Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

Do you live within the region of Chicago and work in the fields of cardiology? or radiology??…
… then these events may be of interest to you.… Read More Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019

Excerpt from Sue Brown’s CEO update:
Prevention seems to have been the theme of my February. The possibility that a lot of the pain and disability of MSK conditions might be prevented, and that this is being taken seriously is an exciting prospect.… Read More Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients