Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Feature: ‘Find Me A Cure’
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.
The Im-patient Conference which is new, and its bold.
No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.
Come and see me take part: 17th October | 17:00 – 17:40 (Day 2)
Panel: Candid patient perspectives on the good, the bad and the ugly of service design… Read More Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit
It is a modern platform, with a young and fresh approach to raising and using patient-voices to help the healthcare industry produce better products, and services, with you as the patients being the shareholders.… Read More Are you a ‘SAVVY’ patient? come and check it out!
The Patient Registry Daily News & more on patient registries and their impact on healthcare today
We’re helping patient registries and administrators of clinical trials bridge the patient-outcome knowledge gap through the power of voice.… Read More My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed. I am also using these new opportunities in the ‘REAL WORLD’ to help myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders
NOW AVAILABLE: EMJ 3.2 JUNE 2018 10th issue via this link >>>
EMJ 3.2 Now Available!… Read More My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources. Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO
If you’re from North America
and have an idea, or suggestion, that you would like to be put forward for consideration towards the Conference agenda or Conference Design, then we would love to hear from you. Maybe you’d even like to get more involved!
You can let us know by filling out the survey via the following link :-)… Read More Im-patient UPDATE >>> By POPULAR DEMAND We’re now going to North America
* Is integrative medicine right for you? | Len Canter ~ Healthday Reporter | 8 May 2018
‘Integrative medicine focuses on your well-being and considers all aspects of your health: physical, emotional, mental, social, spiritual and environmental. It draws on whatever medical approaches—traditional or alternative—will serve you best.’… Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST