Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
Excerpt from Sue Brown’s CEO update:
Prevention seems to have been the theme of my February. The possibility that a lot of the pain and disability of MSK conditions might be prevented, and that this is being taken seriously is an exciting prospect.… Read More Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
Keep on personalising care
by Sarah Duncan, Head of Clinical Policy, NHS England … Read More Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | January 2018
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
Webinar: Setting up a MSK Service
Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
5 October 2018, 12.30 – 1.30
Webinar: Rheumatology commissioning in a community
Commissioning for Quality: Community-based Rheumatology Service
19 October 2018, 12.30 – 1.30… Read More Latest edition! ARMA Newletter | Arthritis & Musculoskeletal Alliance | September 2018
The Arthritis and Musculoskeletal Alliance (ARMA) is the umbrella body for the arthritis and musculoskeletal community in the UK, and our mission is to transform the quality of life of people with musculoskeletal conditions. … Read More ARMA has a new #knowledgehub
Do you have a rheumatic and musculoskeletal disease (#RMD)?
If so, you’re invited to take part in a global survey looking at what people with RMDs think about using #socialmedia for health-related purposes.… Read More Study: rheumatic and musculoskeletal disease (#RMD) | shared via Simon Stones
Visit the ARMA MSK hub via this link >>>