FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Link to website home page >>>  fibroflutters.com

FIBROFLUTTERS – CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY

 

FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC



Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

🙂


PLEASE NOTE:

  • That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.
  • Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.
  • FibroFlutters is not a selling site but we will point you in the direction to subscribe to newsletters/magazines and some offer free, some don’t! 
  • The opinions expressed on this blog represent the author’s own views and not necessarily those of FibroFlutters, fibrofly73 or any other author on this website. We encourage you to share your own views in the comments section.
  • FibroFlutters sharing these articles and posts does not necessarily mean endorsement of them, and we recommend that you check for validated sources and peer reviews.  It also does not mean that FibroFlutters are affiliated with anyone unless it is clearly stated.
  • Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.
  • Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links, or any external parties..
  • Always be aware of Internet security read website privacy policies and note that FibroFlutters  will not be held responsible for external websites though we can encourage them to respect your privacy.
  • Remember that buying products such as ‘cure-claiming’ remedies on-line can be a risky business and again FibroFlutters will not claim responsiblity for any loss or damage from third parties/third partie links or any external parties.

 

As a patient group run by patients, FibroFlutters takes your privacy seriously, and is committed to maintaining that privacy by protecting the confidentiality of your personal information to the fullest extent possible.

  • fibroflutters.com/ Privacy Policy
    • This privacy policy has been compiled to better serve those who are concerned with how their ‘Personally Identifiable Information’ (PII) is being used online. PII, as described in US privacy law and information security, is information that can be used on its own or with other information to identify, contact, or locate a single person, or to identify an individual in context. Please read our privacy policy carefully to get a clear understanding of how we collect, use, protect or otherwise handle your Personally Identifiable Information in accordance with our website.

 

PRIVACY POLICY: 

  • FibroFlutters as a group aside from WordPress is not a selling site we do not collect and store payment details, or personal information for any purpose.
  • FibroFlutters does not collect and store data other than contact and location (country) through Jetpack, and Mailchimp for e-news that you choose to subscribe to. Neither of which are displayed on the website.  These  highlighted companies have their own policies that you are advised to read.
  • FibroFlutters do not sell data to 3rd partie companies, though some 3rd partie companies might collect data through cookies when you visit the site, to guage customer/ visitor marketing insights for the user. FibroFlutters do not take responsibility for 3rd partie websites and their cookie collection in this instance, or related instances. 
  • All analytics are used for the sole purpose of improving the website and it’s content.  FibroFlutters use location (country) statistics to show where we need to pay attention to and to see where posts are most effective. 
  • We collect your name and e-mail address for e-newsletters via Mailchimp.
  • If you should wish your details to be removed from this post, or indeed any post within our ‘FibroFlutters’ website, we will do so, willingly, at your request.  Please mail Carole fibroflutters@gmail.com 
  • We may place “cookies” on your computer when you visit the site, or which are directed to us by virtue of your use of other sites. Cookies allow us to track your activities on the Site,  to identify other products and services that may be of interest to you, and to gather other usage information anonymously.
  • You may refuse to accept the “cookies,” but if you do so, your use of the Site may not be as complete and effective as it would be otherwise, and you may not be able to view some text, images, or other content, or access certain offerings or other products or services. For example, Google, as a third party vendor, may use cookies to serve ads on some Sites personalized to user activities. You may opt out of the use of those cookies according to Google’s ad and content network privacy policy.

 



FibroFlutters & Carole Scrafton’s (CEO) combined & Multi-channeled social media network

 



Our Main FB Page:  Fibro Flutters HQ > @FibroFlutters  >>>

 

Twitter  >>> 

  • Twitter – @scrufton73 >>> 
    • Carole’s account set up March 2014 for fibro campaigning on behalf of Charity FibroAction. 
    • Receives posts from fibroflutters.com, Fluffmeister’s FUNdraising Awareness Page & Linked In.
    • CEO & Founding Five Member, personal accounts
    • WordPress offers a sharing option to Twitter via an official Twitter sharing button.
  • Twitter  > @FibroFlutters >>> 
    • FibroFlutters Support Group for Fibro & Mental Health account set up April 2014 for Group Launch on May 12th International Awareness Day for Fibromyalgia, Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS)
      • FibroFlutters is now on 8 May 2018 – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
      • FIBROFLUTTERS – CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY
    • WordPress offers a sharing option to Twitter via an official Twitter sharing button.

 

Google Plus  >>>

  • Google+  > FibroFlutters >>> 
    • Set up April 2014 via FibroFlutters Google Mail.
    • WordPress offers a sharing option to Google Plus via an official Google Plus sharing button.

 

Goggle e-mail  >>>

 

Closed Facebook Group  >  Fibro Flutters Sunderland  >>>

  • Closed Facebook Group  >  Fibro Flutters Sunderland  >>> 
    • Closed Facebook group set up in Spring 2015 by a friend in who became my co-founder because she was promoting the group on Facebook for me. 
      • Is linked to FibroFlutters HQ Facebook main Page; Fluffmeister’s FUNdraising Awareness Facebook Page; and recently formed FibroFlutters – Mental Health Discussion Closed group on Facebook

 

fibroflutters.com ~ FibroFlutters WordPress blog/website  >>>

  • FibroFlutters  >  Website >>>
    • Set up May 2015 to mark May 12th International Awareness Day for Fibromyalgia, ME and CFS for my support group members to blog and share information as I wasn’t on Facebook for Mental health/social anxiety reasons.
    • Also, posts out to @FibroFlutters and @Scrufton73 on Twitter; FibroFlutters HQ on Facebook, FibroFlutters on Linked In; FibroFlutters and Carole Scrafton on Google+; plus, there is the Pinterest option for readers as well as in-house word pressing, or re-blogging.  Also, accessibility to YOU TUBE sharing.  Website is easily accessible from our pages, groups, sites etc

 

Linked In > @FibroFlutters  >>>

  • Linked In > @FibroFlutters  >>> 
    • Set up October 2015 for Pain Awareness Month . 
    • Accessibility via Twitter sharing facility plus FibroFlutters HQ on Facebook, fibroflutters.com, FibroFlutters Sunderland Closed group on Facebook.
    • WordPress offers a sharing option to Linked In via an official Linked In sharing button.

 

Pinterest: 

  • www.pinterest.co.uk/carolesian/
    • Personal account of Carole CEO of FibroFlutters that contains a FibroFlutters Pinning-Board accessible from most social media platforms including ‘WordPress‘ where we have the official sharing button.

 

Continuously being updated!



 

Please remember that all the platforms etc mentioned in the above notes and privacy policy for FibroFlutters, & it’s website here on WordPress ‘fibroflutters.com’, have their own privacy policies and disclaimers that can be easily found on their websites if not on this policy.

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73


 

Fluffie hugs YELLOW SMILEY

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