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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Month: January 2017

SOME NEW #BLOG #AWARDS – THE “2016 ‘BM’ BLOG AWARDS”…

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January 22, 2017January 12, 2018 fibrofly73

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RAREfest22 - At the forefront of this event are the patients themselves!
International Fibromyalgia Awareness Day - Happy 8th Birthday to FibroFlutters
Redevelopment and rebranding underway at Flutters and Strutters
Real World Evidence Live: Rare Diseases & Innovative Therapies
My experience - First face-to-face event in 2 years!
Patient Engagement Day with Prime Patient - Did you miss it?

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FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

FibroFlutters makes into top 10 Fibro blogs by FEEDSPOT

EDS, JHS, Hypermobility & HSD’s News and info

Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
NHS Choices – Joint hypermobility syndrome NHS Choices – Joint hypermobility syndrome – Information pages
Link to @FibroFlutters TWITTER
Oh TWIST Blog about EDS and HSD’s

Random images

ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

Fight or Flight?

Calendar of posts

January 2017
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16	17	18	19	20	21	22
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30	31

« Oct Feb »

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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The C3 Summit was a fantastic event and TransPerfect LifeSciences were the most amazing hosts.

More pictures from Tuesday evening of mojito's and fun!

Dinner out with these two funny people last night was a real hoot!!

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Danish Loaf September 28, 2023
Danish Loaf Submitted by Benito on September 27, 2023 - 12:29pm. I’ve been wanting to try baking this style of bread for some time, but just couldn’t get my nerve up to trying it. Despite its name, it seems that it is really an Asian style of bread. I’m gue..
The Fresh Loaf
Facebook Live: Youth Suicide Prevention September 28, 2023
In recognition of National Suicide Prevention Awareness Month in September, NIMH hosted a Facebook Live event on youth suicide prevention.
National Institute of Mental Health (NIMH)
Facebook Live: Youth Suicide Prevention September 28, 2023
In recognition of National Suicide Prevention Awareness Month in September, the National Institute of Mental Health (NIMH) hosted a Facebook Live event on youth suicide prevention.
National Institute of Mental Health (NIMH)
Crock Pot Honey Garlic Meatballs September 27, 2023
Tender meatballs simmered in a sweet and savory sauce and all made in the slow cooker. This viral Tik Tok recipe for Crock Pot Honey Garlic Meatballs are perfect as an appetizer or dinner! ANOTHER DELICIOUS VIRAL TIKTOK RECIPE See what all the fuss is about w..
The Country Cook
696: 5 Keys to Raising Kids for a Lifetime of Physical and Mental Health With Dr. Brian Stenzler September 27, 2023
I’m talking with Dr. Brian Stenzler today, the bestselling author of D.R.E.A.M Wellness: The 5 Keys to Raising Kids for a Lifetime of Physical and Mental Health. He’s also the co-founder of D.R.E.A.M Wellness and he’s owned and operated multiple wellness cent..
Blog – Wellness Mama
The Slc45a4 gene regulates pigmentation in a manner distinct from that of the OCA4 gene Slc45a2 September 27, 2023
Though sucrose is not detected in human body fluids and cells, putative sucrose transporters are conserved. They are classified as the solute carrier 45 A (SLC45A) family, which is constituted by four members, namely SLC45A1, 2, 3 and 4 (Vitavska and Wieczorek..
Journal of Investigative Dermatology
Melatonin protects K15+ human hair follicle stem cells and hair matrix keratinocytes against paclitaxel-induced damage ex vivo September 27, 2023
Chemotherapy-induced alopecia (CIA) consistently ranks amongst the most distressing adverse effects of cancer therapy, especially when this hair loss becomes permanent (pCIA) (Dua et al. 2017; Freites-Martinez et al. 2019a; Özüsağlam and Can 2021; Paterson et ..
Journal of Investigative Dermatology
Apple Sticky Buns September 27, 2023
Whether you’re craving a comforting fall morning breakfast or a sweet indulgence for dessert, these Apple Sticky Buns have got you covered. While we often associate certain ingredients and recipes with specific seasons – such…
Sprinkle Bakes by Heather Baird
Creamy Chicken and Wild Rice Soup September 27, 2023
Creamy chicken & wild rice soup: Easy to make in just one pot, and so comforting! Chock-full of chicken, veggies, and hearty wild rice. (more…) ..
Baking A Moment
Do Clothes Make the Psychiatrist? September 27, 2023
What's the psychiatry dress code?
Psychiatric Times

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

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The C3 Summit was a fantastic event and TransPerfect LifeSciences were the most amazing hosts.

More pictures from Tuesday evening of mojito's and fun!

Dinner out with these two funny people last night was a real hoot!!

Picture Gallery

An eye into the unknown

Feel the stillness and breathe long and deep

Great place for sound imagery, hear the watery echoes

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Fantasy land

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

A place of serenity by the pool

Guide yourself down the path to the…?

An image to guide your mind to anywhere whilst laying on the beach

Who would you like to sit and chat with?

What will you find if you wander through the gate

StillnessSpeaks.com

… forget about the world and spend some time on yourself

A scented garden to take your mind on a soothing aromatic journey.

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

A picture for using your imagination to take you on a peaceful journey

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

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Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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