It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.… Read More It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope