#chronicillnessVOICE | 21 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

A selection of online health related newspapers/magazines/newsletters/blogs/events


THANKYOU FOR YOUR PATIENCE AS WE WORK ON IMPROVING THE WEBSITE

It is taking longer than anticipated




Including!

In the Chillout Lounge!

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 

By  Meditation and Healing |  8 September 2018

Psst!  It’s at the end!!



Before you start 

PLEASE NOTE: That myself and fellow FibroFlutters are patients leading a patient support group and a patient led social media network for our advocacy, networking and support services, we are not medical professionals.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018





September is #PAM2018 #painawarenessmonth chronic pain awareness month


 



back-pain

#sleepshow #SOMNEX   #chronicpain #sleep 

#PAM2018

SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER… |  BARMAC5 | BackPainBlog  | 10 September 2018


Excerpt:

‘At this show, you can get exclusive access to expert advice, innovative new products, specialist exhibitors, multiple interactive workshops and immersive classes – all designed to help you understand how to improve your sleep and give you and your family a fun day out!’



Read  Barbs Blog post via this link  >>>

SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER…


BACK PAIN BLOG UK…
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.

 



#PAM2018

#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 


Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

On Twitter:  @johnpringdns


Visit the website to check out their latest disability news >>>


Headlining today on Disability News Service (DNS)>>>

Readspeaker Tool enables you to listen to the articles


Hundreds of white flowers lying on grass
Image on the the article: DWP’s secret benefit deaths reviews: Universal credit death linked to claimant commitment ‘threats’ 

 


 

A man on an off-road scooter manoeuvres through an open gate
Image on the the article:  Pair of projects set to improve countryside access

 



The International Standard Serial Number for Disability News Service is: ISSN 2398-8924

 




 

Don’t Punish Pain Rallies  | National Pain Report | Ed Coghlan |   20 September 2018

A short but great article by Ed Coghlan regarding the ‘Don’t Punish Pain Rallies’ held around America on Tuesday 18th September that were orchestrated via social media by Claudia Merandi from Rhode Island. 


Opening lines:

75 Don’t Punish Pain Rallies held around the country on Tuesday (September 18) were termed a success by the Rhode Island Woman who organized them.

Claudia Merandi, who used social media to promote the events, some rallies had a handful of people and others more than 200.


Read more by following this link  >>>


 


About Us
Blog
Contact
Privacy Policy

 

 



 



girl reading a newspaper
Photo by Kaboompics .com on Pexels.com


UPDATED LIST

paper.li newsletters have also My favourite health related paper.lis and they update themselves.   The list includes >>>

DAILY| European Medical Journal

The Patient Registry  |  Daily News & more on patient registries and their impact on healthcare today

A WEEKLY paper | The Receptive Sound Therapy Daily

DAILY! | PHARMAGEEK NEWS, le Journal 

The Immunology  | DAILY!

TWICE DAILY!   |   News from Focus on Disability 

DAILY! | Above The Fold in Healthcare is out!

DAILY! | Brainless Blogger News

DAILY!  The Chronic pain  Support from Coach Amber Rose 

Updates every couple of days!  The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! |  Fibromyalgia ME Chronic Pain is out 

TWICE DAILY! | Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

TWICE DAILY! | News from UK Care Guide 


Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!

 About paper.li  |   paper.li/introduction.html




#MedicalInnovation #Telemedicine  #healthcare  #cardiology  #diabetes  #AI  #Primarycare  

#collaboration  #patientsinvolved  #professionals  #diseasemanagement

European Medical Journal |  Medical Innovation Updates  |  19th September 2018

Take a look into the future of healthcare with the latest EMJ Innovations newsletter.

Articles  >>>

Life Expectancy Increased Using Telemedicine | INNOVATIONS | 13 SEPTEMBER 2018


Artificial Intelligence Safe to use in Primary Care Setting  | INNOVATIONS | 13 SEPTEMBER 2018


A Transition from Disease-Centred to Goal-Directed Individualised Care of Patients with Multiple Morbidities: A Journey to Goal-Orientated Patient Healthcare
by Katarzyna Rygiel


Nanoparticles as Emerging Diagnostic Tools in Liquid Tumours
by Ana Sofia Matias et al.


Automated Item Generation: The Future of Medical Education Assessment?
by Kenneth D. Royal et al.



Copyright © 2018 European Medical Group LTD. All rights reserved. European Medical Group is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendation.



“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



Fibromyalgia News Today Weekly Columns

Fibromyalgia Patient voices



 


 

#Neuroscience #neurology #neuroscience

Neuroscience Newsletter |  19 September 2018

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary.




 

Zombie Cells Found in Mouse Brains Prior To Cognitive Loss
2018-09-19
Researchers report senescent, or Zombie, cells accumulate in certain neurons prior to cognitive loss. By preventing accumulation of these cells, researchers were able to diminish apoptosis, memory loss and tau aggregation.

Premature Brains Develop Differently in Boys and Girls
2018-09-19
A new study reports the brains of baby boys born prematurely are affected differently and more severely than premature females.

The ‘Real You’ is a Myth
2018-09-19 
Researchers say we constantly create false memories to help us achieve the identity we want.


Neuroscience News |  Neurology  |  Robotics |  Psychology  |  Submit News
Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381
USA


Neuroscience is a multidisciplinary science that is concerned with the study of the structure and function of the nervous system.

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in

 




patient header 2PAINT


Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there?

I can’t believe how time has flown past and the conference is only a few weeks away.  It is really exciting to be involved and helping to collaboratively bring about changes within the world of medical healthcare. 

Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.

Thanks to eyeforpharma’s regard towards Patients, Patients Included, and giving us a platform to share our patient voices, and our input during roundtables and panel discussions at their pharma conferences we can help pharma improve the products and services they make.  Help improve patient engagement programs / or, PSP’s Patient support programs between pharma and patients in ways that improve service design, product and service quality using collaborative methods and utilising all stakeholders to produce end results.

  • Will patient-centricity win-over pharma in London, how are companies becoming patientcentric, which companies are trying to be patientcentric?

  • Is patient- engagement working for pharma, what isn’t working? It can’t all be perfect!?

  • How is the concept of ‘Patient-engagement’ progressing is it proving to be useful, or does it need to be reassessed as a tool?


Innovation is also hot-topic as new ways of producing things have developed, including the use of AR, VR, AI, 3D printing and robotics to help improve surgical procedures, general medication delivery systems and even new bones and not that long ago even skin tisue, for a few examples.

Also, the different new ways that innovation is assisting clinical research and especially biopharma, health education videos for hospitals and HCP’s, and much more from the world of digital. Will we see some of that in London within the innovation, science and technology sector of the conference?


Of course aside from the World of Medical Affairs is the Impatient Conference and the part of the journey where we really do hope to make a difference.  It really has been designed by patients and the hope is that we can help bring patients and pharma closer together at this Pharma & Patient Co-creation event. 

  • How are pharma increasing patient relations, are they rebulding our trust yet?

  • How will we as patients convince pharma to make the necessary changes required to rebuild their pharma-patient relations?

  • What does pharma believe it should do? Do we as patients agree with pharma? If not, how do we compromise so that solutions can be formed and progression can continue.  Otherwise this time next year we will still be discussing it!

It’s time for pharma to stop ‘saying’ and start ‘doing’, be more proactive and begin to move forwards.

(Opinions are my own)


#pharmanews #eyeforpharma #pharma #tech #EVENTS #ai #digital #patients

Patient Summit Europe
16-17 October 2018, London UK


Europe’s Top Pharma & Patient Co-creation platform to attend in 2018

“If you don’t partner, patient centricity will never become more than just an idea.”

  • 250+ attendees
  • 40+ speakers
  • 15+ case studies
  • 20+ roundtable discussion topics

Including  >> 

The Im-patient Conference which is new, and its bold.

No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.


Follow this link to see who is attending and register to join us  >>>

#efpPatient Patient Summit Europe


Come and see me take part:  17:00 – 17:40 (Day 2)  17th October >>>
Panel: Candid patient perspectives on the good, the bad and the ugly of service design


Other panelists:
  • Teresa Ferreiro | Patient Advocate
  • Trishna Bharadia | Patient Advocate | eyeforpharma Award Winner
  • Paola Antonini, MD, PhD | AISC Scientific Committee Member, Head of Clinical Research & Training Initiatives | AISC

Moderator:  Paul simms | Chairman| Eyeforpharma



  • How do patients really experience pharma’s services?

  • Can pharma better build trust with patient communities to develop productive collaborations?

  • Innovation is supposedly the ‘silver bullet’, but where do patients really see the opportunity for change?

#efpPatient Patient Summit Europe

Maybe I’ll see you there ~  Carole Sian

Patients Included

eyeforpharma Patient Policy ~  social.eyeforpharma.com/patient-policy

 



 

EVENT | eyeforpharma | Marketing and Customer Experience Europe/London 2018 Oct 16-17th

Running alongside the Patient Summit

Marketing and Customer Innovation Europe 2018

Join the most forward-thinking meeting of leading marketers in Europe and learn to:

  • Redefine HCP relationships
    Develop a deeper educational partnership with your customers and transform engagement
  • Embrace digital. Be the future
    Implement a digital-first communication strategy for effective and efficient customer interaction
  • Educate to innovate
    Eliminate fear of innovation by empowering your workforce with the capabilities needed to form lasting HCP relationships
  • Deeper insights, real value
    Analyse data for actionable insights that result in a better understanding of patient needs and position you as a trusted presence

 


image001


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.

social.eyeforpharma.com/about-us

Get the latest industry insights in your inbox:

social.eyeforpharma.com/
Follow eyeforpharma on Twitter:
www.twitter.com/eyeforpharma
Like eyeforpharma on Facebook:
www.facebook.com/eyeforpharma
Subscribe to eyeforpharma youtube channel:
www.youtube.com/user/eyeforpharma


Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.


eyeforpharma logo

 



#PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare

The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

Articles  >>>





Get your Better-Living Toolkit via this link  >>>


 

© 2018 Arthritis Foundation. 1355 Peachtree Street – Suite 600 – Atlanta, GA 30309. All Rights Reserved.

 



#Celiac  #GlutenFree

Celiac-Scene-Gluten-Free-News-September-2018 FB

Ellen Bayens | The Celiac Scene News | Issue: September 2018

For gluten-free news and information including  >>>


CELIAC EXPERT CORNER


The Celiac Scene

  • NCGS Patients Not Able to Identify When Glutened
  • Victoria & Westshore: Meet Up Group for Gluten-Free Families
  • Celiac Disease – Is There a Surge in Diagnosis Rates?
  • What Not to Say to a Celiac
  • Antibody Therapy Could Stop Celiacs’ Immunological Trigger in its Tracks
  • Introducing Gfreewiki.com
  • Osteoporosis Diagnosis Does Not Warrant Celiac Disease Screening
  • 5 Detection Strategies for Celiac Disease

CANADIAN CELIAC PODCASTS


OUR FAVOURITE GLUTEN-FREE PRODUCTS & SERVICES


GLUTEN-FREE RECIPES


GLUTEN-FREE EVENTS

  • Hornby Organic Energy Bar Tasting at Lifestyle Markets – September 15
  • Emergency Preparedness Garage Sale at TOTAL PREPARE – September 22
  • Free Emergency Preparedness Workshop at TOTAL PREPARE – September 22
  • Kelowna Celiac Support Group Meeting – September 26
  • Showcasing Schar Gluten-Free Baking at Lifestyle Markets – September 29

Visit bit.ly/GlutenFreeVancouverIsland for more gluten-free happenings!
Follow The Celiac Scene Facebook Page for daily announcements!


OUR FAVOURITE CELIAC-FRIENDLY RESTAURANTS


Read all the above via the following link  >>> 

Ellen Bayens ~ The Celiac Scene News – September 2018


Your Gluten-Free Guide to Victoria, Vancouver Island & the Gulf Islands!
Restaurant Reviews! Celiac News! What to See & Do in Gluten-Free Paradise!



Follow The Celiac Scene on Twitter  >>>




Header image is from the newsletter 


© 2018 Copyright – Site by Victoria’s PPC Solutions

The Celiac Scene

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in




#PAM2018

#patientvoice  #chronicillness  #patientjourney  #healthblog

My Medical Musings
Medically Retired and Living a Life of Faith and Hope with a Rare Disease  | Sam  |  7 September 2018


Excerpt:

‘Expectations and tangible outcomes can begin to diminish the longer you live with a particular disease. Especially when all known treatment options have been exhausted.’


Read the post via the following link  >>>

 



 

#PAM2018

Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Harnessing a collective focus to transform MSK services


In this issue

  • Guest Blog – Adopting the holistic approach | by Professor Anthony Woolf, Chair, ARMA

Webinar: Setting up a MSK Service

  • Webinar: Setting up a MSK Service 
  • Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
  • 5 October 2018, 12.30 – 1.30

  • Webinar: Rheumatology commissioning in a community
  • Commissioning for Quality: Community-based Rheumatology Service
  • 19 October 2018, 12.30 – 1.30

 



 

#PAM2018

Weekly digest for The Migraine Mantras  |  The Migraine Mantras  |  10 September 2018


How Blue Light can Affect People with Chronic Illness |  By Heidi (Guest Writer)  |  9 September 2018


Excerpt:

‘Blue light disrupts the sleep-wake cycle, so downloading a free program like F.lux will change the blue light on your computer screen to match your sleep cycle. You can also use it on Android phones, but you have to manually change to night time mode in the settings on iPhones.’


Read the post via the following link  >>>


 

The Best Free Apps to Combat Migraine & Chronic Pain  |  migrainemantras  | By Alexandria  |  7 September 2018


Excerpt:

‘Since you can listen to the entire self-hypnosis narration free, I advise you to listen to both Migraine Relief and Chronic Pain Relief as long as you want. These are only a few differences between the free and the paid versions of this app, and none of those differences concerns the actual content of the self-hypnosis meditation itself.’


Read the post via the following link  >>>


 

An Open Letter About The Opioid Crisis  |  migrainemantras  | By Wanda |  4 September 2018


Excerpt:

‘There is another “opioid crisis” in America today. It is the crisis of patients being turned away because doctors are judged by insurance companies and legislators for prescribing such medications. It is the crisis of the side-lined, those whose lives are ruled by pain but are unable to treat it adequately. It is the patient who has chosen to take the “lesser” medication and now finds it being stigmatized as well.’


Read the post via the following link  >>>


The Migraine Mantras  >>>

 



#PAM2018


Airing Pain

Informing the pain community


Programme 106:

Pain Education for Doctors, Chronic Pain and Resilience
What can be done to implement better pain educaiton for doctors, patients and parents, and trusting your pharmacist when in doubt.


From e-mail: Production Team, Pain Concern


This edition is incredibly informative, focusing on the gaps in pain education that are present in the UK, which is why we thought your organisation would be interested.

The programme will cover the Essential Pain Management Course, research into patients’ expectations of pain management, and parent appraisals of injustice when their child has chronic pain.

Adam

Broadcast Assistant

Pain Concern



PLEASE share and help us to join in raising awareness for chronic pain through the use of education like this latest ‘Airing Pain Podcast’ which is aimed at medical professionals and everyone #notjustpatients

Many thanks Carole Sian (CEO) Co-Founder FibroFlutters 


106: Pain Education for Doctors, Patients, and Parents


Registered Office: Unit 1-3, 62-66 Newcraighall Road, Edinburgh Eh15 3HS
Company Limited by Guarantee, Registered In Scotland No: 546994
Scottish Charity No: SC 023559
Tel: 0131 669 5951
www.painconcern.org.uk
Helpline: 0300 123 0789 E-Help: help@painconcern.org.uk
Find us: Twitter  Facebook  Forum

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


 



#PAM2018

#NeuroendocrineCancer  #NETS

RonnyAllan.NET – Community Newsletter Covering August 2018

ronnyallan.net/2018/08/31/ronnyallan-net-community-newsletter-covering-august-2018/

International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!

Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in



Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com



#PAM2018

         

 FIBROfLUTTERS LOGO ON WHITE PHOTOTASTICFMAUK SUPPORT GROUP LOGO  WorkingWith-200_100[1]


FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness


Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!


PLEASE help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share


Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group

Visit Rock Off Fibro on Twitter  >>>

Rock off Fibro   @rock_off_fibro

twitter.com/rock_off_fibro

 



 

#EpilepsyAwareness  #Epilepsy

The Turning the World Purple Foundation  |  Epilepsy | 


MOTTO:

We are more than our diagnosis. Epilepsy is NOT who you are.

We are working to smash stigmas associated with Epilepsy through advocacy and education.

www.turningtheworldpurple.org/

Maybe you could help out in some way and get involved 🙂

 



 

chronicillnessbloggers.com
Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers

 



 #notjustpatients

fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>

https://www.facebook.com/groups/FFHQMentalHealth/



Something new

In the Chillout Lounge!

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 

By  Meditation and Healing |  8 September 2018

 

Why not visit Meditation and Healing to see what other tubes they have?  >>>

 



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog,  instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe


PLEASE NOTE:  We are not medical professionals nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google, or rely on information that you may read online through 3rd parties.


Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73



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