#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

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All things Musculoskeletal
Bones Joints, muscles and connective tissue

#WearPurpleForJIA 2019

For more information, please contact Bronwen (bronwen@nras.org.uk) or Anne (anne@nras.org.uk)

  • RA Awareness Week 17-23 June 2019
  • Rheum for You | Manchester, 23rd March
  • Medicine & Me: Living With RA | London, Saturday 30th March
  • New NRAS Group Launching in Cheshire!
  • Brexit and your medicines
  • NRAS is looking for new charity partners for 2019.
  • Fancy taking on a challenge for NRAS in 2019?

You can read all the above via the button link below

NRAS is a private company limited by guarantee
Registered in England & Wales No 7127101
Charity Nos 1134859 SC039721

NRAS Ground Floor 4
The Switchback Gardner Road
Maidenhead, Berkshire SL6 7RJ
United Kingdom

In this edition:

  • NHS Personalised Care plans revealed
  • Arthritis Aids and Devices
  • Cartridge Recycling
  • Upcoming Events | Don’t miss our next events in your local area

Address postal inquiries to:
Arthritis Action56 Buckingham Gate

Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | February 2019

“Harnessing a collective focus to transform MSK services”

CEO update: Let’s all get on the bandwagon togethers

As I sat down to write this, NHS Chief Executive Simon Stevens was on the radio talking about plans to increase the ability of patients to see pharmacists and physios rather than a GP as their first point of contact in the NHS
Excerpt from Sue Brown’s CEO update:
Read more via the newsletter link button below

In this issue

Guest blog: How your local pharmacy can help
by Leyla Hannbeck, Director of Pharmacy at the National Pharmacy Association

People living with musculoskeletal conditions are often taking several prescribed and over-the-counter medicines, so come into frequent contact with their local pharmacist.
Excerpt from’s Leyla’s guest blog –

Webinar: Setting up a MSK Service


Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!

You can access this webinar which describes the set-up of the Telford Musculoskeletal Service and some of the problems encountered along the way, with the solutions used, via the link button below. 
Read more via the newsletter link button below
ARMA webinars are free to access thanks to the support of our partners. We would like to thank Roche Products Limited and Chugai Pharma UK for supporting this webinar.

Member Posts

  • Chiropractor Peter Dixon appointed Fellow of NICE
  • Consultation on new Chiropractic Quality Standard: Osteoporosis
  • MACP partner conference and IFOMPT
    • Physio UK Conference

Read all the above via the link below

MSK services survey – Please let us know what is happening locally

Stigma and pain – new survey

Pain Alliance Europe launched a new survey on stigma and chronic pain. One of the main “fights” PAE is leading is for the pain patient to be heard, believed and understood.

The most recent survey developed deals with stigma related to chronic pain and will be open until the 1st of March, 2019.

Who are ARMA? >>> 

Heard about the new MSK Hub?

It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.

The Arthritis and Musculoskeletal Alliance (ARMA)
Knowledge Hub


The Ehlers-Danlos Society|  CONNECT: Announcing Project ECHO, Amazon Smile update, and more!
7 February 2019

Including  >>>

Many types of stripes: Exploring EDS types

Free webinar: “Evaluation and Management of Fatigue in EDS/HSD”

Lara Bloom launches monthly vlog, “EDS & Me”

International Day of the Zebra celebrated on January 31st

I am enough
A #myEDS story by April B.

Join The Ehlers-Danlos Society in Madrid

Join ‘The Ehlers-Danlos Society’ for their first ever Ehlers-Danlos Society ‘Learning Conference’ in Spain!
Featuring presentations by Dr. Clair Francomano, Dr. Anne Maitland, Dr. Fraser Henderson, and more!

Health Professionals Day: 6 April 2019
Patients Day: 7 April 2019

Read all the above via the button below

EDS webinar schedule

The Ehlers-Danlos Society
P.O. Box 87463 Montgomery Village, MD 20886

Arthritis Foundation Newsletter | It’s all about the joints 12 February 2019

In this issue:

Be Good to Your Joints

Prevent Joint Deformities

Support Your Fingers

Choose the Right Cane

Slideshow > Protect Your Joints

Arthritis Pain Tool Kit Banner
This is a great resource, why not try it out by visiting the Arthritis Foundation website

You can read all the above via the link button below:

© 2019 Arthritis Foundation. 1355 Peachtree Street – Suite 600 – Atlanta, GA 30309. All Rights Reserved.

Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome

Do have EDS or any other hypermobility syndrome?

Are you unsure about what the condition is or whether you may have it or not?

Would you like to know more about it?, for instance one of the main questions often asked…

… Why the Zebra?

The following link takes you to the charity website of Ehlers-Danlos Support UK (EDS UK).  It is a place for information and meeting others with the condition.Taken from their About us Page EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos syndrome. We aim to help them live a full, active and positive life.   Over 25 years later, we remain the only UK based charity that exclusively represents and supports people with all types of EDS.

The charity holds fundraising events to help towards research into EDS and also helps people learn to live with and manage their condition through providing relevant information in pamphlets and booklets, poster and fliers.  They also have a free helpline available to people with EDS, their families, friends and even carers and is run by a registered nurse with a specialist interest in EDS. They survive solely on donations and fundraising and offer varying membership options, including free.

© Copyright 2004-2014 Ehlers-Danlos Support UK

Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
The Ehlers-Danlos Support UK is a Charity registered in England and Wales No. 1157027
Registered Company No. 8924646.

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