#chronicillnessVOICE | 20 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

A selection of online health related newspapers/magazines/newsletters/blogs/events


THANKYOU FOR YOUR PATIENCE AS WE WORK ON IMPROVING THE WEBSITE

It is taking longer than anticipated




Including!

In the Chillout Lounge!

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 

By  Meditation and Healing |  8 September 2018

Psst!  It’s at the end!!



Before you start 

PLEASE NOTE: That myself and fellow FibroFlutters are patients leading a patient support group and a patient led social media network for our advocacy, networking and support services, we are not medical professionals.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018





 

#Technology  #Science  

A selection of articles Science X  |  Technology news| chosen by Carole


3D printed motion sculpture – running. Credit: Jason Dorfman

Creating 3-D printed ‘motion sculptures’ from 2-D videos | 19 September 2018

Provided by  Massachusetts Institute of Technology


Patriots quarterback Tom Brady has often credited his success to spending countless hours studying his opponent’s movements on film. This understanding of movement is necessary for all living species, whether it’s figuring out what angle to throw a ball at, or perceiving the motion of predators and prey. But simple videos can’t actually give us the full picture.

Read the article on Techxplore.com via this link  >>>

 


New Apple Watch adds heart tracking—here's why we should welcome ECG for everyone
The first mainstream wearable device with ECG. Credit: Apple

New Apple Watch adds heart tracking—here’s why we should welcome ECG for everyone | by Heather May Morgan, | The Conversation

A new iPhone Apple Watch model seems to be exciting people because the new watch will come with a built-in heart monitoring electrocardiogram (ECG) function.

Read the article on Techxplore.com via this link  >>>


TINY cancer detection device proves effective in Uganda testing  |  Cornell University  | 17 September 2018

Excerpt:

Now in its third generation, TINY performs loop-mediated isothermal amplification (LAMP) for nucleic acid quantification. That requires heating the sample to 154 degrees, which necessitates a power source.


Read the article on Techxplore.com via this link 

 


Helping to improve medical image analysis with deep learning
An example visualization using the proposed neural network architecture, with an axial view (top) and a 3D view (bottom). Cerebral grey, cerebral white, and cerebellar grey matters are hidden for better illustration. Credit: IBM
Read more at: https://phys.org/news/2018-09-medical-image-analysis-deep.html#jCp

Helping to improve medical image analysis with deep learning  |  IBM  | 19 September 2018

  • Medical imaging creates tremendous amounts of data: many emergency room radiologists must examine as many as 200 cases each day, and some medical studies contain up to 3,000 images.

  • Each patient’s image collection can contain 250GB of data, ultimately creating collections across organizations that are petabytes in size.

  • Within IBM Research, we see potential in applying AI to help radiologists sift through this information, including imaging analysis from breast, liver, and lung exams.


Read the article on phys.org via this link >>>

 


 

#stroke #trauma #innovation

Body support device helps people learn to walk again after a stroke, trauma | Purdue University  |  19 September 2018

An excellent example of innovative technology, by a Purdue University researcher, for the purpose of helping to improve the healthcare of patients.  A weight support system which is designed to help #stroke patients with walking disabilities.


The Centers for Disease Control and Prevention says about 795,000 people in the United States have a stroke each year, and it is the leading cause of disability in older adults.


Read the article on phys.org via this link >>>


A selection of articles Science X  | Medicine & Health news | chosen by Carole

#coloncancer

Colon cancer is caused by bacteria and cell stress | Technical University Munich  | 19 September 2018

Findings related to the development of colon cancer have been releassed by ressearcherrs from the ‘Technical University Munich’. 

The researchers had wished to study

“the role of bacteria in the intestines in relation to the development of intestinal inflammation.”

“However, the surprising result for us was the discovery that bacteria, together with stress in cells, caused tumours (exclusively in the colon) and without the involvement of inflammation.”

As explained by Professor Dirk Haller from the Department of Nutrition and Immunology at the Weihenstephan Science Centre of the TUM. 


Read the article on medicalxpress.com via this link >>>

 


 

#sleep  #sleepproblems

I can't sleep. What drugs can I (safely) take?
There are many pharmacological options available for insomnia. But they will mostly make you reliant upon them for sleep. Credit: http://www.shutterstock.com

I can’t sleep. What drugs can I (safely) take? |  by Ric Day And Andrew Mclachlan, The Conversation  | 19 September 2018

Opening paragraph:

‘If you’re having trouble sleeping, medicines shouldn’t be your first option. Exercise regularly, cut back on coffee (and other caffeinated drinks) after midday, eat less in the evening, ease up on “screen time” before, and in, bed, practise meditation and try to have a quiet, dark bedroom dedicated mostly to sleep.’


Read the article on medicalxpress.com via this link >>>


Sign up for Science X Network  newsletters  >>>



Customer Journeys Start With Smartphones, But Brands Still Don’t Get Mobile | Brian Solis   | 13 August 2018

Excerpt:

‘Customers are not going to wait for brands to get the mobile journey right…they’ll move on and find someone else who gets them.’



This is an interesting read as pharma deliberate over digital innovations and how to improve patient relations.  It’s nothing new to report that Smartphones and the varying apps customers have access to can tell marketers/companies a lot about their buyers/users/payers.

When considering the health apps that are available I find it a sensible idea to assume that patient journey’s, from a medical perspective, are an obvious place to start.  


You can read Brian’s article via this link  >>>

 

 



 

Every #COPD story has a turning point. See John explain his.

SAVE YOUR BREATH | Facebook | MONDAY 22 JANUARY 2018


Excerpt from ‘Save your Breath’ Story page on FaceBook:

“Save Your Breath is a place where you can get things off your chest. It’s a judgment-free zone where you can get support, learn about your condition, discover tips to help you manage your symptoms and feel empowered to take back your everyday so that you can live the life you want to live.”

Visit the Facebook Page here >>>





 

#Neuroscience #neurology #neuroscience

Neuroscience Newsletter |  19 September 2018

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary.




Using Electrical Brain Stimulation to Foster Creativity
2018-09-19
Researchers debate the growing use of tES to enhance creativity, concluding there is a potential value in brain stimulation. However, researchers say, the use of tES raises a number of neuroethical, legal and social issues that must be addressed.
What Your Cell Phone Camera Tells You About Your Brain
2018-09-19 
A new study unites cognitive science and information theory, reporting our brains are structured to make the best possible decisions given their limited resources.
Heartbeat Paces Learning
2018-09-19 
Researchers report learning rates are enhanced when conditioned stimuli is presented during resting phase of the cardiac cycle.
New Insight Into Aging
2018-09-19 
Researchers report plasticity is dysregulated in older brains, but increasing levels of GABA can induce longer lasting changes in the auditory cortex.
Cannabinoid Medications Make Pain Feel Less Unpleasant and More Tolerable
2018-09-19 
A new study reveals cannabinoid medications may not reduce pain itself, but instead make pain feel less unpleasant and more tolerable.
How the Brain Combines Memories to Solve Problems
2018-09-19 
Using AI technology, researchers provide new insight into how the human brain connects individual episodic memories to help solve problems.

Neuroscience News |  Neurology  |  Robotics |  Psychology  |  Submit News
Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381
USA


Neuroscience is a multidisciplinary science that is concerned with the study of the structure and function of the nervous system.

 



 

#professionals  #PeerReview # diversity  # minoritygroups  #inclusion 

THE IMPORTANCE OF DIVERSITY AND INCLUSION IN PEER REVIEW |  Written by Harriet Lacey  |  Editorial Administrator, European Medical Journal  | 13 September


An important discussion topic and this article is a great read, please share!



Excerpt: 

It is not enough to simply include more women, ethnic minority groups, and people from developing countries within the peer review system. For there to be true diversity, these groups need to be represented equally. When including these groups of individuals, their ability to review and to review well should be recognised and celebrated.


Read the article via the following link  >>>


Quoted in the text:

“To exclude people from peer review suggests that they are not peers, that they are not scientists.”

– Victoria Male, Sir Henry Dale Fellow in Innate Lymphoid Cell Biology, University College London, London, UK

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in

 




patient header 2PAINT

Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there?

#pharmanews #eyeforpharma #pharma #tech #EVENTS #ai #digital #patients

Patient Summit Europe
16-17 October 2018, London UK


Europe’s Top Pharma & Patient Co-creation platform to attend in 2018

“If you don’t partner, patient centricity will never become more than just an idea.”

  • 250+ attendees
  • 40+ speakers
  • 15+ case studies
  • 20+ roundtable discussion topics

Including  >> 

The Im-patient Conference which is new, and its bold.

No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.


Follow this link to see who is attending and register to join us  >>>

#efpPatient Patient Summit Europe


Come and see me take part:  17:00 – 17:40 (Day 2)  17th October >>>
Panel: Candid patient perspectives on the good, the bad and the ugly of service design


Other panelists:
  • Teresa Ferreiro | Patient Advocate
  • Trishna Bharadia | Patient Advocate | eyeforpharma Award Winner
  • Paola Antonini, MD, PhD | AISC Scientific Committee Member, Head of Clinical Research & Training Initiatives | AISC

Moderator:  Christina Claussen | Director Alliance Management & Patient Relations for Corporat | Pfizer



  • How do patients really experience pharma’s services?

  • Can pharma better build trust with patient communities to develop productive collaborations?

  • Innovation is supposedly the ‘silver bullet’, but where do patients really see the opportunity for change?

#efpPatient Patient Summit Europe

Maybe I’ll see you there ~  Carole Sian

eyeforpharma Patient Policy ~  social.eyeforpharma.com/patient-policy

 



 

EVENT | eyeforpharma | Marketing and Customer Experience Europe/London 2018 Oct 16-17th

Running alongside the Patient Summit

Marketing and Customer Innovation Europe 2018

Join the most forward-thinking meeting of leading marketers in Europe and learn to:

  • Redefine HCP relationships
    Develop a deeper educational partnership with your customers and transform engagement
  • Embrace digital. Be the future
    Implement a digital-first communication strategy for effective and efficient customer interaction
  • Educate to innovate
    Eliminate fear of innovation by empowering your workforce with the capabilities needed to form lasting HCP relationships
  • Deeper insights, real value
    Analyse data for actionable insights that result in a better understanding of patient needs and position you as a trusted presence

 


image001


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.

social.eyeforpharma.com/about-us

Get the latest industry insights in your inbox:

social.eyeforpharma.com/
Follow eyeforpharma on Twitter:
www.twitter.com/eyeforpharma
Like eyeforpharma on Facebook:
www.facebook.com/eyeforpharma
Subscribe to eyeforpharma youtube channel:
www.youtube.com/user/eyeforpharma


Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.


eyeforpharma logo

 




 

September is #PAM2018 #painawarenessmonth chronic pain awareness month

 




 

back-pain

#sleepshow #SOMNEX   #chronicpain #sleep 

#PAM2018

SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER… |  BARMAC5 | BackPainBlog  | 10 September 2018


Excerpt:

‘At this show, you can get exclusive access to expert advice, innovative new products, specialist exhibitors, multiple interactive workshops and immersive classes – all designed to help you understand how to improve your sleep and give you and your family a fun day out!’



Read  Barbs Blog post via this link  >>>

SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER…


BACK PAIN BLOG UK…
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.

 



#PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare

The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018

Articles  >>>





Get your Better-Living Toolkit via this link  >>>


 

© 2018 Arthritis Foundation. 1355 Peachtree Street – Suite 600 – Atlanta, GA 30309. All Rights Reserved.

 



#Celiac  #GlutenFree

Celiac-Scene-Gluten-Free-News-September-2018 FB

Ellen Bayens | The Celiac Scene News | Issue: September 2018

For gluten-free news and information including  >>>


CELIAC EXPERT CORNER


The Celiac Scene

  • NCGS Patients Not Able to Identify When Glutened
  • Victoria & Westshore: Meet Up Group for Gluten-Free Families
  • Celiac Disease – Is There a Surge in Diagnosis Rates?
  • What Not to Say to a Celiac
  • Antibody Therapy Could Stop Celiacs’ Immunological Trigger in its Tracks
  • Introducing Gfreewiki.com
  • Osteoporosis Diagnosis Does Not Warrant Celiac Disease Screening
  • 5 Detection Strategies for Celiac Disease

CANADIAN CELIAC PODCASTS


OUR FAVOURITE GLUTEN-FREE PRODUCTS & SERVICES


GLUTEN-FREE RECIPES


GLUTEN-FREE EVENTS

  • Hornby Organic Energy Bar Tasting at Lifestyle Markets – September 15
  • Emergency Preparedness Garage Sale at TOTAL PREPARE – September 22
  • Free Emergency Preparedness Workshop at TOTAL PREPARE – September 22
  • Kelowna Celiac Support Group Meeting – September 26
  • Showcasing Schar Gluten-Free Baking at Lifestyle Markets – September 29

Visit bit.ly/GlutenFreeVancouverIsland for more gluten-free happenings!
Follow The Celiac Scene Facebook Page for daily announcements!


OUR FAVOURITE CELIAC-FRIENDLY RESTAURANTS


Read all the above via the following link  >>> 

Ellen Bayens ~ The Celiac Scene News – September 2018


Your Gluten-Free Guide to Victoria, Vancouver Island & the Gulf Islands!
Restaurant Reviews! Celiac News! What to See & Do in Gluten-Free Paradise!



Follow The Celiac Scene on Twitter  >>>




Header image is from the newsletter 


© 2018 Copyright – Site by Victoria’s PPC Solutions

The Celiac Scene

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in




#PAM2018

#patientvoice  #chronicillness  #patientjourney  #healthblog

My Medical Musings
Medically Retired and Living a Life of Faith and Hope with a Rare Disease  | Sam  |  7 September 2018


Excerpt:

‘Expectations and tangible outcomes can begin to diminish the longer you live with a particular disease. Especially when all known treatment options have been exhausted.’


Read the post via the following link  >>>

 



 

#PAM2018

Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

Harnessing a collective focus to transform MSK services


In this issue

  • Guest Blog – Adopting the holistic approach | by Professor Anthony Woolf, Chair, ARMA

Webinar: Setting up a MSK Service

  • Webinar: Setting up a MSK Service 
  • Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
  • 5 October 2018, 12.30 – 1.30

  • Webinar: Rheumatology commissioning in a community
  • Commissioning for Quality: Community-based Rheumatology Service
  • 19 October 2018, 12.30 – 1.30

 



 

#PAM2018

Weekly digest for The Migraine Mantras  |  The Migraine Mantras  |  10 September 2018


How Blue Light can Affect People with Chronic Illness |  By Heidi (Guest Writer)  |  9 September 2018


Excerpt:

‘Blue light disrupts the sleep-wake cycle, so downloading a free program like F.lux will change the blue light on your computer screen to match your sleep cycle. You can also use it on Android phones, but you have to manually change to night time mode in the settings on iPhones.’


Read the post via the following link  >>>


 

The Best Free Apps to Combat Migraine & Chronic Pain  |  migrainemantras  | By Alexandria  |  7 September 2018


Excerpt:

‘Since you can listen to the entire self-hypnosis narration free, I advise you to listen to both Migraine Relief and Chronic Pain Relief as long as you want. These are only a few differences between the free and the paid versions of this app, and none of those differences concerns the actual content of the self-hypnosis meditation itself.’


Read the post via the following link  >>>


 

An Open Letter About The Opioid Crisis  |  migrainemantras  | By Wanda |  4 September 2018


Excerpt:

‘There is another “opioid crisis” in America today. It is the crisis of patients being turned away because doctors are judged by insurance companies and legislators for prescribing such medications. It is the crisis of the side-lined, those whose lives are ruled by pain but are unable to treat it adequately. It is the patient who has chosen to take the “lesser” medication and now finds it being stigmatized as well.’


Read the post via the following link  >>>


The Migraine Mantras  >>>

 



#PAM2018


Airing Pain

Informing the pain community


Programme 106:

Pain Education for Doctors, Chronic Pain and Resilience
What can be done to implement better pain educaiton for doctors, patients and parents, and trusting your pharmacist when in doubt.


From e-mail: Production Team, Pain Concern


This edition is incredibly informative, focusing on the gaps in pain education that are present in the UK, which is why we thought your organisation would be interested.

The programme will cover the Essential Pain Management Course, research into patients’ expectations of pain management, and parent appraisals of injustice when their child has chronic pain.

Adam

Broadcast Assistant

Pain Concern



PLEASE share and help us to join in raising awareness for chronic pain through the use of education like this latest ‘Airing Pain Podcast’ which is aimed at medical professionals and everyone #notjustpatients

Many thanks Carole Sian (CEO) Co-Founder FibroFlutters 


106: Pain Education for Doctors, Patients, and Parents


Registered Office: Unit 1-3, 62-66 Newcraighall Road, Edinburgh Eh15 3HS
Company Limited by Guarantee, Registered In Scotland No: 546994
Scottish Charity No: SC 023559
Tel: 0131 669 5951
www.painconcern.org.uk
Helpline: 0300 123 0789 E-Help: help@painconcern.org.uk
Find us: Twitter  Facebook  Forum

 



 


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


 



#PAM2018

#NeuroendocrineCancer  #NETS

RonnyAllan.NET – Community Newsletter Covering August 2018

ronnyallan.net/2018/08/31/ronnyallan-net-community-newsletter-covering-august-2018/

International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients

 



paper.li’s

girl reading a newspaper
Photo by Kaboompics .com on Pexels.com

paper.li newsletters have also My favourite health related paper.lis and they update themselves.   The list includes >>>

DAILY! European Medical Journal

The Patient Registry Daily News & more on patient registries and their impact on healthcare today

PHARMAGEEK NEWS, le Journal 

The Immunology Daily

Twice Daily!   |   News from Focus on Disability 

Daily! Above The Fold in Healthcare is out!

Daily!  Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide 

Click the link above for access to these paper.li’s


Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!

 About paper.li  |   paper.li/introduction.html


 



#PAM2018

#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 


Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us


Visit the website to check out their latest disability news >>>



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!

Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in



Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com

 



#PAM2018

#Awareness CAMPAIGN #EDS #EDSUK #HSD #EhlersDanlosSyndrome


Wear Jeans, Change Lives on September 21st 

Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.

The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 


Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.


Read more via the newsletter here  >>>


Subscribe to ‘Fragile Links’ a regular members magazine >>>


Join, become a member and find a support group near you  >>>

EDS UK Membership Choices

  • Free – Membership for life
  • plus Fragile Links (digital) £5.00 – Membership expires after 1 year
  • plus Fragile Links (UK delivery) £8.00 – Membership expires after 1 year
  • plus Fragile Links (Eur & Ireland) £13.00 – Membership expires after 1 year
  • plus Fragile Links (rest of World) £18.00 – Membership expires after 1 year

You can join via this link  >>>



Copyright © 2018 The Ehlers-Danlos Support UK
The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712. Registered Company No. 8924646. Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ

 



 

 

 





#PAM2018

         

 FIBROfLUTTERS LOGO ON WHITE PHOTOTASTICFMAUK SUPPORT GROUP LOGO  WorkingWith-200_100[1]


FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness


Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!


PLEASE help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share


Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group

Visit Rock Off Fibro on Twitter  >>>

Rock off Fibro   @rock_off_fibro

twitter.com/rock_off_fibro

 



 

#EpilepsyAwareness  #Epilepsy

The Turning the World Purple Foundation  |  Epilepsy | 


MOTTO:

We are more than our diagnosis. Epilepsy is NOT who you are.

We are working to smash stigmas associated with Epilepsy through advocacy and education.

www.turningtheworldpurple.org/

Maybe you could help out in some way and get involved 🙂

 



 

chronicillnessbloggers.com
Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers

 



“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



 

 #notjustpatients

fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>

https://www.facebook.com/groups/FFHQMentalHealth/



Something new

In the Chillout Lounge!

“Increase Positive Energy Vibration” Deep Meditation Music, Clear Negative Energy, Healing Music 

By  Meditation and Healing |  8 September 2018

 

Why not visit Meditation and Healing to see what other tubes they have?  >>>

 



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog,  instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

🙂

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73



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