Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards… Read More Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

Do you live within the region of Chicago and work in the fields of cardiology? or radiology??…
… then these events may be of interest to you.… Read More Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

We need you to support ARMA during Bone and Joint Week 2018
12-20 October 2018

Are you a #DisabilityGameChanger?
Scope | The fight for equality |  11 October 2018

#ArthritisAwareness  #WorldArthritisDay
Arthritis Foundation | You Can Make a Difference |  8 October 2019

Arthritis Foundation | Arthritis Therapies That Work | 9 October 2018

Digital Health Digest | 11 October 2018

Patient Newsletter  | Be kinder to yourself this World Mental Health Day |  10 October 2018

Psych Central Newsletter |  Psych Central Daily | 
11 October 2018

FibroFlutters supporting eyeforpharma as #PatientAdvocates  #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine |  RARE Round-up  |  11 October 2018

Download your entry pack for the eyeforpharma 2019 Awards

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  11 October 2018

Read More #chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | 11 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

FibroFlutters supporting eyeforpharma as #PatientAdvocates  #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine |  RARE Round-up  |  11 October 2018

Our Neglect of Chronic Pain Has Left Many Without an Identity |Scott McKinney Ph.D  |  National Pain Report | 11 October 2018

Welcome to the Samaritans Monthly Newsletter |Samaritans | 5 October 2018 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

Navigator Tool| Pain Concern |  October 2018

Download your entry pack for the eyeforpharma 2019 Awards

News and articles via eyeforpharma – Newsletter by Adam Chapman
Editor, eyeforpharma | 28 September 2018

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  10 October 2018

Read More #chronicillnessVOICE | 11 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | 8 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Your weekly roundup of STAT’s First Opinion | STAT: First Opinion | 7 October 2018

Welcome to the Samaritans Monthly Newsletter |Samaritans | 5 October 2018 

Download your entry pack for the eyeforpharma 2019 Awards
Watch the Most Valuable Collaboration award video showcasing the collaboration between Allergan, SonarMD and Illinois Gastroenterology Group (IGG). Their project ‘IBS-D Patient Engagement Platform’,

News and articles via eyeforpharma – Newsletter by Adam Chapman
Editor, eyeforpharma | 28 September 2018

Your weekly update from EDS UK! | The Ehlers-Danlos Support UK | 5 October 2018 

Trigeminal Neuralgia – Why Awareness Is So Important | Elizabeth Sirrell  |  National Pain Report | 7 October 2018 

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

Neuroscience Newsletter |  7 October 2018

Read More #chronicillnessVOICE | 8 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients