#chronicillnessVOICE | 20 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:

August 2018 Newsletter from Stress Resources |  Pamela Ressler |  August 2018

Digital Health Digest | 17 August 2018

How to Overcome Common Exercise Hurdles  |  Mind, Body Spirit – Arthritis Foundation  |  16 August 2018

Carole’s selection from
Science X Newsletter  | Aug 17 2018

BioPharma Dive’s Top News

Weekender: Main Headline – Roche’s Genentech planning to lay off 223 employeesWeekender | Aug.​ 18,​ 2018

Register for Chronic Pain: The Science of Complementary and Integrative Health Approaches

Read More #chronicillnessVOICE | 20 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

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Alzheimer’s Reading Room Newsletter|  Rewiring My Brain and Stepping into Alzheimer’s World  |  Bob De Marco |  14 August 2018

Other headlines  >>>

Afraid of Making the Wrong Caregiver Moves?

Dementia Care, Which Drugs Increase the Risk of Falling

Help Alzheimer’s

Activities to do with Your Parent who has Alzheimer’s Dementia

Award Winning Knowledge Base

Articles… Read More Alzheimer’s Reading Room Newsletter|  Rewiring My Brain and Stepping into Alzheimer’s World  |  Bob De Marco |  14 August 2018

Why I support ‘Respect Yourself’ | Carole Sian | 35 years ago things were a lot different

The problem was I didn’t need counselling for the name-calling, it wasn’t an issue because I just ignored it.  I was being bullied for many other things, I was always ‘different’ and made to feel that way by pretty much everyone around me. … Read More Why I support ‘Respect Yourself’ | Carole Sian | 35 years ago things were a lot different

Government announce opt-out system for organ donation | 5 August 2018  | Andrew Webster

Excerpt from the article:

‘The new ‘opt-out’ system is expected to come into effect in England in spring 2020, and could lead to hundreds more people receiving life-saving transplants every year. 

The change will mean that people will be presumed to consent to donating their organs unless they register their decision to opt-out on the NHS organ donation register.’… Read More Government announce opt-out system for organ donation | 5 August 2018  | Andrew Webster

STAT: Morning Rounds | Sponsored by Paraxel |  14 August 2018

Headlining >>> Switching antipsychotics, an HHS staff directory disappears, & HIV prevention

Refugee resettlement directory removed from HHS site

Medical ethicists call for clarity on ‘right to try’

Switching antipsychotics doesn’t improve schizophrenia outcomes, study suggests

Inside STAT: 
Medical schools consider changes as students cut class

A flexible patch to monitor breathing and brain activity

HPV vaccination laws don’t boost risky behavior, study finds… Read More STAT: Morning Rounds | Sponsored by Paraxel |  14 August 2018

A selection of posts by chronic bloggers via The Mighty 

Including:
How My ‘One Day at a Time’ Philosophy Helps Me Cope With Chronic Pain  |  by Samantha Moss  on Trigeminal Neuralgia

12 Clothing Brands With Pain-Free Seams That Won’t Hurt Your Skin  |  by Paige Wyant on Chronic Pain

Confessions of People Facing Rare Disease: This Is Life  |  by Ashanthi De Silva on Rare Disease

When the Demands of Motherhood Almost Led to a Nervous Breakdown  |  by Amanda Lynch on Anxiety

Facing Disability as an Adult Who Wants to Work  |  by Alex Tomlinson on Migraine

Plus more…… Read More A selection of posts by chronic bloggers via The Mighty 

Alzheimer’s Reading Room Newsletter|  Can an existing Alzheimer’s drug stop Alzheimer’s disease if taken before symptoms develop?  |  Bob De Marco |  8 August 2018

Other headlines  >>>

3 Ways to Redirect a Dementia Patient and Embrace Reality
Can Aspirin Reduce the Risk of Alzheimer’s Disease?
Spouses of Dementia Patients Pay a Heavy Toll
How to Inspire a Dementia Patient to Shower (Podcast)… Read More Alzheimer’s Reading Room Newsletter|  Can an existing Alzheimer’s drug stop Alzheimer’s disease if taken before symptoms develop?  |  Bob De Marco |  8 August 2018

#chronicillnessVOICE | Morning Edition | 14 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:

For the #Professionals
Psychiatry Advisor’s Daily Updates  | Featuring:  Brain Region Connectivities Mediate the Association Between Depression and Sleep Quality | August 13, 2018

Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose

Including Rare Revolution Mag Twitter feed

MedicineNet ~ Newsletter  |  FEATURED: Persistent Depressive Disorder (Dysthymia)  |  13 August 2018

Fibromyalgia News Today Weekly Digest  |  13 August 2018

A selection of posts by chronic bloggers via The Mighty 
CHRONIC ILLNESS • August 13, 2018

Patient Newsletter  |  Subject:  What your dreams could be trying to tell you |  14 August 2018

Neuroscience Newsletter |  13 August 2018

Latest from MSWorld, News, Events & More! |  MSWorld, Inc. ~ MSWorld Newsletter | 13 August 2018

Read More #chronicillnessVOICE | Morning Edition | 14 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

STAT: Morning Rounds | Sponsored by Abvvie |  9 August 2018

STAT: Morning Rounds | Sponsored by Abvvie |  9 August 2018
Facebook to roll out new restrictions on addiction treatment ads

Talking points from the news

Facebook to roll out new restrictions on addiction treatment ads
Induced labor at 39 weeks linked to lower C-section risk
Some Open Payments entries aren’t accurate
SPONSOR CONTENT BY ABBVIE | Endometriosis treatment is grounded in science, driven by commitment
Lab Chat: Tumors send out tiny weapons to attack T cells… Read More STAT: Morning Rounds | Sponsored by Abvvie |  9 August 2018

#chronicillnessVOICE | Morning Edition | 11 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:

A selection of posts by chronic bloggers via The Mighty

MedicineNet ~ Newsletter  |  Main Headline: Special: Hot Flashes  |  10 August 2018

Latest NIHR funding opportunities |  NIHR  | 10 August 2018

Chronic Pain Patient – Learning How to Become a Caregiver | By Ellen Lenox-Smith|  National Pain Report |  10 August 2018

Read More #chronicillnessVOICE | Morning Edition | 11 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

#chronicillnessVOICE | Morning Edition | 10 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:

NIH News in Health | Bionic Movements | Loneliness | Shingles | Concussions | Palliative Care |  6 August 2018

Neuroscience Newsletter |  9 August 2018

STAT: Morning Rounds | Sponsored by Abvvie |  9 August 2018

Government announce opt-out system for organ donation
5 August 2018     Andrew Webster    

The Ehlers-Danlos Syndromes Toolkit  |  Ehlers-Danlos Support UK | Sourced via Royal College of General Practitioners

Latest edition! 
ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018
Harnessing a collective focus to transform MSK services

Read More #chronicillnessVOICE | Morning Edition | 10 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

NIHR Life Sciences Industry | News and Research from the NIHR ~ July 208 | Latest NIHR funding opportunities | NIHR Clinical Research Network

Latest NIHR funding opportunities

NIHR Life Sciences Industry
News and Research from the NIHR ~ July 208
NIHR Clinical Research Network

National Industry Event – The Future Now

10 October 2018 | De Vere Grand Connaught Rooms, London… Read More NIHR Life Sciences Industry | News and Research from the NIHR ~ July 208 | Latest NIHR funding opportunities | NIHR Clinical Research Network

#chronicillnessVOICE | Morning Edition | 09 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:

Why Patient Organizations Are No Summer Fling For Pharma
By Adam Chapman |  8 August 2018 – eyeforpharma

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up |  30 July 2018

Alzheimer’s Reading Room Newsletter|  Can an existing Alzheimer’s drug stop Alzheimer’s disease if taken before symptoms develop?  |  Bob De Marco |  8 August 2018

News selected from ScienceX newsletter 8 August 2018 by Carole 

BPS Research Digest | Opening headline:  The “beautiful mess” effect: other people view our vulnerability more positively than we do  |  9 August 2018

Read EMJ RHEUMATOLOGY 5.1 2018 | JULY 2018 | full review of the European League Against Rheumatism (EULAR) congress

Latest edition! 
ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018
Harnessing a collective focus to transform MSK services

Read More #chronicillnessVOICE | Morning Edition | 09 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Patient Newsletter  |  Subject:  How to get beach-ready feet |  24 July 2018

Main Headline:   How to keep your feet problem-free

Other Headlines >>>
How to protect your feet this summer
Join our Foot and Toe Problems Forum
What’s causing your cold feet?
What it’s really like to live with gout
Choosing the perfect pair of trainers
What’s causing your foot pain?
Tuna steak with tomato salsa, quinoa and vegan halloumi
Quinoa, buckwheat and turmeric breakfast bowl… Read More Patient Newsletter  |  Subject:  How to get beach-ready feet |  24 July 2018

A selection of Migraine related readables from Migraine.com Weekly (July 18-20)

Migraine’s Negative Impact on the Support System – Part 1 |  By Holly Baddour  |  Migraine.com  |  20 July 2018
Migraine’s Negative Impact on the Support System – Part 1

The “How Do You Feel?” Conundrum |  By Kerrie Smyres |  Migraine.com  |  18 July 2018
The “How Do You Feel?” Conundrum

Beach Trip With Chronic Migraine |   By Kyky Knight |  Migraine.com  |  19 July 2018
Beach Trip With Chronic Migraine… Read More A selection of Migraine related readables from Migraine.com Weekly (July 18-20)

Dashboard for doctors could boost statin prescribing|  Original Investigation – Cardiology |  27 July 2018

Article: Effect of an Automated Patient Dashboard Using Active Choice and Peer Comparison Performance Feedback to Physicians on Statin Prescribing | Mitesh S. Patel, MD, MBA, MS1,2,3,4,5,6; Gregory W. Kurtzman, BA1,2; Sneha Kannan, MD7; et al… Read More Dashboard for doctors could boost statin prescribing|  Original Investigation – Cardiology |  27 July 2018

#chronicillnessVOICE | Daily News | 03 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:
Read EMJ RHEUMATOLOGY 5.1 2018 | JULY 2018 | full review of the European League Against Rheumatism (EULAR) congress

Latest edition! 
ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018
Harnessing a collective focus to transform MSK services

The Latest epsisode!
Airing Pain  | 105:  Singing, Laughter, Speech & Pleasure  |  1 August 2018

#Patientcare #Patientnews #NHS 
Patient Newsletter  |  Subject:  Are your meat-free friends welcome at your BBQ? |  2 August 2018… Read More #chronicillnessVOICE | Daily News | 03 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

How Do You Localize A Global Brand Strategy? | By Adam Chapman |  eyeforpharma  |  16 July 2018

Opening paragraph:

‘Isn’t it marvelous how richly diverse the world is? Every adage about travelling rings true when you cross borders and experience it first-hand. I mean, who hasn’t quaffed Sangria on a beach and waxed lyrical about the world’s wonders?’… Read More How Do You Localize A Global Brand Strategy? | By Adam Chapman |  eyeforpharma  |  16 July 2018

#chronicillnessVOICE | Daily News | 30 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:
Latest issue!  NICE Newsletter | July 2018
Including this month’s PODCAST:  Be the first to hear NICE talks ep. 8
Child abuse: communication is key

British Heart Foundation |  Should you be taking a multivitamin?  | 29 July 2018

RELIEF Newsletter  |  July 25 2018
RELIEF is a service provided by the IASP Pain Research Forum

Digital Health Newsletter | Digital Health | 27 July 2018… Read More #chronicillnessVOICE | Daily News | 30 July 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

STAT: First Opinion |A week’s worth of perspectives by experts on science & medicine | Curated by Patrick Skerrett | 29 July

Blockchains for biomedicine and health care are coming. Buyer: be informed | By ANDY CORAVOS AND NOAH ZIMMERMAN

Are embryos people? The answer will determine the future of reproductive medicine | By ERIC J. FORMAN

A tax on medical devices makes no sense. It’s time to eliminate it for good |  By DAVID BEIER… Read More STAT: First Opinion |A week’s worth of perspectives by experts on science & medicine | Curated by Patrick Skerrett | 29 July

About Us -How we began

There are a good number of people in Sunderland with Fibromyalgia and varying other long term chronic chronic conditions, actually, and it shocked me in the beginning.
At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK with FibroFlutters members, and readers, this is because even though there were only 5 of us  but we spanned 3 counties!… Read More About Us -How we began

About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed.  I am also using these new opportunities in the ‘REAL WORLD’ to help  myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Opening lines:

Researchers from the University of Illinois at Chicago are the first to conduct a large-scale analysis of treatments and outcomes for children with Stevens-Johnson syndrome (SJS) and toxic epidermal necrolysis (TEN), rare skin conditions caused by medications and infections.… Read More Rare pediatric skin conditions often get expensive, inconsistent care |  University of Illinois |  9 July 2018

Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018

Wellness across different dimensions shown to facilitate independence in older adults  |  University of Maine  |  Medical Express |  11 July 2018

How a Mediterranean diet could reduce osteoporosis  |  University of East Anglia  |  Medical Express |  11 July 2018  

Extreme heat and reduced cognitive performance in adults in non-air-conditioned buildings  |  Harvard T.H. Chan School of Public Health  |  Medical Express |  10 July 2018 … Read More Gabrielle Lopez MPH | Co editor choice of research related readables 10/11 July 2018

A few FREE Health apps & e-books

How Digital Technology is Helping Patients Manage Chronic Pain | PainScale >
For Patients & Professionals

Selfie medicine: Phone apps push people to take their pills  |   by Carla K. Johnson  |  28 March 2018

FREE Apps!  7 free walking apps  | sourced from British Heart Foundation  Newsletter |  25 March 2018

Free E-book: Inviting Patients to the Center of Drug Development  |  ZS  … Read More A few FREE Health apps & e-books

Are you interested in #research? Would like to get more involved, or know what research is going on around you?

Study summary
The Human Pain Research group based at Salford Royal is trying to develop new technologies that can measure and treat changes in the brain that might contribute to chronic pain.

The research team are exploring a new approach aimed at reducing the unpleasantness of pain for people living with fibromyalgia and/or osteoarthritis using sound stimulation.… Read More Are you interested in #research? Would like to get more involved, or know what research is going on around you?

The Psychosocial Impact of Rosacea: Should Dermatologists Be Concerned? | Suzanne Bujara | Dermatology Advisor  | 22 May 2018 | aimed at PROFESSIONALS

‘Rosacea breeds low self-esteem, which in turn leads to social isolation.1 Historically, rosacea was thought to be a sign of psychiatric illness or alcoholism, which only contributes to existing poor perceptions of the disease.1 Anxiety associated with rosacea creates a vicious cycle, as embarrassment tends to exacerbate the physical blushing associated with the disorder.1’… Read More The Psychosocial Impact of Rosacea: Should Dermatologists Be Concerned? | Suzanne Bujara | Dermatology Advisor  | 22 May 2018 | aimed at PROFESSIONALS

Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017

Another important finding was that listening to music made participants feel less disabled by their condition and more in control of their pain. It did not appear to matter whether individuals listened to their favourite music or relaxing music selected by the researchers.… Read More Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017

www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’ | New treatment information functionality is live for members!

The healtheo360 community includes patients, their caregivers, family members and friends who come to share their personal healing stories so that others may find inspiration and motivation as they go through the journey of living with their condition.… Read More www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’ | New treatment information functionality is live for members!

British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018

It’s not too late to choose a fundraiser, so get your FREE FUNDRAISING KIT get going and make your summer count! Every pound you raise will help fund vital research, giving hope to the 7 million people in the UK living with heart and circulatory diseases, including stroke, vascular dementia and diabetes.… Read More British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018