Tag: EDS

Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis

Do you have Irritable Bowel Syndrome (IBS)? Irritable Bowel Syndrome can be quite debilitating and many members of FibroFlutters have been diagnosed with it. To help people understand the condition better, and raise awareness, I share this video and information leaflet. The intense pain leaves me pacing and then writhing, and pacing and writhing…. …… Read More Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis

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#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

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Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Webinar: Setting up a MSK Service 
Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
5 October 2018, 12.30 – 1.30

Webinar: Rheumatology commissioning in a community
Commissioning for Quality: Community-based Rheumatology Service
19 October 2018, 12.30 – 1.30… Read More Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

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Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

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Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

Acceptance is often viewed as a grieving process, which is a great way to look at it because we do mourn our old lives from when we were fit and agile.

It can be a very emotional and anxious time because our lives need to change in so many ways so that we can adapt them to what our illnesses will allow us do. We do mourn the losses of our independence, mobility, social contact and possibly even our jobs / livelihoods.… Read More Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton

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(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

Do you have EDS, JHS, HMS or Fibro alongside Chronic Fatigue?   Do you know what Chronic means?, or the term General Pain This is an educational read, that explains the differences between Chronic Widespread Pain (CWP) and Chronic General pain (CGP) and Chronic Fatigue.  it also explains some correlations between CWP, CGP, fibro and fatigue &… Read More (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP

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