After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints. … Read More Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.… Read More It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards… Read More Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards
These newsletters update themselves so please remember to check in, and / or remember to opt-in for the newsletters via the links provided. … Read More My favourite Health, Medical, Research, Patient & Pharma related PaperLi newsletters for everyone #notjustpatients | Self-Updating
Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes. … Read More My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
Pages: 1 2 3 4 5 6 Page 1
Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide.… Read More Freshly updated Selected Newsletters from News Medical
Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
Exploring the daily struggles of a chronic illness
Bringing Science to an Everyday Audience
Wellness for Every Body
My Life: Teaching, Acting and Living with MS
Living Life With A Physical Disability One Day At A Time
Celebrate a day in the life of #MedComms on 10 June 2020
This is the research blog of Dr Sally Pezaro. Sally is 'The Academic Midwife' working to secure excellence in teaching and maternity services. Specialist interests include maternity services, workforce and midwifery research.
an unobstructed view
Living with Fibromyalgia
Let's get you started! We’re here to help you learn about careers in MedComms and then, if you decide it’s of interest, to help you get your first job!
Inspiration is our vision as it is the key to success. This Blog is about Personality Development, SEO, Amazon Affiliate Marketing, Blog ideas, and photography.
Curated HealthIT news and insights from across the globe
Chronic illness lifestyle & honesty.
Fibromyalgia and Depression. Fighting the stigma attached to yet another illness not widely understood. We search for answers from the experts who are just searching for the answers themselves. We must take our lives back into our own hands!.... One step at a time... One day at a time!.... Because if you don't who will??
Innovations in Health Information from the Director of the U.S. National Library of Medicine
Stories from a narrow boat
Good LIVING through good HEALTH.
