Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

Accepting Chronic Illness – Fibromyalgia / Chronic Pain / Chronic Fatigue Syndrome / ME / EDS/HMS / MS / Anxiety / Depression / IBS / Invisible Illness   Accepting any of the above mentioned #chronicillness / #invisibleillness can be a difficult and stressful process for the patient and their family, friends and carers as we… Read More Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

BioPharma Dive: Marketing | July 18 | AbbVie delays another Humira rival | PhRMA proposes rebate shake-up

Top Marketing News

How molecular biomarkers are transforming cancer treatment

AbbVie goes 3-0 in delaying Humira rivals

Drug lobby aims to shake up how medicines are paid for

Where does J&J’s new drug fit in the crowded HIV market?
5 drugs to watch as biotechs report Q2

FDA seeks to make more drugs available over the counter

Gilenya patent decision gives MS market a reprieve… Read More BioPharma Dive: Marketing | July 18 | AbbVie delays another Humira rival | PhRMA proposes rebate shake-up

The Celiac Scene News | Ellen Bayens – July 2018

The Celiac Scene News – July 2018 Your Gluten-Free Guide to Victoria, Vancouver Island & Gulf Islands! Sherry Scheideman, Celiac Counsellor’s Corner Taking a Day Off From Celiac Disease The Celiac Dietitian – Selena De Vries, RD 10 Communication Strategies to Decline Gluten-Free Food 18 Gluten-Free Camping Essentials Afke Zonderland, Okanagan Rawsome Okanagan Rawsome Joins… Read More The Celiac Scene News | Ellen Bayens – July 2018

Insights Into Treatment-Resistant Depression:  Current and Emerging Therapies | Ask the experts:  James Murrough, MD, PhD  | Psychiatry Advisor

#MedicalProfessionals #MentalHealth #Psychiatry  #PsychiatryAdvisor  #CurrentTherapies  #EmergingTherapies Insights Into Treatment-Resistant Depression:  Current and Emerging Therapies | Ask the experts:  James Murrough, MD, PhD  |  Psychiatry Advisor  Questions: Why are high rates of partial or inadequate responses to first-line antidepressant therapy seen in patients with major depressive disorder (MDD)? What are the risks associated with partial or inadequate MDD treatment? What… Read More Insights Into Treatment-Resistant Depression:  Current and Emerging Therapies | Ask the experts:  James Murrough, MD, PhD  | Psychiatry Advisor

Chronic Pain Survey Showing Gaps in Care| Ed Coghlan  | National Pain Report  | 22 May 2018

#chronicpain #opioidcrisis #patientvoice Chronic Pain Survey Showing Gaps in Care| Ed Coghlan  | National Pain Report  | 22 May 2018 Opening lines: ‘They are interested in speaking with patients and providers about their experience. I filled out the form recently–identified myself as the editor of the National Pain Report and received a response email asking that… Read More Chronic Pain Survey Showing Gaps in Care| Ed Coghlan  | National Pain Report  | 22 May 2018

Vertigo, My Newest Companion  |  Kyky Knight  |  Migraine.com  |  6 July 2018

#migraines  #vertigo #specialists #patientvoice #neurology Vertigo, My Newest Companion  |  Kyky Knight  |  Migraine.com  |  6 July 2018 Vertigo, My Newest Companion Living In “A Quiet Place” |  Holly Baddour  |  Migraine.com  |  5 July 2018 Living In “A Quiet Place” Why I Left My Headache Specialist |   Elizabeth Roberts-Zibbel  |  Migraine.com  |  3 July 2018 Why I Left My… Read More Vertigo, My Newest Companion  |  Kyky Knight  |  Migraine.com  |  6 July 2018

What might IMPACT look like? | Derek Stewart  | Make A Difference | 08 July 2018

#IMPACT #PPI #rdsummit2018 @UHCW_RandD @nhsuhcw What might IMPACT look like? | Derek Stewart  | Make A Difference | 08 July 2018 ‘What might IMPACT look like for Public Involvement?’ is the question that Derek Stewart posed at a workshop at Coventry & Warwickshire University Hospitals Research & Development Summit 2018. Link to Derek’s post >>> What… Read More What might IMPACT look like? | Derek Stewart  | Make A Difference | 08 July 2018

Summer 2018 Newsletter from Stress Resources |  Pamela Ressler  | July 2018

Latest! #stressresources #stress #mindfulness #meditation Summer 2018 Newsletter from Stress Resources |  Pamela Ressler  |  July 2018 A great newsletter with a mix of things to help you live with less stress Quoted from the home page: ‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is… Read More Summer 2018 Newsletter from Stress Resources |  Pamela Ressler  | July 2018

3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018

#Migraine #TriggerFoods 3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018 Opening line: ‘Having Chronic Hemiplegic Migraine has taken a lot of things from me, but none has been more frustrating than some of the food I can no… Read More 3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018

Patient Newsletter  |  Subject:  The best foods for fighting skin problems |  11 July 2018

#Patientcare #Patientnews #NHS  Patient Newsletter  |  Subject:  The best foods for fighting skin problems |  11 July 2018 Main Headline: The best foods for fighting skin problems Patient.info ~ The best foods for fighting skin problems Other Headlines >>> Does stress make skin problems worse? Join the Patient.info Dermatology Forum When to worry about a mole… Read More Patient Newsletter  |  Subject:  The best foods for fighting skin problems |  11 July 2018

You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018

You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018 Fact checked by Jasmin Collier Opening lines: A new study explores the question, “Is consciousness fully lost during anesthesia, or is it preserved in a different state?” The answer may surprise anesthesiologists and patients alike. You may be partly… Read More You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018

NEW! Disability Rights Magazine Out Now! Disability Rights UK Training  | UNITE Magazine

ANNOUNCEMENT Disability Rights UK is pleased to announce that we are working in conjunction with UNITE Magazine. NEW! Disability Rights Magazine Out Now! Disability Rights UK Training  |  UNITE Magazine ‘UNITE is your new disability rights magazine. Out every month, UNITE covers a wide range of topics from accessibility and housing to universal credit and mental… Read More NEW! Disability Rights Magazine Out Now! Disability Rights UK Training  | UNITE Magazine

Implementing the EALING MSK JSNA PHE Workshop 2018 Narration  | WEBINAR  |  ARMA MSK HUB  |  Posted by Sue Brown |  6 July 2018

Implementing the EALING MSK JSNA PHE Workshop 2018 Narration  | WEBINAR  |  ARMA MSK HUB  |  Posted by Sue Brown |  6 July 2018 Implementing the EALING MSK JSNA PHE Workshop 2018 Narration  Taken from the ARMA YouTube channel A shortened summary of the webinar on including MSK in Joint Strategic Needs Assessments – slides with narration.… Read More Implementing the EALING MSK JSNA PHE Workshop 2018 Narration  | WEBINAR  |  ARMA MSK HUB  |  Posted by Sue Brown |  6 July 2018

#chronicillnessVOICE | Morning Edition | 13 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Co-Editor’s Choices INCLUDING
Extreme heat and reduced cognitive performance in adults in non-air-conditioned buildings  |  Harvard T.H. Chan School of Public Health  |  Medical Express |  10 July 2018 

PLUS
Digital Health Newsletter | Digital Health | 12 July 2018

Our new Advisory Series is now live  | Digital Health  |  12 July 2018 

NEW! Disability Rights Magazine Out Now!

The Highs and Lows of Healthcare  |  Jill Donahue  |  eyeforpharma  |  5 July 2018
Read More #chronicillnessVOICE | Morning Edition | 13 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 12 July 2018

Alzheimer’s Reading Room Newsletter |  Bob De Marco| Headliner:  Do Persons Living with Dementia Feel Abandoned? | 11 July 2018

THE NEW HEALTH CARE  | Sometimes Patients Simply Need Other Patients |   By Aaron E. Carroll & Austin Frakt |  The New York Times  |  9 July 2018
Double click to access the article  >>>… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 12 July 2018

#chronicillnessVOICE | Morning Edition | 12 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Vertigo, My Newest Companion  |  Kyky Knight  |  Migraine.com  |  6 July 2018

Patient Newsletter  |  Subject:  The best foods for fighting skin problems |  11 July 2018

STAT: Morning Rounds | 11 July 2018

Read More #chronicillnessVOICE | Morning Edition | 12 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 10 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Researchers have identified a group of patients who are especially prone to out-of-body experiences | Emma Young  |  WORDPRESS blog: Weekly digest for Research Digest |  9 July 2018, Published 6 July 2018

Weekly Digest for Mayo Clinic Social Media Network  |  9 July 2018

Summer 2018 Newsletter from Stress Resources |  Pamela Ressler  |  July 2018

3 Ways I’ve Eliminated Migraine Trigger Foods  |  JENNIFER  | WORDPRESS blog:   Weekly digest for The Migraine Mantras  |  9 July 2018, Published 6 July 2018

Psych Central  |  Psych Central  Daily Newsletter  |  10 July 2018

A selection from Neuroscience News via ~ Neuroscience Newsletter | 10 July 2018

Read More #chronicillnessVOICE | Morning Edition | 10 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 9 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

What might IMPACT look like? | Derek Stewart  | Make A Difference | 08 July 2018

Prevalence and Significance of Anti-Saccharoymces #Cerevisiae  #Antibodies in Primary #SjörgensSyndrome

Implementing the EALING MSK JSNA PHE Workshop 2018 Narration  | WEBINAR  |  ARMA MSK HUB 

CONNECT ~ The Ehlers-Danlos Society International Newsletter | MCAS Webinar, Amazon Smile, and More!  | 8 July 2018

NEW! Disability Rights Magazine Out Now!

Disability Rights UK Training  |  UNITE Magazine… Read More #chronicillnessVOICE | Morning Edition | 9 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 6 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Types of Service Dogs and How They Help Us| Blog:  The Unbroken Smile| Guest Writer | 2 January 2018

Digital Health Newsletter | Digital Health | 5 July 2018

Ronald W. Davis, PhD, Presents
An Overview of the Recently Funded NIH Project
Open Medicine Foundation – OMF | Published on 5 Jul 2018

Read More #chronicillnessVOICE | Morning Edition | 6 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 5 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Dr. Ron Davis and Linda Tannenbaum, OMF ~ What we need to accelerate research  03 July 2018

Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA |  Andy Oram  |  2 July 2018

Sepsis is the third leading cause of death. Can a new blood test change that? | KAREN WEINTRAUB | 3 July 2018

Barriers to Chronic Pain Treatment Shared with FDA – Part One & Recommendations to the FDA About How to Improve Chronic Pain – Part Two
Ed Coghlan
Read More #chronicillnessVOICE | Morning Edition | 5 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Pharma / Science / Tech / AI – A mix of News | 13 July 2018

Norovirus vaccine: Oral tablet Phase 1 clinical trial results published |  Outbreak News Today  |  PRESS RELEASE  |  13 July 2018

Ticks found in 83 counties where not previously recorded: Citizen-Scientist Study  |  Outbreak News Today  |  PRESS RELEASE  |  12 July 2018

Celebrate the 2018 Warren Alpert Foundation Prize recipients and their commitment to research | STAT: Morning Rounds  |  13 July 2018

Automated virtual reality-based psychological therapy may help reduce fear of heights  |  Lancet  | 12 July 2018

Massive genome havoc in breast cancer is revealed  |  Cold Spring Harbor Laboratory  |  12 July 2018

As new posts come in…
…others will head to archives. 

Hope you enjoy reading!… Read More Pharma / Science / Tech / AI – A mix of News | 13 July 2018

#chronicillnessVOICE | Morning Edition | 4 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Rare Disease on The Mighty  |  6 steps to consider before going to the ER  | Ray Wood (Contributor) |  4 July 2018

Mental Health at The Mighty  |  What does anxiety really feel like?  |  03 July 2018

Latest edition! 
ARMA Newletter | Arthritis & Musculoskeletal Alliance  | July 2018
Read More #chronicillnessVOICE | Morning Edition | 4 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 3 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up | 2 July 2018

Coping Strategies |
Balancing Work and Migraines  |  Living Well with Migraines 

#SoMe #PatientCommunity Platform
Weekly Digest – Mayo Clinic Social Media Network | 02 July 2018
Read More #chronicillnessVOICE | Morning Edition | 3 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 01 July 2018

There are two special ‘Facebook frames’ that people can add to their profile pictures to wish the NHS a happy 70th birthday!
Find out more on the #NHS70 website: http://www.nhs70.nhs.uk/… Read More #ChronicIllnessVOICE Evening Edition: ~ a health newsletter for everyone! #notjustpatients #chronicillness| 01 July 2018

#chronicillnessVOICE | Morning Edition | 30 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#Australia #UK #Canada #NewZealand #RestofWorld #DisabilityMatters
My Disability Matters News & Opinion Digest |  See the latest headlines  | 25 June 2018 Daily! #disability #disabilitynews … Read More #chronicillnessVOICE | Morning Edition | 30 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 29 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#Australia #UK #Canada #NewZealand #RestofWorld #DisabilityMatters
My Disability Matters News & Opinion Digest |  See the latest headlines  | 25 June 2018 Daily! #disability #disabilitynews … Read More #chronicillnessVOICE | Morning Edition | 29 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 28 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#Australia #UK #Canada #NewZealand #RestofWorld #DisabilityMatters
My Disability Matters News & Opinion Digest |  See the latest headlines  | 25 June 2018 Daily! #disability #disabilitynews … Read More #chronicillnessVOICE | Morning Edition | 28 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 27 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#Australia #UK #Canada #NewZealand #RestofWorld #DisabilityMatters
My Disability Matters News & Opinion Digest |  See the latest headlines  | 25 June 2018 Daily! #disability #disabilitynews … Read More #chronicillnessVOICE | Morning Edition | 27 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

Do you have EDS, JHS, HMS or Fibro alongside Chronic Fatigue?   Do you know what Chronic means?, or the term General Pain This is an educational read, that explains the differences between Chronic Widespread Pain (CWP) and Chronic General pain (CGP) and Chronic Fatigue.  it also explains some correlations between CWP, CGP, fibro and fatigue &… Read More (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources.  Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader       #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion,… Read More FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

Your Aromatherapy Guide  |  Jan Randall  |  14 April 2018

Your Aromatherapy Guide  |  Jan Randall  |  14 April 2018

Opening paragraph:

‘Spring is a beautiful time of the year with the longer days and the warmer weather…….it is a time of hope, anticipation and renewal. We feel brighter and more active as our yang energies are beginning to rise and there is a sense of renewed energy and an excitement to be outside. We want to shake off our sleepy winter hibernation!’

Read More Your Aromatherapy Guide  |  Jan Randall  |  14 April 2018