“Over four in ten adults in the UK are affected by food allergy or intolerance. But how can you go about finding out what the culprit is?”… Read More Patient Newsletters | 8 June / 19 May 2019
Do you live within the region of Chicago and work in the fields of cardiology? or radiology??…
… then these events may be of interest to you.… Read More Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: June 2019
In 2013 Chang initiated a series of meetings that examined the benefits, and limitations, of AI ‘for’ medicine. “These meetings, called AI in Medicine (AIMed), have been successful since then in creating a ‘friendly’ and ‘collaborative’ gathering of minds as well as an ‘intellectually stimulating’ opportunity to learn about AI in medicine and healthcare.… Read More #chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed
LIVE-STREAM links to AIMed Radiology & Cardiology now available
New webinars listed under eyeforpharma, including Paul Simms guest moderating, and a few other updated newsletters.
Many thanks for taking a look and if you enjoy the content please can you share it with your peers and colleagues.
It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources
Suicide prevention research recognised in the ‘Nation’s Lifesavers List’
Support research commissioned by Samaritans by taking part in an online survey investigating how people react when they meet people who are in distress or are suicidal.… Read More Welcome to the Samaritans Monthly Newsletter | Samaritans | May 2019
Gluten-Free Noodles Made from Fish? Believe it!
Top 12 Symptoms of Celiac Disease
Gluten Challenge? CCA Position Statement
Risk Factors for Developing CD in Genetically Predisposed Children… Read More Ellen Bayens | The Celiac Scene News | Issue: May 2019
Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide. … Read More Selected Newsletters from News Medical
I decided to test how long it would be before my back began to ache when sat in a regular dining chair, one with no arms and a straight back. It wasn’t long before I began to notice little things….… Read More Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)
Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.
Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review
I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.
… Read More The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
Paramedic Science is the only non-medical health course not eligible for additional funding to cover compulsory costs associated with the course, such as placement travel and accommodation. We are lobbying parliament to reconsider the eligibility of Paramedic Science for the Learning Support Fund and Travel and Duel Accommodation Expenses system available to students on Nursing, Midwifery and the other Allied Health Professions.… Read More Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org
Excerpt from Sue Brown’s CEO update:
Prevention seems to have been the theme of my February. The possibility that a lot of the pain and disability of MSK conditions might be prevented, and that this is being taken seriously is an exciting prospect.… Read More Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Read the article, via the link button below, to gain perspectives from
Jen Horonjeff and Carole Scrafton as they give us their appraisals regarding how patient centricity appears to show a huge gap between ‘patient compliance’ and ‘patient experience’.… Read More Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019
‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients
Thank you for your patience, & support, during this last few months, or so, whilst I have been moving house and dealing with big life-changes. Startup PlateJoy sends users personalized meal plans to help them achieve health goals |by Zach Winn | 22 November 2018 Quote from text“We’re building a new category to bridge the gap between medicine… Read More #chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients
It will make it easier for chronic organisations and groups that offer support to find each other once it get’s going. It is currently a free service too and they build your page saving you the hassle and energy.… Read More Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
The Celiac Scene
CELIAC EXPERT CORNER
Sherry Scheideman, Celiac Counsellor’s Corner
I Got Married Last Month!
The Celiac Dietitian – Selena De Vries, RD
Ask the Celiac Dietitian – Selena De Vries – During Virtual Office Hour Every Friday
Dietitian Services by Celiac, Selena De Vries, RD
Post-Halloween Gluten-Free Candy Debrief!
The Celiac Scene
The Celiac Scene Presents at the BC Society of Laboratory Scientists Congress
What Does the Gut Say? How the ‘Bugs Inside Us’ Affect Overall Health
Study Points to Connection Between Epilepsy and Gluten-Related Disorders
Gluten-Free Craze a ‘Double-Edged Sword’ for Celiac Patients
Don’t Trust Your Gut to Tell if You’ve Been Glutened
Travel Gluten Free Podcast Interviews Victoria’s The Celiac Scene
Registered Dietitian Spills the Beans on Food Sensitivity Testing
A Third of ‘Gluten-Free’ Restaurant Dishes Contain Gluten, Study Finds
… Read More Ellen Bayens | The Celiac Scene News | Issue: October 2018
The Robots Are Coming! Roll Out The Red Carpet
The Best Job in Pharma Right Now? The Sales Rep
Would Your Reps Pass The Empathy Test?
Why CX Starts In Sales,
A Career-Defining Diagnosis
When Patients Take Control
Download your entry pack for the eyeforpharma 2019 Awards… Read More News and articles via eyeforpharma – Newsletter by Adam Chapman Editor, eyeforpharma | 28 September 2018
‘Each disc consists of a soft inner part surrounded by a fibrous coating. Sometimes the coating gets torn which allows the softer material to bulge out. The pain when the softer material bulges out can be excruciating and this condition is commonly known as ‘a slipped disc‘.’… Read More DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…| BARMAC5 | BackPainBlog | 22 September 2018
I want to continue to bring hope to those still in the fight against chronic pain, lighting the way so that you, too, can find victory. ~ Gabriel King… Read More #PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
A Match Made in Health Care
We Need to Talk
A Team Approach
Get your Better-Living Toolkit via this link >>>
http://www.arthritis.org/toolkits/better-living/?… Read More #PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Feedspot is the content reader for reading all your favorite websites in one place.
Read your favorite Blogs, News websites, RSS Feeds, Youtube Channels and Social sites accounts from one place on Feedspot.
Using a content reader helps you keep up with your top information sources – content comes straight to you, saving you the time to go and check every site on your own.
Feedspot also keeps track of which items you’ve read, so you only see the unread items when you come back, even when you login on different devices.… Read More FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness
Exercise: It’s What Your Doctor Should Order
11 Common Exercise Hurdles to Overcome
Go for a Ride
3 Simple Weightlifting Moves
TOOLS AND RESOURCES | What’s Your Fitness IQ? … Read More Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness… Read More #PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Common painkiller poses risk to heart health
Swelling in rheumatoid arthritis and where it occurs
How long do hemorrhoids last? What to know#
What causes pinkish-brown discharge?
What causes itchy nipples while breastfeeding?
Rheumatoid arthritis and back pain
What are the signs of prostate infection?
How to manage morning stiffness with rheumatoid arthritis… Read More #PAM2018 MNT weekly newsletter | Pain / Anesthetics | 5 September 2018
‘Expectations and tangible outcomes can begin to diminish the longer you live with a particular disease. Especially when all known treatment options have been exhausted.’… Read More My Medical Musings Medically Retired and Living a Life of Faith and Hope with a Rare Disease| Sam | 7 September 2018
International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
This Historical Medical Outline Written By Kristal Kent At
The Fibromyalgia Pain Chronicles
It is a modern platform, with a young and fresh approach to raising and using patient-voices to help the healthcare industry produce better products, and services, with you as the patients being the shareholders.… Read More Are you a ‘SAVVY’ patient? come and check it out!
The Patient Registry Daily News & more on patient registries and their impact on healthcare today
We’re helping patient registries and administrators of clinical trials bridge the patient-outcome knowledge gap through the power of voice.… Read More My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
Allergies are the type of sensitivity people are generally the most familiar with. In allergies, your body has an inappropriate physical reaction to something that doesn’t bother other people at all. In fact, While the sensitivities of a CSS aren’t exactly allergies, they do involve an inappropriate physical reaction.… Read More Central Sensitivity Syndromes – Difficult to Classify
The health risks of sitting too long include obesity, heart disease, diabetes, and cancer.
So what can you do to decrease them?… Read More 5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
Do you find it difficult to get comfortable when trying to sleep? I do, and for a variety of reasons connected to my Arthralgia, Fibromyalgia and Benign Joint Hypermobility Syndrome / EDS with Chronic Pain. When asked if ‘d like to try a ‘mattress topper’ sleep system for ‘Nrem’ via Chronic Illness Bloggers Network, I… Read More Product Review | Nrem Sleep System | Sponsored Post
This is your body on anxiety shared by Lifehack writer Link to the original via this link: About the Poster: This Is Your Body On Anxiety This poster shared by Siobhan Harmer is fantastic and easy to follow and displays what Anxiety does to our bodies, such as how we look paler due to elevated… Read More This Is Your Body On Anxiety
The following link takes you to the National Institute of Neurological Disorders and Stroke (NINDS) and a medical research paper into pain and it goes into intricate detail about what pain is. … Read More Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)