The event hosted more interactive sessions between pharma peers and patients than ever before.
A great warm-up read for the roundtables at eyeforpharma Barcelona March 31st – 2 April
Discover why there’s a need to start hearing the ‘patients view‘ of the world, if you’re to understand the drivers of health behaviour that impact their health conditions so that they can play a more active role in managing them.
Healthcare is undergoing a digital transformation, technology and innovation designed to deliver more
immediate, personalised and accessible care. Is digital the answer to the human needs of those facing
sickness or are we just being subjected to the opinions of those who program the all-powerful AI. Living with
sickness is a truly human experience,
How do we balance these emerging tensions and still provide comfort and, when needed, hold a hand?
Digital enables us to be more connected and informed than ever before. Yet, we are becoming more
chronically ill and sick.
What does health literacy truly mean in this context and how do we ensure that people are connecting
with the concept of health rather than just managing symptoms?
Who do we design disease awareness campaigns for – patient or healthcare professional?
The answer is likely to be different depending on our starting point and the perspective of your
organisation.. Gaps can also appear from a siloed approach to communication – are important needs
being missed as a result?
Working in partnership is often presented as the solution to the problems we cannot solve on our own. Yet
we often fail to see beyond the short-term outcome of any partnership, leaving us feeling cynical and
unsure of how to articulate the value. Why? Are our expectations of the partnership too different, too
How can we help partners to better appreciate the value and importance of the experience of living
with health conditions to improve trust by presenting a shared view of what success looks like?
#pharma #patientcentricity #patientengagement #digitalhealth #patientempowerment #efppatient #efpbarca
FibroFlutters supporting eyeforpharma by Reuters as Patient, Health, Research & Pharma advocates, we are non-commercial.
FibroFlutters advocating for patients, health, research, pharma, digital and supporting eyeforpharma
We are a Patient Advocacy Organisation & online social media communications network
FibroFlutters patient, health, clinical research, medical, pharma, digital health & AI advocacy.
Support and advice for people with chronic illnesses and rare disorders. Including, Pigmented Villondular Synovitis (PVNS), Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD’s), Fibromyalgia, Chronic pain disorders, Musculoskeletal conditions, Chronic Fatigue Syndromes / ME, and Mental Health.
We also have a Social media network for connecting multi-stakeholders from across the medical healthcare industries. It also provides us with a network for sharing information such as the latest research, news and events from a cross-section of areas within the medical healthcare industry.
We also have many other groups/pages/profiles across social media that we use to achieve our aims of Patient, Health, Research and Pharma Advocacy. They also give us the ability to provide advice and offer a friendly hand of support across many social media platforms.
SLOGAN: #chronicillnessVOICE for everyone #notjustpatients
- We are not medical professionals nor claim to be. Remember that you should always consult your doctor about any health problems and not solely rely on Dr Google, or on any information that you may read online through 3rd parties.
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Social and useful links
Its A Doddle – Mapping the communities that care
By Mapping UK Charities, Community Projects, Groups & Organisations together we are creating a national resource for use at a local level. Check out our profile via this button below.
SYNAPSE / Patient Focused Medicines Development (PFMD) joined in 2019
Check out our profile to see what initiatives we’re involved in, what the work will involve and how diverse a group of people that we are collaborating with on improving patient engagement within clinical trials. Very different! Very exciting! Very Grateful!
Got something to share then don’t hesitate to get in touch with us. Also if you want to write for me in exchange for publishing privileges let me know via the e-mail link below.
FibroFlutters are continuously…
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.
Using a model approach using all the ‘stakeholders’ and a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
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