#chronicillnessVOICE | Daily News | 03 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events

THANKYOU FOR YOUR PATIENCE AS WE WORK ON IMPROVING THE WEBSITE

Including!

In the Chillout Lounge!

852 Hz ❯ AWAKEN INTUITION || Remove Fear, Self Doubt & Subconscious Fears || 852Hz | Meditative Mind 4 July 2018

Psst!  It’s at the end!!


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in



 

My Disability Matters News & Opinion Digest has moved to it’s own space and will still be updated regularly.  Why not pop along and join the MDM Club / Community Platform and meet Dale Reardon, it’s founder, while your there.

Paper.Li newsletters have also moved to their own ‘digested’ post and they update themselves. 



 

NIHR Life Sciences Industry

News and Research from the NIHR ~ July 208

NIHR Clinical Research Network

National Industry Event – The Future Now

10 October 2018 | De Vere Grand Connaught Rooms, London

For more NIHR news visit their website via this link  >>>

www.nihr.ac.uk/


The following new funding opportunities are available:

Research for Patient Benefit Programme
Competition 37

For more information and a list of all current funding opportunities, please visit the NIHR website.

Find NIHR Research on Twitter:‏  

www.ct-toolkit.ac.uk/

Designing a clinical trial? See the for advice on best practice:


Copyright © 2018 NIHR, All rights reserved.

Our mailing address is: 

NIHR

Alpha House, Enterprise Road
Chilworth

SouthamptonHampshire SO16 7NS

United Kingdom

 



#Patientcare #Patientnews #NHS 

Patient Newsletter  |  Subject:  Are your meat-free friends welcome at your BBQ? |  2 August 2018


Main Headline:   VBQ

Other Headlines >>>

  • How to have a healthier barbecue
  • The recipes you need to try this summer

Join our mental health forum >>>


Read more articles / posts from the newsletter by following this link  >>>

Visit the Home Page and register for patient access as well as newsletters >>>

patient.info/


Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.



 

Airing Pain
Informing the pain community

The Latest epsisode!

Airing Pain  | 105:  Singing, Laughter, Speech & Pleasure  |  1 August 2018

Singing, laughing and the feel good factor. Pain Management, the fun way.

Listen via this link  >>>

This edition was funded by the Charles Wolfson Charitable Trust.
Copyright © 2017 Pain Concern, All rights reserved.
Our email address for all things relating to Airing Pain is:
production@painconcern.org.uk


 

#ChocolateBrownie  #Recipe

I like a good chocolate brownie, do you?  This recipe came through one of my social media feeds earlier this week and I must share it for our followers that are looking for Dairy and Gluten free recipes

Dairy & Gluten Free Sweet Potato Chocolate Brownies|  Tea & Cake for the Soul  |  28 August 2017

For more recipes, and to learn about who ‘Tea & Cake for the Soul’ is, you can visit the WordPress site via this link  >>>

Tea & Cake for the Soul

 



Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018

Harnessing a collective focus to transform MSK services

Who are ARMA? >>> 

About ARMA

Link to the newsletter where there are lots of things to read in this issue! >>>

ARMA AUGUST Newsletter


  • To see previous issues of the newsletter, click here
  • Follow us on Twitter:   @WeAreArma
  • To include items in the ARMA newsletter, please contact us.

Heard about the new MSK Hub ?

It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.

 



 

eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech

 

How Do You Localize A Global Brand Strategy? | By  |  eyeforpharma  |  16 July 2018

Marketers must balance global and local needs in their campaigns. How do they pull it off?

Opening paragraph:

‘Isn’t it marvelous how richly diverse the world is? Every adage about travelling rings true when you cross borders and experience it first-hand. I mean, who hasn’t quaffed Sangria on a beach and waxed lyrical about the world’s wonders?’

Read more via this link  >>>


eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.

social.eyeforpharma.com/about-us

Get the latest industry insights in your inbox:

social.eyeforpharma.com/
Follow eyeforpharma on Twitter:
www.twitter.com/eyeforpharma
Like eyeforpharma on Facebook:
www.facebook.com/eyeforpharma
Subscribe to eyeforpharma youtube channel:
www.youtube.com/user/eyeforpharma

 


Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.

 



 

NEWLY ADDED

#Healthcare #HealthReviews #European #Medical #Journal 

European Medical Journal | EMJ  Hematology 6.1! Review of EHA 2018 Now Available!  | paper.li | DAILY UPDATED

We review all of the breaking news from the major healthcare congresses across Europe

Read  via this link to the EMJ DAILY paper >>>


 

You can get access to EMJ  Hematology 6.1! Review of EHA 2018 by following this link >>>

 


Read EMJ RHEUMATOLOGY 5.1 2018 | JULY 2018 Via this link  >>>

Welcome message at the front of the journal:

‘The European Medical Journal has published the latest edition of EMJ Rheumatology, which includes a full review of the European League Against Rheumatism (EULAR) congress, a selection of peer-reviewed papers, interviews with members of our esteemed editorial board, and much more.’

 


EMJ Rheumatology 4.1 2017  |  Taken from Twitter  @EMJRheum | 9 July 2018

Prevalence and Significance of Anti-Saccharoymces    in Primary         

Read the article via this link  >>>

 


Editor’s note
“EMJ 3.2 has entered the building! This truly multidisciplinary eJournal returns for its 10th issue and its second of 2018. EMJ 3.2 includes a plethora of high-quality peer-reviewed articles that detail a myriad of fascinating topics across seven therapeutic areas: urology, haematology, oncology, gastroenterology, hepatology, neurology, and reproductive health. This eJournal must not be missed.”
As written in the paper!

Very soon EMJ will have their own spot on the website where you will have access to the links to their community as well as their journals and information.  ~ Carole 



#PHARMA #pharma #pharmanews #pharmaphorum

#medicalinnovation #blockchain #healthcare #nanotechnology #medicine #realworld

 

Deep Dive Magazine ~ Future Pharma 2018| Pharmaphorum  | 6  June 2018

“As pharma’s model is increasingly disrupted, how will health care and drug development progress? Click the button to read our preview article from the Medicines Discovery Catapult.” Quoted from the cover

 

If you like what you see then you can subscribe to the ‘Deep Dive’ magazine and daily updates via the Pharmaphorun website.

Link to the  latest magazine >>>

Sign up for the pharmaphorum daily newsletter and /or the ‘Deep Dive’ magazine via this link  >>>

Kind regards
Adam Jeffery
Commercial Director, Deep Dive

Copyright © 2018 pharmaphorum media limited, All rights reserved.
Subscribed to receive Deep Dive via registration form.

A fabulous pharma magazine!

 



banner that has zebra stripes and says "The Mighty, Rare Disease"

#Rare #RareDisease #chronicillness #invisibleillness

25 Secrets of People Who Can’t Work Because of Rare Disease




Exciting Rare News:


 

See the entire list of rare diseases covered on The Mighty here.

themighty.com/topic/rare-disease/

Subscribe to Rare Disease on The Mighty to get it every week. If you’d like to change how you receive our emails, you can update your preferencesopt out of this newsletter, or opt out of all emails from The Mighty.



#MentalHealth

LATEST!

Happiful Magazine E-newsletter | It’s time to stop counting sheep | 2 August 2018


Happiful Magazine It’s time to stop counting sheep

Visit the Happiful website to read past issues online, FREE, and you can also opt-in for newsletters  >>>

happiful.com/#

HAPPIFUL MAGAZINE IS BUILT WITH ❤️️ IN CAMBERLEY, UK BY MEMIAH LIMITED © 2018 
WE USE COOKIES. READ MORE ABOUT OUR COOKIE POLICY

 



 

Morning Rounds

STAT: Morning Rounds | 3 August 2018

HHS announces Title X grantees amid fight over potential changes

Inside STAT:  

  • A new clue about how thalidomide caused birth defects
  • Are schools prepared for a disease outbreak?

Link to the newsletter >>>


Do you like the newsletter and enjoyed the read, why not ‘opt-in’ for STAT morning rounds, and others via this link  >>>

www.statnews.com/signup/

1 Exchange Pl, Suite 201, Boston, MA 02109 
©2018, All Rights Reserved.

 



#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient

#clinicalsoftware #sharedrecocords #healthCIO #LHCRE #digitalNHS

Digital Health Digest | 3 August 2018

Link to the newsletter and links to other news sections >>>

Features  >>>

  • FEATURE |The CIO interview: Phillipa Winter, Bolton NHS Foundation Trust
  • CYBER SECURITY | Davey Winder: Does AI have a part to play in securing NHS data?

News  >>>

  • CYBER SECURITY |  NHS trusts sign up to Darktrace threat-hunting software
  • DIGITAL PATIENT | Bold Babylon starts recruitment drive in Brum despite CCG block
  • CLINICAL SOFTWARE | UH Bristol pushes ‘WhatsApp-style’ care co-ordination app to 1,000 clinicians
  • SHARED RECORDS |  Northern Ireland prepares for roll-out of patient portal

Case Study  >>>

  • The future of digital health leaders: Priorities and perspectives of CIOs

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

www.digitalhealth.net/



ANNOUNCEMENT

Disability Rights UK is pleased to announce that we are working in conjunction with UNITE Magazine.

NEW! Disability Rights Magazine Out Now!

Disability Rights UK Training  |  UNITE Magazine

‘UNITE is your new disability rights magazine. Out every month, UNITE covers a wide range of topics from accessibility and housing to universal credit and mental health campaigns.’

From the Disability Rights UK Training newletter 8 July 2018

Click here to subscribe, a fee may be required  >>>

Visit the magazine website home page  >>>

Visit the Disability Rights website for all kinds of information, advice and also opt-in for e-news  >>>

www.disabilityrightsuk.org

Disability Rights UK

Plexal
14 East Bay Lane
Here East, Queen Elizabeth Olympic Park
StratfordLondon E20 3BS
United Kingdom

020 7250 8181

 



MedicineNet ~ Newsletter  Special: Oral Health | What Teeth and Gums Say About Health |  29 July 2018

FEATURED  |  Essential Screening Tests You Need

Other headlines  >>>

  • QUIZ  |  Can Popcorn Prevent Constipation?
  • SLIDESHOW  |  Top Cancer-Fighting Foods
  • ARTICLE  |  12 Heart Attack Symptoms and Early Warning Signs

Read all the above via the following link  >>>

MedicineNet ~ Newsletter 2 August 2018

FROM OUR WEBMD SPONSORS >>>   Save a Life With a Piece of Your Liver

MedicineNet respects your privacy – view our Privacy Policy
MedicineNet 
903 Calle Amanecer, Suite 300 San Clemente, CA 92673 USA 
© MedicineNet, Inc. All rights reserved.



#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 


Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us


Visit the website to check out their latest disability news >>>

 



JUNE ROUND UP 

#NETCommunity #NeuroendocrineCancer #NETS 

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up | 2 July 2018

“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”

Ronny’s Community Newsletter  >>>

Blog Home Page  >>>

Living with Neuroendocrine Cancer



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!

 



Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com

 



 

chronicillnessbloggers.com
Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers

 



“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



 

 #notjustpatients

fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>

https://www.facebook.com/groups/FFHQMentalHealth/



         

 FIBROfLUTTERS LOGO ON WHITE PHOTOTASTICFMAUK SUPPORT GROUP LOGO  WorkingWith-200_100[1]


FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness


Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!


Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

Visit Rock Off Fibro on Twitter  >>>



Changeover!

In the Chillout Lounge!

852 Hz ❯ AWAKEN INTUITION || Remove Fear, Self Doubt & Subconscious Fears | 852Hz | Meditative Mind |  4 July 2018

 

Why not visit Meditation and Healing to see what other tubes they have?  >>>

 



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FIBROfLUTTERS LOGO ON WHITE PHOTOTASTIC

FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 

🙂

FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73



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