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Category: JHS
Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)
I decided to test how long it would be before my back began to ache when sat in a regular dining chair, one with no arms and a straight back. It wasn’t long before I began to notice little things….… Read More Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)
#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients
‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday … Read More Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients
Home news | Next meet up is on 20th November
This meeting is also for our Fibromyalgia members and Fibromyalgia Action UK supporters as an extra meeting on top of our sister FMA UK Fibromyalgia group’s meeting on the FIRST MONDAY OF THE MONTH which our members are welcome to Join.… Read More Home news | Next meet up is on 20th November
RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
Headliner: Coming Together to Put Patients First in Headache Treatment | By Stephani Sutherland
Coming Together to Put Patients First in Headache Treatment… Read More RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
ARMA Newletter | Arthritis & Musculoskeletal Alliance | October 2018
Excerpt:
“ARMA is all about collaboration, seeing the value of working together, the power of combining the perspectives of patients alongside a range of professionals. We hope that the NHS ten-year plan will also recognise both MSK, and the importance of a multidisciplinary pathway approach to supporting people with MSK conditions.”
#BoneJointWeek 12-20 October 2018 | The theme of campaign is:
“Musculoskeletal conditions: The elephant in the room?”… Read More ARMA Newletter | Arthritis & Musculoskeletal Alliance | October 2018
Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | September 2018
Webinar: Setting up a MSK Service
Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
5 October 2018, 12.30 – 1.30
Webinar: Rheumatology commissioning in a community
Commissioning for Quality: Community-based Rheumatology Service
19 October 2018, 12.30 – 1.30… Read More Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | September 2018
