#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

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Chronic Bloggers – #patientvoice


This page is dedicated to Chronic bloggers

This is how I started out 4 years ago, one year after setting up FibroFlutters support group, blogging about Fibromyalgia and chronic pain disorders as well as hypermobility and connective tissue conditions.
Over time we all develop our niches and individual interests that we run alongside our blogs, which in fairness have all become quite well established websites for support, and advice, from fellow chronic illness peers.


MY TOP SIX UPLIFTING BLOGS TO READ FROM ALL OVER THE WORLD… | BARMAC5 | BackPainBlog  | 20 February 2019

It was really pleasant to see that Barbara had placed FibroFlutters within her top 6 uplifting blogs. As a fellow blogging and fibromyalgia peer it is wonderful to be recognised and I thank Barbara very much for doing so. You can read about her favourite top 6 via the link button below.


“There are so many different blogs to follow and read but it still amazes me how you can connect with people from all over the world who have a connection with a health condition you are suffering from.

My top six are –

MY TOP SIX UPLIFTING BLOGS TO READ FROM ALL OVER THE WORLD… | BARMAC5 | BackPainBlog | 20 February 2019

Thankyou Barbara ~ from Carole & FibroFlutters team


#trappednerve  #pinchednerve  #chronicpain #carpaltunnelsyndrome

THE SALI STUDY (SIGNIFICANT ANKLE LIGAMENT INJURY) & DAY FOUR AFTER INJURY…|  BARMAC5 | BackPainBlog  | 3 February 2019


After a sustaining a recent injury Barbara shares her experiences with crutches, stairs and moving around with a sprained ankle.
She also discusses a study that she has been asked to participate in which is researching the recovery from significant ankle ligament injury’s.
The purpose of the study called SALI, (significant ankle ligament injury), is all about Osteoarthritis and being conducted within ‘The Arthritis Research UK Centre for Sport, Exercise and Osteoarthritis’.


Excerpt:
‘I knew the crutches would bother my arm and neck but I forgot about the crawling I had done after I went over on my foot and what trouble the stairs could cause me.’

THE SALI STUDY (SIGNIFICANT ANKLE LIGAMENT INJURY) & DAY FOUR AFTER INJURY…| BARMAC5 | BackPainBlog | 3 February 2019

Read  Barbs Blog post via this link  >>>


Visit Barbara’s blog via the button link below
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BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.



RONNY ALLAN – Letter from America | 14 February 2019

Ronny Allan’s blog ‘Living with Neuroendocrine Cancer’ has global recognition and has recieved many awards including WEGO Health where Ronny was voted by his peers to win the ‘Best in Show Blog’ in 2018. Ronny’s blog is also recognised as part of the ‘Patient’s Included’ initiative.

Ronny uses is blog to raise International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping Neuroendocrine Cancer Patients


In this post by Ronny he shares a wonderful little letter that he recieved from a fellow Chronic illness advocate, alongside a trip down memory lane.

“Even as a heavy user of computers, I still get excited about receiving ‘paper’ mail.”

RONNY ALLAN – Letter from America | 14 February 2019

Read the post via the following link  >>>


Ronny Allan’s blog ‘Living with Neuroendocrine Cancer’

International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients



Are you a Patient Leader?

Take a look at how WEGO Health Patient Leaders Connection and Community including a closed group on Facebook can help you.  Come and join myself, Ronny, Barbara, Sam Moss and hundreds of other Patient / health advocates from America and also across the Globe.

I am honoured to be a WEGO Health Patient Expert and I enjoy the advocacy work that I do for myself and for FibroFlutters.  It also makes me happy to assist other patient leaders to reach their potentials’.


Some posts from WEGO

3 Tips for Advocacy of Instagram
Baylee Krawczyk |
February 20, 2019

There are many ways as patient leaders that we can pursue our advocacy missions and using social media has fast become a fabulous way to do it. Instagram this last 12 months has become a popular platform for patient leaders to express their advocacy work, share their blog posts, photos and generally keep their voices flowing out into the masses.

In this article Baylee writes about about Instagram and gives three tips that you can use to enhance your advocacy efforts.


Clinical Trial Recruitment | Take a Proactive Step for Parkinson’s Disease Patients


Researchers are evaluating an investigational drug that focuses on the earliest stages of Parkinson’s disease. There is a potential for this drug to offer a new treatment option for newly diagnosed patients. This investigational drug is being studied to see if it may potentially help to slow, or reduce disease progression.

If you or a loved one is experiencing issues with their management of recently diagnosed (within the last 3 years) Parkinson’s disease, please click the link below to get more information about this trial.

Know someone who may be interested? Please feel free to share with your community.



#patientvoice  #chronicillness  #patientjourney  #healthblog

My Medical Musings Medically Retired and Living a Life of Faith and Hope with a Rare Disease

“One of the cheeky things I really enjoy now, is listening to my neighbours all leaving for work at some ridiculously early hour while I’m lying in bed…granted I’m lying in bed in pain on most mornings but it’s still nice not to have to jump out at the sound of an alarm!”

Hello…here’s a little about me | My Medical Musings
Living a Life of Faith and Hope with a Rare Disease

Here We Go Again…..Spinal Surgery Take Two! | My Medical Musings
FEBRUARY 18, 2019 ~ Sam

“I knew my pain was escalating. I knew something wasn’t right but I wasnt expecting the results the MRI presented us with.”


Here We Go Again…..Spinal Surgery Take Two! | My Medical Musings
FEBRUARY 18, 2019 ~ Sam

Read the post via the following link


Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
My Medical Musings
February 5 2019 ~ Sam


Excerpt:
‘If I have a medical appointment or we want to attempt a pleasurable outing, I have to rejig the whole day to have any hope of making it happen……that’s a whole other story!’

Sometimes A “Sick Day” Is Necessary, Even If You Are Already Chronically Ill
February 5 2019 ~ Sam Moss, My Medical Musings

Read the post via the following link


Read all about Sam Moss and My Medical Musings via the button link below

Why not visit the site and sign up for newsletters

© My Medical Musings 2015 to current.



Weekly digest for The Migraine Mantras  |  The Migraine Mantras  |  4 February 2019


Looking Forward to Relief

Opening lines:
‘Have you ever stopped and listed all the treatment methods you’ve used to manage the pain of migraines? We spend so much time, energy, and money on preventive and abortive treatments it can be daunting.’

Looking Forward to Relief | migrainemantras | Wanda | 30 January 2019

Read the post via the following link  >>>


On the Loss of My Independence, & How I Found it Again ~ 28 January 2019


Excerpt – Liza asks:
So, what happens when you can’t drive anymore? Where does the independence go to?

On the Loss of My Independence, & How I Found it Again ~ migrainemantras | Liza | 28 January 2019

Read the post via the following link  >>>



Read the above post and more via ‘The Migraine Mantras’ website.
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