Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!

The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves. … Read More Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!

7th annual Health & Justice Summit event in November 2019 at Bristol, UK | Convenzis Group | (sponsored)

The main title will be ‘Journeys Through Justice – Leadership and Transformation’ – focusing on a range of themes including Women in prison, Transgender pathways, Children’s services, Learning disability and difficulty and Trauma-informed care… Read More 7th annual Health & Justice Summit event in November 2019 at Bristol, UK | Convenzis Group | (sponsored)

For a healthier heart read NHLBI Deliciously Healthy Eating Recipes

DASH is a heart healthy approach that has been scientifically proven to lower blood pressure and have other health benefits. With this flexible and balanced eating plan, you can enjoy plenty of fruits and vegetables, fish, poultry, lean meats, beans, nuts, whole grains and low-fat dairy. There are no special foods or hard-to-follow recipes required.… Read More For a healthier heart read NHLBI Deliciously Healthy Eating Recipes

#chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Read today’s issue via this link: https://nzzl.us/KvmvTRv Wishing you wellness as always ~ Carole Sian – Co-F Many thanks for reading and supporting… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

New edition of Airing Pain | Pain Concern | 2 July 2019

Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019

I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

Get to know about AI in Medicine with ‘AI Med’

Who are AI Med? AI Med are a clinician led community exploring how AI can be used in Medicine and was founded in 2014 by Dr Anthony Chang. Founder AIMed Chang is Chief Artificial Intelligence Officer, Children’s Hospital of Orange County (CHOC) Chang is a practising paediatric cardiologist, CIIO at CHOC children’s and world-renowned expert on artificial… Read More Get to know about AI in Medicine with ‘AI Med’

Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH |  July 1 2019

NCCIH co-sponsored a recent workshop that united two of its research priorities: natural products and pain. Excerpt: “On February 6, we cosponsored a 1-day workshop at the National Institutes of Health (NIH) on “Natural Products and Pain: The Search for Novel Nonopioid Analgesics” with the National Institute of Neurological Disorders and Stroke and the National Center for… Read More Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH |  July 1 2019

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

#chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed

In 2013 Chang initiated a series of meetings that examined the benefits, and limitations, of AI ‘for’ medicine. “These meetings, called AI in Medicine (AIMed), have been successful since then in creating a ‘friendly’ and ‘collaborative’ gathering of minds as well as an ‘intellectually stimulating’ opportunity to learn about AI in medicine and healthcare.… Read More #chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed

#ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

Many thanks for taking a look and if you enjoy the content please can you share it with your peers and colleagues.
It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.
Read More The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org

Paramedic Science is the only non-medical health course not eligible for additional funding to cover compulsory costs associated with the course, such as placement travel and accommodation. We are lobbying parliament to reconsider the eligibility of Paramedic Science for the Learning Support Fund and Travel and Duel Accommodation Expenses system available to students on Nursing, Midwifery and the other Allied Health Professions.… Read More Petition · Matthew Hancock MP: Review eligibility of Paramedic Science students for the NHS Learning Support Fund · Change.org

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients