#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Newsletters

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Newsletters

The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.
Read More The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org

Paramedic Science is the only non-medical health course not eligible for additional funding to cover compulsory costs associated with the course, such as placement travel and accommodation. We are lobbying parliament to reconsider the eligibility of Paramedic Science for the Learning Support Fund and Travel and Duel Accommodation Expenses system available to students on Nursing, Midwifery and the other Allied Health Professions.… Read More Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Thank you for your patience, & support, during this last few months, or so, whilst I have been moving house and dealing with big life-changes. Startup PlateJoy sends users personalized meal plans to help them achieve health goals |by Zach Winn | 22 November 2018 Quote from text“We’re building a new category to bridge the gap between medicine… Read More #chronicillnessVOICE | 23 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!

It will make it easier for chronic organisations and groups that offer support to find each other once it get’s going. It is currently a free service too and they build your page saving you the hassle and energy.… Read More Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

#chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Good morning from FibroFlutters, wishing you all wellness as always and a fabulous week

Thank you for your patience during this last few months, or so, whilst I have been moving house and dealing with big life-changes.

Enjoy the updated newsletter after it’s break and hope to get back to normality very soon!… Read More #chronicillnessVOICE | 12 November 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Ellen Bayens | The Celiac Scene News | Issue: October 2018

The Celiac Scene

CELIAC EXPERT CORNER

Sherry Scheideman, Celiac Counsellor’s Corner

I Got Married Last Month!

The Celiac Dietitian – Selena De Vries, RD

Ask the Celiac Dietitian – Selena De Vries – During Virtual Office Hour Every Friday

Dietitian Services by Celiac, Selena De Vries, RD

Post-Halloween Gluten-Free Candy Debrief!

The Celiac Scene

The Celiac Scene Presents at the BC Society of Laboratory Scientists Congress

What Does the Gut Say? How the ‘Bugs Inside Us’ Affect Overall Health

Study Points to Connection Between Epilepsy and Gluten-Related Disorders

Gluten-Free Craze a ‘Double-Edged Sword’ for Celiac Patients

Don’t Trust Your Gut to Tell if You’ve Been Glutened

Travel Gluten Free Podcast Interviews Victoria’s The Celiac Scene

Registered Dietitian Spills the Beans on Food Sensitivity Testing

A Third of ‘Gluten-Free’ Restaurant Dishes Contain Gluten, Study Finds
Read More Ellen Bayens | The Celiac Scene News | Issue: October 2018

News and articles via eyeforpharma – Newsletter by Adam Chapman Editor, eyeforpharma | 28 September 2018

The Robots Are Coming! Roll Out The Red Carpet

Including:
The Best Job in Pharma Right Now? The Sales Rep

Would Your Reps Pass The Empathy Test?

Why CX Starts In Sales,

A Career-Defining Diagnosis

When Patients Take Control

Download your entry pack for the eyeforpharma 2019 Awards… Read More News and articles via eyeforpharma – Newsletter by Adam Chapman Editor, eyeforpharma | 28 September 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

Excerpt:

“ARMA is all about collaboration, seeing the value of working together, the power of combining the perspectives of patients alongside a range of professionals. We hope that the NHS ten-year plan will also recognise both MSK, and the importance of a multidisciplinary pathway approach to supporting people with MSK conditions.” 
#BoneJointWeek 12-20 October 2018 | The theme of campaign is:

“Musculoskeletal conditions: The elephant in the room?”… Read More ARMA Newletter | Arthritis & Musculoskeletal Alliance  | October 2018

DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018

Excerpt:

‘Each disc consists of a soft inner part surrounded by a fibrous coating. Sometimes the coating gets torn which allows the softer material to bulge out. The pain when the softer material bulges out can be excruciating and this condition is commonly known as ‘a slipped disc‘.’… Read More DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018

#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018

I want to continue to bring hope to those still in the fight against chronic pain, lighting the way so that you, too, can find victory. ~ Gabriel King… Read More #PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018

#PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

Articles  >>>

A Match Made in Health Care
We Need to Talk 
Plan Ahead 
A Team Approach
Get your Better-Living Toolkit via this link  >>>

http://www.arthritis.org/toolkits/better-living/?… Read More #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness

Feedspot is the content reader for reading all your favorite websites in one place.

Read your favorite Blogs, News websites, RSS Feeds, Youtube Channels and Social sites accounts from one place on Feedspot.

Using a content reader helps you keep up with your top information sources – content comes straight to you, saving you the time to go and check every site on your own.

Feedspot also keeps track of which items you’ve read, so you only see the unread items when you come back, even when you login on different devices.… Read More FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness

#chronicillnessVOICE | 27 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

WOW! it’s WEGO TIME DAY 2 ~ Are you ready for more celebrating | Kicking off Day 2 with a Facebook Live at 11 am ET.
Good luck to all finalists Congratulations to all of the WEGO Health Awards finalists & winners yesterday

#PAM2018  #fightfibro #fibro2018
Fibromyalgia News Today Weekly Columns | 26 September 2018
Fibromyalgia Patient voices

#PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare
The Arthritis Foundation  |  Go Outside and Play! |  25 September 2018

Neuroscience Newsletter |  25 September 2018

Patient Newsletter  |  Is overtime wrecking your health?  |  26 September 2018

Psych Central Newsletter |  Psych Central Daily |  25 September 2018

#chronicpain #PAM2018 #fibro #backpain
Group Therapy for the treatment of #fibromyalgia & chronic #pain | BARMAC51 |  27 September 2018

What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018

UPDATED LIST
paper.li newsletters have also My favourite health related paper.lis and they update themselves.   … Read More #chronicillnessVOICE | 27 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

#PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness… Read More #PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

MSK services survey – Please let us know what is happening locally | ARMA

MSK services survey – Please let us know what is happening locally

As part of their Clinical Networks Project, ARMA wants to find out what is happening to improve MSK services across England in order to see how we can best target our support for improvements.

Primary Care Rheumatology Society Conference 2018
“Improving MSK Medicine & Rheumatology”… Read More MSK services survey – Please let us know what is happening locally | ARMA

#PAM2018 MNT weekly newsletter | Pain / Anesthetics | 5 September 2018

Common painkiller poses risk to heart health

Swelling in rheumatoid arthritis and where it occurs

How long do hemorrhoids last? What to know#

What causes pinkish-brown discharge?

What causes itchy nipples while breastfeeding?

Rheumatoid arthritis and back pain

What are the signs of prostate infection?

How to manage morning stiffness with rheumatoid arthritis… Read More #PAM2018 MNT weekly newsletter | Pain / Anesthetics | 5 September 2018

Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

#chronicillnessVOICE | 10 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

September is #PAM2018 #painawarenessmonth chronic pain awareness month

Featuring:

Ellen Bayens | The Celiac Scene News | Issue: September 2018

THE AWFUL PAIN OF A TRAPPED/PINCHED #NERVE… |  BARMAC5 | BackPainBlog  | 9 September 2018

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 
By  Meditation and Healing |  8 September 2018

My Medical Musings
Medically Retired and Living a Life of Faith and Hope with a Rare Disease
The “Chronic Illness” Law of Diminishing Returns  |  Sam  |  7 September 2018

The Best Free Apps to Combat Migraine & Chronic Pain  |  migrainemantras  | By Alexandria  |  7 September 2018

Latest edition! 
ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

MNT weekly newsletter | 5 September 2018 | Pain / Anesthetics

@PainConcern | Pain Concern |Airing Pain PODCAST
Informing the pain community
106: Pain Education for Doctors, Patients, and Parents

Read More #chronicillnessVOICE | 10 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients