Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) Health communications & Sharing information #chronicillnessVOICE, Nuzzel News, Paper.li’s, News-Medical newsletters Social media community platform link Where can you find us? FibroFlutters Super Highway >>> Our network… Read More About Us
Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
This meeting is also for our Fibromyalgia members and Fibromyalgia Action UK supporters as an extra meeting on top of our sister FMA UK Fibromyalgia group’s meeting on the FIRST MONDAY OF THE MONTH which our members are welcome to Join.… Read More Home news | Next meet up is on 20th November
Feedspot is the content reader for reading all your favorite websites in one place.
Read your favorite Blogs, News websites, RSS Feeds, Youtube Channels and Social sites accounts from one place on Feedspot.
Using a content reader helps you keep up with your top information sources – content comes straight to you, saving you the time to go and check every site on your own.
Feedspot also keeps track of which items you’ve read, so you only see the unread items when you come back, even when you login on different devices.… Read More FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness
September is Pain Awareness Month
90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts
THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY… Read More CONNECT: Pain Awareness Month, Zebra Strong Tour, and more! | The Ehlers-Danlos Society | 11 September 2018
Friendly support group for anyone with chronic illness and rare illnesses too. It really is an informal event where we just meet up over late lunch and talk about all matters. … Read More First meeting of 2018 |Tuesday 20 February | 1 – 4 pm
Thanks to Afternoon Tea4Two | Barmac5 for nominating me for the Liebster award!
I am really tickled, thankyou for nominating FibroFlutters for this award, I shall embed the badge on a widget.
The award is supposed to be for those with under 200 followers, so I have mainly nominated bloggers who have a wordpress following of around 200 or less like me.
All nominees are from my wordpress reader list.… Read More Nomination > LIEBSTER AWARD 2018