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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Month: January 2017

SOME NEW #BLOG #AWARDS – THE “2016 ‘BM’ BLOG AWARDS”…

Many thanks for the accolade

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January 22, 2017January 12, 2018 fibrofly73

Our Partners

Looking for a clinical trial? click above!

Clinical trial resources for patients

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Working towards meeting the needs of the patient organisation by providing low cost services and data governance so that they can own their own data. Jeeva for patients / Jeeva for researchers

Ataxia is raredisease affecting Balance Speech and Coordination. Ataxia and Me are “Patients Helping Patients”

The #chronicillnessVOICE Daily

The #chronicillnessVOICE DailyRead our daily news – for #patients #health #medical #pharma #research related newsletter for everyone #notjustpatients’

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Look at us on this chronic illness related community 'aDoddle Map' for groups, charities and related organisations to help locate each other!
Pigmented Villonodular Synovitis (PVNS) our Co-Founder's patient experience with ultra rare disease. #dazzle4rare2020

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FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

FibroFlutters makes into top 10 Fibro blogs by FEEDSPOT

EDS, JHS, Hypermobility & HSD’s News and info

NHS Choices – Joint hypermobility syndrome NHS Choices – Joint hypermobility syndrome – Information pages
Autonomic nervous system WRITTEN BY: The Editors of Encyclopædia Britannica – Information Pages
EDS reclassification as of 15th March 2017 – FibroFlutters INFO POST FibroFlutters INFO POST
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page

Random images

ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

Fight or Flight?

Calendar of posts

January 2017
M	T	W	T	F	S	S
						1
2	3	4	5	6	7	8
9	10	11	12	13	14	15
16	17	18	19	20	21	22
23	24	25	26	27	28	29
30	31

« Oct Feb »

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Friendly and charitable donations

Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Happy St Patrick's Day

Homemade chicken n veg soup, yes, made in the crockpot. Served with wholemeal and rye sourdough bread

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Bakery Style Pistachio Pudding Muffins March 22, 2023
These pistachio pudding muffins have a secret ingredient to make them extra fluffy and moist: instant pistachio pudding mix! When fresh the muffins have a large crispy top that make them look like they come from a professional bakery. Grab the recipe in the p..
hummingbird high
Vanilla, Pistachio and Strawberry Mini Loaf Cakes March 22, 2023
These Vanilla Pistachio and Strawberry Mini Loaf Cakes are a great choice for entertaining. The easy to make cakes have a buttermilk and vanilla base, and they are studded with chopped pistachios and strawberries. I used freeze dried strawberries in these cak..
Baking Bites by Nicole Weston
Do you have what it takes to be a great Director of Strategic Partnerships? March 22, 2023
Becoming a great director of strategic partnerships is no easy feat. Becoming a director of any kind is a challenge in itself but directing strategic partnerships is a unique role that requires a particular combination of skills, experience, and personality t..
HYPE
Roasted Chickpea & Veggie Bowls with Green Tahini Sauce March 22, 2023
A nourishing, flavorful bowl that comes together fast with minimal cleanup? That’s our kind of meal! These Mediterranean-inspired veggie bowls combine spicy roasted chickpeas, vibrant roasted veggies, and optional grains with an herby green tahini sauce. Prep..
Minimalist Baker
Red Velvet Chocolate Chip Cheesecake Bars March 22, 2023
My red velvet obsession has extended once again; this time, I can’t stop thinking about these red velvet cheesecake bars! With a thick, cakey crust and rich creamy topping, these easy treats will fulfill your red velvet craving without costing you the time an..
Crazy for Crust
CRYSTALS FOR ENERGY AND NOT JUST TO LOOK PRETTY… March 22, 2023
Crystals are decorative, fascinating gemstones and come in all shapes and sizes. They have magical powers and properties. They generate, store, regulate, transmit and transform energy. It is a holistic therapy that has been used throughout ancient times for p..
Backpainbloguk.com
Creamy Sun-Dried Tomato Pasta with Melted Burrata. March 22, 2023
Creamy Sun-Dried Tomato Pasta with Melted Burrata. Hot creamy pasta tossed with burrata cheese...an all-in-one dinner that everyone loves! READ: Creamy Sun-Dried Tomato Pasta with Melted Burrata. ..
Half Baked Harvest by Tieghan.
Wearable microscopes advance spinal cord imaging in mice March 22, 2023
Scientists have created wearable microscopes to enable unprecedented insight into the signaling patterns that occur within the spinal cords of mice. This technological advancement will help researchers better understand the neural basis of sensations and movem..
ScienceDaily » Chronic Illness News
Obesity risk may pass from mothers to daughters March 22, 2023
Women with obesity may share risk for the disease with their daughters, but not their sons, according to a new study.
ScienceDaily » Chronic Illness News
T Cells Remember SARS-CoV-2 in Rituximab-Treated Pemphigus Vulgaris March 22, 2023
Pemphigus vulgaris affects approximately 0.1 and 0.5 per 100,000 people per year (Langan et al., 2008); it has a striking morbidity and mortality reported as high as 5% in recent cohort studies (Uzun et al., 2006). There is no sex predominance, and the mean ag..
Journal of Investigative Dermatology

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

FibroFlutters HQ FB Page

FibroFlutters HQ FB Page

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Happy St Patrick's Day

Homemade chicken n veg soup, yes, made in the crockpot. Served with wholemeal and rye sourdough bread

Picture Gallery

Great place for sound imagery, hear the watery echoes

A picture for using your imagination to take you on a peaceful journey

Fantasy land

Feel the stillness and breathe long and deep

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

An image to guide your mind to anywhere whilst laying on the beach

Guide yourself down the path to the…?

What will you find if you wander through the gate

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

StillnessSpeaks.com

An eye into the unknown

A place of serenity by the pool

… forget about the world and spend some time on yourself

A scented garden to take your mind on a soothing aromatic journey.

Who would you like to sit and chat with?

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Category Cloud

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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