#chronicillnessVOICE | 3 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events


It is taking longer than anticipated


In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018

Psst!  It’s at the end!!


Wear Jeans, Change Lives on September 21st 

Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.

The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.

Read more via the newsletter here  >>>

Subscribe to ‘Fragile Links’ a regular members magazine >>>

Join, become a member and find a support group near you  >>>

EDS UK Membership Choices

  • Free – Membership for life
  • plus Fragile Links (digital) £5.00 – Membership expires after 1 year
  • plus Fragile Links (UK delivery) £8.00 – Membership expires after 1 year
  • plus Fragile Links (Eur & Ireland) £13.00 – Membership expires after 1 year
  • plus Fragile Links (rest of World) £18.00 – Membership expires after 1 year

You can join via this link  >>>

Copyright © 2018 The Ehlers-Danlos Support UK
The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712. Registered Company No. 8924646. Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ






RonnyAllan.NET – Community Newsletter Covering August 2018


International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients



#Dermatology  #Venereology  #EADV

European Medical Journal  |  2 September 2018

Preview of the 27th European Academy of Dermatology and Venereology (EADV) Congress – European Medical Group  |  29 AUGUST 2018 | DERMATOLOGY

www.europeanmedical-group.com – Written by James Coker | Reporter, European Medical Journal | @EMJJamesCoker From 12th–16th September 2018,

Why not check out today’s edition of ‘European Medical Journal, and many other health related newspapers via our Paper.li post where the issues all self-update, via this link  >>>

My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73

Website by Vercossa



A Chronic Voice - Articulating Lifelong Illness

A Chronic Voice ~ The September Prompts are Live!  |  2 September 2018

Latest Updates from A Chronic Voice

The September linkup is live!

Check out the new post by ‘A Chronic Voice’

September 2018 Prompts: Reconnecting, Confessing, Relaxing, Romanticising & Sharing

Other posts  >>>

  • [Archives] 7 Reminders For Those Dim Days When You Lose Your Way

  • Final Submissions for the August Linkup

  • Issue #125: Giving Yourself Grace When Setting Goals & Using the 80% Rule to Manage Life with Chronic Illnesses

A Chronic Voice ~ The September Prompts are Live!



"The mighty: undiagnosed"

Stay #MightyTogether,


Rare Disease Editor at The Mighty

The Mighty — 210 N. Glenoaks Blvd, Burbank, CA 91502




NIHR  |  Latest NIHR funding opportunities  |  31 August 2018

Health Technology Assessment Programme
18/132 Researcher-led evidence synthesis
18/133 Researcher-led primary research

Policy Research Programme
Infectious Disease Dynamic Modelling in Health Protection
Health Inequalities Research Initiative

For more information and a list of all current funding opportunities, please visit the NIHR website.

Copyright © 2018 NIHR, All rights reserved. 
Our mailing address is:
Alpha House, Enterprise Road
Southampton, Hampshire 
SO16 7NS
United Kingdom


Not all doctors are physicians  |  – Shared by Kevin Pho, M.D.  |    |  www­.kevinmd­.com 

Article by  | PHYSICIAN  




#MentalHealth  #ADHD #Depression  #Anxiety  

MedCircle Digest  | Newsletter Headliner: How One Mother Tried Everything & Eventually Led To Meds For Childs ADHD | 2 September 2018

Published in ADDitude Magazine ~ Inside the ADHD mind   | Attention Deficit Hyperactive Disorder (ADHD) | 1 September 2018

This content is intended for informational purposes only. It should not replace professional medical advice, diagnosis, or treatment. If you think you have a medical emergency, call 911 or your doctor immediately.

MedCircle does not provide medical advice, diagnosis, or treatment of any kind. Learn more.

© 2018 MedCircle Inc. All Rights Reserved.



#MentalHealthAwareness #MentalHealth  #SuicidePrevention  #Suicide

September is National Suicide Prevention Awareness Month |  Jenny Picciotto |  National Pain Report |  1 September 2018


The best way to prevent a crisis from escalating is to plan ahead and decide how you will respond ahead of time. A safety plan, often composed with the help of a counselor, is a step by step process that begins with identifying certain situations, thoughts or feelings that you recognize as the warning signs of a potential crisis.

Read the whole post via this link  >>>

September is National Suicide Prevention Awareness Month |  by Jenny Picciotto

Copyright 2018 National Pain Report

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Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

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#Robotics  #MedicalDevices  #BionicProsthetics  #Prosthetics #WearableRobots

#motorized  #exoskeleton  #nerves  #electrodes

NIH News in Health Monthly News  |  Bionic movements |  August Issue 2018


‘To make motorized hands more intuitive to use, researchers are developing ways to detect the electrical signals in your brain and nerves to help control advanced bionic prosthetics.’


Cholesterol Good and Bad  |  U.S. National Library of Medicine  Published on 26 Jun 2018

This is a brilliant short video explaining what cholesterol types there are, what their purposes are, and how they can affect your health.

Did you know that cholesterol can be “good” and “bad”? What does cholesterol do and how can it affect your health?

 U.S. National Library of Medicine  >>>


More at MedlinePlus  >>>


Animation: Jeff Day Narration: Jennifer Sun Bell Music: Flowing Stream instrumental by Eric Chevalier, via Killer Tracks

Both the above posts were sourced from this newsletter  >>>

NIH Health Information |  Protecting hearing at school | Cholesterol | Brain injury | Bionic movements | Young adult couples  |  30 August 2018

This service is provided to you by the National Institutes of Health.
NIH…Turning Discovery Into Health®
Visit the National Institute of Health Home Page via this link  >>>


Hot off the Press – #Oncology and #Haematology Updates! | 29 August 2018

European Medical Journal

Critical contributions to care.

Combat cancer and blood disorders with the latest EMJ Oncology and EMJ Hematology newsletter.

Read via this link >>

European Medical Journal ~ Hot off the Press – Oncology and Haematology Updates!

European Medical Journal | Part of the European Medical Group (ID: 08198092) | 88 Wood Street, London, EC2V 7RS (+44 (0) 1245 334450) | VAT No. GB144219234



Digital Health Digest | 31 August 2018

News  >>>

INTEROPERABILITY | Health secretary highlights lack of national interoperability standards

DIGITAL PATIENT |  Kent CCG goes live with mobile-based prescription ordering app


DIGITAL PATIENT |  Bright sparks encouraged to submit ideas to innovation competition

Features  >>>

FEATURE |  Digital jam for NHS providers a welcome start

FEATURE | Digital natives will change the way we think about healthcare delivery

Upcoming Webinars  >>>

Digitally driven workflows and patient journeys – how can we get from ‘good’ to ‘great’?

In today’s NHS, system planning, assurance, evaluation and continuous improvement are essential in delivering coordinated patient care. Join Accenture for our webinar where we will discuss our experience in digitising patient journeys and empowering patients and staff.

How NHS trusts can benefit from real-time data to improve cyber security

The webinar will provide you with insights into how and why the trust selected and implemented Fortinet. You will also learn how the use of SIEM has helped improve compliancy, driven efficiencies and enabled the trust to better utilise information from their existing technology assets to gain useful and insightful knowledge from their network.

Read the above and more via this link  >>>

Digital Health Intelligence Limited
China Works
Black Prince Road
LondonLnd SE1 7SJ
United Kingdom
Copyright (C) 2018 Digital Health Intelligence Limited All rights reserved. 



girl reading a newspaper
Photo by Kaboompics .com on Pexels.com

paper.li newsletters have also moved to their own ‘digested’ post and they update themselves.   The list includes >>>

DAILY! European Medical Journal

The Patient Registry Daily News & more on patient registries and their impact on healthcare today


The Immunology Daily

Twice Daily!   |   News from Focus on Disability 

Daily! Above The Fold in Healthcare is out!

Daily!  Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide 

Click the link above for access to these paper.li’s

Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!

 About paper.li  |   paper.li/introduction.html



Neuroscience Newsletter |  1 September 2018

Similar Changes in the Brains of Patients with ADHD and Emotional Instability – Neuroscience News

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary. 

Similar Changes in the Brains of Patients with ADHD and Emotional Instability
Researchers report ADHD and conduct disorder exhibit similar, overlapping changes in the brain.
Why Synthetic Marijuana is So Risky
With the availability and use of synthetic marijuana on the rise, researchers look at the risks associated with these products, including psychological and general health problems.

Neuroscience News | Neurology | Robotics| Psychology | Submit News

Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381



eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech


The Big Trends Transforming Pharma | 28 August

Big trends in marketing according to Bayer, Janssen and Lilly c-suites

The industry is fast approaching a promising new future. How is it getting there?

Eyeforpharma asked some industry heavyweights what their vision of the future looks like for pharma.

Read the article here to hear from:

  • Sebastian Guth, Executive Vice President and Chief Marketing Officer, Bayer
  • Christi Shaw, Senior Vice President and President, Lilly Bio Medicines, Eli Lilly
  • Kris Sterkens, Company Groups Chairman, Europe, Middle East and Africa, Janssen
  • Julie Gerberding, EVP & Chief Patient Officer, MSD
  • Jim Robinson, President & COO, Alkermes
  • Andrin Oswald, Director of Life Sciences Partnerships, Global Health, Gates Foundation

Enjoy the read.


Lauren Robertson
Global Project Director  |  eyeforpharma



Marketing and Customer Experience USA 2018

Nov 14, 2018 – Nov 15, 2018, Philadelphia

A best in class marketing show for Pharma – not just another Pharma marketing show!


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.


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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.

MSWorldNewsletter  |  Latest from MSWorld, News, Events & More!  | 27 August 2018

Latest from MSWorld, News, Events & More!

Information published online by MSWorld volunteers is not intended to be used toward the diagnosis or treatment of any medical condition. For specific information and advice, consult your personal physician.
– MSWorld Management

Our mailing address is:
MSWorld, Inc.
PO Box 2643
Sarasota, FL 34230-2643



Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>


 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com





FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

PLEASE help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group

Visit Rock Off Fibro on Twitter  >>>

Rock off Fibro   @rock_off_fibro




#EpilepsyAwareness  #Epilepsy

The Turning the World Purple Foundation  |  Epilepsy | 


We are more than our diagnosis. Epilepsy is NOT who you are.

We are working to smash stigmas associated with Epilepsy through advocacy and education.


Maybe you could help out in some way and get involved 🙂



Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers


“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>


Something new

In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018


Why not visit Meditation and Healing to see what other tubes they have?  >>>


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog,  instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂


FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73

Got something you’d like to suggest or even just talk about please contact us via this form