In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
It is time to pat yourselves on the back for being actively involved to help create change.… Read More Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.
The discussions will look to give you a ‘step-by-step’ guide as to what you need to ‘successfully implement digital solutions, overcome challenges in scaling, early stage planning and cross-company consistency, to ensure your customer interactions are a success’. … Read More FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters
Knowing the differences between conditions that share so many symptom similarities makes it easier to understand the condition that you have, and also means you can work with your health care providers to create the most suitable management plan for you to cope living with it.… Read More Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
“Today, medicines work well in only a fraction of a target patient population. Not only is this a disservice to hundreds of thousands of patients, it is also a huge contributing factor to the poor performance and failure of many clinical trials.”… Read More The Digitome: a platform for enabling rapid decentralization, personalization and recruitment for clinical trials | eyeforpharma
FibroFlutters in support of, and the work by, AI Med
Recently, I had an appointment with a Gastroenterologist in the private sector as the NHS delayed my appointment by well over six months.… Read More Accessing specialist doctors faster after a brain injury
Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
The attractive thing for me about this app is the fact that I can donate to charities just for taking my medications. … Read More This #healthapp is definitely worth trying if like me you’re dreadful at remembering to take your #medications
“The right scalp psoriasis treatment can help you live healthier – and look better. Get tips on how to care for yourself at home and at the salon.”… Read More How to treat and manage scalp psoriasis | National Psoriasis Foundation
Images in post: Are from the article on Medical News Today which were made available when it was pressed. Feature Image was purchased from http://www.canstockphoto.co.uk
If you are suffering from lower back pain then according to Science Daily you could treat yourself using acupressure. A recent study fou… Read More TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: September 2019
Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”… Read More How Clinical Trials Are Evolving | CheckRare.com
The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves. … Read More Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
The main title will be ‘Journeys Through Justice – Leadership and Transformation’ – focusing on a range of themes including Women in prison, Transgender pathways, Children’s services, Learning disability and difficulty and Trauma-informed care… Read More NOT LONG NOW! RCGP’s 7th Health and Justice Summit: Journeys Through Justice – Leadership and Transformation (sponsored)(updated)
DASH is a heart healthy approach that has been scientifically proven to lower blood pressure and have other health benefits. With this flexible and balanced eating plan, you can enjoy plenty of fruits and vegetables, fish, poultry, lean meats, beans, nuts, whole grains and low-fat dairy. There are no special foods or hard-to-follow recipes required.… Read More For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
This survey gives you an opportunity to influence the Health Research Authority’s future strategy to improve public access to information about health and social research in the UK. … Read More Make It Public | Source: Health Research Authority Newsletter 18 July 2019
Research Study Seeks Celiacs Between 12 – 25 Years Old… Read More Ellen Bayens | The Celiac Scene News | Issue: June 2019
Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019
Pulse Magazine | All things technology & health | Pulse Publishing
Fibro Warrior Weekly
Drunk Kitty aka Julie Ryan/ Counting My Spoons … Read More Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
Caroline Dinenage, minister for care, said: “This innovative new digital service for reporting and learning from incidents will provide a more holistic way of collecting and analysing vital data to help improve care right across the NHS. … Read More New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope
Who are AI Med? AI Med are a clinician led community exploring how AI can be used in Medicine and was founded in 2014 by Dr Anthony Chang. Founder AIMed Chang is Chief Artificial Intelligence Officer, Children’s Hospital of Orange County (CHOC) Chang is a practising paediatric cardiologist, CIIO at CHOC children’s and world-renowned expert on artificial… Read More Get to know about AI in Medicine with ‘AI Med’
In this kind of project, outcomes are typically developed in dedicated work teams and ethically relevant outcomes are finally reviewed by an internal ethics or multi-stakeholder advisory committee. … Read More The Ethics of PARADIGM – PARADIGM
NCCIH co-sponsored a recent workshop that united two of its research priorities: natural products and pain. Excerpt: “On February 6, we cosponsored a 1-day workshop at the National Institutes of Health (NIH) on “Natural Products and Pain: The Search for Novel Nonopioid Analgesics” with the National Institute of Neurological Disorders and Stroke and the National Center for… Read More Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH | July 1 2019
Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us
In 2013 Chang initiated a series of meetings that examined the benefits, and limitations, of AI ‘for’ medicine. “These meetings, called AI in Medicine (AIMed), have been successful since then in creating a ‘friendly’ and ‘collaborative’ gathering of minds as well as an ‘intellectually stimulating’ opportunity to learn about AI in medicine and healthcare.… Read More #chronicillnessVOICE SPECIAL EDITION | Why is ‘AI’ so important to the medical healthcare industry? Incl. LIVE STREAM links #AIinmedicine – AIMed
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It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources
I decided to test how long it would be before my back began to ache when sat in a regular dining chair, one with no arms and a straight back. It wasn’t long before I began to notice little things….… Read More Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)
Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.
Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review
I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
Allergies are the type of sensitivity people are generally the most familiar with. In allergies, your body has an inappropriate physical reaction to something that doesn’t bother other people at all. In fact, While the sensitivities of a CSS aren’t exactly allergies, they do involve an inappropriate physical reaction.… Read More Central Sensitivity Syndromes – Difficult to Classify
This is your body on anxiety shared by Lifehack writer Link to the original via this link: About the Poster: This Is Your Body On Anxiety This poster shared by Siobhan Harmer is fantastic and easy to follow and displays what Anxiety does to our bodies, such as how we look paler due to elevated… Read More This Is Your Body On Anxiety
The following link takes you to the National Institute of Neurological Disorders and Stroke (NINDS) and a medical research paper into pain and it goes into intricate detail about what pain is. … Read More Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)