#chronicillnessVOICE | Daily News | 30 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:
Latest issue!  NICE Newsletter | July 2018
Including this month’s PODCAST:  Be the first to hear NICE talks ep. 8
Child abuse: communication is key

British Heart Foundation |  Should you be taking a multivitamin?  | 29 July 2018

RELIEF Newsletter  |  July 25 2018
RELIEF is a service provided by the IASP Pain Research Forum

Digital Health Newsletter | Digital Health | 27 July 2018… Read More #chronicillnessVOICE | Daily News | 30 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Weekly Digest – Mayo Clinic Social Media Network | 30 July 2018

A professional social network for people and organizations using online digital communication tools to enhance health care delivery and advance careers.… Read More Weekly Digest – Mayo Clinic Social Media Network | 30 July 2018

STAT: First Opinion |A week’s worth of perspectives by experts on science & medicine | Curated by Patrick Skerrett | 29 July

Blockchains for biomedicine and health care are coming. Buyer: be informed | By ANDY CORAVOS AND NOAH ZIMMERMAN

Are embryos people? The answer will determine the future of reproductive medicine | By ERIC J. FORMAN

A tax on medical devices makes no sense. It’s time to eliminate it for good |  By DAVID BEIER… Read More STAT: First Opinion |A week’s worth of perspectives by experts on science & medicine | Curated by Patrick Skerrett | 29 July

About Us -How we began

There are a good number of people in Sunderland with Fibromyalgia and varying other long term chronic chronic conditions, actually, and it shocked me in the beginning.
At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK with FibroFlutters members, and readers, this is because even though there were only 5 of us  but we spanned 3 counties!… Read More About Us -How we began

About Us – Research

At a similar time that I got fascinated by what was occurring in the world of pharma I was also engaging within the realms of research advocacy and getting more involved wherever I could.… Read More About Us – Research

About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed.  I am also using these new opportunities in the ‘REAL WORLD’ to help  myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

About Us – Raising Awareness

Our wish is to share the experiences of others & know theyare not alone, advise & share useful information & also to help raise awareness of our chronic/invisible illness… Read More About Us – Raising Awareness

Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Opening lines:

Researchers from the University of Illinois at Chicago are the first to conduct a large-scale analysis of treatments and outcomes for children with Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN), rare skin conditions caused by medications and infections.… Read More Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018

Wellness across different dimensions shown to facilitate independence in older adults  |  University of Maine  |  Medical Express |  11 July 2018

How a Mediterranean diet could reduce osteoporosis  |  University of East Anglia  |  Medical Express |  11 July 2018  

Extreme heat and reduced cognitive performance in adults in non-air-conditioned buildings  |  Harvard T.H. Chan School of Public Health  |  Medical Express |  10 July 2018 … Read More Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018

Pharma Intelligence | 2018 R&D Review: 5 Key Takeaways

I haven’t read the full report only the article and it is interesting to read as a patient, patient group leader and as a non-pharma reader,. I do think it important to share these reports so that people can read them no matter which area of the med care industry they are based in. FibroFlutters… Read More Pharma Intelligence | 2018 R&D Review: 5 Key Takeaways