I'm a 40 something AWARENESS CAMPAIGNER and ADVOCATE FOR: Fibromyalgia – FMAUK (Fibromyalgia Action UK) Ehler’s Danlos Syndrome & Hypermobility Syndrome - HMSA (Hypermobility Syndrome Association) Mental Health – Mind, Time for Change, ReThink Mental Illness, many others ME/CFS – British Skin Foundation & many other Chronic & Invisible Illness, Chronic Pain disorders I have lived with 20+ yrs of chronic pain and dislocations with a long history of being told there was nothing wrong with me…. See the list now! I have experienced many good things, and, many bad things in life but I do aim to look forward, be positive and not look back. I won't let any of it beat me if I can help it.  My primary illness to the Fibromyalgia is Hypermobility Syndrome (HMS/EDS )  Other illnesses include CFS, Arthralgia, varying skin disorders including Palm & Sole Psoriatic Eczema, IBS, Allodynia, Hyperalgesia, Anxiety/Depression and a very long list of others such as symptoms that are illnesses themselves and their symptoms.  I also have vertigo passed down from my Grandfather which likes to play rough at times and that can be really frustrating and like walking on marshmallows, ok when in the house but not outside. I can’t drive my power chair either when my balance and co-ordination are so out of whack. Imagine the carnage.  My mobility is poor and I use a power chair to get out and about and varying disability aids.  I’m married but not blessed with children so I love small furry animals and have bred Russian Steppe Lemmings before which was hard work but very worth the efforts, sweet little things. I now keep Roborwski hamsters but they’re old so possibly not for long – (sad face)  I rattle when I walk.  I enjoy dining out and going places when I’m fit enough  I have a degree with honours in Glass Architectural glass and ceramics and a Business Masters MBS with honours after passing with Distinction.  I am also co-founder, with my friend Vicky, of FibroFlutters that is a support group for people with Fibromyalgia ( FM/FMS ), & many other associated illnesses like Chronic Fatigue Syndrome ( CFS ) & ME ( Myalgic Encephalomyelitis ),  We made the move to incorporate other Chronic & Invisible Illnesses such as EDS & HMS ( Ehlers-Danlos syndrome / Hypermobility Syndrome), because as co-founders both Vicky and I both have different types of EDS. Also, Fibromyalgia is a chronic pain disorder so we decided that we shouldn’t exclude other Chronic pain disorders either, or, all other related illnesses such as Gastric conditions like IBS, Mental Health needs for Anxiety & Depression, Gynae related conditions such as Endometriosis. Plus a long list others such as skin conditions too and inflammatory diseases like Psoriasis, after realising we need a multidisciplinary approach to our treatment, so, it made sense to be able to discuss all of our illnesses at group not just Fibromyalgia, which, usually, is not a patient’s Primary Illness. I advocate for the Mental Health Mind Charity, especially my local one in Sunderland, Tyne & Wear, UK because they have helped me to learn how to live with my chronic anxiety & depression and provide a level of support that cannot be doubted or forgotten. They are still there for me today, and it was them that helped me to gain the courage to set up the group because many fibromyalgia patients have anxiety and depression problems and seek their advice about support groups. There are a good number of people in Sunderland with Fibromyalgia actually and it shocked me to be honest in the beginning. At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK, this is because even though there were only 4 of us we spanned 3 counties LOL We now have 2 offspring groups as well in Tee-side, which is also fabulous and down to my right hand man over there in Tee-side who has been working very hard networking and creating those groups. It is too far for members to travel to our meetings so they can now have their own meetings but with the benefits of us as a Mothership to provide info etc. Anyhow, FibroAction and Fibromyalgia UK (fmauk) merged and became Fibromyalgia Action (FMAUK) Uk so we now have 3 sister groups who we are working alongside in order to begin campaigning at a regional capacity for Fibromyalgia. As a unity of voice we will be louder. :-) ‘If you’re feeling blue then fluffie cuddles are for you’ – Fluffmeister Extroadinnaire o A post I wrote on a Community Forum that ended up creating a fictional yet lovable character who dishes out fluffie hugs to people that need them. Fluffmeister had friends, and many adventures were had, and games played. o My alter ego developed after realising hugging is actually quite painful for fibromyalgia patients due to the hypersensitivity yo pain, so giving fluffie hugs was going to be more comfortable. Fluffmeister began life on a HealthUnlocked Forum that I no longer participate in, but, she still lives on Facebook and Twitter and well everywhere tbh. o Fluffmeister Arts is my Artist name for the campaign posters and posts that I produce, and now also Flufferbies designed in accordance to Charity/Group/person’s choice of colours and/or tied to the colours in the logos. o If I can make at least one person a day smile then I am happy.