In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”… Read More I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe
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Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Read today’s issue via this link: https://nzzl.us/KvmvTRv Wishing you wellness as always ~ Carole Sian – Co-F Many thanks for reading and supporting… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019
Pulse Magazine | All things technology & health | Pulse Publishing
Fibro Warrior Weekly
Drunk Kitty aka Julie Ryan/ Counting My Spoons … Read More Newly Updated | My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.
The Im-patient Conference which is new, and its bold.
No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.
Come and see me take part: 17th October | 17:00 – 17:40 (Day 2)
Panel: Candid patient perspectives on the good, the bad and the ugly of service design… Read More Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit
It is a modern platform, with a young and fresh approach to raising and using patient-voices to help the healthcare industry produce better products, and services, with you as the patients being the shareholders.… Read More Are you a ‘SAVVY’ patient? come and check it out!
Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed. I am also using these new opportunities in the ‘REAL WORLD’ to help myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders