#ChronicIllnessVoice | Pharma / Science / Tech / Digital / AI | A mix of news, events and Resources

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Platforms & Communities to visit

Societal Impact of Pain (SIP)

The “Societal Impact of Pain” (SIP) is an international platform created in 2009 as a joint initiative of the European Pain Federation EFIC® and the pharmaceutical company Grünenthal GmbH
Read more via the about us pages

Societal Impact of Pain (SIP) – national platforms NEWS

European Pain Federation EFIC
Rue de Londres 18
1050 Brussels, Belgium
phone +32 2 251 55 10


Siemen’s Healthineers
Online magazine channel

#clinical professional #healthcare manager #pharma

News & Stories:
In-depth information – convincing facts and figures
Explore an online magazine tailored to the needs of healthcare managers and clinical professionals

Siemens Healthineers
Shared knowledge and cross-border collaboration are shaping tomorrow’s world of diagnostics and therapy. The new online magazine channel, News & Stories, features knowledge and experiences shared by clinical professionals as well as valuable market insights in healthcare.

News & Stories provides you with this valuable knowledge.

Siemens Healthcare GmbH | Henkestr. 127, 91052 Erlangen, Germany

Information for healthcare professionals.
The Siemens Healthineers newsletter and websites, including but not limited to siemens.com/healthineers and its affiliated sites, provide an online resource for healthcare professionals

@patientslikeme the world’s largest personalized health network helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Patients Like Me’s digital health learning system uses the most advanced technologies to help you better understand wellness, aging, and disease.

As new understanding emerges, you will gain access to tools, information and connections to people like you to find a clearer path forward to your own future health.

I am Proud to be a member and Ambassador

Come and find me @scraf73

A chance to change the future of personalized health.

“PatientsLikeMe is the world’s largest personalized health network that helps people find new treatment options, connect with others and take action to improve their outcomes.”

From the website

Savvy Co-operative

Are you a ‘SAVVY’ patient? come and check it out!

Savvy is owned by patients
For too long, companies have created things for patients— not with patients

What is Savvy?

Jen Horonjeff, PhD ~ ‘Chief Sparkplug’  &  Ronnie Sharpe ~ ‘Collaborative Maverick’ were two patients who got bored with medical healthcare innovators not taking patient voices seriously and producing product designs, services & products without proper patient insights.

To counteract this problem they have developed a ‘Patient-Led’ Platform that is co-owned, and run, all by patients for patients.  A great place to meet other people with illneses like you, other advocates and also have the opportunity to take part in ‘Savvy-Gigs’ and earn a few dollars for your time and service for the tasks which you undertake.  Contributing to research is also rewarding when you consider the fact your patient ideas are helping to make useful changes. 

Quote from Coop-MEMBERSHIP sign up page:

“Savvy makes patients the shareholders, meaning we work with patients and share our profits with them.”

It is a modern platform, with a young and fresh approach to raising and using patient-voices.
Helping the healthcare industry produce better products, and services, with  you as the patients being the shareholders, in fact owners and it’s a way to get involved with research and studies through applying for ‘Savy Gigs’ too and earn money and ‘savvy points’.

Do you like the sound of joining the ‘Savvy-Coop’ and wish to use your #patientvoice, meet other patients, help the healthcare industry for good purposes?  and share in the profits!

Fancy becoming a member sign up via this link below and start enjoying the Savvy experience

Jen Horonjeff
CEO  Savvy Cooperative Patient Platform
Winner of the eyeforpharma Most Valuable Patient Advocate Award | 10 April 2018 at 16th ANNUAL  |  eyeforpharma Philadelphia & AWARDS 2018


WEGO Health

WEGO Health is a mission-driven company dedicated to transforming healthcare by harnessing the experience, skills and insights of Patient Leaders.

Are you looking for a ‘Patient Leader’, or ‘Patient Expert’?

Take a look at the WEGO website for information on how to connect with their WEGO Health Patient Leaders Connection, and Community. Also, browse through the profiles of patient experts to see if they fit the needs of your task in hand.

Come and look for me and hundreds of other Patient / Health advocates from America, and also across the Globe including Europe. The WEGO Health Link tree provides all the links that you need to connect with them for more information, and you might even build your own profile.

I am honoured to be a WEGO Health Patient Expert and I enjoy the advocacy work that I do for myself and for FibroFlutters.  It also makes mehappy to assist other patient leaders to reach their potentials’.

Copyright © 2018 WEGO Health All rights reserved.
WEGO Health 50 Milk St, Boston, MA 02109

Mayo Clinic

#NOTjustPatients #socialmedianetwork #digitalhealth
#advocacyplatform #MAYOclinic #MCSMN

Mayo Clinic Social Media Network (MCSMN)

There’s access to discussions, webinars & MCSMN Blog  depending on membership selection from Free, or, Premium.  Please note that e-patients and students receive a special rate.

Carole Scrafton ~ CEO FibroFlutters / Founding Five Member & Rie my co-editor are both members, so if you join you can connect with us!

Do you think this is a network for you?, or maybe you know someone else who might benefit from it’s services?

You can join the MCSMN via the following link >>>

The Medtech & Pharma Platform (MPP)

It’s unusual to find a platform specifically for ‘MedTech’ so imagine my surprise when I stumbled across this little gem. A great little platform with potential to grow into something special for the world of MedTech… my opinion of course!

Check it out via the website link, and also learn about who they are and what they stand for by the links below.

“The Medtech & Pharma Platform (MPP) is an international industry association enhancing the synergies between medtech and pharmaceutical companies. MPP provides a forum for both industries to exchange knowledge and to collaborate in technology and regulatory areas.”


© 2018 Medtech & Pharma Platform

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