#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

Sep 8, 2019Oct 31, 2019 fibrofly73

How Clinical Trials Are Evolving | CheckRare.com

In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com

Aug 27, 2019Oct 7, 2019 fibrofly73

I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”… Read More I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

Aug 12, 2019Oct 17, 2019 fibrofly733 Comments

Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!

The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves. … Read More Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!

Aug 10, 2019Oct 7, 2019 fibrofly73

What’s coming up? #pharma #patients @eyeforpharma? Take a look & see! (sponsored)

1 | 2 | 3 | 4 | 5 | 6 Page 1

Aug 3, 2019Oct 31, 2019 fibrofly73

#chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Read today’s issue via this link: https://nzzl.us/KvmvTRv Wishing you wellness as always ~ Carole Sian – Co-F Many thanks for reading and supporting… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Jul 26, 2019Oct 31, 2019 fibrofly73

Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

NEWLY ADDED!

Pulse Magazine | All things technology & health | Pulse Publishing

Fibro Warrior Weekly
Drunk Kitty aka Julie Ryan/ Counting My Spoons … Read More Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Jul 10, 2019Nov 12, 2019 fibrofly739 Comments

Get to know about AI in Medicine with ‘AI Med’

Who are AI Med? AI Med are a clinician led community exploring how AI can be used in Medicine and was founded in 2014 by Dr Anthony Chang. Founder AIMed Chang is Chief Artificial Intelligence Officer, Children’s Hospital of Orange County (CHOC) Chang is a practising paediatric cardiologist, CIIO at CHOC children’s and world-renowned expert on artificial… Read More Get to know about AI in Medicine with ‘AI Med’

Jul 6, 2019Sep 1, 2019 fibrofly73

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

Jul 1, 2019Jul 31, 2019 fibrofly732 Comments

Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

Do you live within the region of Chicago and work in the fields of cardiology? or radiology??…
… then these events may be of interest to you.… Read More Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

Jun 12, 2019Oct 31, 2019 fibrofly73

+ Add your own event Eventbrite

Friendly and charitable donations

Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Sweet Potato Pie Nov 21, 2019
With the perfect blend of spices and smooth texture, Sweet Potato Pie just might be your go-to pie this Thanksgiving. And yes, I do mean it may beat out the pumpkin pie! But, if you want the pumpkin pie, too, give my Pumpkin Slab Pie a try! Sweet Potato Pie Sweet Potato Pie has a lot of history to it. Recipes for this creamy and comforting pie have been arou […]
i am baker - Confections & Creations
Butter Pecan Cookies Nov 21, 2019
Loaded with roasted pecans and a soft, buttery flavor, Butter Pecan Cookies are a delicious treat that won’t last long! If you love pecans in your treats, you have to try my Ooey Gooey Pecan Pie Brownies. Butter Pecan Cookies Cookies have come a long way since the original chocolate chip cookie. Don’t get me wrong, I love a good chocolate chip cookie, but I […]
i am baker - Confections & Creations
Instant Pot Pesto Zuppa Toscana. Nov 21, 2019
Instant Pot Pesto Zuppa Toscana. This super simple Instant Pot Pesto Zuppa Toscana is the perfect cold-weather dinner…great for nights when I’m craving Italian, but want something warming too. Spicy Italian chicken sausage simmered in a creamy basil pesto broth with potatoes, kale, a little lemon, and even a little bacon. Finish each bowl off with a sprinkle […]
Half Baked Harvest by Tieghan.
Mayfair Salad Dressing – Better than Caeser Nov 21, 2019
Mayfair Salad Dressing has long been a favorite in St.Louis where it was the house salad dressing for the Mafair Hotel. Think of it as a better version of Caeser dressing. It is thick and creamy, encasing the ingredients so every bite includes the dressing. When Mike and I were very young (read that very, [...] The post Mayfair Salad Dressing – Better than […]
Pastries Like a Pro - Discover the art of pastry and baking
Overexpression of MYB in the skin induces alopecia and epidermal hyperplasia Nov 21, 2019
The skin homeostasis is controlled by a complex interplay between tightly regulated transcription factors and signaling pathways. MYB is a transcription factor expressed in hair follicle progenitor cells and found overexpressed in adnexal skin tumors. However, the biological consequences of deregulated MYB expression in the skin remain poorly understood. To […]
Journal of Investigative Dermatology
Blender Chocolate Mousse Nov 21, 2019
This recipe for Blender Chocolate Mousse will dispell any rumors that an exquisite French Chocolate Mousse is difficult to prepare! This out of the ordinary Easy Chocolate Mousse will delight chocolate lovers any day of the year! If you’ve been leery about making French Desserts, this mousse recipe will prove they’re not all complicated. This post was sponso […]
That Skinny Chick Can Bake - Where recipe magic happens...
Belated Veteran’s Day Tribute Nov 21, 2019
On Veteran’s Day last week, I bought a poppy from a veteran outside my grocery store, to help disabled veterans, and I thought, “I bet a lot of disabled veterans are affected by issues you can’t readily see.” Then I got taken down by this virus that’s still trying to hold me down, ...
Psych Central
Classic Pumpkin Pie with Chocolate Whip Nov 21, 2019
Friends it’s time. This is not a drill. It’s time to fill the fridge with soon-to-be leftovers and preheat the oven for pies! It has come to my attention that I don’t have a classic pumpkin pie recipe on Joy the Baker. I sure do have Pumpkin Pie Spice but left you with the spice and not the pie. My apologies though really, the Internet and our grandmother […]
Joy the Baker
Mindful walks for my mental health Nov 21, 2019
Tweet Photo by Jamie Street on Unsplash [IMG]Picture shows woman near brown dog they are sat on a log at sunset. Written above is the name of the blog and below the article title in orange against dark purple background[IMG] I think getting a more active dog has been such a blessing for me, I was not pushing myself and it was really affecting my mental healt […]
Blooming Mindfulness | Trying to live with Chronic Illness
Why I Haven’t Re-tested for Lyme Disease Nov 21, 2019
November 1st marked two years since I received a stem cell treatment known as Stromal Vascular Fraction (SVF). I had this treatment as part of the Lyme Disease program at the Infusio clinic in Frankfurt Though I still have my health challenges, treatment at Infusio has been life changing for me. I honestly feel as [...] The post Why I Haven’t Re-tested for L […]
February Stars | Living with Lyme disease & fibromyalgia