May 12th International Fibromyalgia Awareness Day

Huge thank you to everyone that shows us their support it is truly appreciated. Please keep safe, remember to socially distance yourself even with a lessening of the lockdown pending we should be still keep prevention at the forefront of our minds.

Wishing you all wellness and less pain

Carole and the team

Includes other places around the #globe for #fibromyalgia #healthinformation and #resources

On this special day ‘International Fibromyalgia Awareness Day’, in 2014, FibroFlutters was born and today we celebrate our 6th Birthday, please help us to raise awareness.

Please support Fibromyalgia Action UK


Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.

Fibromyalgia Action UK (FMA UK) is a registered charity in England and Wales (1042582). A company limited by guarantee (SC492045).
Registered address: 12 Seedhill Road, 3007 Mile End Mill, Paisley, Renfrewshire, PA1 1JS

FibroFlutters continuously supporting

#BecomeFibroAware #fibromyalgia #May12th #chronicillness #ChronicPain #fightfibro

Early motto of FibroFlutters fighting for fibromyalgia awareness

Campaign postcard from 2016

Author FibroFlutters Logo are proud to be actively supporting the work of AIMed Embracing #AI in #Healthcare #Medicine.

FibroFlutters Information banner
FibroFlutters Information banner

We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms. 

SLOGAN: #chronicillnessVOICE for everyone #notjustpatients


  • We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
  • That this site uses google analytics to collect demographic information for content decision making purposes only and not to sell to 3rd parties.

Its A Doddle – Mapping the communities that care

By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.

SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019

Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!

Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.

FibroFlutters are continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. 
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!

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Please can you read our ‘Disclaimer’ & ‘Privacy’ notes. If you have any problems we are always open to discussion, just e-mail Carole

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

Fibro Fighting Fluffie Hugs
ME / CFS Awareness poster for May 12th 2017