A selection of online health related newspapers/magazines/newsletters/blogs/events
THANKYOU FOR YOUR PATIENCE AS WE WORK ON IMPROVING THE WEBSITE
It is taking longer than anticipated
Including!
In the Chillout Lounge!
“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy
By Meditation and Healing | 7 August 2018
Psst! It’s at the end!!
September is #PAM2018 #painawarenessmonth chronic pain awareness month
Airing Pain
Informing the pain community
Programme 106: Pain Education for Doctors, Chronic Pain and Resilience
What can be done to implement better pain educaiton for doctors, patients and parents, and trusting your pharmacist when in doubt.
From e-mail: Production Team, Pain Concern
This edition is incredibly informative, focusing on the gaps in pain education that are present in the UK, which is why we thought your organisation would be interested.
The programme will cover the Essential Pain Management Course, research into patients’ expectations of pain management, and parent appraisals of injustice when their child has chronic pain.
Adam
Broadcast Assistant
Pain Concern
PLEASE share and help us to join in raising awareness for chronic pain through the use of education like this latest ‘Airing Pain Podcast’ which is aimed at medical professionals and everyone #notjustpatients
~ Many thanks Carole Sian (CEO) Co-Founder FibroFlutters
106: Pain Education for Doctors, Patients, and Parents
Registered Office: Unit 1-3, 62-66 Newcraighall Road, Edinburgh Eh15 3HS
Company Limited by Guarantee, Registered In Scotland No: 546994
Scottish Charity No: SC 023559Tel: 0131 669 5951
www.painconcern.org.uk
Helpline: 0300 123 0789 E-Help: help@painconcern.org.uk
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#pharmanews #eyeforpharma #pharma #tech
EVENT
Marketing and Customer Experience USA 2018
Nov 14, 2018 – Nov 15, 2018, Philadelphia
A best in class marketing show for Pharma – not just another Pharma marketing show!
Article >>>
Patient Services Bring Pharma into a New Era – Are You Ready?
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We believe the industry must focus on a business model combining service with product, with patients at the center.
RELIEF Newsletter | (IASP) International Association for the Study of Pain | August 30, 2018
New This Month
- Studying Low Back Pain in Animals—and Treating It Too
- Opioid Drugs Work Differently Than Natural Opioids
- Danger Zone: How the Nervous System Encodes Pain, Hunger and Other Threats
Did You Miss?
- Expectations Versus Reality: Spinal Surgery Does Not End Opioid Use for Pain
- Researchers Create a Game Plan to Study and Treat Chronic Pain
- Stay Away! How Animals Avoid Extreme Temperatures
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Copyright © 2018 RELIEF, All rights reserved. RELIEF is a service provided by the
IASP Pain Research Forum
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Tincture Takeaways | Tincture newsletter | 2 September 2018
Here’s our weekly update, with this week’s Tincture stories and a few non-Tincture stories that founder Jordan Shlain and editor Kim Bellard thought you should also see.
Including >>>
Tincture Takeaways: Danny van Leeuwen: Managing Pain — A Reality Check
Selected by Jordan: Carbs, anyone? Dietary carbohydrate intake and mortality: a prospective cohort study and meta-analysis
Selected by Kim: Tear down those imaginary lines! She’s worn both a hospital gown and a white coat. Now she wants to change how doctors perceive their patients
and more via this link…
Who are Tincture? ABOUT Tincture
Editor at Tincture. Always curious, always ready to challenge the status quo, in health care & elsewhere, especially via innovation & technology.
Ellen Bayens | The Celiac Scene News | Issue: September 2018
For gluten-free news and information
Ellen Bayens ~ The Celiac Scene News – September 2018
Follow The Celiac Scene on Twitter >>>
© 2018 Copyright – Site by Victoria’s PPC Solutions
Patientcare #Patientnews #NHS
Patient Newsletter | Subject: Have you signed up to save a life? | 5 September 2018
Main Headline: What it’s like to be on the organ transplant waiting list
Healthy living tips from the experts
- What causes male pattern baldness – and is there a cure?
- How to stop feeling bloated all the time
- What it’s like to be a recovering sex addict
- Why is there still stigma around antidepressants?
- Do you get neck pain when you move your head?
This week’s recipes
- Chilli and ginger salmon with asparagus
- Hearty spaghetti bolognese
Join our mental health forum >>>
Read more articles / posts from the newsletter by following this link >>>
Visit the Home Page and register for patient access as well as newsletters >>>
Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.
A great WARNING by a fellow chronic illness warrior, Jaime, from the blog ‘I told you I was sick’!
This Woman Was Fired for Using CBD Oil | By Jaime A. Heidel | I told you I was sick 3 September 2018
This is a true story, nothing made-up to scare monger people using CBD oils, but rather to raise awareness about the risks if you work, or in my opinion aswell, drive and / or operate machinary.
Maybe these oils should come with a STRICT warning like medications do, saying >>>
“CAUTION – may make you drowsy so may affect cognitive abilities & also may show up blood tests for random work tests”, and be warned! also driving offences because they can, and do, test for drugs these days!!
Of course! when it comes to company policies I agree that they probably require modernising to suit current social / medical changes in order to marry-up properly, which would give workers with certain disorders a waiver for THC screening when using CBD oils/products.
Will this happen? well through observation,, guestimation and logical reasoning I personally think it is likely that Governments could / would bring new policies in. However, it takes at least 4 years if not longer in the UK for things like that to even get to Parliament, in the US it may be a bit quicker but the protesting would have to be large and fierce to get the message across.
Don’t worry I’ve seen the chronic communities petition for change and even supported, joined in and gladly helped with many chronic health related causes and I am positive that it can be achieved. Changes won’t happen overnight!
~ Carole aka fibrofly73
Excerpt:
“Everything I read said there was such a small, slim-to-none chance of the .3% THC byproduct contained ever coming up on a drug test, and that I had nothing to worry about.”
Read the whole story via this link to the post on Jaime’s blog >>>
Remember to read more posts, opt-iin for e-upodates and also Jaime’s disclaimers and privacy policy via I Told You I was Sick – Home Page >>>
#Ecigs #health #chronicpain
ELECTRONIC CIGARETTES AND YOUR HEALTH… | BARMAC5 | BackPainBlog | 4 September 2018
This is a great article shared by Barb that explains everything about e-cigarettes and the affects they have, or do not have on the user’s health.
It is really detailed and goes into everything but is easy to read and understand. I think it is useful for anyone already using them, or for people like myself who are on the path to, hopefully, giving up smoking.
Read the article on Barbs Blog via this link >>>
ELECTRONIC CIGARETTES AND YOUR HEALTH…
BACK PAIN BLOG UK…
BACK PAIN BLOG UK IS A PERSONAL JOURNEY OF A CHRONIC BACK PAIN SUFFERER. MY SITE IS FULL OF THE LATEST TREATMENTS, PRODUCT REVIEWS, THERAPIES, DRUGS, TIPS AND WEBSITES ON BACK PAIN, FIBROMYALGIA AND ARTHRITIC CONDITIONS.
Latest edition!
ARMA Newletter | Arthritis & Musculoskeletal Alliance | September 2018
Harnessing a collective focus to transform MSK services
In this issue
- Guest Blog – Adopting the holistic approach | by Professor Anthony Woolf, Chair, ARMA
- Webinar: Setting up a MSK Service
- Everything you wanted to know about setting up a Musculoskeletal Service but were afraid to ask!
- 5 October 2018, 12.30 – 1.30
- Webinar: Rheumatology commissioning in a community
- Commissioning for Quality: Community-based Rheumatology Service
- 19 October 2018, 12.30 – 1.30
MSK services survey – Please let us know what is happening locally
As part of our Clinical Networks Project, ARMA wants to find out what is happening to improve MSK services across England in order to see how we can best target our support for improvements.
- Members’ News and Resources
Primary Care Rheumatology Society Conference 2018
“Improving MSK Medicine & Rheumatology”
Starts: Thursday, 22 November 2018 – 09:00
Ends: Saturday, 24 November 2018 – 13:00
And more…
Link to the newsletter where there are lots of things to read in this issue! >>>
Who are ARMA? >>> About ARMA
- To see previous issues of the newsletter, click here
- Follow us on Twitter: @WeAreArma
- To include items in the ARMA newsletter, please contact us.
Heard about the new MSK Hub mskhub.org.uk ?
It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.
#Awareness CAMPAIGN #EDS #HSD #EhlersDanlosSyndrome
Wear Jeans, Change Lives on September 21st
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.
The Ehlers-Danlos Support UK Campaign Newsletter ~ Are you ready for Jeans for Genes Day?
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.
Read more via the newsletter here >>>
Subscribe to ‘Fragile Links’ a regular members magazine >>>
Join, become a member and find a support group near you >>>
EDS UK Membership Choices
- Free – Membership for life
- plus Fragile Links (digital) £5.00 – Membership expires after 1 year
- plus Fragile Links (UK delivery) £8.00 – Membership expires after 1 year
- plus Fragile Links (Eur & Ireland) £13.00 – Membership expires after 1 year
- plus Fragile Links (rest of World) £18.00 – Membership expires after 1 year
You can join via this link >>>
|
#NeuroendocrineCancer #NETS
RonnyAllan.NET – Community Newsletter Covering August 2018
ronnyallan.net/2018/08/31/ronnyallan-net-community-newsletter-covering-august-2018/
International Awareness of Neuroendocrine Cancer and associated issues. Supporting and helping NET Patients
#Dermatology #Venereology #EADV
European Medical Journal | 2 September 2018
Preview of the 27th European Academy of Dermatology and Venereology (EADV) Congress – European Medical Group | 29 AUGUST 2018 | DERMATOLOGY
Why not check out today’s edition of ‘European Medical Journal, and many other health related newspapers via our Paper.li post where the issues all self-update, via this link >>>
My favourite Health related Paper.Li newsletters| Self-Updating | fibrofly73
Copyright © 2018 European Medical Group LTD. All rights reserved. European Medical Group is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendation.
Ts & Cs | Privacy Policy
Website by Vercossa
#MentalHealth #ADHD #Depression #Anxiety
MedCircle Digest | Newsletter Headliner: How One Mother Tried Everything & Eventually Led To Meds For Childs ADHD | 2 September 2018
Published in ADDitude Magazine ~ Inside the ADHD mind | Attention Deficit Hyperactive Disorder (ADHD) | 1 September 2018
This content is intended for informational purposes only. It should not replace professional medical advice, diagnosis, or treatment. If you think you have a medical emergency, call 911 or your doctor immediately.
MedCircle does not provide medical advice, diagnosis, or treatment of any kind. Learn more.
© 2018 MedCircle Inc. All Rights Reserved.
#MentalHealthAwareness #MentalHealth #SuicidePrevention #Suicide
September is National Suicide Prevention Awareness Month | Jenny Picciotto | National Pain Report | 1 September 2018
Excerpt:
The best way to prevent a crisis from escalating is to plan ahead and decide how you will respond ahead of time. A safety plan, often composed with the help of a counselor, is a step by step process that begins with identifying certain situations, thoughts or feelings that you recognize as the warning signs of a potential crisis.
Read the whole post via this link >>>
September is National Suicide Prevention Awareness Month | by Jenny Picciotto
Copyright 2018 National Pain Report
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Digital Health Digest | 31 August 2018
News >>>
INTEROPERABILITY | Health secretary highlights lack of national interoperability standards
DIGITAL PATIENT | Kent CCG goes live with mobile-based prescription ordering app
DIGITAL PATIENT | DIGITAL PATIENT
DIGITAL PATIENT | Bright sparks encouraged to submit ideas to innovation competition
Features >>>
FEATURE | Digital jam for NHS providers a welcome start
FEATURE | Digital natives will change the way we think about healthcare delivery
Upcoming Webinars >>>
Digitally driven workflows and patient journeys – how can we get from ‘good’ to ‘great’?
In today’s NHS, system planning, assurance, evaluation and continuous improvement are essential in delivering coordinated patient care. Join Accenture for our webinar where we will discuss our experience in digitising patient journeys and empowering patients and staff.
How NHS trusts can benefit from real-time data to improve cyber security
The webinar will provide you with insights into how and why the trust selected and implemented Fortinet. You will also learn how the use of SIEM has helped improve compliancy, driven efficiencies and enabled the trust to better utilise information from their existing technology assets to gain useful and insightful knowledge from their network.
Read the above and more via this link >>>
Digital Health Intelligence Limited
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Copyright (C) 2018 Digital Health Intelligence Limited All rights reserved.
paper.li newsletters have also My favourite health related paper.lis and they update themselves. The list includes >>>
DAILY! European Medical Journal
The Patient Registry Daily News & more on patient registries and their impact on healthcare today
PHARMAGEEK NEWS, le Journal
The Immunology Daily
Twice Daily! | News from Focus on Disability
Daily! Above The Fold in Healthcare is out!
Daily! Brainless Blogger News
The Chronic pain Daily | Support from Coach Amber Rose
The brain and mental health voice is out! | selection by Valeria Duflot
Twice Daily! Fibromyalgia ME Chronic Pain is out!
Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
Twice Daily! News from UK Care Guide
Click the link above for access to these paper.li’s
Don’t forget! if you like what you read, share and opt-in for their e-newsletters!!
About paper.li | paper.li/introduction.html
MSWorldNewsletter | Latest from MSWorld, News, Events & More! | 3 September 2018
Latest from MSWorld, News, Events & More!
Information published online by MSWorld volunteers is not intended to be used toward the diagnosis or treatment of any medical condition. For specific information and advice, consult your personal physician.
– MSWorld ManagementOur mailing address is:
MSWorld, Inc.
PO Box 2643
Sarasota, FL 34230-2643
Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.
Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!
If you like what you read PLEASE remember to share and opt-in
STAT: Morning Rounds | Health care at SCOTUS hearings, combatting counterfeit drugs, & nano-sponges | 4 September 2018
Headlining >>> Confirmation hearings start for SCOTUS pick
- Drug regulators gather to develop new ways to tackle counterfeit medicines
- Illinois requires insurers to cover egg, sperm, and embryo freezing
- Drug prices take center stage in a contentious Democratic primary
- Homelessness tied to a higher risk of health problems in young kids
- The latest on the Ebola outbreak in DRC
- Scientists create tiny trick sponges to curb joint inflammation
- Also – What to read around the web today
Link to the newsletter >>>
Do you like the newsletter and enjoyed the read, why not ‘opt-in’ for STAT morning rounds, and others via this link >>>
1 Exchange Pl, Suite 201, Boston, MA 02109
©2018, All Rights Reserved.
Please remember to opt-in and sign up for the STAT newsletters if you like what you read!
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Please can you read our Disclaimer & Privacy notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
#disability #disabilitynews
Disability News Service (DNS)
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
Awareness Campaigns
Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
#Fibro2018 #FightFibro #Fibromyalgia #Fibro
![FMAUK SUPPORT GROUP LOGO WorkingWith-200_100[1]](https://i0.wp.com/fibroflutters.com/wp-content/uploads/2015/09/fmauk-support-group-logo-workingwith-200_1001.jpg?resize=274%2C137&ssl=1){kind=logo}
FibroFlutters in Support:
#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
PLEASE help raise awareness of #incurable #Fibromyalgia join us as we launch our double album. fantastic night of #livemusic #music #gigs
Special guest appearance by #TheatreofHate
http://Www.rockofffibro.bigcartel.com
The Rigger , Newcastle Under Lyme
please share
Visit Rock Off Fibro’s PUBLIC group on FaceBook >>>
ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group
Visit Rock Off Fibro on Twitter >>>
Rock off Fibro @rock_off_fibro
#EpilepsyAwareness #Epilepsy
The Turning the World Purple Foundation | Epilepsy |
MOTTO:
We are more than our diagnosis. Epilepsy is NOT who you are.
We are working to smash stigmas associated with Epilepsy through advocacy and education.
www.turningtheworldpurple.org/
Maybe you could help out in some way and get involved 🙂
chronicillnessbloggers.com | 2018/02/07 | new-era-chronic-illness-bloggers
“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”
I am Proud to be a member and Ambassador of
@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.
Join for free on PatientsLikeMe.com!
A chance to change the future of personalized health.
Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information. ~ Carole
#notjustpatients
Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health >>>
https://www.facebook.com/groups/FFHQMentalHealth/
Something new
In the Chillout Lounge!
“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy
By Meditation and Healing | 7 August 2018
Why not visit Meditation and Healing to see what other tubes they have? >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog, instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
