Newly Updated | My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73

NEWLY ADDED!

Pulse Magazine | All things technology & health | Pulse Publishing

Fibro Warrior Weekly
Drunk Kitty aka Julie Ryan/ Counting My Spoons … Read More Newly Updated | My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73

Jul 10, 2019Nov 12, 2019 fibrofly739 Comments

#chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed

In 2013 Chang initiated a series of meetings that examined the benefits, and limitations, of AI ‘for’ medicine. “These meetings, called AI in Medicine (AIMed), have been successful since then in creating a ‘friendly’ and ‘collaborative’ gathering of minds as well as an ‘intellectually stimulating’ opportunity to learn about AI in medicine and healthcare.… Read More #chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed

Jun 1, 2019Sep 2, 2019 fibrofly73

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Mar 10, 2019Sep 1, 2019 fibrofly73

Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Jan 28, 2019Sep 1, 2019 fibrofly73

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 12, 2018May 16, 2019 fibrofly73

#chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A belated newsletter due to technical issues with my broadband connection intermittently going off all the time!… Read More #chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 6, 2018Nov 6, 2018 fibrofly73

RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM

Headliner: Coming Together to Put Patients First in Headache Treatment | By Stephani Sutherland
Coming Together to Put Patients First in Headache Treatment… Read More RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM

Oct 31, 2018Feb 1, 2019 fibrofly73

New research from Pain Concern on easing pain appointments | Pain Concern | October 2018

Helping focus pain appointments with the Navigator Tool

This edition has been funded by funded by the Health and Social Care Alliance and Edinburgh and Lothians Health Foundation… Read More New research from Pain Concern on easing pain appointments | Pain Concern | October 2018

Oct 30, 2018Feb 1, 2019 fibrofly73

#chronicillnessVOICE | 12 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

We need you to support ARMA during Bone and Joint Week 2018
12-20 October 2018

Are you a #DisabilityGameChanger?
Scope | The fight for equality | 11 October 2018

#ArthritisAwareness #WorldArthritisDay
Arthritis Foundation | You Can Make a Difference | 8 October 2019

Arthritis Foundation | Arthritis Therapies That Work | 9 October 2018

Digital Health Digest | 11 October 2018

Patient Newsletter | Be kinder to yourself this World Mental Health Day | 10 October 2018

Psych Central Newsletter | Psych Central Daily |
11 October 2018

FibroFlutters supporting eyeforpharma as #PatientAdvocates #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine | RARE Round-up | 11 October 2018

Download your entry pack for the eyeforpharma 2019 Awards

Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018

Neuroscience Newsletter | 11 October 2018

Oct 12, 2018Oct 29, 2018 fibrofly73

#chronicillnessVOICE | 11 October 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

FibroFlutters supporting eyeforpharma as #PatientAdvocates #PatientVoice

Sharing some ‘WEGO’

Rare Revolution Magazine | RARE Round-up | 11 October 2018

Our Neglect of Chronic Pain Has Left Many Without an Identity |Scott McKinney Ph.D | National Pain Report | 11 October 2018

Welcome to the Samaritans Monthly Newsletter |Samaritans | 5 October 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance | October 2018

Navigator Tool| Pain Concern | October 2018

Download your entry pack for the eyeforpharma 2019 Awards

News and articles via eyeforpharma – Newsletter by Adam Chapman
Editor, eyeforpharma | 28 September 2018

Heart Matters | Fancy cauliflower cheese for dinner tonight? | 6 October 2018

Neuroscience Newsletter | 10 October 2018

Oct 11, 2018Oct 13, 2018 fibrofly73

+ Add your own event Eventbrite

Friendly and charitable donations

Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Chocolate Marshmallow Fudge Nov 12, 2019
If you’re short on time for prep and want an easy, rich chocolate treat, I’ve got you covered with this 3 ingredient Chocolate Marshmallow Fudge! When you need a quick gift or fun afternoon project with your kids, whip up a batch of this decadent, easy fudge recipe. (more…) The post Chocolate Marshmallow Fudge appeared first on That Skinny Chick Can Bake. […]
That Skinny Chick Can Bake - Where recipe magic happens...
Women with preeclampsia may be at greater risk for cardiac conditions later in life Nov 12, 2019
Women who have gestational hypertension or preeclampsia in at least one pregnancy will have higher cardiovascular risk than women without such a history, and that this elevated risk persists at least into their 60s.
Chronic Illness News | ScienceDaily
Dose of medication more likely to put patients with pemphigus into remission Nov 12, 2019
Researchers compare a lymphoma-dose regimen of rituximab to a rheumatoid arthritis regimen for the treatment of pemphigus.
Chronic Illness News | ScienceDaily
8th TFL bake, Nov 11, 2019. HWSW, Kamut, Chia & Vit C. Nov 12, 2019
8th TFL bake, Nov 11, 2019. HWSW, Kamut, Chia & Vit C. Submitted by idaveindy on November 11, 2019 - 7:32pm. 1:?? pm. Initial mix, no measuring, just by eye. Prairie Gold, Kamut, ground chia seed, 1/10th of a 500 mg vitamin C tablet, no salt yet. About 1.5 hours autolyse. 3:05 pm. Added 160 g of 100% hydration levain. Still no salt. 3:45 pm. Stretch an […]
The Fresh Loaf
When It’s Hard To Be True To Yourself, Remember These 8 Things Nov 12, 2019
“Sometimes when you’re in a dark place, you think you’ve been buried, but you’ve actually been planted.” ~Christine Caine The phrase “personal growth” has always felt counterintuitive to me. Personal growth feels less like growth and more like stripping away—of peeling back the expectations, fears, and shame that we’ve been conditioned with since birth. Bene […]
Tiny Buddha
The Ultimate Calorie, Portion, and Macro Calculator Nov 12, 2019
Do you want to lose weight? Gain muscle? Improve health? Boost performance? This free calorie, portion, and macro calculator from Precision Nutrition can help you achieve the results you want… more easily than ever before. Designed, developed, and tested in the Precision Nutrition research lab—and proven effective with thousands of clients—it’s the most comp […]
Precision Nutrition | Nutrition Coaching and Certification
Reverse phenotyping in patients with skin capillary malformations and mosaic GNAQ or GNA11 mutations defines a clinical spectrum with genotype-phenotype correlation Nov 12, 2019
Post-zygotic mutations in GNAQ/GNA11 genes encoding heterotrimeric G protein alpha subunits account for skin mosaic conditions with vascular or pigmentary anomalies (Shirley et al. 2013; Thomas et al. 2016; Couto et al. 2017; Siegel et al. 2018). We sought to delineate the phenotype of 32 patients with skin capillary malformations (CMs) harbouring an activat […]
Journal of Investigative Dermatology
Salted Double Chocolate Chewies from Midwest Made Nov 12, 2019
More on these cookies after you swoon with me over this cookbook! This fall has been filled with some gorgeous new cookbooks. Midwest Made: Big, Bold Baking from the Heartland by Shauna Sever is one of those gorgeous books. I've been a fan of Shauna's for ages now. She has several other cookbooks...you can find them here...I recommend all of them. […]
Bake at 350 by Bridget Edward
Cinnamon Cream Cheese Frosting Nov 12, 2019
Cinnamon cream cheese frosting is wonderful on so many different cakes and cupcakes. Cream cheese frosting in general is a favorite around here, but the warmth of cinnamon makes it even more special. Tips for the Best Cinnamon Cream Cheese Frosting Use cinnamon that smells fresh and aromatic. Some recipes call for specific types of cinnamon. I’ve made this r […]
Cupcake Project: An Experimental Baking Blog
Biomarker blood test could reveal high risk heart patients in need of treatment Nov 11, 2019
Preventive cardiology researchers believe that a new blood test for protein biomarkers could identify early stage heart disease in people.
Chronic Illness News | ScienceDaily

A place of serenity by the pool

… forget about the world and spend some time on yourself

Who would you like to sit and chat with?

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Guide yourself down the path to the…?

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

A scented garden to take your mind on a soothing aromatic journey.

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Great place for sound imagery, hear the watery echoes

StillnessSpeaks.com

What will you find if you wander through the gate

An image to guide your mind to anywhere whilst laying on the beach

Fantasy land

Feel the stillness and breathe long and deep

A picture for using your imagination to take you on a peaceful journey

An eye into the unknown

FibroFlutters ChronicInvisibleRare Illness Support

Patient * Health * Research * Pharma * Advocacy

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