It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.… Read More It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

May 12th International Fibromyalgia Awareness Day

Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters

The discussions will look to give you a ‘step-by-step’ guide as to what you need to ‘successfully implement digital solutions, overcome challenges in scaling, early stage planning and cross-company consistency, to ensure your customer interactions are a success’. … Read More FREE WEBINAR | Make digital your success story | eyeforpharma by Reuters

Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

#chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Read today’s issue via this link: https://nzzl.us/KvmvTRv Wishing you wellness as always ~ Carole Sian – Co-F Many thanks for reading and supporting… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Keep up to date with: #healthevoicesVE  #healthevoices18 | HealtheVoices Conference in Chicago USA

HealtheVoices Conference provides online #healthadvocates the empowerment to throw their patient voices, share ideas and also gives them the opportunity network, connect and meet other fabulous Advocates/Peers at the same time.… Read More Keep up to date with: #healthevoicesVE  #healthevoices18 | HealtheVoices Conference in Chicago USA