Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: June 2019
Many thanks for taking a look and if you enjoy the content please can you share it with your peers and colleagues.
It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources
Suicide prevention research recognised in the ‘Nation’s Lifesavers List’
Support research commissioned by Samaritans by taking part in an online survey investigating how people react when they meet people who are in distress or are suicidal.… Read More Welcome to the Samaritans Monthly Newsletter | Samaritans | May 2019
Gluten-Free Noodles Made from Fish? Believe it!
Top 12 Symptoms of Celiac Disease
Gluten Challenge? CCA Position Statement
Risk Factors for Developing CD in Genetically Predisposed Children… Read More Ellen Bayens | The Celiac Scene News | Issue: May 2019
Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.
Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review
I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.
… Read More The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Read the article, via the link button below, to gain perspectives from
Jen Horonjeff and Carole Scrafton as they give us their appraisals regarding how patient centricity appears to show a huge gap between ‘patient compliance’ and ‘patient experience’.… Read More Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019