healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.… Read More healtheo360 Join a ‘PATIENT’ community and share your story!
Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day
During these extraordinary times, the most important thing Pharma can do is collaborate cross-functionally and cross-company.… Read More #COVID_19 won’t stop the #collaborating or #crossnetworking – JOIN US for FREE as eyeforpharma Philadelphia goes #Virtual
Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide.… Read More Freshly updated Selected Newsletters from News Medical
Whether you are curious about essential oils, skeptical about essential oils, or frequently use essential oils, this is the perfect guide to help you get started and teach you about the basics.… Read More How to Get Started with Essential Oils – Pink Fortitude, LLC
This EXCLUSIVE PAPER ‘What Patients Want’ discusses the roundtables / interactive sessions that were designed + led by patients, co-chaired by patients, and moderated by industry facilitators ie patient advocates.… Read More ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
Your Gluten-Free Guide to Victoria, Vancouver Island & the Gulf Islands!
Restaurant Reviews! Celiac News! What to See & Do in Gluten-Free Paradise!… Read More Ellen Bayens | The Celiac Scene e-News – February Edition!
The more I think about it, the fact that data sits in silos and is in different formats is the thing that is preventing true patient centricity, because it’s what stops you determining whether intervention X actually created result Y within the population, and hence reward the right kind of behaviour.’
PAUL SIMMS, CHAIRMAN EYEFORPHARMA… Read More NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms
‘…The Dario LC Blood Glucose Management System features a lancing device, glucose meter, smartphone app, and Bluetooth connectivity to allow you to easily analyze readings, spot trends, and share results.’… Read More Guest content: Managing Diabetes: How Technology Can Help
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
It is time to pat yourselves on the back for being actively involved to help create change.… Read More Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.
The discussions will look to give you a ‘step-by-step’ guide as to what you need to ‘successfully implement digital solutions, overcome challenges in scaling, early stage planning and cross-company consistency, to ensure your customer interactions are a success’. … Read More FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters
Knowing the differences between conditions that share so many symptom similarities makes it easier to understand the condition that you have, and also means you can work with your health care providers to create the most suitable management plan for you to cope living with it.… Read More Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
“Today, medicines work well in only a fraction of a target patient population. Not only is this a disservice to hundreds of thousands of patients, it is also a huge contributing factor to the poor performance and failure of many clinical trials.”… Read More The Digitome: a platform for enabling rapid decentralization, personalization and recruitment for clinical trials | eyeforpharma
FibroFlutters in support of, and the work by, AI Med
Recently, I had an appointment with a Gastroenterologist in the private sector as the NHS delayed my appointment by well over six months.… Read More Accessing specialist doctors faster after a brain injury
Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
The attractive thing for me about this app is the fact that I can donate to charities just for taking my medications. … Read More This #healthapp is definitely worth trying if like me you’re dreadful at remembering to take your #medications
“The right scalp psoriasis treatment can help you live healthier – and look better. Get tips on how to care for yourself at home and at the salon.”… Read More How to treat and manage scalp psoriasis | National Psoriasis Foundation
Images in post: Are from the article on Medical News Today which were made available when it was pressed. Feature Image was purchased from http://www.canstockphoto.co.uk
If you are suffering from lower back pain then according to Science Daily you could treat yourself using acupressure. A recent study fou… Read More TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: September 2019
Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com
The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves. … Read More Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
The main title will be ‘Journeys Through Justice – Leadership and Transformation’ – focusing on a range of themes including Women in prison, Transgender pathways, Children’s services, Learning disability and difficulty and Trauma-informed care… Read More NOT LONG NOW! RCGP’s 7th Health and Justice Summit: Journeys Through Justice – Leadership and Transformation (sponsored)(updated)
DASH is a heart healthy approach that has been scientifically proven to lower blood pressure and have other health benefits. With this flexible and balanced eating plan, you can enjoy plenty of fruits and vegetables, fish, poultry, lean meats, beans, nuts, whole grains and low-fat dairy. There are no special foods or hard-to-follow recipes required.… Read More For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
This survey gives you an opportunity to influence the Health Research Authority’s future strategy to improve public access to information about health and social research in the UK. … Read More Make It Public | Source: Health Research Authority Newsletter 18 July 2019
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: June 2019
Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019
Pulse Magazine | All things technology & health | Pulse Publishing
Fibro Warrior Weekly
Drunk Kitty aka Julie Ryan/ Counting My Spoons … Read More Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
Caroline Dinenage, minister for care, said: “This innovative new digital service for reporting and learning from incidents will provide a more holistic way of collecting and analysing vital data to help improve care right across the NHS. … Read More New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope
Who are AI Med? AI Med are a clinician led community exploring how AI can be used in Medicine and was founded in 2014 by Dr Anthony Chang. Founder AIMed Chang is Chief Artificial Intelligence Officer, Children’s Hospital of Orange County (CHOC) Chang is a practising paediatric cardiologist, CIIO at CHOC children’s and world-renowned expert on artificial… Read More Get to know about AI in Medicine with ‘AI Med’
In this kind of project, outcomes are typically developed in dedicated work teams and ethically relevant outcomes are finally reviewed by an internal ethics or multi-stakeholder advisory committee. … Read More The Ethics of PARADIGM – PARADIGM
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