#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 31 May 2018

Ten Months Post Stem Cells – A Snapshot Into My Lyme Disease Healing Journey |  Terry Mayfield, The Blathering Lymie |  Color Me Lyme  | 31 May 2018
Excerpt:

‘I am, however, tickled pink to share I’ve experienced noticeable improvements recently. Crazy thankful for forward progress, albeit slow. A smidgen of reluctance comes over me as I type the words “noticeable improvements” and “forward progress”. I don’t want to mess with this positive juju!’… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 31 May 2018

#chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

‘When suffering from a chronic illness, the feeling of guilt is one you can often find yourself getting a little too used to. Although, deep down you know things are not your fault or things are not always in your control, you cannot help that guilty feeling in the pit of your stomach when you are not always one hundred percent yourself. We all have bad days and that is completely okay, but it is accepting that it is okay that is the hurdle and celebrating the positive things.’ ~ STUCK IN A GUILTY BUBBLE | VICKY (GUEST WRITER) |  Migraine Mantras  |  25 May 2018… Read More #chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

‘When suffering from a chronic illness, the feeling of guilt is one you can often find yourself getting a little too used to. Although, deep down you know things are not your fault or things are not always in your control, you cannot help that guilty feeling in the pit of your stomach when you are not always one hundred percent yourself. We all have bad days and that is completely okay, but it is accepting that it is okay that is the hurdle and celebrating the positive things.’ ~ STUCK IN A GUILTY BUBBLE | VICKY (GUEST WRITER) |  Migraine Mantras  |  25 May 2018… Read More #chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 28 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillness #invisibleillness #MCSMN #Fibromyalgia #rare #MSK #EDS #MentalHealth #chatter #projects #advocacy #food #friendly #health #patients #care #family #WHO #MEAction #FMAUK
All things #medicalhealthcare #digitalhealth #pharma #research #science #tech #AI… Read More #chronicillnessVOICE | Morning Edition | 28 May 2018 ~ a health newsletter for everyone! #NotJustPatients

(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

Do you have EDS, JHS, HMS or Fibro alongside Chronic Fatigue?   Do you know what Chronic means?, or the term General Pain This is an educational read, that explains the differences between Chronic Widespread Pain (CWP) and Chronic General pain (CGP) and Chronic Fatigue.  it also explains some correlations between CWP, CGP, fibro and fatigue &… Read More (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 25 May 2018

Im-patient UPDATE 
Thankyou to everyone…
…who has participated in the ‘Impatient’ survey, your ideas and thoughts have been collated and are being discussed, by the Steering Group, already, for the ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia is now also developing/… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! Not just #patients| 25 May 2018

The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources.  Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader       #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO