Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Webinar: Setting up a MSK Service 
Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
5 October 2018, 12.30 – 1.30

Webinar: Rheumatology commissioning in a community
Commissioning for Quality: Community-based Rheumatology Service
19 October 2018, 12.30 – 1.30… Read More Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

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Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

Acceptance is often viewed as a grieving process, which is a great way to look at it because we do mourn our old lives from when we were fit and agile.

It can be a very emotional and anxious time because our lives need to change in so many ways so that we can adapt them to what our illnesses will allow us do. We do mourn the losses of our independence, mobility, social contact and possibly even our jobs / livelihoods.… Read More Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

Do you have EDS, JHS, HMS or Fibro alongside Chronic Fatigue?   Do you know what Chronic means?, or the term General Pain This is an educational read, that explains the differences between Chronic Widespread Pain (CWP) and Chronic General pain (CGP) and Chronic Fatigue.  it also explains some correlations between CWP, CGP, fibro and fatigue &… Read More (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

“Wow!” Thanks for attending, what a great opening meet up for 2018 yesterday

“Wow!” I think that is a word that a lot us we will be saying for a few days after our opening meeting for 2018 yesterday in Sunderland UK, for Chronic / Invisible & Rare illness. FibroFlutters always post a thankyou to the folks that attend out meet ups because we know that the illnesses… Read More “Wow!” Thanks for attending, what a great opening meet up for 2018 yesterday

Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)

Volunteer Opportunities (2018) Volunteer Job Opportunities Photography Videography and Video Editing Graphic Design Editing Campaigns Online Moderator Patient Advocate Grants/Trusts Events EDS Conference Volunteer Jobs Artistic Talents Writing   If you think you can offer support as a volunteer please click the link for more information and if you decide it is something you would… Read More Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)