We don’t want you to miss > Real World Evidence Live: Rare Diseases and Innovative Therapies
Please Note that this event is now being held online
We hope that you will keep your calendars empty on 29–30 June because Real-World Evidence Live: Rare Diseases and Innovative Therapies is taking place!
At The Evidence Base, they’re getting ready for the inaugural #RWELive22 event coming live to London (UK) this June!
You won’t want to miss this innovative event that will convene #RWE experts to discuss accelerating patient-focused healthcare.
Join us and fellow healthcare stakeholders, including pharma, regulators, patient engagement groups, academics and more in discussing real-world evidence and its value in rare disease therapy development. Flutters and Strutters we are proud to be official media partners for this this event. (Read our disclaimer further down the post)
Real-World Evidence 2022: Rare Diseases and Innovative Therapies
The event will be presented by the Journal of Comparative Effectiveness Research and The Evidence Base®. Real-World Evidence 2022: Rare Diseases and Innovative Therapies will unite healthcare stakeholders to discuss and advance agile strategies for accelerating collaboration and patient focus in a post-COVID Europe.
An opportunity to listen and participate in all things real-world evidence, patient engagement, healthcare regulation and more. Don’t miss out on the panels, fishbowl discussions, presentations and other interesting talks set to take place over the 2 days.
The Evidence Base is a community site from Future Science Group covering the latest news, opinions and insights concerning the collection and application of real-world data to real-world problems.
PLEASE NOTE: This event was postponed from its original 2020 dates due to COVID-19. If you registered for the original event, your ticket will still be valid for the new 2022 dates and you do not need to re-register. If you have any questions, you can reach the events team at info@rwelive.com
Find out more and book your tickets here
Early bird prices end on 11th April
Please contact info@rwelive.com for current information regarding this event and the changes due to Covid. Thank you
Read this for a sneak peak at a few of the speakers
| Conference report: Real-World Evidence Live |
| Have you watched the Real-World Evidence Live: “Patients as stakeholders” Virtual series? We’ve picked some highlights from the mini-conference to convince you to sign up for the free newsletters today! Read all the best bits here >> By The Evidence Base |
Check out who are joining us as media partners for Real World Evidence Live in June
About Future Science Group
Founded in 2001, Future Science Group is a scientific publisher focused on breakthrough medical, biotechnological and scientific research. Originally, this meant publishing scholarly journals and eBooks – we publish 34 peer-reviewed journals and have published over 300 eBooks – focused on up-and-coming, hi-tech areas of science that touch medicine. Key titles include Epigenomics, Immunotherapy, Regenerative Medicine, Nanomedicine and the Journal of Comparative Effectiveness Research. Read more…
Disclaimer
At Flutters and Strutters we are proud to be official media partners for this this event and we look forward to meeting you there! It is a reciprocal arrangement with us receiving promotion in exchange for being a media partner. Our members are entitled to 15% of ticket prices. Contact me for further information if you would like to check you qualify for the special link.
Carole Scrafton
CEO / Co-Founder FibroFlutters and ZebraStrutters (soon to be Flutters and Strutters)
FibroFlutters Patient Advocacy Organisation for chronic / rare illnesses, a patient-driven and focused patient advocacy organisation that is for everyone #notjustpatients.
Connecting different stakeholders from across the industry and helping to develop, nurture and advocate for multidisciplinary / multi-stakeholder approaches to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need. Supporting clinical research, disease education and awareness through better medical and health communications.
Flutters and Strutters
FibroFlutters and ZebraStrutters
We are a Patient Advocacy Organisation & online social media communications network. Our services are for people affected by chronic illnesses and rare disease. This includes care providers, health professionals and those within the medical healthcare related industries. #notjustpatients
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
To help develop, nurture and help to create a multidisciplinary approach to all aspects of medical healthcare so that #chronicillness & #raredisease patients can receive the type of care and treatments that they need.
The work we do involves disease awareness, health awareness, and, helping to point people in the direction of where to get legitimate health communications and information. As well as this we attend events and use patient voice to get important messages to help create better systems and processes for patients.
Bridging the gap between stakeholders is a different type of awareness raising. It involves sharing events and campaigns by clinicians, pharmaceutical companies, patient led projects, healthcare providers… the list is quite variable. We have newsletters to ensue this which uses our slogan – #chronicillnessVOICE for everyone #notjustpatients
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