Day: 10 August 2018

#chronicillnessVOICE | Morning Edition | 10 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

Including:

Neuroscience Newsletter | 9 August 2018

STAT: Morning Rounds | Sponsored by Abvvie | 9 August 2018

Government announce opt-out system for organ donation
5 August 2018 Andrew Webster

The Ehlers-Danlos Syndromes Toolkit | Ehlers-Danlos Support UK | Sourced via Royal College of General Practitioners

Latest edition!
ARMA Newletter | Arthritis & Musculoskeletal Alliance | August 2018
Harnessing a collective focus to transform MSK services

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August 10, 2018August 25, 2018 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Caramel Butter Bars February 28, 2021
These crazy delicious Caramel Butter Bars are a heavenly treat that is a cinch to make! You MUST think up an excuse to bake up a batch! Layered with streusel and caramel over a shortbread crust, these Caramel Bars will thrill the caramel lovers in your life. And they may convert some who aren’t! (more…) […]
That Skinny Chick Can Bake - Where recipe magic happens...
March Baking Challenge: The 50th Sally’s Baking Challenge February 28, 2021
March Baking Challenge: The 50th Sally’s Baking Challenge The end of the month means a new Sally's Baking Challenge recipe is coming! In today's blog post, we're doing doing several things. First, we're seeing a preview of the March Sally's Baking Challenge, which will be the 50th Sally's Baking Challenge! There will be TWO winners […]
Sallys Baking Addiction - Addictive Recipes from a Self-Taught Baker
How to Help Ourselves in the Midst of a Health Crisis February 28, 2021
If you live with any chronic illness, you have most likely heard these or similar phrases in the past: “We see something on your CT Scan that should not be there.” “We are concerned about your kidneys.” “We have to investigate why you are having chest pains.” “I don’t know if your hair will grow […]
LupusChick | Your Go-To Girl for Chronic Illness Advice
Sweet on Trader Joe's: Chocolate Chip Cookies February 28, 2021
Happy weekend, all! Our review this week is of Trader Joe's Chocolate Chip Cookies. Look for them in the bakery area near the English muffins, etc. I'm a chocolate chip cookie gal. If I had to choose one dessert to eat for the rest of my life (oh, the humanity!), it would be chocolate chip […]
Bake at 350 by Bridget Edward
THE YEAR OF LIVING CREATIVELY: The Previously Unknown Back Story February 27, 2021
Every story has a back story. And every back story has a back story -- the mysterious plot without which the story about to be told would not be a story. And so, in the spirit of full disclosure, here's the back story of The Year of Living Creatively -- a bold, new online service […]
The Heart of Innovation
Fruit Scones February 27, 2021
Serve these quick and simple (no-fail) fruit scones fresh out of the oven with butter or your favourite jam for the perfect afternoon treat. The post Fruit Scones appeared first on Bake Play Smile.
Bake Play Smile - Sweet. Sinful. Simple.
How to Create a Healthy Home Office February 27, 2021
You can stay productive and healthy while working from home with the right tools. Learn how to set up a home office that works for you. Heigh-Ho, Heigh-Ho, it’s home to work we go. Whether working from home is customary for you or part of a pivot made to work around extenuating circumstances – like […]
Migraine Again
Potato-Cheese Onion Multi-grain Porridge Bread February 27, 2021
Potato-Cheese Onion Multi-grain Porridge Bread Submitted by isand66 on February 27, 2021 - 10:24am. It has been a while since I baked a porridge bread. I am a big fan of the moist and flavorful crumb I get. I added some onions directly into the porridge which helps impart a mild onion flavor. I […]
The Fresh Loaf
Pressure Cooker Beef Pho Recipe February 27, 2021
Spring is right around the corner, but for now, the air outside still bites back. This warm-spiced beef pho recipe is just what you need to warm up. Starting with a steaming bowl of rich broth, you build your soup with your favorite ingredients and allow the flavors to get to know each other as […]
Mark&#39;s Daily Apple
Blueberry Apple Upside Down Cake February 27, 2021
Blueberry Apple Upside Down Cake. An old fashioned comfort food dessert. Great taste never goes out of style. The post Blueberry Apple Upside Down Cake appeared first on Rock Recipes.
Rock Recipes by Barry C. Parsons

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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An image to guide your mind to anywhere whilst laying on the beach

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

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What will you find if you wander through the gate

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A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

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FMAUK | Fighting for the freedom from Fibromyalgia May 12th International Fibromyalgia Awareness Day 2016
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Smythe MD Hugh A Smythe Human brain signals Humanising Healthcare humanity Human Pain Research human rights HUMAN RIGHTS & DISABILITY ISSUES Humira hydrotherapy hyperarousal HYPERMOBILITY Hypermobility Spectrum Disorders hypersensitivities hypochondria I am research IASP IBS IBS v IBD ICU If Everyone Cares im-patient Imitrex immediate access Immigration centres Immune system Immunology IMPACT impact of covid-19 Impatient Impatient Barcelona imposter in-depth information Inclusivity Increased Pain Sensitivity independence independent living India infectious disease inflammation inflammation and RA inflammatory informal Information site information sites infrastructure injury law innmovation innovation Integrated Health and Wellness integrative health Intelligence interactive sessions International International Fibromyalgia Awareness Day Interoperability Advisory series interstitial cystitis In the name of fun invisible illness Ipsen IT It's a Doddle itchy skin JAMA Jeans for Genes Day JHS JNJCares joint and ligaments Join The ME Project Joint Hypermobility Syndrome joint pain joints Julie Ryan just for fun Justice Keeping safe this winter Keynote Speaker Knee Replacement knowledge knowledgehub Kris Sterkens Laboratory Lack of order Lara Bloom leadership learning Learning disability Leibster Award lemon and almond cookies library of resources Lidocaine life-changing science life-savers life-science Life sciences lifestyle lifestyle and healthcare life uncertainties Linda Tannenbaum Linked In lockdown Lode De Wulf London low back pain study - animals lower back pain LUPUS LYME Lyme Disease Lyrica Machine-Learning Machine learning magazine make-up Make it Public malaria medication malaria parasite Male insecurity male pattern baldness Mammography Manchester Uni Manic Map / Fascilitate / Enable /Discover Margaret Aranda Maria Montessori Marijuana market access Marketers marketing Marketing & Innovation Marketing and Customer Innovation Europe 2018 marketing and customer innovation Europe 2019 Marketing Tool market leaders market value Massage Mast Cell Activation Disease mast cell activation syndrome Matt Hancock Maxalt Maxine Mawhinney May12th MAY 12TH Mayo Clinic Mayo Clinic Social Media Network M B Yunus MCAS Webinar MCSMN mditation ME ME/CFS ME Association ME CFS Medial Patellofemoral Ligament (MPFL) Reconstruction medicaid medical medical & healthcare industry Medical Advice medical affairs Medical article Medical Device medical devices Medical healthcare medical image interpretation Medical Imaging medical information medical innovation Medical nerws Medical news medical professionals Medical Research Medical Science medication intolerances Medication Overuse medication reminder Medication Reminder App medications Medications /Treatments medication side-effects Medication Study medicine medicine development Medicine Discovery Medicine Guides Medicines Discovery Catapult Meditation Mediterranean diet Med tech medtech Memory Foam Mens helth mental exhaustion mental health Mental Health Awareness Mental Health Awareness Week mental health forum mental health matters Mentors Merck Manuals meta-analysis Microbiome Migraine Migraine.com migraines mindful drinking mindfulness Misophonia mobile Apps Mobility Montana co-op Mood Mood changes Mood decoding Morning Post Morning Rounds morning stiffness Mosquitos Motability loss Motherhood MOTS Trial mouth health MRI-guided MS MSK and Mental Health Policy Position Paper MSKhub MSK hub MSK SERVICE MSK services MSK services survey MSK survey Muhammad B. 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Patients involved Patients Like Me Patient solution Patient Summit PatientSummit patient support patient voice PatientVoice Patint news - heart health Paul Simms Paul Tunnah payers Pediatric Anxiety Disorders pediatric skin conditions Pedriatrics peer-reviewed Peer Comparison Feedback Peer to Peer PEMF therapy PENSIONS AND BENEFITS perinatal and infant mental health Period problems personal Personal Assistance personalised health personalised medicine personalized healthcare Person Before Patient Pes Cavus Petition petitions pfizer PFMD pharma Pharma / Science / Tech / Digital / AI Pharma Advocacy Pharmaceutical pharmaceutical Industry pharmacology Pharmafile Pharmafocus Pharmageek pharma intelligence pharma marketing pharma news pharmanews Pharma sales pharma strategy pharma summit Pharma Trends pharma value-chain phone Apps Photophobia physical health physicians Physio physiotherapy Pigmented Villonodular Synovitis pillsample Pink Fortitude PIP PIP benefit Planning ahead Plantar Fasciitis platforming Pneumonia Podcast Podcasting in Medicine Policies policy policy analysis poll polls polymyalgia poodle Positive thinking positivity postural orthostatic tachycardia syndrome posture Posture clothing Power Of Peseverence PPIE PRAI Pre-diabetes precision medicine Pregnancy / Obstetrics Pregnancy and sleep pregnancy tips Prescribing Presentation skills Presenting Preventative Measures prevention Primary Care Primary care conference Primary Care Rheumatology Society Conference 2018 Privacy Privacy Policy private healthcare procedural subspecialties. productivity Product Review professional advisors Professionals proton pump inhibitors (PPI) PsA PsA screening toolkit Psoriasis Psoriatic Arthritis Psorisis / Eczema Psych Central psychiatric illness psychiatry psychiatry advisor psychology Psychosocial Impact Psychotic PTSD publication public health Public Health England public health events Public Involvement Public Speaking pulmonology Quarterly Quarterly meet quitting smoking Quiz R&D R&D Review RA Radiologists Radiology raise awareness raising awareness rally obedience Ranch Dressing Rare Rare6thVertebrae Rare and Genetic Disease Network RareCare rare disease Rare disease awareness rarediseaseday.org Rare Disease Day 2020 Rare disease event rare diseases rare genetic disorder Rare illness Rare is Many Rare is Strong Rare is Proud RareMagazine Rare Revolution Magazine issue 6 rare skin conditions RCGP Secure Environments RCN rdsummit2018 real world real world evidence recipe Recipes recovering sex addict rectocele Reflux Regulations and Compliance Relapsing Polychondritis relax relaxation Relaxation Technique remote consulting Reputation reputation building Research Research Advocacy Research Centre Research news research opportunity Research surveys research symposium Research Transparency Survey Respect Respiratory Diseases Restless Legs - RLS Reuters Events Reviews Rheumatic Rheumatic Disease Rheumatoid arthritis Rheumatological Society Rheumatology risks to heart health RLS RMD Rock off Fibro Ron Davis Ronny Allan NETS rosacea Roundtables Ruth Wilson RWD RWE Salads Salford Uni Samarathon Samaritans Sanofi Savvy Scalp Psoriasis schizophrenia stidy school bullying Sciatica Science Science Daily Science news Scoliosis sdoh security Self-care self-criticism self-doubt Self-Help self-hypnosis self-improvement self-management self-sabotage selfcare self care tips self help tips selfie Sensitive sepsis care service design service dog Setback Sexism Sexual health checks shared knowledge shared records share your rare shout it loud show your stripes Siemens Healthineers Simon Denegri simple weightlifting moves Simply Symptoms SIP sitting Sjogrens Skeletal muscle Skin Skincare skin care Skin Disease Skin Health Skin problems skull and the brain sleep Sleep aids sleep disorder Sleep Disorders sleep problems sleep show slipped discs small cell lung cancer SMART Smart brain foods smart data Smartphone apps Smooth muscle Smythe & Moldovsky social anxieties Social Anxiety Social Care social media Social media health community social media marketing Social Media Network social media networking social media networks social media strategies social metrics Social Purpose Social research Societal Impact of Pain Sociodemographic solution providers SoMe SoMe Platform SOMNEX sound stimulation sound therapy South Tees CGG spasms Speakers Trust Speaking Special Diet sphincter of Oddi dysfunction (SOD). Spina Bifida Occulta spinach spinal surgery Sponsored Post Sponsored posts spoonie Spoonie Talk SSRIs Stakeholder approaches stakeholders standard poodle standards Stanford Start-ups starting point STAT Statins statistics Stevens-Johnson syndrome (SJS) stigma & antidepressants stigmatized Stomach Acid story telling strategic needs assessment Strategy Stress Stress response study stroke Stronger Together Struggle Sue Brown ARMA CEO sugary drinks Suicidal Thoughts Suicide Suicide Prevention Sumatriptan Summer fun Summer Fundraising Sun damaged Skin Sunderland Mind sunderlandmind.co.uk Sunderland Mind Centre Support Group support groups support network Support networks Support System surgery Surveys Survival survivor Sustainability Transition sweet potatoes symposium Systemic Disease Tai-Chi Taste of Home Tax credits Team approach tech news technological innovation Technology telehealth telemedicine Temperature sensitive Tender-Point-test Thankyou THC levels THC oil theatre The Best UK Chronic Illness Blogs The British Society for Rheumatology The Ehlers-Danlos Support UK The Future Of Rare Diseases The Im-patient Conference The Mighty The Moment The NHS Long-Term Plan The Opioid Crisis The Patient Registry Therapeutic Areas Therapeutic Value Therapies There is Always Hope The Sales Rep thought-leaders threadworms Tibial Tubercle Transfer (TTT) tick Time To Talk Tinnitus Tinnitus Hub Tinnitus Research Initiative TMJ Toolkit Tools and resources topamax Top Ten UK Chronic Illness Blogs List toxic epidermal necrolysis (TEN) TpT TpT test Training Transformational changes Transgender pathways transparency Trauma Trauma informed care traumatic experiences tray baked fish Treatment treatment options treatments Treatments & Therapies Trial trial design Trial recruitment Trigeminal Neuralgia Triggers Triptans Trust Trusted Medical Resource Twitter Twitter Chat UAE Nursing Society UK Care Guide Uk Fibromyalgia UK health Ulna nerve entrapment ultrasound Understanding Diabetes test strips undetermined USA Useful user-centered US pharma Valuable Collaborations value based care Vascular Vegan vegetarian Versus Arthritis Vertigo video-cast virtual virtual event Visual guides Visual imagery vitamin A Volunteer vulvodynia walking App Webinar webinar recording available webinars WEGO WEGO Award winner WEGO HEALTH Wego Health Awards 2018 weight gain Wellbeing in the city Wellcome Genome Campus Conference Wellness Wheat free WHEELCHAIR wheelchair user When Patients Take Control white paper whitepapers Why CX Starts In Sales why we do research win-win Windrush Wolfram Syndrome Wolfram Syndrome UK Women in Prison womens health workforce management Working from home Workshop World Arthritis Day World Fibromyalgia Day WorldFibromyalgiaDay2018 World Mental Health Day World Osteoporosis Day World Paediatric Bone & Joint Day World Spine Day Worldwide worm education X-ray-guided Young offenders institutions Youths Zomig ‘The Chronically Hopeful Award’

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Day: 10 August 2018