Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.

The Im-patient Conference which is new, and its bold.

No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.

Come and see me take part:  17th October | 17:00 – 17:40 (Day 2) 

Panel: Candid patient perspectives on the good, the bad and the ugly of service design… Read More Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

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Are you a ‘SAVVY’ patient? come and check it out!

It is a modern platform, with a young and fresh approach to raising and using patient-voices to help the healthcare industry produce better products, and services, with  you as the patients being the shareholders.… Read More Are you a ‘SAVVY’ patient? come and check it out!

About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed.  I am also using these new opportunities in the ‘REAL WORLD’ to help  myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources.  Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader       #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

Im-patient UPDATE  >>>  By POPULAR DEMAND We’re now going to North America

If you’re from North America 
and have an idea, or suggestion, that you would like to be put forward for consideration towards the Conference agenda or Conference Design, then we would love to hear from you.  Maybe you’d even like to get more involved!

You can let us know by filling out the survey via the following link  :-)… Read More Im-patient UPDATE  >>>  By POPULAR DEMAND We’re now going to North America

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

Excerpt:

* Is integrative medicine right for you?  | Len Canter ~ Healthday Reporter |  8 May 2018

‘Integrative medicine focuses on your well-being and considers all aspects of your health: physical, emotional, mental, social, spiritual and environmental. It draws on whatever medical approaches—traditional or alternative—will serve you best.’… Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

Quoted from Opening lines of Jaime’s ~  Proud to Be Pale – How a Melanoma Diagnosis Changed the Way I See My Skin:

“I know. I know. I know. I’m so white, I’d make a sheet of paper jealous. I get it. I’ve heard it all. I’m pale, fair, porcelain, delicate, etc. Yadda yadda yadda.

**sigh**”… Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#Patient #may12th #HealthNews #fightfibro #TrussyTrek #Fibro2018 #Millionsmissing #chilloutlounge #ChronicPain #ChronicBlogger #spoonie#Autoimmune  #Systemic #Dementia #PatientAdvocacy  #chronicillness  #invisibleillness
#Arthritis #Lupus #Sjogrens
#carenews #careguide #care #homecare #elderly #disabled #Fibro  #ME #CFS #brain #mentalhealth #depression  #anxiety #stress #Migraines #GlutenFree #Diabetes #MSK #EDS #HSD #neuroendocrine #NETs #cancer … Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST