Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September

Wolfram Syndrome is a rare genetic disorder which is also known as DIDMOAD syndrome after its four most common features: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy and Deafness… Read More Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September

Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!

Chronic Pain management can be a really difficult thing to master, please don’t give up as it can take time, perseverance and a lot of positive attitude until you find your balance with it.… Read More Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!

My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes. … Read More My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

May is Ehlers-Danlos Syndrome Awareness Month

May 12th International Fibromyalgia Awareness Day

Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day

Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.

Knowing the differences between conditions that share so many symptom similarities makes it easier to understand the condition that you have, and also means you can work with your health care providers to create the most suitable management plan for you to cope living with it.… Read More Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.

Heart Matters  |  Fancy cauliflower cheese for dinner tonight? |  6 October 2018

#HeartHealth  #Heartmatters  #Heart  #cardiology #cardiac #healthy #lifestyle FibroFlutters supporting British Heart Foundation & #CardiacHealth (unaffiliated)

May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

September is Pain Awareness Month

90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts
THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY… Read More CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

Acceptance is often viewed as a grieving process, which is a great way to look at it because we do mourn our old lives from when we were fit and agile.

It can be a very emotional and anxious time because our lives need to change in so many ways so that we can adapt them to what our illnesses will allow us do. We do mourn the losses of our independence, mobility, social contact and possibly even our jobs / livelihoods.… Read More Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton