagement Open Forum 2021

The Patient Engagement Open Forum is going online with a series of virtual events planned this year. A patient-centred environment for co-creation of solutions with and by all involved stakeholders to practice and advance patient engagement (PE).

https://patientengagementopenforum.org/

Registrations are open for the sessions on October 6 & 7

Register below

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Find all the information related to the event, sessions and speakers on
the global patient engagement map and network – Synapse.

For any queries, contact the PEOF 2021 team at info@peopenforum.org


Patient Engagement Day with Prime Patient – Did you miss it?

On the day there was a webinar discussion with Shona Davies and Laura McKeaveney. It was hosted by Emma Sutcliffe Senior Vice President, Patient Insights and Solutions at Prime Global. Together they discussed what it really takes to amplify the patient voice in healthcare.

Watch patient interviews with our CEO of Fibroflutters Carole Scrafton, Trishna Bharadia, BA(hons), MFPM(Hon), and Lynn Wilks who were all really honoured to participate.

The webinar and patient video links from Patient Engagement Day can be accessed in this post.

https://fibroflutters.com/2021/09/27/patient-engagement-day-with-prime-patient-did-you-miss-it/

https://primeglobalpeople.com/



Patient-Focused Drug Development: GUIDANCE DOCUMENT

Methods to Identify What Is Important to Patients Guidance for Industry, Food and Drug Administration Staff, and Other Stakeholders
OCTOBER 2019

Draft Level 1 Guidance
Not for implementation. Contains non-binding recommendations.

https://www.fda.gov/regulatory-information/search-fda-guidance-documents/patient-focused-drug-development-methods-identify-what-important-patients-guidance-industry-food-and


EUPATI: Patient Engagement Through Education

Providing patients with accessible and reliable information and training on medicines research and development and other therapeutic innovations. A patient-led partnership working across stakeholders to enhance patient engagement.

Learn more – https://eupati.eu/

EUPATI TOOLBOX

The Toolbox is organised in two main areas: Medicines R&D and Patient Engagement. You can also search by category or keyword. At the next stage you can also refine the search by “tags” (sub-categories). Key introductory topics are highlighted to help you begin to explore medicines research and development as well as patient engagement

https://toolbox.eupati.eu/


PARADIGM Patient Engagement Toolbox

https://imi-paradigm.eu/petoolbox/

This toolbox centralises all PARADIGM’s co-created recommendations, tools and relevant background information to make patient engagement in medicines development easier for all. Browse from the sections below for the tools you might need, hover over to see a quick preview and click on the tool to access all related resources. Let us know how you’ve used these tools, we’d love to know how they’ve helped you in your patient engagement activities!



EMJhttp://news.emjreviews.com/
Explore our dedicated COVID-19 pages

DAILY UPDATE on COVID-19 via EMJ > European Medical Journal on paper.li

http://news.emjreviews.com

EMJ reviews all of the breaking news from the major healthcare congresses across Europe and North- America. Subscribe for updates

NEW ISSUE OF GOLD OUT NOW!

Subscription is required

https://www.emg-gold.com/

European Medical Group LTD

 Gold & EMG-Health is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendation.


Pharma Science Tech Digital AI related articles on our site

Looking for a clinical trial? click above!

Clinical trial resources for patients


direct people to the website
Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!




Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Visit our About FibroFlutters page

Visit our Rare Disease Advocacy page for our rare disease advocacy arm – ZebraStrutters


FibroFlutters / ZebraStrutters:

We are a Patient Advocacy Organisation & online social media communications network. 

Our services are for people affected by chronic illnesses and rare disease. This includes patients, care providers, health professionals and those within the medical healthcare and life-science related industries. #notjustpatients.

Working to help develop, nurture, and help to create a multidisciplinary approach to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need.

With a focus on Ehler’s Danlos Syndromes, Pigmented Villonodular Synovitis, Fibromyalgia but, also, including musculoskeletal disorders and associated rare diseases.  There are over 300 undetermined musculoskeletal conditions with many of them causing high rates of work absenteeism and disability. 

The work we do

The work we do involves disease awareness, health awareness, and, helping to point people in the direction of where to get legitimate health communications and information. As well as this we attend events and use patient voice to get important messages to help create better systems and processes for patients.

Our efforts also include advocating for the need to improve patient engagement processes within the drug development process and research and development.  Hoping for the better development of therapies and treatments within the pharma, medical, and clinical environments. For instance, involving patients and teams of multi-stakeholders from across the health, medical and clinical research landscapes including academia and pharma.

Providing relevant health information from respected and reputed resources is important to ensure that people are educating themselves from proper places. A better way to provide support and relief to patients, their families, and their caregivers.  This also aids the advancement of public education by raising awareness of the need for multi-disciplined patient healthcare pathways, and access to care. Such ‘approaches’ which can help to change patients’ lives for the better by meeting their needs.

We advocate and encourage more efficient patient engagement practices with a view to the better development of therapies and treatments within the pharma, and clinical, environments. Working on projects and in partnerships, to enhance patient engagement, and speak at varying events to spread the mission of FibroFlutters.

Why we advocate for a multi-disciplined approach to our healthcare.

Patients with chronic and rare conditions are left to manage life with multiple chronic disorders and very little healthcare support. Usually, only getting to see one specialist at a time when the conditions run in line with each other sharing comorbidities etc.  We need our health looked at holistically and is why we advocate for a multi-disciplined approach to our healthcare.

For better treatments, products and patient healthcare we believe that the collaboration of minds from within pharma, medical, clinical and life-sciences can provide optimal results. Engage with patients and add the patient voice and results could be more than optimal!


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