May is Ehlers-Danlos Syndrome Awareness Month

May 18, 2020May 18, 2020 fibrofly73

May 12th International Fibromyalgia Awareness Day

Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day

May 12, 2020May 13, 2020 fibrofly73

About Us

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Mar 15, 2020Mar 15, 2020 fibrofly733 Comments

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Jan 14, 2020Jan 29, 2020 fibrofly731 Comment

Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

Oct 24, 2019Mar 5, 2020 fibrofly731 Comment

May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

May 12, 2019 fibrofly73

Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Jan 28, 2019Sep 1, 2019 fibrofly73

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 12, 2018May 16, 2019 fibrofly73

#chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A belated newsletter due to technical issues with my broadband connection intermittently going off all the time!… Read More #chronicillnessVOICE | 2 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Nov 6, 2018Nov 6, 2018 fibrofly73

Home news | Next meet up is on 20th November

This meeting is also for our Fibromyalgia members and Fibromyalgia Action UK supporters as an extra meeting on top of our sister FMA UK Fibromyalgia group’s meeting on the FIRST MONDAY OF THE MONTH which our members are welcome to Join.… Read More Home news | Next meet up is on 20th November

Nov 1, 2018Dec 17, 2018 fibrofly73

The Weekend Dish: 1/23/2021 Jan 23, 2021
The Weekend Dish: 1/23/2021 Happy winter weekend to you, friends! I hope that this week has treated you well and that your weekend is off to a nice and relaxing start. Do you have any cooking, baking, or house projects planned? I have a couple of recipes I want to re-test and hopefully will be sharing soon! Enjoy the […] READ: The Weekend Dish: 1/23/2021
Brown Eyed Baker by Michelle
DNA Damage and the Aging Epigenome Jan 23, 2021
In mammals, genome instability and aging are intimately linked as illustrated by the growing list of patients with progeroid and animal models with inborn DNA repair defects. Until recently, DNA damage was thought to drive aging by compromising transcription or DNA replication, thereby leading to age-related cellular malfunction and somatic mutations trigger […]
Journal of Investigative Dermatology
Dermal adipose tissue secretes HGF to promote human hair growth and pigmentation Jan 23, 2021
Hair follicles (HFs) are immersed within dermal white adipose tissue (dWAT), yet human adipocyte-HF communication remains unexplored. Therefore, we investigated how perifollicular adipocytes affect the physiology of organ-cultured human anagen scalp HFs. Quantitative (immuno-)histomorphometry, microCT and transmission electron microscopy showed that the numb […]
Journal of Investigative Dermatology
A Phase 1b, Randomized, Single-Center Trial of Topical Cerdulatinib (DMVT-502) in Patients with Mild-to-Moderate Atopic Dermatitis Jan 23, 2021
Cerdulatinib (DMVT-502) is a novel kinase inhibitor with demonstrated activity against JAK and spleen tyrosine kinase (Syk) (Coffey et al., 2014). Topical cerdulatinib is the first topical JAK/Syk inhibitor in development for the treatment of atopic dermatitis (AD). Preclinically, cerdulatinib gel (0.2% and 0.4%, representing 0.18% and 0.37% of free base, re […]
Journal of Investigative Dermatology
Homemade Cinnamon Rolls with Vanilla Bean Cream Cheese Icing Jan 23, 2021
Cinnamon Rolls with Vanilla Bean Cream Cheese Frosting are made using the sweet Texas Roadhouse Roll dough brushed with butter, and sprinkled with a cinnamon/sugar mixture. Then they’re rolled, sliced and baked. Once they’re removed from the oven, I spread the tops with a cream cheese frosting flavored by a vanilla bean. They’re the perfect menu addition to […]
365 Days of Baking and More: A Food and Recipe Blog
Ilya's Durum/semolina CB Jan 22, 2021
Ilya's Durum/semolina CB Submitted by Ilya Flyamer on January 22, 2021 - 3:30pm. Ilya's durum bake #1 Baked a bread in the style of the Hamelman formula provided in the first post. Had to deviate slightly, due to flour availabilty: I had just under 100g of semola remacinata left, and half a bag of pasta flour that is 50% durum. So combining that I […]
The Fresh Loaf
Pet Therapy for Chronic Illness Jan 22, 2021
Fibromyalgia can be a lonely disease. Staying connected with friends and family becomes difficult when chronic pain and fatigue make it hard to get out and about like you used to. Sometimes, having a pet can make all the difference in the world! Not only will a furry friend give you some companionship, but it turns out that pet therapy can actually be a pret […]
Pamela Jessen | There is Always Hope
Best diet quiz: Is that diet REALLY working for you? Jan 22, 2021
Is your current way of eating working for you? And how do you know? Let’s say you’re following a Paleo or vegetarian diet. Or maybe you’re practicing mindful or intuitive eating. Or you’re adding back carbs after doing keto for a few weeks. Or you’re switching from strict calorie counting to using hand portions. How do you know if those efforts are REALLY pa […]
Precision Nutrition | Nutrition Coaching and Certification
Growing Medical Recognition of Yoga as a Treatment for Anxiety Jan 22, 2021
By Dr. Sat Bir S. Khalsa Perceived stress and anxiety can be a normal and healthy response to life circumstances. But for some, the fast pace and uncertainty of modern society causes debilitating levels of stress and anxiety. Chronic, unmanaged stress hurts our quality of life and is responsible for an increase in health issues and disorders across the world […]
Daily Cup of Yoga
Italian Chicken Tortellini Soup Jan 22, 2021
Nothing screams cozy like a giant bowl of&#2013266080;Italian Chicken Tortellini Soup! Loaded with tender cheese tortellini, shredded chicken, fresh baby spinach, carrots, and celeryâ€¦ all in a super flavorful chicken broth! Serve this family favorite with extra parmesan cheese and crusty bread. Tortellini Chicken Soup If thereâ€™s one th […]
Baker by Nature