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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Treatments and Therapies

All things related to the treatments and therapies regarding the management of chronic illnesses.

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Article via: MashableUk (Tech) - This speedy hands-free wheelchair was built out of Segway parts
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EDS, JHS, Hypermobility & HSD’s News and info

Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
EDS reclassification as of 15th March 2017 – FibroFlutters INFO POST FibroFlutters INFO POST
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
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Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com

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ME / CFS Awareness poster for May 12th 2017

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Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Calendar of posts

June 2023
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Well, I am allegedly heading to London 🤣🤣🤣

Earlier in the year I made a decision to take some learning relating to mental health. An attempt at boosting my credibility regarding mental health running Flutters and Strutters mental health community.

It's always great to meet up with friends when I go to London.

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Delicious and Easy Shrimp Spring Rolls Recipe June 1, 2023
Spring rolls are a popular dish in Asian cuisine, and they’re surprisingly easy to make at home! In this recipe, we’ll be making shrimp spring rolls, which are filled with succulent shrimp and fresh vegetables. The rolls are then fried to perfection and serv..
Better Baking Bible
Substance Use Among Adolescents and Young Adults June 1, 2023
In this CME, check out best practices for screening and treating adolescents and young adults with substance use issues.
Psychiatric Times
Top 10 Human-Centered Change & Innovation Articles of May 2023 June 1, 2023
Drum roll please… At the beginning of each month, we will profile the ten articles from the previous month that generated the most traffic to Human-Centered Change & Innovation. Did your favorite make the cut? But enough delay, here are May’s ten most popu..
Innovation Excellence
My Third Recipe Book! June 1, 2023
Introducing… MY THIRD BOOK! Here is my brand new book “Jane’s Patisserie Everyday” which is out August 3rd 2023, and available to pre-order NOW!!! This book features simple treats, fool-proof cakes and savoury bakes for your every day such as… cornflake brown..
Jane&#39;s Patisserie
The 16 best recipes to bake in June: Strawberry Cheesecake Cupcakes, Grilled Calzones, Monster Cookies, and more. June 1, 2023
It’s finally summer, which means it’s time to reacquaint yourself with the simple pleasures of warm-weather baking. This includes fresh, juicy fruits to play with, recipes that require firing up the grill, and some new picnic must-haves. So put on your apron,..
King Arthur Baking Blog
Cafeteria Chili June 1, 2023
This Cafeteria Chili is guaranteed to take you back to your school days! It fills your belly and warms your soul. Made with affordable pantry staple ingredients, this dish is always a hit with young and old alike! A NOSTALGIC DISH FROM YOUR CHILDHOOD Look, I ..
The Country Cook
Blueberry Scones June 1, 2023
These quick and easy blueberry scones are sure to be a repeat favorite for a morning treat, an afternoon snack, or just for a simple indulgence. Plenty of fresh blueberries provide these beauties with wonderful flavor! No-Fuss Blueberry Scones Scones are one ..
Bake or Break
10 Effective Remedies for Chigger Bites (You Have at Home) June 1, 2023
Chiggers, along with lice, are some of our least favorite creatures. Imagine there was a tiny monster in the same family as scorpions and spiders. It was so tiny, in fact, that you could barely see it without a microscope. Yet, this tiny creature was capable ..
Blog – Wellness Mama
How I Stopped Worrying About What Others Think of Me June 1, 2023
“Live your life for you not for anyone else. Don’t let the fear of being judged, rejected or disliked stop you from being yourself.” ~Sonya Parker On August 4, 2022, I buzzed off my long, thick, luscious hair. I marched up Sandy Boulevard in Portland, Oregon,..
Tiny Buddha
The Many Dimensions of Consciousness June 1, 2023
Consciousness is still mysterious and hard to describe and measure. One of the reasons is that it involves many different dimensions. Here we look at two of the main ones.
Psychology Today | Neuroscience

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

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Well, I am allegedly heading to London 🤣🤣🤣

Earlier in the year I made a decision to take some learning relating to mental health. An attempt at boosting my credibility regarding mental health running Flutters and Strutters mental health community.

It's always great to meet up with friends when I go to London.

Picture Gallery

What will you find if you wander through the gate

StillnessSpeaks.com

A picture for using your imagination to take you on a peaceful journey

Fantasy land

… forget about the world and spend some time on yourself

An eye into the unknown

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

A scented garden to take your mind on a soothing aromatic journey.

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Feel the stillness and breathe long and deep

Who would you like to sit and chat with?

Great place for sound imagery, hear the watery echoes

Guide yourself down the path to the…?

A place of serenity by the pool

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

An image to guide your mind to anywhere whilst laying on the beach

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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