After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints. … Read More Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.… Read More It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
Chronic Pain management can be a really difficult thing to master, please don’t give up as it can take time, perseverance and a lot of positive attitude until you find your balance with it.… Read More Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
Family and friends are very often the primary caregivers for patients with cancer, despite not being paid or having any formal training, and can commonly experience sadness, anxiety, fatigue and sl… Source: Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
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Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards… Read More Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards
These newsletters update themselves so please remember to check in, and / or remember to opt-in for the newsletters via the links provided. … Read More My favourite Health, Medical, Research, Patient & Pharma related PaperLi newsletters for everyone #notjustpatients | Self-Updating
Yet the caregiver’s role in delivering patient care is often underappreciated – their insight overlooked.
It’s time this ended.… Read More The Caregiver and Patient Support Programme | FREE webinar | Reuters Pharma – formerly eyeforpharma
A flavoursome creamy chilli that is not too hot and which the whole family will love… Read More Sweet potato and spinach chilli recipe | Patient