Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!

It doesn’t matter where you live in the World when you are given your fibromyalgia diagnosis one of the first things you want to know is where to get information that you can rely on. Where can you find community / support groups that you can join and meet other people who understand the condition that you are living with? A place where you can read up to date research and learn about how to cope living with your diagnosis.

The aim of this post is to fulfill one of our missions of providing you with the information of where you can find such resources. These resources were originally shared on our May 12th 2020 Awareness Day campaign post and I realised that it would be a good idea to put them onto a post of their own.

There are many countries across the Globe so I know that they are all NOT listed here. If you live in a country that is not listed and have knowledge of a good website, charity, or organisation where you can get reputable information about Fibromyalgia, please let me know and I will add to the list. carole@fibroflutters.com

Fi – bro – my – al – ja

Places for sourcing fibromyalgia information and resources:

Got any to add from your country of residence please email me fibroflutters@gmail.com


Please remember these few things!


Chronic Pain management can be a really difficult thing to master, please don’t give up as it can take time, perseverance and a lot of positive attitude until you find your balance with it.

Pain management involves much more than justy popping pills, having injections and pacing your activities. Taking a holistic approach early on can help you learn to manage all your co-morbidities too alongside you chronic pain.

You might have to make a series of lifestyle changes and it is important to consider doing a little at a time, and changing everything all at once. One step at a time can be a better approach even when you think making the changes all at once will take less time – it could make your symptoms spiral and even cause more problems for you.

Finding a clinician, doctor or therapist that you can go to for advice and support is good advice that you will hear a lot from varying people and resources. Do not worry if it takes a little while to find someone that you trust. You may see many health care professionals before you find someone that suits you.

The applies to medicines. There are a lot of medicines used to treat chronic pain and they are different across the Globe. One treatment might work for your best friend, but not necessarily work as well for you and you might need to try several medication and therapy combinations before finding one that you are happy with.

During your journey after diagnosis you will come across varying groups and organisations related to your chronic pain condition. It is a good way to get to know your diagnosis and symptoms by joining community groups because you meet many others who are living like you and know what life with chronic pain is like. There are groups online, or you may find a local group that meets up every now and again either way find what you are comfortable with and go with that!

Finally, please remember that getting rid of all our chronic pain is a huge undertaking that is not very likely to happen. It can cause us a great deal of mental stress, depression and health related anxiety and if you find yourself feeling this way please find mental health support to help you through the tough times.

Anything to add, any questions please email me carole@fibroflutters.com


Please support Fibromyalgia Action UK

fmauk

Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.

Fibromyalgia Action UK (FMA UK) is a registered charity in England and Wales (1042582). A company limited by guarantee (SC492045).
Registered address: 12 Seedhill Road, 3007 Mile End Mill, Paisley, Renfrewshire, PA1 1JS

FibroFlutters continuously supporting fmauk.org

#BecomeFibroAware #fibromyalgia #chronicillness #ChronicPain #fightfibro


Early motto of FibroFlutters fighting for fibromyalgia awareness

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FIBROFLUTTERS CHRONIC, INVISIBLE & RARE ILLNESS SUPPORT

Patient Advocacy Organisation & Online Community Support


Patient * Health * Research * Pharma * Advocacy


Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK … 
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.



Please can you read our ‘Disclaimer’ & ‘Privacy’ notes
and if you have a problem we are always open to discussion, just e-mail Carole


PLEASE NOTE: We are not medical professionals, but as patients we are sharing news, articles, information and resources out to you as all stakeholders to help keep you up to date within the Medical healthcare industries and chronic illness health, rare disease and our advocacy work for patients, health, research and pharma, including digital and AI in medicine.


PLEASE NOTE: THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES.


MANY THANKS in advance for your understanding –
from the administrator – fibrofly73 aka Carole



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And my profile on Synapse where you can read about the initiatives that I am involved with

https://synapse.pfmd.org/experts/O6wWb7Kd

FibroFlutters on Synapse where you can read about the initiatives that we are involved with

https://synapse.pfmd.org/organizations/fibroflutters


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