New edition of Airing Pain | Pain Concern | 2 July 2019

Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019

New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019

Caroline Dinenage, minister for care, said: “This innovative new digital service for reporting and learning from incidents will provide a more holistic way of collecting and analysing vital data to help improve care right across the NHS. … Read More New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019

I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

Get to know about AI in Medicine with ‘AI Med’

Who are AI Med? AI Med are a clinician led community exploring how AI can be used in Medicine and was founded in 2014 by Dr Anthony Chang. Founder AIMed Chang is Chief Artificial Intelligence Officer, Children’s Hospital of Orange County (CHOC) Chang is a practising paediatric cardiologist, CIIO at CHOC children’s and world-renowned expert on artificial… Read More Get to know about AI in Medicine with ‘AI Med’

Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH |  July 1 2019

NCCIH co-sponsored a recent workshop that united two of its research priorities: natural products and pain. Excerpt: “On February 6, we cosponsored a 1-day workshop at the National Institutes of Health (NIH) on “Natural Products and Pain: The Search for Novel Nonopioid Analgesics” with the National Institute of Neurological Disorders and Stroke and the National Center for… Read More Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH |  July 1 2019

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) Health communications & Sharing information #chronicillnessVOICE, Nuzzel News, Paper.li’s, News-Medical newsletters Social media community platform link Where can you find us? FibroFlutters Super Highway >>> Our network… Read More About Us

#chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed

In 2013 Chang initiated a series of meetings that examined the benefits, and limitations, of AI ‘for’ medicine. “These meetings, called AI in Medicine (AIMed), have been successful since then in creating a ‘friendly’ and ‘collaborative’ gathering of minds as well as an ‘intellectually stimulating’ opportunity to learn about AI in medicine and healthcare.… Read More #chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed

#ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

Many thanks for taking a look and if you enjoy the content please can you share it with your peers and colleagues.
It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.
Read More The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org

Paramedic Science is the only non-medical health course not eligible for additional funding to cover compulsory costs associated with the course, such as placement travel and accommodation. We are lobbying parliament to reconsider the eligibility of Paramedic Science for the Learning Support Fund and Travel and Duel Accommodation Expenses system available to students on Nursing, Midwifery and the other Allied Health Professions.… Read More Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Thank you for your patience, & support, during this last few months, or so, whilst I have been moving house and dealing with big life-changes. Startup PlateJoy sends users personalized meal plans to help them achieve health goals |by Zach Winn | 22 November 2018 Quote from text“We’re building a new category to bridge the gap between medicine… Read More #chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!

It will make it easier for chronic organisations and groups that offer support to find each other once it get’s going. It is currently a free service too and they build your page saving you the hassle and energy.… Read More Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

Ellen Bayens | The Celiac Scene News | Issue: October 2018

The Celiac Scene

CELIAC EXPERT CORNER

Sherry Scheideman, Celiac Counsellor’s Corner

I Got Married Last Month!

The Celiac Dietitian – Selena De Vries, RD

Ask the Celiac Dietitian – Selena De Vries – During Virtual Office Hour Every Friday

Dietitian Services by Celiac, Selena De Vries, RD

Post-Halloween Gluten-Free Candy Debrief!

The Celiac Scene

The Celiac Scene Presents at the BC Society of Laboratory Scientists Congress

What Does the Gut Say? How the ‘Bugs Inside Us’ Affect Overall Health

Study Points to Connection Between Epilepsy and Gluten-Related Disorders

Gluten-Free Craze a ‘Double-Edged Sword’ for Celiac Patients

Don’t Trust Your Gut to Tell if You’ve Been Glutened

Travel Gluten Free Podcast Interviews Victoria’s The Celiac Scene

Registered Dietitian Spills the Beans on Food Sensitivity Testing

A Third of ‘Gluten-Free’ Restaurant Dishes Contain Gluten, Study Finds
Read More Ellen Bayens | The Celiac Scene News | Issue: October 2018

News and articles via eyeforpharma – Newsletter by Adam Chapman Editor, eyeforpharma | 28 September 2018

The Robots Are Coming! Roll Out The Red Carpet

Including:
The Best Job in Pharma Right Now? The Sales Rep

Would Your Reps Pass The Empathy Test?

Why CX Starts In Sales,

A Career-Defining Diagnosis

When Patients Take Control

Download your entry pack for the eyeforpharma 2019 Awards… Read More News and articles via eyeforpharma – Newsletter by Adam Chapman Editor, eyeforpharma | 28 September 2018

DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018

Excerpt:

‘Each disc consists of a soft inner part surrounded by a fibrous coating. Sometimes the coating gets torn which allows the softer material to bulge out. The pain when the softer material bulges out can be excruciating and this condition is commonly known as ‘a slipped disc‘.’… Read More DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018

#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018

I want to continue to bring hope to those still in the fight against chronic pain, lighting the way so that you, too, can find victory. ~ Gabriel King… Read More #PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018

#PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

Articles  >>>

A Match Made in Health Care
We Need to Talk 
Plan Ahead 
A Team Approach
Get your Better-Living Toolkit via this link  >>>

http://www.arthritis.org/toolkits/better-living/?… Read More #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness

Feedspot is the content reader for reading all your favorite websites in one place.

Read your favorite Blogs, News websites, RSS Feeds, Youtube Channels and Social sites accounts from one place on Feedspot.

Using a content reader helps you keep up with your top information sources – content comes straight to you, saving you the time to go and check every site on your own.

Feedspot also keeps track of which items you’ve read, so you only see the unread items when you come back, even when you login on different devices.… Read More FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness