In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
rs’ are still high on the agenda along with building ‘customer partnerships’, using ‘education-led’ approaches, ‘digital’ initiatives and of course! ‘big data’.… Read More eyeforpharma’s Marketing and Customer Innovation Europe Summit, 15-16 October, London (sponsored)
“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”… Read More I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe
The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves. … Read More Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
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EXTENDED DEADLINE 16 AUGUST 9 days before eyeforpharma close submissions for the eyeforpharma Awards – Make sure you’re part of the most influential awards in the industry and apply today! Contact: Liz Swift | Awards Manager at eyeforpharma eswift@eyeforpharma.com
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It is purposefully designed to keep you reading for a little while as it will be a couple of months before the next edition will be published. … Read More #ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed. I am also using these new opportunities in the ‘REAL WORLD’ to help myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders
Good LIVING through good HEALTH.
IT'S TO CAUSE AWARENESS ABOUT PEOPLE LIVING WITH EPILEPSY
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I am Judy Advocate for Chronic Illness and Mental Health,Published Writer in Real Life Diaries-Living With Rheumatic Disease(Find it on Amazon,Contributor in #IPainLivingMagazine,#CureArthritis Crew Member for the Arthritis National Research Foundation,@AIArthritis Rep,International Pain Foundation(#IPain) Delegate,@Clara_Health Breakthrough Crew Member and WegoHealth Nominee in 2017 for best in show Facebook and Twitter. I live with Autoimmune/Inflammatory Arthritis(RA),Fibromyalgia,Migraines,PMR and others listed on my header. I Advocate in support of all who live with any illness,I make my own graphics aswell as volunteering online to help create global awareness.
Educating and Empowering those with Chronic Illness
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