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    • CLINICAL TRIALS NEXUS EUROPE – Digital Event November 26-27th
    • Top 10 Self-Help Tips for Back Pain and Fibromyalgia Sufferers | Nichola Adams, Health Ergonomist
    • Call for action: As patients and HCP’s please give your input on patient information leaflets (PIL) and medicine guides
    • There’s still time to REGISTER for this conference on RARE DISEASE AND ORPHAN DRUGS 1 – 2 October
    • Are you aware of this #Rare? Today is International Ataxia Awareness Day.
    • Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
    • Freshly updated Selected Newsletters from News Medical
    • HOME – Categories
    • Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
    • It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
    • Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
    • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
    • Take a look at what NHS events Convenzis have coming up!
    • Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
    • ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
    • healtheo360 Join a ‘PATIENT’ community and share your story!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
    • FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018
  • CHRONIC BLOGGERS & SPOONIE TALK
    • Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
    • Our First Dog Show – Competing in Rally Obedience as a Handler with a Disability – The Invincible Summer
    • TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
    • Friend or foe!? Now, I’m being ‘passive-aggressive’, and deservedly so.
    • Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
    • Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
    • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • This Woman Was Fired for Using CBD Oil | By Jaime A. Heidel  |  I told you I was sick 3 September 2018
    • Spoonie Talk: Diagnosing Fibromyalgia by Fibro Files
    • MY FIRST HAND ACCOUNT OF HOW THE NHS IS STRUGGLING…
    • Do you blog about your Chronic Illness?
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO
    • Fibromyalgia / CFS / Anxiety & Depression / Invisible Illness: The viscious circle of ‘Catch 22’ & Setbacks versus Flares: Which is which?
    • Spoonie talk – What came first? Your pain?, or, your depression? | by Fibrofly73
    • Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
    • Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
  • PHARMA / SCIENCE / TECH / DIGITAL / AI
    • Pharma / Science / Tech / Digital / AI – Categories listing
    • New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
    • Get to know about AI in Medicine with ‘AI Med’
    • Continuing the discussion for successful translation of #AI into #clinicalradiology – AI Med
    • Guest content: Managing Diabetes: How Technology Can Help
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • Reuters Events (eyeforpharma) |Articles | Events | News
      • Almost there! Will you join us to talk about ‘Reaching patients and educating patients using agile social media strategies’​?
      • #COVID_19 won’t stop the #collaborating or #crossnetworking – JOIN US for FREE as eyeforpharma Philadelphia goes #Virtual
      • The Caregiver and Patient Support Programme | FREE webinar | Reuters Pharma – formerly eyeforpharma
      • Survey to produce a ‘state of the industry report’ | eyeforpharma
      • ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
      • A few articles you might have missed – eyeforpharma
      • The Digitome: a platform for enabling rapid decentralization, personalization and recruitment for clinical trials | eyeforpharma
      • Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019
      • Oh! the ‘im-patients’ of it all!
      • We’re all-a-flutter | Paul Simms Chairman of eyeforpharma  |  21 March 2018
  • Mental Health
    • MedicineNet ~ Newsletter |  Stages of Alcohol Use Disorder  |  30 August 2018
    • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
    • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
    • This Is Your Body On Anxiety
    • NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
    • How does our brain process fear? Study investigates | Medical News Today
  • Treatments and Therapies
    • Therapies and Treatments
      • How to Get Started with Essential Oils – Pink Fortitude, LLC
      • THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
      • Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
      • WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
      • Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
      • Hydrotherapy – Heaven or hell? Part Two – session one / week one
      • Product Review | Nrem Sleep System | Sponsored Post
  • Musculoskeletal
    • Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
    • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
    • Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
    • MSK services survey – Please let us know what is happening locally | ARMA
    • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
    • DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018
    • Fibromyalgia & Chronic Pain
      • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
      • Fibro – What’s that? Find out here!
      • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
      • Fibromyalgia – What’s that? Find out where to find relevant information :-)
      • What are the Symptoms of Fibromyalgia? UPDATED POST
      • Fibromyalgia – Symptoms – NHS Choices
      • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
      • Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017
      • Questions and Answers About Fibromyalgia – Information resource | NIAMS
      • Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
      • Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
      • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
      • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
      • Central nervous system and Sympathetic Skin Response
      • Skin Rashes and Fibromyalgia Syndrome
    • EDS, JHS, HMS & all things collagen / connective-tissue
      • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
      • Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
      • Hypermobility disorders & EDS reclassification as of 15th March 2017
      • How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
      • Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
      • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
      • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
      • Central Sensitivity Syndromes – Difficult to Classify
      • I love to nap. Do you? |You may enjoy reading these – ‘Fibromyalgia: Need to Nap Increases as Symptoms Worsen’ & ‘Napping: the expert’s guide’
      • How does Chronic Illness / Pain affect your Sleeping Habits
  • The Chillout Lounge
    • The CHILLOUT LOUNGE
    • Alternative / Complementary Therapies & Treatments
      • Product Review: Cannacares CBD gel capsules, a food supplement to compliment your health management.
      • Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
      • Your Aromatherapy Guide  |  Jan Randall  | 14 April 2018
      • ‘OIL’ have you know!
        • Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
        • Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
        • INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
        • Are You in Chronic Stress Mode? Seastones natural therapies
        • Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
        • Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
        • Touch Heals
    • Relaxation Techniques
      • Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
      • Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
      • The Therapeutic Benefits of Gardening | By: Virgil Anderson
      • Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
      • Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
      • Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
      • Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
  • Newsletters/Papers/Magazines
    • My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
    • Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
  • Awareness campaigns
    • May is Ehlers-Danlos Syndrome Awareness Month
    • May 12th International Fibromyalgia Awareness Day
    • May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
    • FMAUK | Fighting for the freedom from Fibromyalgia
  • Research related readables
    • ARMA has a new #knowledgehub
    • Accessing specialist doctors faster after a brain injury
    • Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
    • Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH | July 1 2019
    • Somatic Symptom Disorder. Learn about this disorder. | Patient
    • Are you interested in #research? Would like to get more involved, or know what research is going on around you?
    • ARMA has a new #knowledgehub
    • You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018
    • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Food, drink and recipes
    • Sweet potato and spinach chilli recipe | Patient
    • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
    • Simple and easy Cauliflower English Muffins.
    • Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
    • Ellen Bayens | The Celiac Scene News | Issue: August 2019
    • Patient Newsletter  |  Subject:  The best foods for fighting skin problems | 11 July 2018
    • Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
    • 10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
    • Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
  • The hints and tips station
    • How to sleep when pregnant: Best positions and sleep aids
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
    • Live Better with Rheumatoid Arthritis  |  Arthritis Foundation 
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • HOW TO KEEP A PAIN DIARY (free download)…
    • THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
    • How to employ your own Personal Assistant (PA)
    • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
    • Spoonie Talk by Jaime A. Heidel: I Told You I Was Sick » How to Treat a Person With Chronic Illness – A Step-By-Step Guide
  • FibroFlutters Sunderland ~ HOME news
    • Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
    • It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
    • About Us
    • Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards
    • I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jensen from There is Always Hope
    • Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
    • May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • FibroFlutters celebrates being one of the Top-10 Best UK Fibromyalgia Blogs via Feedspot
    • FibroFlutters is recognised again by Feedspot |Top 10 placing #chronicillness
    • Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients
    • HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000
    • At last! I’m finally back online.
  • SoMe Patient Platforms
    • healtheo360 Join a ‘PATIENT’ community and share your story!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
    • Are you a ‘SAVVY’ patient? come and check it out!
    • Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
    • RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
    • New Patient platform! patient-patient registry
    • Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
  • @FibroFlutters on Twitter – Global Community Patient Organisation – Public
  • FibroFlutters (Sunderland & NE UK) on FACEBOOK ~ Closed Discussion Group
  • Fibro Flutters HQ – Facebook – Global Community Patient Organisation – Public
  • FibroFlutters – LinkedIn Global Community Patient Organisation – Public
  • Fibrofly73 (Carole Sian) – Pinterest
  • FibroFlutters – YouTube Playlists

FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Tag: chronic illness

Are you aware of this #Rare? Today is International Ataxia Awareness Day.

International Ataxia Awareness Day (IAAD) is on September 25 of each year. It is a coordinated effort from individuals and Ataxia organisations around the world to help shed light on this rare disease. #IAAD… Read More Are you aware of this #Rare? Today is International Ataxia Awareness Day.

Sep 25, 2020Sep 25, 2020 fibrofly73

Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints. … Read More Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

Aug 11, 2020Aug 11, 2020 fibrofly73

Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards… Read More Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Jul 30, 2020Jul 31, 2020 fibrofly73

My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes. … Read More My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Jun 5, 2020Jun 6, 2020 fibrofly73

May is Ehlers-Danlos Syndrome Awareness Month

May 18, 2020May 18, 2020 fibrofly73

May 12th International Fibromyalgia Awareness Day

Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day

May 12, 2020May 13, 2020 fibrofly73

Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Feb 29, 2020Aug 9, 2020 fibrofly73

Guest content: Managing Diabetes: How Technology Can Help

‘…The Dario LC Blood Glucose Management System features a lancing device, glucose meter, smartphone app, and Bluetooth connectivity to allow you to easily analyze readings, spot trends, and share results.’… Read More Guest content: Managing Diabetes: How Technology Can Help

Jan 23, 2020Jan 23, 2020 fibrofly73

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Jan 14, 2020Jan 29, 2020 fibrofly731 Comment

Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

It is time to pat yourselves on the back for being actively involved to help create change.… Read More Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

Dec 24, 2019Dec 24, 2019 fibrofly732 Comments

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Popular Posts

  • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
    Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
  • 10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
    10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
  • NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms
    NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms

MEDICAL DISORDERS

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EDS, JHS, Hypermobility & HSD’s News and info

  • 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
  • Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
  • EDS and Chronic Pain News & info Blog about EDS and Chronic Pain sharing appropriate news and info
  • EDS reclassification as of 15th March 2017 – FibroFlutters INFO POST FibroFlutters INFO POST
  • Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.

Pharma

  • eyeforpharma ~ Home page
  • Pharmaphorum Pharma news and events – Home page
  • eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017

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Line graph Pain levels starting 22 02 2017 week four Hydrotherapy - by CS Scrafton
Fatigue levels starting 22 02 2017 week four Hydrotherapy Column Chart- by CS Scrafton
table-showing-areas-types-of-pain-which-days-they-were-experienced-hydrotherapy-week-three-starting-15-02-2017
pain-levels-week-three-block-chart-hydrotherapy-starting-15022017-cs-scrafton
pain-levels-week-two-hydrotherapy-chart-pic-starting-08022017-line-graph
areas-of-pain-table-hydrotherapy-week-one-starting-01-02-2017
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i-love-my-pillow-poster
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burnout
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Fun pic - Benefits of laughing...
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Fight or Flight?

How does our brain process fear? Study investigates | Medical News Today

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  • Best Recipes of 2020 Jan 24, 2021
    Best recipes of 2020. The top ten new recipes from the past year on Rock Recipes. From No Knead Bread to Honey Garlic BBQ Chicken, it's been a very flavourful year. The post Best Recipes of 2020 appeared first on Rock Recipes.
    Rock Recipes by Barry C. Parsons
  • Perfect Vanilla Cupcake Recipe Jan 24, 2021
    Learn how to make the best vanilla cupcake recipe from scratch! This is my go-to recipe for moist and fluffy cupcakes. I’m sharing a simple filling plus different frosting options so you can make the most fantastic vanilla cupcakes.�Plus, you can make them gluten-free or dairy-free! Pin it now to save for later Pin Recipe Of all the thousands […]
    Crazy for Crust | Recipes... with a slice of life
  • Ombre Coffee Chocolate Panna Cotta…with a deep coffee sauce Jan 24, 2021
    Ombre Coffee Chocolate Panna Cotta brings together two things I love the most - panna cotta and ombre. Loved the way it slid out, one shade slowly following another, the perfect jiggle, charming hues. Made a quick coffee sauce too though the panna cotta is really good on it's own as well. Creamy, deep flavours, satisfying. The post Ombre Coffee Chocolat […]
    Passionate About Baking by Deeba Rajpal
  • Community Bake - Durum Wheat - Semolina Rimacinata Jan 24, 2021
    Community Bake - Durum Wheat - Semolina Rimacinata Submitted by DanAyo on January 24, 2021 - 7:24am. �  Table of Contents for my BLOG The following are a compilation of my bakes for the Durum Wheat - Selmolina Rimacinata Community Bake. Bake #1 Info to be posted soon
    The Fresh Loaf
  • Go Beyond the All-Too-Familiar Lone Wolf Syndrome Jan 24, 2021
    If you are in the process of hatching a BIG IDEA, business, book, product, or career change, there's a good chance -- especially during these crazy days of the Coronavirus -- that you do not have the support you need to make a quantum leap. That's why Idea Champions created Free the Genie -- a simple, affordable way for you to get the spark you nee […]
    The Heart of Innovation
  • Reese’s Thins Sea Salt Peanut Butter Cookies Jan 24, 2021
    Reese’s Thins Sea Salt Peanut Butter Cookies is a recipe I came up with while trying to use up some of the Bouchon Bakery Nutter Butter dough. They are delicious! The cookies are thin, extremely crispy around the edges and very buttery. Even Todd liked them, and he doesn’t care much for peanut butter. With... Read More The post Reese’s Thins Sea Salt Peanut […]
    Cookie Madness - Keeping Life Sweet One Cookie at a Time
  • Nine Favorite Things. Jan 24, 2021
    Nine Favorite Things. Thanks for joining me for another Nine Favorite Things post. As I write this, it’s the coziest night. Snow is lightly falling, I have the fire going and my jumbo size Slow Burn candle is burning away. The perfect January night. I LOVE a cozy night more than anything. January can sometimes be a little […] READ: Nine Favorite Things. […]
    Half Baked Harvest by Tieghan.
  • Easy Homemade Vanilla Pudding Jan 24, 2021
    Creamy, smooth, and flavorful vanilla pudding is one of the easiest recipes you can make from scratch at home! Our homemade vanilla pudding recipe is just as easy to make as a boxed pudding mix, but with better flavor, texture, and ingredients. Once you’ve tried this simple, delicious recipe, you’ll never buy a boxed mix of vanilla pudding at the grocery sto […]
    My Sweet Mission - Making Your Kitchen More Delicious!
  • Let It Be Sunday, 306! Jan 24, 2021
    Hello, friends – good morning Happy Sunday!� I hope this finds you starting a restful Sunday. If it can’t be restful, I hope there’s at least a few moments.  I’m in the middle of a big project at the Bakehouse, shooting several dozen cake recipes with Denny Culbert, the photo mind behind Mosquito Supper Clu […]
    Joy the Baker
  • The 2% weight loss method for judging levain maturity Jan 24, 2021
    The 2% weight loss method for judging levain maturity Submitted by Doc.Dough on January 23, 2021 - 10:18pm. A few years ago, I was experimenting with various ways to increase the acidity of sourdough bread and found that I needed a way to produce levains that were similarly mature but at various hydration levels, including some as high as 250%. The “normal” […]
    The Fresh Loaf

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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  • New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
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  • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
  • Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
  • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
  • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
  • How does our brain process fear? Study investigates | Medical News Today
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  • #NeuroendocrineCancer  #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
  • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
  • Scope Blog Post  |  “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
  • Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
  • How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of  (Human Data Project) HDP Health
  • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
  • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
  • Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
  • A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
  • 30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
  • Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
  • 5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
  • The most underrated scientific breakthroughs of 2017 | Quartz
  • 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
  • The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
  • Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
  • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
  • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
  • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
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  • Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
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aving a tough time, can't figure things out? Here's a pretty place for self reflection
aving a tough time, can’t figure things out? Here’s a pretty place for self reflection
What will you find if you wander through the gate
What will you find if you wander through the gate
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
An image to guide your mind to anywhere whilst laying on the beach
An image to guide your mind to anywhere whilst laying on the beach
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
Fantasy land
Fantasy land
A place of serenity by the pool
A place of serenity by the pool
An eye into the unknown
An eye into the unknown
Guide yourself down the path to the...?
Guide yourself down the path to the…?
A picture for using your imagination to take you on a peaceful journey
A picture for using your imagination to take you on a peaceful journey
Who would you like to sit and chat with?
Who would you like to sit and chat with?
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
Feel the stillness and breathe long and deep
Feel the stillness and breathe long and deep
A scented garden to take your mind on a soothing aromatic journey.
A scented garden to take your mind on a soothing aromatic journey.
Great place for sound imagery, hear the watery echoes
Great place for sound imagery, hear the watery echoes
StillnessSpeaks.com
StillnessSpeaks.com
... forget about the world and spend some time on yourself
… forget about the world and spend some time on yourself

Blogs I Follow

MAY 12TH Awareness Day

  • FMAUK | Fighting for the freedom from Fibromyalgia May 12th International Fibromyalgia Awareness Day 2016
  • May12th | Fundraising – FibroFlutters 4 FMAUK Awareness Campaign Poster – May 12th 2017 > Fibro Fighting Fluffie Hugs
  • IF FIBRO IS INVISIBLE WHAT DOES THAT MAKE ME AWARENESSDAY 2015 Poster: IF FIBRO IS INVISIBLE WHAT DOES THAT MAKE ME International Awareness Day Fibromyalgia 2015

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