Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day
The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves. … Read More Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
If you haven’t signed up as a member please do or I can’t let you into the meeting.
You can sign up for the free membership via this link >>>
Members from both Sunderland and Newcastle areas are welcome… Read More ‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up
‘The people who shook our hands and took time out to speak to us made us feel heard; we cannot fault that. Just in shock that such esteemed pharma folks would be interested, and eyeforpharma has taught us that pharma is actually listening. So we can go and spread the word of that now with confidence after experiencing it for ourselves first hand.… Read More We’re all-a-flutter | Paul Simms Chairman of eyeforpharma | 21 March 2018