Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.… Read More Ehlers-Danlos Syndrome Awareness in the Month of May
Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
Do you live within the region of Chicago and work in the fields of cardiology? or radiology??…
… then these events may be of interest to you.… Read More Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)
Excerpt from Sue Brown’s CEO update:
Prevention seems to have been the theme of my February. The possibility that a lot of the pain and disability of MSK conditions might be prevented, and that this is being taken seriously is an exciting prospect.… Read More Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Keep on personalising care
by Sarah Duncan, Head of Clinical Policy, NHS England … Read More Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | January 2018
Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week
Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.
Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients
A belated newsletter due to technical issues with my broadband connection intermittently going off all the time!… Read More #chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients