Health, Medical, Research, Patient and Pharma related newsletters


A selection of Health, Medical, Research, Patient and Pharma related paperli newsletters for everyone #notjustpatients.


Introduction

The following selection of newsletters are all related to Health, Medical, Research, Patients and Pharma. Included is ‘FibroFlutters’ very own paper ‘#chronicillnessVOICE’ featuring news from varying sources around the health and medical healthcare industries.

I have been following them for a long time, and I am very happy to share them with you in the hope that you will also enjoy the news that they bring to you.


Featured image provided by Pexels

These newsletters update themselves so please remember to check in, and / or remember to opt-in for the newsletters via the links provided.

Thank you

Carole Sian CEO and Co-Founder / Editor in Chief

Hello and welcome with picture of a butterfly


The #chronicillnessVOICE Daily FibroFlutters very own paper.li


About the Paper:

Bringing a varied selection of health, medical, pharma and research news to you in relation to many aspects from within the health, medical healthcare, clinical research and pharmaceutical landscapes. 

Stories from Twitter, my Feedspot feed, Facebook and other sources by different people such as patients and professionals connected to health, chronic illness, and rare disease. Also, articles and news from chronic blogs, research, clinical, pharma, medical, science, AI, digital health, global health, public health and mental health, well-being and disease awareness backgrounds.


Peace. Love. Spoons.


💜 A daily paper for free thinkers and free spirits who can’t leave the house 💜

Sleepy Girl & Miss Diagnoses

Tags: Homebound, Bedbound, Lyme, ME, CFS, POTS, MCS, IBS, Endo, RSI, Thyroid, Lupus, MastCell, and The Kitchen Sink

Be yourself. Everyone else is already taken.



The CRPS UK Daily


A selection of articles, blogs and other newsworthy pieces from around the world relating to CRPS, Chronic Pain other pain related conditions.

CRPS UK is a registered charity for CRPS/RSD (No. 1165597) and is run for and by people with Complex Regional Pain Syndrome.




Pulse Magazine is out!


A daily magazine bringing you news from the world of health and technology.

By Pulse Publishing NW




Fibro Warrior Weekly is out!
Julie Ryan/ Counting My Spoons


Julie is the author of the blog, Counting My Spoons – which details her on-going struggle with #Fibromyalgia and other health related issues.

This is a weekly paper by Julie providing news and blogs from the world of Fibromyalgia



The Clinical Supervision Digest is out!
What has social media been saying about clinical supervision this week?


Published by Paul McNamara via paper.li
Paul McNamara is a nurse, educator and social media enthusiast.

Check this paper on a Thursday morning (Cairns, Australia time zone).




The Perinatal Mental Health Nurse is out!
What is social media saying about perinatal and infant mental health this week?


Published by Paul McNamara via paper.li
Paul McNamara is a nurse, educator and social media enthusiast.

The Perinatal Mental Health Nurse is an automatically-curated online publication that scours Twitter, Facebook & Google+ for information, then collates and releases a summary every Wednesday morning (Cairns, Queensland time).

Check this paper on a weekly basis

What is social media saying about perinatal and infant mental health this week?




Photo provided by FibroFlutters


Tags: Research, Medical News, European Medical News, Peer reviewed, scholars, patient advocates, patients, academia and professionals


DAILY! European Medical Journal is out!


European Medical Journal
We review all of the breaking news from the major healthcare congresses across Europe




The #MedDevMktg Daily is out!


Recommended Rx for Medical Devices Marketing Professionals

Community of Pharma, Biotech, Medical Devices & Healthcare Marketing professionals exchanging ideas on: Pharma Marketing, Digital Health, mHealth and HealthIT.

Find them on Social Media: facebook.com/PharmaMarketing




Photos provided by Pexels





The Receptive Sound Therapy Daily
Sounds for a better life!


By Sonic Tonic ~ sonictonic.io

About >>>  sonictonic.io/#about

A WEEKLY paper sharing stories and articles related to sound and it’s varying therapeutic purposes.

Link to the paper



Tags to use: patient registries, clinical trials, patients, knowledge gap, patient outcomes, healthcare and patient voice


The Patient Registry Daily is out!



News & more on patient registries and their impact on healthcare today.

Visit the website for information.


We’re helping patient registries and administrators of clinical trials bridge the patient-outcome knowledge gap through the power of voice.

This paper is self updating every 24 hours & you can access it via this link




Tags to use: pharma,  pharma news,  science,  technology and  health


PHARMAGEEK NEWS, le Journal is out!


Lionel REICHARDT
“Pharma Manager & Geek … #hcsmeu #hcsmeufr #health20fr

Link to the paper

Find PHARMAGEEK on Twitter  >>>   @LionelREICHARDT



Tags to use: immunology, inflammatory arthritis, Rheumatology, rheum and IBD


The Immunology Daily is out! | paper.li



PETRA KODEDA
I’m a Biologics Clinic Manager who’s primary therapeutic interest is in Inflammatory Arthritis and IBD. Tweets and re-tweets are of interest to me and are not necessarily the views of, or a reflection of, my employer.

Read the paper via this link

Find Petra on Twitter  >>> ‏ @PETTTS



Tags to use: care news, care guide, care, homecare, elderly, disabled, chronic illness and invisible illness


Twice Daily!   |   News from Focus on Disability


For disabled people, the elderly and their carers in the UK

News for carers, patients, family, friends and health professionals. The Focus On Disability ‘mobile-friendly’ websites provide online support, information, and products for disabled people, the elderly and their carers in the UK.


Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 


Don’t forget to check this evenings edition for their next update!



Tags: Healthcare News, healthcare, Care, social care, pharma, AI, med-tech and medical news


Daily Paper! Above The Fold in Healthcare is out!!


By C. Michael Gibson MD
Have a news tip then email
charlesmichaelgibson@gmail.com

Read Above the Fold in Healthcare via this link




Daily!  Brainless Blogger News is out!!


Fibromyalgia and Migraine related news

Blogging regularly about Fibromyalgia and Chronic Migraines. I freelance write as well and have published in e-zines, fibromyalgia magazines, been a guest blogger on a few sites and have been published in a collection.

Daily! Brainless Blogger News – Nikki Albert

Read the Brainless Blogger News via this link

brainlessblogger.blogspot.co.uk




The Chronic pain Daily is out! |  Support from Coach Amber Rose  | paper.li


Editor’s note

Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles.

Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.

The Chronic pain Daily | Support from Coach Amber Rose

Visit the paper to find out what stories / articles Amber has selected for today


Check out www.thrivingwithpain.com




The brain and mental health voice is out! | selection by Valeria Duflot


Why not visit and opt-in for newsletters

#Socent

veneziaautentica.com co-founder

Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel

Updates every couple of days!

Valeria Duflot – Paper Li



Tags to use: Fibromyalgia, ME, CFS, Chronic Pain and invisible illness.


Twice Daily! Fibromyalgia ME Chronic Pain is out!


How it’s Costing You in Happiness, Financially and in Your Relationships!

Why not visit and opt-in for newsletters

Read Fibromyalgia & ME news via this link


“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help”

Fibromyalgia & ME news

Don’t forget to check this evenings edition for their next update!





Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 


This paper is great for a variety of health related news for disorders that are invisible, or, not generally heard of.

Read via this link


Read Rhia’s Blog

An Autoimmune Arthritic Systemic Life©

autoimmunearthriticsystemiclife.com





News from UK Care Guide


A UK care news site designed to help both those going in to care and for those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.

Follow the link below for Uk Care News


Why not visit the website and opt-in for newsletters

Don’t forget this evenings edition for their next update!




There are many Paper.Li newsletters to read via this link, maybe you want to join the community?


Collect relevant content easily
Use the full force of Paper.li to find and collect content that’s aligned with your audience’s interests. We use natural language processing, machine learning and social signals to analyse and extract the most relevant and engaging stories from social media and the web.


Taken from the Paper.Li website

FibroFlutters


Author FibroFlutters Logo are proud to be actively supporting the work of AIMed Embracing #AI in #Healthcare #Medicine.


FibroFlutters are proud to be actively supporting the work of AIMed Embracing #AI in #Healthcare #Medicine.
FibroFlutters Information banner

We are a Patient Advocacy Organisation & online social media communications network

FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.

We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.

We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms. 

SLOGAN: #chronicillnessVOICE for everyone #notjustpatients

PLEASE NOTE:  

  • We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
  • That this site uses google analytics to collect demographic information for content decision making purposes only and not to sell to 3rd parties.



Its A Doddle – Mapping the communities that care

By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.


SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019

Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!


Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.

carole@fibroflutters.com


FibroFlutters are continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. 
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!

Please note that I have opted-in to receive all the newsletters that I post from. PLUS please remember to read their privacy policies.  


Please can you read our ‘Disclaimer’ & ‘Privacy’ notes. If you have any problems we are always open to discussion, just e-mail Carole


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

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FibroFlutters are not in affiliation with paper.li

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