Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome

Do have EDS or any other hypermobility syndrome?

Are you unsure about what the condition is or whether you may have it or not?

Would you like to know more about it?, for instance one of the main questions often asked…

… Why the Zebra?

The following link takes you to the charity website of Ehlers-Danlos Support UK (EDS UK)  Ehlers-Danlos Support UK .  It is a place for information and meeting others with the condition.

Taken from their About us Page
 
EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos syndrome. We aim to help them live a full, active and positive life.   Over 25 years later, we remain the only UK based charity that exclusively represents and supports people with all types of EDS.

The charity holds fundraising events to help towards research into EDS and also helps people learn to live with and manage their condition through providing relevant information in pamphlets and booklets, poster and fliers.  They also have a free helpline available to people with EDS, their families, friends and even carers and is run by a registered nurse with a specialist interest in EDS.
 
They survive solely on donations and fundraising and offer varying membership options, including free.
Contact information:

© Copyright 2004-2014 Ehlers-Danlos Support UK

Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
The Ehlers-Danlos Support UK is a Charity registered in England and Wales No. 1157027
Registered Company No. 8924646.


Featured image from onekind.org – zebra  amazing facts about zebras (nothing to do with EDS just zebras)



 

FibroFlutters Supporting EDS UK in Sunderland NE UK

Sign up for free membership and then look for us  >>>

www.ehlers-danlos.org/support/support-groups/

Your details will be passed  onto us and we will be in touch about meetings and events

 

 



 

Advertisements

One thought on “Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome

We'd like to know what you think...

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.