Wolfram Syndrome is a rare genetic disorder which is also known as DIDMOAD syndrome after its four most common features: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy and Deafness… Read More Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.… Read More It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.… Read More healtheo360 Join a ‘PATIENT’ community and share your story!
This EXCLUSIVE PAPER ‘What Patients Want’ discusses the roundtables / interactive sessions that were designed + led by patients, co-chaired by patients, and moderated by industry facilitators ie patient advocates.… Read More ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
It is time to pat yourselves on the back for being actively involved to help create change.… Read More Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.
The main title will be ‘Journeys Through Justice – Leadership and Transformation’ – focusing on a range of themes including Women in prison, Transgender pathways, Children’s services, Learning disability and difficulty and Trauma-informed care… Read More NOT LONG NOW! RCGP’s 7th Health and Justice Summit: Journeys Through Justice – Leadership and Transformation (sponsored)(updated)
Suicide prevention research recognised in the ‘Nation’s Lifesavers List’
Support research commissioned by Samaritans by taking part in an online survey investigating how people react when they meet people who are in distress or are suicidal.… Read More Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
Who are AI Med? AI Med are a clinician led community exploring how AI can be used in Medicine and was founded in 2014 by Dr Anthony Chang. Founder AIMed Chang is Chief Artificial Intelligence Officer, Children’s Hospital of Orange County (CHOC) Chang is a practising paediatric cardiologist, CIIO at CHOC children’s and world-renowned expert on artificial… Read More Get to know about AI in Medicine with ‘AI Med’