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    • CLINICAL TRIALS NEXUS EUROPE – Digital Event November 26-27th
    • Top 10 Self-Help Tips for Back Pain and Fibromyalgia Sufferers | Nichola Adams, Health Ergonomist
    • Call for action: As patients and HCP’s please give your input on patient information leaflets (PIL) and medicine guides
    • There’s still time to REGISTER for this conference on RARE DISEASE AND ORPHAN DRUGS 1 – 2 October
    • Are you aware of this #Rare? Today is International Ataxia Awareness Day.
    • Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
    • Freshly updated Selected Newsletters from News Medical
    • HOME – Categories
    • Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
    • It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
    • Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
    • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
    • Take a look at what NHS events Convenzis have coming up!
    • Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
    • ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
    • healtheo360 Join a ‘PATIENT’ community and share your story!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
    • FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018
  • CHRONIC BLOGGERS & SPOONIE TALK
    • Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
    • Our First Dog Show – Competing in Rally Obedience as a Handler with a Disability – The Invincible Summer
    • TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
    • Friend or foe!? Now, I’m being ‘passive-aggressive’, and deservedly so.
    • Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
    • Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
    • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • This Woman Was Fired for Using CBD Oil | By Jaime A. Heidel  |  I told you I was sick 3 September 2018
    • Spoonie Talk: Diagnosing Fibromyalgia by Fibro Files
    • MY FIRST HAND ACCOUNT OF HOW THE NHS IS STRUGGLING…
    • Do you blog about your Chronic Illness?
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO
    • Fibromyalgia / CFS / Anxiety & Depression / Invisible Illness: The viscious circle of ‘Catch 22’ & Setbacks versus Flares: Which is which?
    • Spoonie talk – What came first? Your pain?, or, your depression? | by Fibrofly73
    • Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
    • Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
  • PHARMA / SCIENCE / TECH / DIGITAL / AI
    • Pharma / Science / Tech / Digital / AI – Categories listing
    • New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
    • Get to know about AI in Medicine with ‘AI Med’
    • Continuing the discussion for successful translation of #AI into #clinicalradiology – AI Med
    • Guest content: Managing Diabetes: How Technology Can Help
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • Reuters Events (eyeforpharma) |Articles | Events | News
      • Almost there! Will you join us to talk about ‘Reaching patients and educating patients using agile social media strategies’​?
      • #COVID_19 won’t stop the #collaborating or #crossnetworking – JOIN US for FREE as eyeforpharma Philadelphia goes #Virtual
      • The Caregiver and Patient Support Programme | FREE webinar | Reuters Pharma – formerly eyeforpharma
      • Survey to produce a ‘state of the industry report’ | eyeforpharma
      • ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
      • A few articles you might have missed – eyeforpharma
      • The Digitome: a platform for enabling rapid decentralization, personalization and recruitment for clinical trials | eyeforpharma
      • Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019
      • Oh! the ‘im-patients’ of it all!
      • We’re all-a-flutter | Paul Simms Chairman of eyeforpharma  |  21 March 2018
  • Mental Health
    • MedicineNet ~ Newsletter |  Stages of Alcohol Use Disorder  |  30 August 2018
    • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
    • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
    • This Is Your Body On Anxiety
    • NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
    • How does our brain process fear? Study investigates | Medical News Today
  • Treatments and Therapies
    • Therapies and Treatments
      • How to Get Started with Essential Oils – Pink Fortitude, LLC
      • THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
      • Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
      • WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
      • Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
      • Hydrotherapy – Heaven or hell? Part Two – session one / week one
      • Product Review | Nrem Sleep System | Sponsored Post
  • Musculoskeletal
    • Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
    • MSK services survey – Please let us know what is happening locally | ARMA
    • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
    • DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018
    • Fibromyalgia & Chronic Pain
      • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
      • Fibro – What’s that? Find out here!
      • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
      • Fibromyalgia – What’s that? Find out where to find relevant information :-)
      • What are the Symptoms of Fibromyalgia? UPDATED POST
      • Fibromyalgia – Symptoms – NHS Choices
      • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
      • Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017
      • Questions and Answers About Fibromyalgia – Information resource | NIAMS
      • Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
      • Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
      • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
      • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
      • Central nervous system and Sympathetic Skin Response
      • Skin Rashes and Fibromyalgia Syndrome
    • EDS, JHS, HMS & all things collagen / connective-tissue
      • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
      • Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
      • Hypermobility disorders & EDS reclassification as of 15th March 2017
      • How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
      • Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
      • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
      • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
      • Central Sensitivity Syndromes – Difficult to Classify
      • I love to nap. Do you? |You may enjoy reading these – ‘Fibromyalgia: Need to Nap Increases as Symptoms Worsen’ & ‘Napping: the expert’s guide’
      • How does Chronic Illness / Pain affect your Sleeping Habits
  • The Chillout Lounge
    • The CHILLOUT LOUNGE
    • Alternative / Complementary Therapies & Treatments
      • Product Review: Cannacares CBD gel capsules, a food supplement to compliment your health management.
      • Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
      • Your Aromatherapy Guide  |  Jan Randall  | 14 April 2018
      • ‘OIL’ have you know!
        • Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
        • Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
        • INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
        • Are You in Chronic Stress Mode? Seastones natural therapies
        • Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
        • Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
        • Touch Heals
    • Relaxation Techniques
      • Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
      • Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
      • The Therapeutic Benefits of Gardening | By: Virgil Anderson
      • Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
      • Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
      • Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
      • Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
  • Newsletters/Papers/Magazines
    • My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
    • Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
  • Awareness campaigns
    • May is Ehlers-Danlos Syndrome Awareness Month
    • May 12th International Fibromyalgia Awareness Day
    • May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
    • FMAUK | Fighting for the freedom from Fibromyalgia
  • Research related readables
    • ARMA has a new #knowledgehub
    • Accessing specialist doctors faster after a brain injury
    • Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
    • Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH | July 1 2019
    • Somatic Symptom Disorder. Learn about this disorder. | Patient
    • Are you interested in #research? Would like to get more involved, or know what research is going on around you?
    • ARMA has a new #knowledgehub
    • You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018
    • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Food, drink and recipes
    • Sweet potato and spinach chilli recipe | Patient
    • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
    • Simple and easy Cauliflower English Muffins.
    • Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
    • Ellen Bayens | The Celiac Scene News | Issue: August 2019
    • Patient Newsletter  |  Subject:  The best foods for fighting skin problems | 11 July 2018
    • Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
    • 10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
    • Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
  • The hints and tips station
    • How to sleep when pregnant: Best positions and sleep aids
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
    • Live Better with Rheumatoid Arthritis  |  Arthritis Foundation 
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • HOW TO KEEP A PAIN DIARY (free download)…
    • THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
    • How to employ your own Personal Assistant (PA)
    • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
    • Spoonie Talk by Jaime A. Heidel: I Told You I Was Sick » How to Treat a Person With Chronic Illness – A Step-By-Step Guide
  • FibroFlutters Sunderland ~ HOME news
    • Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
    • It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
    • About Us
    • Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards
    • I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jensen from There is Always Hope
    • Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
    • May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • FibroFlutters celebrates being one of the Top-10 Best UK Fibromyalgia Blogs via Feedspot
    • FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness
    • Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients
    • HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000
    • At last! I’m finally back online.
  • SoMe Patient Platforms
    • healtheo360 Join a ‘PATIENT’ community and share your story!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
    • Are you a ‘SAVVY’ patient? come and check it out!
    • Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
    • RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
    • New Patient platform! patient-patient registry
    • Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
  • @FibroFlutters on Twitter – Global Community Patient Organisation – Public
  • FibroFlutters (Sunderland & NE UK) on FACEBOOK ~ Closed Discussion Group
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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Day: Jun 16, 2015

My Illness is NOT a Secret. But why should I explain it to you?

Originally posted on The Be Kind Times:
This is a photo of me… photo-shopped to make me grey and invisible, as that is how I am feeling right at this moment.  My illness is invisible, however I am not, and this seemingly gives people the right to ridicule me in public, it’s not fair and…

Jun 16, 2015Jun 5, 2017 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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The #chronicillnessVOICE Daily

The #chronicillnessVOICE DailyRead our daily news – for #patients #health #medical #pharma #research related newsletter for everyone #notjustpatients’

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Please endorse us / Carole for this award, many thanks and wishing you wellness

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Popular Posts

  • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
    Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
  • Serenely Sunday | A Meander through the Meadow | #NationalMeadowDay
    Serenely Sunday | A Meander through the Meadow | #NationalMeadowDay
  • My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
    My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
  • Fibromyalgia News Today Weekly Digest  |  13 August 2018
    Fibromyalgia News Today Weekly Digest  |  13 August 2018
  • My favourite Health, Medical, Research, Patient & Pharma related PaperLi newsletters for everyone #notjustpatients | Self-Updating
    My favourite Health, Medical, Research, Patient & Pharma related PaperLi newsletters for everyone #notjustpatients | Self-Updating
  • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
    Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!

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EDS, JHS, Hypermobility & HSD’s News and info

  • Autonomic nervous system WRITTEN BY: The Editors of Encyclopædia Britannica – Information Pages
  • The Ehlers=Danlos Society Charity and place for EDS and HMS info and support
  • 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
  • How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
  • Home Page: Pain News Network non-profit online news service

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  • Crockpot Mississippi Pot Roast Jan 15, 2021
    Crockpot Mississippi Pot Roast is absolute comfort food! Serve this tangy pot roast with potatoes or egg noodles for a meal the whole family will love.� Typically around this time of year, I start relying on my slow cooker a lot more than I usually do. It’s like I get in a cooking funk as soon as the Christmas decor comes done. Th […]
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  • Approximately half of AD dementia cases are mild, one-fifth are severe Jan 15, 2021
    What percent of patients with Alzheimer's Disease (AD) currently have severe dementia? Do more people have mild disease? Or are the majority suffering with moderate dementia? A new study using data from the Framingham Heart Study (FHS) sheds light on these trends.
    Chronic Illness News | ScienceDaily
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    Are you currently in a season where you think back to the things you used to take part in before you were diagnosed with a chronic illness? Have you experienced the loss of friends or once beloved activities? If so, keep reading. I have a story to share with you… I facilitated a support group […] The post Grieving our Pre-Chronic Illness Lives appeared first […]
    LupusChick | Your Go-To Girl for Chronic Illness Advice
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    A new study shows that patients with a schizophrenia spectrum disorder have an increased risk of Parkinson's disease later in life. The increased risk may be due to alterations in the brain's dopamine system caused by dopamine receptor antagonists or neurobiological effects of schizophrenia.
    Chronic Illness News | ScienceDaily
  • Baking (and living) on my own terms: My journey as a baker and entrepreneur Jan 15, 2021
    Cristal Paredes is oneÂ�of the bakers featured in our Let Good Things Rise series, and we're thrilled to welcome her to the blog to share her journey as an entrepreneur and how her love for baking enables her to create on her own ter The post Baking (and living) on my own terms: My journey as a baker and entre […]
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  • citrus champagne layer cake Jan 15, 2021
    Citrus champagne layer cake makes a stunning dessert for citrus season! Layered with vibrant citrus curd and champagne… The post citrus champagne layer cake appeared first on Tutti Dolci. [Click on the title to continue reading at Tutti Dolci]
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  • The Apple Pie Conundrum: Use Your Words Jan 15, 2021
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    Breakfast is ready when you are with this make-ahead pan of lightly sweet baked oatmeal. Toppings can be endlessly varied to suit your morning cravings.Â� I skip breakfast all too often, and most of the time my morning begins with a cup of coffee and whatever is closest to hand - a cookie or whatever sweet baked thing I've made the day b […]
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  • Pear Ginger Smoothie to Settle an Upset Stomach Jan 15, 2021
    Get nutrients and relief with this smoothie for an upset stomach Eating is the last thing on your mind when you’re feeling nauseous. This smoothie recipe is Migraine-friendly and gentle enough for an upset stomach. It’s the perfect way to get nutrients even when you may not be feeling your best. It’s common for Migraine and nausea to go hand and hand. This p […]
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Review eligibility of Paramedic Science students for the NHS Learning Support Fund

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Chronic Illness Bloggers

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FibroFlutters HQ FB Page

FibroFlutters HQ FB Page

Medical news stories / blog posts / research / pharma /science

  • Medical news stories, blogs and research
  • Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
  • Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
  • New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
  • New edition of Airing Pain | Pain Concern | 2 July 2019
  • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
  • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
  • A – Z of Clinical Research – Making Research Better | NIHR
  • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
  • Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
  • British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018
  • Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
  • Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA |  Andy Oram  |  2 July 2018
  • Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
  • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
  • Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
  • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
  • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
  • How does our brain process fear? Study investigates | Medical News Today
  • Product Review | Nrem Sleep System | Sponsored Post
  • #NeuroendocrineCancer  #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
  • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
  • Scope Blog Post  |  “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
  • Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
  • How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of  (Human Data Project) HDP Health
  • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
  • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
  • Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
  • A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
  • 30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
  • Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
  • 5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
  • The most underrated scientific breakthroughs of 2017 | Quartz
  • 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
  • The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
  • Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
  • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
  • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
  • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
  • Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
  • #PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018
  • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
  • #NeuroendocrineCancer  #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
  • A few FREE Health apps & e-books
  • A selection of posts from around the National Institutes of Health (NIH) Family
  • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
  • Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
  • Central nervous system and Sympathetic Skin Response
  • Central Sensitivity Syndromes – Difficult to Classify
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Picture Gallery

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
Who would you like to sit and chat with?
Who would you like to sit and chat with?
Guide yourself down the path to the...?
Guide yourself down the path to the…?
Fantasy land
Fantasy land
What will you find if you wander through the gate
What will you find if you wander through the gate
An eye into the unknown
An eye into the unknown
A scented garden to take your mind on a soothing aromatic journey.
A scented garden to take your mind on a soothing aromatic journey.
A picture for using your imagination to take you on a peaceful journey
A picture for using your imagination to take you on a peaceful journey
A place of serenity by the pool
A place of serenity by the pool
Feel the stillness and breathe long and deep
Feel the stillness and breathe long and deep
... forget about the world and spend some time on yourself
… forget about the world and spend some time on yourself
An image to guide your mind to anywhere whilst laying on the beach
An image to guide your mind to anywhere whilst laying on the beach
aving a tough time, can't figure things out? Here's a pretty place for self reflection
aving a tough time, can’t figure things out? Here’s a pretty place for self reflection
Great place for sound imagery, hear the watery echoes
Great place for sound imagery, hear the watery echoes
StillnessSpeaks.com
StillnessSpeaks.com
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Blogs I Follow

MAY 12TH Awareness Day

  • Introducing FibroFlutters – one year on and finally got a blog! International Fibromyalgia Awareness Day May 12th 2014 and we have just celebrated our first birthday 
  • FMAUK | Fighting for the freedom from Fibromyalgia May 12th International Fibromyalgia Awareness Day 2016
  • FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page

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