Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019

Excerpt from Sue Brown’s CEO update:
Prevention seems to have been the theme of my February. The possibility that a lot of the pain and disability of MSK conditions might be prevented, and that this is being taken seriously is an exciting prospect.… Read More Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Webinar: Setting up a MSK Service 
Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
5 October 2018, 12.30 – 1.30

Webinar: Rheumatology commissioning in a community
Commissioning for Quality: Community-based Rheumatology Service
19 October 2018, 12.30 – 1.30… Read More Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Study: rheumatic and musculoskeletal disease (#RMD) | shared via Simon Stones

Do you have a rheumatic and musculoskeletal disease (#RMD)?

If so, you’re invited to take part in a global survey looking at what people with RMDs think about using  #socialmedia  for health-related purposes.… Read More Study: rheumatic and musculoskeletal disease (#RMD) | shared via Simon Stones