A selection of online health related newspapers/magazines/newsletters/blogs/events
~~~
Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.
Twice Daily! #carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
News from Focus on Disability
Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.
For disabled people, the elderly and their carers in the UK
Why not visit and opt-in for their newsletters >>>
Please help their wealth of information and resources reach the disabled community by visiting them and sharing.
Visit the link above to find all their social media links!
Don’t forget to check this evenings edition for their next update!
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Twice Daily! #HealthNews #ChronicPain #Autoimmune #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy #chronicillness #invisibleillness
Life Chronic Pain & Autoimmune Systemic Diseases & Dementia®
This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.
Rhia Steele –
All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down. Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.
The Latest Health News & Related Subjects from Rhia at your fingertips
Why not visit and opt-in for newasletters >>>
- Paper.li > Autoimmune / Arthritic Systemic Life
- Rhia’s blog > autoimmunearthriticsystemiclife.com/
- paper.li/
Don’t forget to check this evenings edition for their next update!
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Twice Daily! #carenews #careguide #care #homecare #elderly #disabled #chronicillness #invisibleillness
News from UK Care Guide
A UK care news site designed to help both those going in to care and those supporting a loved one going in to care. Their aim is to bring together all the important information that people will need.
Follow the link below for Uk Care News >>>
Why not visit and opt-in for newsletters >>>
- Website: UK Care guide
Don’t forget this evenings edition for their next update!
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Daily! #disability #disabilitynews #chronicillness #DWP #PIP #socialcare #Disability Pride
My Disability Matters News & Opinion Digest | See the latest headlines | 24 June 2018
Headliners >>>
Headlines chosen by Carole >>>
HUMAN RIGHTS & DISABILITY ISSUES
News and opinion on human rights for people with disability.
EMPLOYMENT
News and opinion on employment for people with disability.
Other Headlines for today >>>
- DWP in disarray as fresh legal defeat could mean fourth trawl through its records
- Young woman evicted from care home while critically ill in hospital
- Suicide nation: What’s behind the need to numb and to seek a final escape?
- Digital mental health drug raises troubling questions
- Can yoga help treat mental illness?
Follow these links for further news in these sections >>>
Why not join the community? Visit the website to join and opt-in for Worldwide Disability Matters DAILY News >>>
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Twice Daily! #Fibro #ME #CFS #ChronicPain #invisibleillness
Fibromyalgia ME Chronic Pain is out!
How it’s Costing You in Happiness, Financially and in Your Relationships!
Why not visit and opt-in for newsletters >>>
- Paper.li > Fibromyalgia & ME news
- paper.li/
“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news
Don’t forget to check this evenings edition for their next update!
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#brain #mentalhealth #chronicillness #invisibleillness
The brain and mental health voice is out! | selection by Valeria Duflot
Why not visit and opt-in for newsletters >>>
Valeria Duflot – Paper Li
- #Socent
- veneziaautentica.com co-founder
- Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
- paper.li/
Updates every couple of days!
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Latest! #mentalhealth #depression #anxiety #stress #chronicillness #invisibleillness
Psych Central | Psych Central Daily Newsletter | 24 June 2018
Headlines for today >>>
- Today I Love Last Night’s Gentle Rain
- Understanding and Managing Children’s Misbehavior
- Probiotics May Relieve Stress in Rats, But Not Humans
- Home Screening Tool Can Help Diagnose Age-Related Cognitive Decline
Today I’d like to highlight this headline from a previous issue, and say that it kinda makes sense, it’s an interesting read
- Why Being Left-Handed May Affect Brain-Based Treatments By Traci Pedersen
Opt-in for varying newsletters, bipolar; depression; anxiety and more > Home Page:
Taken from the site PLEASE NOTE >>>
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#disability #disabilitynews
Disability News Service (DNS)
A great site for health and disability news
Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
Read more Disability News Service – About us
Visit the website to check out their latest disability news >>>
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DAILY! #chronicpain #chronicillness #painmanagement
The Chronic pain Daily | Support from Coach Amber Rose | paper.li
Editor’s note
Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.
Check out >>>> www.thrivingwithpain.com
Visit the paper to find out what stories / articles Amber has selected for today >>>
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Latest!
#NETCommunity #NeuroendocrineCancer #NETS
RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up | 7 June 2018
“AWARENESS OF NEUROENDOCRINE CANCER AND ASSOCIATED ISSUES. SUPPORTING AND HELPING NET PATIENTS”
Ronny’s Community Newsletter >>>
Blog Home Page >>>
Living with Neuroendocrine Cancer
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#patients #patientcommunity #patientsnetwork #chronicillness #invisibleillness
http://www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’
Join a Caring Network:
healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.
About healtheo360 >>>
Opening paragraph:
‘The healtheo360 community includes patients, their caregivers, family members and friends who come to share their personal healing stories so that others may find inspiration and motivation as they go through the journey of living with their condition. Members share their health related stories and learn from each other through discussion. We encourage you to upload your story via video testimonies but we also offer blogging for those who are more comfortable with that method of sharing. At healtheo360 we believe in the healing power of story telling and how beneficial it is to share your story as well as to learn from other people with similar experiences.’
Follow this link to join in >>>
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NEWLY ADDED
#Healthcaare #HealthReviews #Eurpean #Medical #Journal
European Medical Journal | EMJ 3.2 Now Available! | paper.li | DAILY UPDATED
We review all of the breaking news from the major healthcare congresses across Europe
Read via this link to the EMJ paper >>>
A link to keep you going >>>
READ FOR FREE
- 3D-PRINTED HUMAN CORNEAS | EMJ INNOVATIONS | 18 June 2018
Innovations 2.1 2018
MEDICA 2017, Düsseldorf, GermanyThis eJournal is a fascinating exploration into innovations from the pioneers of medical research, detailing not only the latest developments from 2017, but also those advances destined to change the future of medicine. Alongside an intriguing array of peer-reviewed articles and interviews with experts at the forefront of medical innovations, you will find our independent coverage of MEDICA 2017.
Editor’s note
“EMJ 3.2 has entered the building! This truly multidisciplinary eJournal returns for its 10th issue and its second of 2018. EMJ 3.2 includes a plethora of high-quality peer-reviewed articles that detail a myriad of fascinating topics across seven therapeutic areas: urology, haematology, oncology, gastroenterology, hepatology, neurology, and reproductive health. This eJournal must not be missed.”
As written in the paper!
Very soon EMJ will have their own spot on the website where you will have access to the links to their community as well as their journals and information. ~ Carole
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Other Newsletters / Magazines / Blogs of interest
(not in chronological order)
including > > >
Changeover!
In the Chillout Lounge!
“Peace & Harmony” Beautiful Meditation Music, Relax Mind Body, Healing Music, Relaxing Music | Meditation and Healing| 23 June 2018
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FibroFlutters continuously
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
~~~~~~
Awareness Campaigns
Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
#Migraine #migrainesymptoms #patientvoice #bloggers #ChronicPain #chronicillness #caregivers
See selected posts further down the newsletter
PLEASE CAN YOU PARTICIPATE & SHARE, THANK YOU 🙂
#hcsm #rheumatology #research
#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia
Shared via Simon Stones | Twitter | 28 May 2018
Do you have a rheumatic and musculoskeletal disease (#RMD)? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using #socialmedia for health-related purposes.
To take part follow this link to the study >>>
https://www.soscisurvey.de/socialmediarmds/ …
About Simon >>>
Follow on Twitter >>> Simon Stones @SimonRStones
BSc (Hons) • Doctoral Researcher in Child & Family Health • @EULARYoungPARE & @EMEUNET Member • @fmauk & @raiiseuk Trustee • Patient Consultant/Leader
PLEASE SHARE, THANK YOU 🙂
#The Big Leap #MS
Take a leap on the wild side and help stop MS. | MS Society
‘On Sunday 2 September, join our team of daredevils and take the leap of a lifetime at our brand new and exclusive MS Society skydiving day, the Big Leap.’ MS Society
The Big Leap Take a leap on the wild side and help stop MS.
Visit the MS Society for more news and events >>>
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The next 3 post shares were kindly selected by my newly appointed Editor ‘Rie’, Rie Lopez, MPH, who you will be able to read all about via our new page that is currently under design ‘About the TEAM’, very soon. A fabulous new addition to my team here, from the US, to help us bridge the advocacy gap between the UK/Europe & US.
We are Twitter buddies outside the website and both also #patients #patientleaders #healthadvocates #researchadvocates #patientVOICE #chronicillnessVOICE #WEGOHEALTH #Savvy
Together we hope to build and create a safe haven for advocates to come and be themselves but also to endeavour to help all patients and non-patients find the best SoMe patient platform that suites them. Now that many more platfoms are appearing a directory of these sites would be a useful tool.
We have lots of great ideas to bring you including a, ‘#twitterchat’, as we slowly update and organise the site over the course of the next few months. We are also helping each other to learn the differences between our healthcare and public health systems as we work together.
Rie’s selection >>>
PLEASE NOTE: Pschiatry Advisor and Neurology Advisor are both aimed at #Professionals
Women With Epilepsy More Likely to Have Major Depressive Disorder | Sheila Jacobs | Neurology Advisor | 11 June 2018
Opening paragraph:
The point prevalence of major depressive disorder (MDD) is estimated to be 21.9% among patients with epilepsy who are managed in epilepsy clinics and is higher among women than among men, according to study results published in Epilepsy & Behavior.
About the author >>>
Also publiushed in Psychiatry Advisor on 21 June 2018
Public Support Only Moderate for Opioid Harm Reduction Strategies | Psychiatry Advisor | 21 June 2018
Opening paragraph:
HealthDay News — Stigmatizing attitudes toward those who use opioids are associated with lower support for two evidence-based opioid harm reduction strategies, according to a study published in the June issue of Preventive Medicine.
Read more via this link >>>
Abstract/Full Text (subscription or payment may be required)
© 2018 Elsevier Inc. All rights reserved.
Perimenstrual Symptom Exacerbation Observed in Borderline Personality Disorder | Emily Pond | Psychiatry Advisor | 21 June 2018
Opening paragraph:
Study data published in Psychological Medicine identified a potential risk for perimenstrual worsening of emotional symptoms in women with borderline personality disorder (BPD).
About the author >>>
You can find more articles of interest via the Psychiatry Advisor website by following this link where you can also opt-in for newsletters >>>
THANKYOU Rie for your ‘pick of posts’
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#Arthritis #Arthritis #PatientVoice #Patients
Manage Your Stress Manage Your Arthritis | Arthritis Foundation | 21 June 2018
Headlines >>>
- Five Positive Ways to Boost your Mood and Relieve Stress and Pain
- Art Therapy to Ease Stress
- Find Your Inner Peace
- Breaking the Pain Chain Toolkit
Follow this link to read more >>>
Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>
© 2018 Arthritis Foundation. 1355 Peachtree Street – Suite 600 – Atlanta, GA 30309. All Rights Reserved.
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#chronicpain #patients #diagnosis #copingstrategies #acceptance #survey #patientvoice
After the Diagnosis: Finding a New Normal While Living With Chronic Pain| Michelle Peterson | via National Pain Report | 23 June 2018
Read more by the Author >>>
Survey Shows Chronic Pain Community Wants Alternatives | Ed Coghlan | via National Pain Report | 23 June 2018
Read more by the Author >>>
10 Things You Need to Know Before You Buy CBD Oil | Andrew Havens | via National Pain Report | 21 June 2018
Read more by the Author >>>
Visit the National Pain Report website for more readables and opt-in for their newletters >>>
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#sponsored post / #productreview
#hempoil #HempOil #healinglotion #musclerub #chronicpainrelief #alternative #complementary
My Reviews on The FayFarm Hemp Oil Healing Lotion & Warming Muscle Rub | Blog: I Told You I Was Sick | Jaime Heidel | 18 June 2018
Opening paragraph:
‘Two years ago, I had the pleasure of reviewing The Fay Farm Serenity CBD Lotion, and I loved it! This year, I’m back with two more reviews of their amazing products. One is a hemp oil lotion and the other is a warming muscle rub’
A Healing Lotion and Muscle Rub to Relieve Pain Naturally
Other >>> Sponsored Product Reviews by Jaime
Jaime’s Disclaimer:
I have been given these products as part of a product review through the Chronic Illness Bloggers network. Although these products were a gift, all opinions in these reviews remain my own, and I was in no way influenced by the company.
You can find out more about Jaime via this link >>>
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#Relief
RELIEF Newsletter | June 19, 2018
RELIEF is a service provided by the IASP Pain Research Forum
New This Month
- When the Immune System Attacks Its Own Proteins, Pain Can Emerge
- Studying Sleep and Pain in Mice: A Chat With Alban Latremoliere
- NIH Announces HEAL Initiative to Combat Opioid Crisis
Did You Miss?
- Could Cannabis Legalization Help Ease the Opioid Crisis?
- Sex and Gender Differences in Pain: A Chat With Edmund Keogh
- Stopping a Pain Memory Before It Forms: A SPOT-ON Approach
You can read all of the above by following this link >>>
RELIEF Newsletter – June 19, 2018
June 2018 Highlight:
NIH Announces HEAL Initiative to Combat Opioid Crisis
Please let your colleagues and friends know about RELIEF.
Please pop along and sign up for the newsletter and content alerts HERE.
Copyright © 2018 RELIEF, All rights reserved. RELIEF is a service provided by the IASP Pain Research Forum.
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#hearthealth #bhf #healthmatters #healthyheart #heartdisease #younghearts
#food #nutrition #recipes #healthy #summer #patientjourney #patientVOICE #greentea
British Heart Matters – magazine | Does green tea really help your health? | British Heart Foundation | 16 June 2018
Intro > Does green tea reduce your heart risk?:
‘Recent news stories have suggested that drinking green tea could reduce your risk of heart attack or stroke. Before you put the kettle on, we look at how reliable the claims really are.’
Headlines >>>
- 7 healthy recipes to enjoy this summer
Now that the weather’s warming up, it’s time to make the most of fresh seasonal fruit and vegetables. Why not try out some of our delicious heart-healthy summer recipes?
- A patient’s diary of heart bypass surgery
- Does green tea reduce your heart risk?
- Should you sign up to an online GP?
- Learn how we support young heart patients
- Recipe of the week: Fresh strawberry scones
Popular in the last 7 days >>>
1. Watch: What are free sugars?
2. 10 things to do in a park this summer
3. Quiz: How healthy are you really?
4. 6 things you need to know about high blood pressure
5. Can eating an egg a day reduce your risk of heart diseases? (see this post from the last ‘Heart Matters’ underneath the post below)
|
Do you know someone who could benefit from receiving Heart Matters? Encourage them to sign up here. |
|
Sarah Brealey Heart Matters Editor |
#SummerFundraising
#hearthealth #bhf #healthmatters #healthyheart #heartdisease
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
It’s not too late to choose a fundraiser, so get your FREE FUNDRAISING KIT get going and make your summer count! Every pound you raise will help fund vital research, giving hope to the 7 million people in the UK living with heart and circulatory diseases, including stroke, vascular dementia and diabetes.
You can get you fundraising kits via the following BHF newsletter link >>>
Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters >>>
The British Heart Foundation >>>
British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426
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#EDS #raredisaease #ehlersdanlos #webinar #international #EDSnews
CONNECT ~ The Ehlers-Danlos Society International Newsletter | Medical Professionals Directory, Gut and EDS Webinar, and more! | 17 June 2018
Headlines >>>
- Introducing our Medical Professionals Directory
- VEDS Focus: To Shine Forth, Head Held High
- Free Webinar, “Gut Involvement in EDS”
- EDS and Exercise | by Jeannie Di Bon
- Register for the 2018 Ehlers-Danlos Society Global Learning Conference
- Register for Rarer Types Day
- New Ehlers-Danlos Society Stores Launched
- UK Women Build EDS Awareness
You can read all of this by visiting the following link >>>
CONNECT ~ The Ehlers-Danlos Society International Newsletter
You can keep up to date with all the news via Ehlers-Danlso Society by visiting their website and opting in for their newsletters >>>
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#NOTjustPatients #socialmedianetwork #digitalhealth #advocacyplatform #MAYOclinic #MCSMN
Mayo Clinic Social Media Network (MCSMN)
“After being, recently, introduced to this advocacy platform I can thoroughly recommend folks joining and making use of the Network to help empower themselves, and those of others.
I have been a fan of MAYO clinic for years so am really grateful to have access to such a great platform, especially not being a US resident but rather from UK. However, FibroFlutters do have many readers from the US and helping to provide you with safe places to go to online holds as much importance to us as finding safe places for our own UK readers to go to.
There’s access to discussions, webinars & MCSMN Blog depending on membership selection from Free, or, Premium. Please note that e-patients and students receive a special rate.
I certainly look forward to using it more, and hopefully making a few new friends along the way.”
Carole Scrafton ~ CEO FibroFlutters / Founding Five Member
Rie our new editior is also a member of this network
🙂
Do you think this is a network for you?, or maybe you know someone else who might benefit from it’s services?
You can join the MCSMN via the following link >>>
“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”
I am Proud to be a member and Ambassador of
@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.
Join for free on PatientsLikeMe.com!
A chance to change the future of personalized health.
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#Parkinsons #NewEvidence #Medicine
New evidence sheds light on how Parkinson’s disease may happen | Baylor College of Medicine | 14 June 2018,
Opening sentence:
‘Researchers at Baylor College of Medicine and Texas Children’s Hospital have identified unexpected new key players in the development of an early onset form of Parkinson’s disease called Parkinsonism.’
Read more via this link >>>
Follow this link to find out about Baylor College of Medicine >>>
For more Medicine & Health related news visit the medicalxpress website where you can also opt-in for newsletters >>>
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#chronicblogger
#BookReview #chronicpain #paincompanion #painbook #productreview
Book Review: The Pain Companion | Ribbonrx | 12 June 2018
An Introduction to ribbonrx.com >>>
Disclaimer:
I would like to thank New World Library for contacting me and providing a copy of The Pain Companion by Sarah Anne Shockley in exchange for an honest review.
Visit Ribbonx’s blog on wordPress for most posts >>>
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#survey #bbqsurvey #BBQ
Patient ~ Take part in our BBQ survey | 15 June 2018
Summer is upon us, and so is a new wave of people opting for a meat-free diet. We want to know if vegans and vegetarians are well catered for at traditionally meat-heavy barbecues.
The survey shouldn’t take more than a couple of minutes to complete and questions are relevant whatever your dietary choices. All responses are completely anonymous.
To take part follow this link >>>
Patient ~ Take part in our BBQ survey
WORLD CUP SPECIAL & Common Football Injuries / Sports Injuries
#Patientcare #Patientnews #NHS
Patient Newsletter | Subject: Football injuries that could scupper a World Cup victory | 12 June 2018
Main Headline: Common Football Injuries
‘Patient’ asked the fine folk at the Football Ramble podcast for their views on some of the most notable injuries in World Cup history.
Listen to the PODCAST via the link below, then take a look at our other expert features covering the phyical and mental aspects of football.
Other Headlines ~Know the score :
- Can football tackle mental health stigma? | Heads together
- When is it safe to return to sport after an injury? | Wait it out
- What to pack in a sports first aid kit | Be prepared
- How to recover from a sports injury | Regain strength
Join our mental health forum
Join the Patient Mental Health forum
Read more articles / posts from the newsletter by following this link >>>
Patient Newsletter 12 June 2018
Visit the Home Page and register for patient access as well as newsletters >>>
Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.
#neurosciencenews #neuroscience
Neuroscience News via ~ Neuroscience Newsletter | Headliner: Genes Associated with Infantile Forms of Schizophrenia Identified – Neuroscience News – Neuroscience News| 24 June 2018
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2018-06-22 
Read more neuroscience news via this link where you can also opt-in for newletters like this one>>>
neurosciencenews.com
Neuroscience News | Neurology | Robotics | Psychology | Submit News
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World Health Organization Newsletter | Hot topics this week in health | 15 June 2018
World Health Organization ~ Hot topics this week in health
The following link will take you to the World Health Organization website for more World Health news >>>
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#PHARMA #pharma #pharmanews #pharmaphorum
#medicalinnovation #blockchain #healthcare #nanotechnology #medicine #realworld
Deep Dive Magazine ~ Future Pharma 2018| Pharmaphorum | 6 June 2018
“As pharma’s model is increasingly disrupted, how will health care and drug development progress? Click the button to read our preview article from the Medicines Discovery Catapult.” Quoted from the cover
What you can read about via the link below >>>
- Chris Molloy, Medicines Discovery Catapult, explains why the future of medical innovation lies with the industry’s SMEs
- Karen Taylor, Deloitte, offers six predictions for the course of our industry into 2022, both evolutionary and revolutionary
- How Blockchain could enable a truly global healthcare ecosystem
- And a look into real-world examples of how nanotechnology is now advancing medicine, and the challenges faced
- Sign up here to ensure you receive our next Deep Dive Oncology special report from ASCO when it is published at the end of this month, and future issues free on publication.You can read our previous editions here: Deep Dive: Patient Centricity, Deep Dive Market Access II.
If you like what you see then you can subscribe to the ‘Deep Dive’ magazine and daily updates via the Pharmaphorun website.
Link to the magazine >>>
Sign up for the pharmaphorum daily newsletter and /or the ‘Deep Dive’ magazine via this link >>>
Kind regards
Adam Jeffery
Commercial Director, Deep DiveCopyright © 2018 pharmaphorum media limited, All rights reserved.
Subscribed to receive Deep Dive via registration form.
A fabulous pharma magazine!
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#clinicalresearch #patients #patientparticipation #clinicaltrials #painmedicine #futureofpharma #whywedoresearch
Patients, Power, Participation: How Enrolling in Clinical Trials Can Help Ensure That The Future of Pain Medicine is Now | SKILLFULLY WELL & PAINFULLY AWARE | KATARINA ZULAK | 7 June 2018
Excerpt:
‘Participants in clinical trials have the opportunity to access cutting-edge therapies before they are made widely available, often at leading medical facilities. Experimental treatments can be appealing to individuals who have failed to benefit from conventional treatments. There is no cost to participate in medical research and health insurance is not required. Additionally, some studies compensate individuals who join the clinical trial.’
About Katarina >>>
This piece has been entered in the Patients Have Power Writing Contest run by Clara Health designed to raise awareness about clinical trials.
Visit the homepage for more blog posts by Katarina >>>
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Annual European Congress of Rheumatology
How to keep up with the #EULAR2018 news if like me you were not lucky enough to be there in person.
EULAR websites
EULAR Congress website: www.congress.eular.org
EULAR Congress 2018 documents: www.congress.eular.org/download.cfm
EULAR website: www.eular.org
EMEUNET website: emeunet.eular.org
EULAR Young PARE website: www.youngpare.org
Welcome message from Johannes W. J. Bijlsma who is EULAR President >>>
Welcome message from the EULAR President
There are a few ways that you can keep up to date with what went on.
The (EMJ) European Medical Journal will have a full congress review of #EULAR2018 in their next edition of EMJ #Rheumatology which is FREE to subscribe to via this link >>>
You can see all of EMJ’s Rheum content by visiting this link, please share. Please opt-in & help me to get proper peer reviewed articles out there >>>
PLEASE NOTE:
Copyright © 2018 European Medical Group LTD trading as European Medical Journal. All rights reserved. European Medical Journal is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.
About EULAR
The European League Against Rheumatism (EULAR) is the organisation which represents the patient, health professional and scientific societies of rheumatology of all the European nations. EULAR endeavours to stimulate, promote, and support the research, prevention, treatment and rehabilitation of rheumatic diseases. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal systems.
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#arthritis #osteoarthritis #lifestyle #knucklecracking #texting #highheels #vitaminE
Arthritis Foundation E-news | Lifestyle Factors & Osteoarthritis Outcomes | Five lifestyle factors that may be linked to OA.
Here are five lifestyle factors researchers have studied to see if they’re linked to OA:
- Besides possibly irritating those around you, can knuckle cracking lead to the disease?
- If your child is constantly texting, is the development of OA more likely in his or her future?
- Can wearing high-heeled shoes contribute to an OA diagnosis?
- Is high-impact, weight-bearing exercise helpful or harmful?
- Can a diet rich in vitamin E reduce the risk of OA or its progression?
‘Managing your arthritis – and the pain and restrictions that come with it – is much easier if you know what to avoid and what can be beneficial. We want to arm you with useful information that helps put you in control!’
Arthritis Foundation
Original posted on Arthritis Blog Home » Osteoarthritis Blog Home » Can Lifestyle Factors Influence Osteoarthritis Outcomes? | Arthritis Today Magazine June 2017.
Visit the ‘Arthritis Foundation via the following link for more useful information, blogs, blog posts and there are also newsletters that you can opt-in for >>>
© 2018 Arthritis Foundation. All Right Reserved.
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309
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Try This, Not That: JA Complementary Therapies | Arthritis Foundation E-newsletter | 6 June 2018
Complementary Therapies for JA | Try this, not that: find out which therapies to try and which ones to avoid.
Many families turn to complementary therapies to help ease the pain of a child with arthritis.
That can be a good thing – just be sure whatever you’re considering works for your situation.
- Exercising with free weights and activities like jumping rope can improve both physical and emotional health without increasing pain. But avoid high-impact sports.
- Relaxation exercises may diminish pain intensity … and they cause no negative side effects.
- Water therapy is a good way to limber up stiff joints in the morning, and relax tight, aching muscles at bedtime.
- Massage can relax muscles, lessen pain and improve circulation.
Learn all about complementary therapies for JA.
They may provide you with new methods to help manage your child’s pain.
© 2018 Arthritis Foundation. All Right Reserved.
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309
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Happiful Magazine E-newsletter | Help us help you | 7 June 2018
Happiful Magazine Help us help you
Visit the Happiful website to read past issues online, FREE, and you can also opt-in for newsletters >>>
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Latest edition!
ARMA Newletter | Arthritis & Musculoskeletal Alliance | June 2018
Harnessing a collective focus to transform MSK services
Who are ARMA? >>>
Link to the newsletter where there are lots of things to read in this issue! >>>
- To see previous issues of the newsletter, click here
- Follow us on Twitter: @WeAreArma
- To include items in the ARMA newsletter, please contact us.
Heard about the new MSK Hub http://mskhub.org.uk ?
It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.
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J U N E is Migraine & Headache
Awareness Month!
#chronicillness #healthadvocacy
#Migraine #ChronicPain #Migraineawareness
The Migraine Mantras | May E-Newsletter | 16 May 2018
The Migraine Mantras ~ May E-Newsletter
The Migraine Mantras have partnered with Chronic Migraine Awareness Inc.
for #MHAM18!
Find out how you can get involved via visiting the link above
#Migraine #ChronicPain #Migraineawareness
Weekly digest for The Migraine Mantras | 4 June 2018
Headlines >>>
Ways I’ve Healed My Mental Illness | By Alisha
You Are Not Alone | By Winslow
Being a “Zebra” with Migraine | BY JORIE, JEANNETTE, & SARINA
Chronic Pain & Yoga: My Journey | By María –
Visit the ‘MigraineMantras’ WordPress blog for more posts and opt-in for their Weekly Digest newsletter >>>
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#pharmanews #eyeforpharma #pharma #tech
Artificial Intelligence: The Counter-Argument | Adam Chapman | eyeforpharma | 7 June 2018
AI is being touted as the doctor’s new lifeline — we put this proposition to a skeptical doctor.
About the Author >>>
Get the latest industry insights in your inbox:
Sizing Up Pharma’s Tech Maturity | Andrew Stone | eyeforpharma | 1 June 2018
About the Author >>>
eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.
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Upcoming events
OCTOBER
-
eyeforpharma Sydney 2018Sydney | Oct 10, 2018 – Oct 11, 2018
-
Marketing and Customer Innovation Europe 2018London | Oct 16, 2018 – Oct 17, 2018
Including the ‘Impatient’ conference where petients have set the agenda and ask pharma the questions!
Get your brochure via my post here >>>
NOVEMBER
- Marketing and Customer Innovation USA 2018Philadelphia | Nov 14, 2018 – Nov 15, 2018
Including the ‘Impatient’ conference where petients have set the agenda and ask pharma the questions!
Get your brochure via my post here >>>
Eyeforpharma – Mission statement:
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Our mission is to make pharma more open and valued.
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The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
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We believe the industry must focus on a business model combining service with product, with patients at the center.
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PLEASE OPT-IN & SHARE, THANK YOU 🙂
#NHS70 #NIHR #IAmResearch
Please sign and support new research
Thunderclap ~ NIHR I Am Research & NHS70 | by The National Institute for Health Research (NIHR) |
Thunderclap ~ NIHR I Am Research & NHS70
I share this campaign as a Patient Research Ambassador for NIHR #PRAI
Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert
#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy
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#EatingDisorders #diversity #bipolardisorder #bipolar #selfcare #mentalhealth #mentalhealthawareness #patientvoice #themighty #depression
E-news ~ Mental Health on The Mighty | Theme ~ Why does diversity matter in mental health anyway? | 16 June 2018
Headlines >>>
- Black Girls Get Eating Disorders, Too
- Why It’s Important to Have a Culturally-Sensitive Therapist
- In Honor of Pride Month: I Am Black, Gay and Bipolar
- We Need to Talk About Mental Health in the Asian-American Community
- 10 Things You Should Know About Minority Mental Health
Take care of yourself
Sarah
Mental Health Editor at The Mighty
If you visit ‘The Mighty’ Home Page you can join in by opting-in for e-newletters, follow specific health conditions and / or different writers / contributors. You can post your blog posts and contribute too >>>
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PLEASE SHARE, THANK YOU 🙂
#MEAction Indiegogo campaign
“We need to raise $100,000 through this Indiegogo campaign to support our work for the remainder of the year to expand our reach, build community, increase our advocacy, educate doctors and scientists, and inspire new researchers and clinicians to join the field. Here is what your support can help us achieve.”
#ME It is way past time for recognition, ME must be taken seriously!
Visit #MEACTION website and join many other ME and CFS patients >>>
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#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient
#clinicalsoftware #sharedrecocords #healthCIO #LHCRE #digitalNHS
New! Digital Health Newsletter | Digital Health | 15 June 2018
News Headlines >>>
- FEATURE: Calling time-out on WhatsApp: The need for secure and integrated clinical messaging service
- FEATURE: Another view: of cryptography and proving our identity
- NEWS: Digital Health to disrupt health IT events market with launch of ‘Rewired’
- NEWS: NHS England heavily criticised for misdirected clinical correspondence
- DIGITAL PATIENT:-Apple opens up its core health records API to US developers
Link to the newsletter and links to news sections >>>
- Digital Health Newsletter
- Link to other DIGITAL PATIENT news stories
- Link to other CLINICAL SOFTWARE news stories
- Link to other AI AND ANALYTICS news stories
- Link to other NEWS
- Link to other CYBER SECURITY news stories
- Link to other FEATUREs
Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters >>>
Registered No. 9257440 | Vat No. 198 3531 71
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#elderlycare #healthcare #postopcare #advancedsurgery #AgeUK #domiciliarycare #HomeCareSolutions #HomeCare
‘What good is advanced surgery if we can’t even offer proper homecare?’ | Anna Bawden and Nicola Slawson | The Guardian | 30 May 2018
Opening paragraph:
‘Almost 1.2 million people aged over 65 do not receive the support they need with essential daily tasks such as getting washed and dressed or preparing meals, according to Age UK. The perilous state of the domiciliary care sector, which provides support in people’s own homes, is one of the main reasons for this, the charity says.’
Read more via the following link >>>
About the Authors >>>
Visit The Guardian for more news via the following link where you can also opt-in to subscribe, and be a supporter, like I do and be kept informed of latest news and also their latest offers >>>
Note taken from ‘The Guardian’ website to its readers
“Thank you to the many people who have already supported us financially – your contribution is what makes stories like you’ve just read possible. We increasingly need our readers to fund our work so that we can continue holding power to account and producing fearless journalism.” From the Guardian
Even as little as £1 can help them make a difference!
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#Healthcare #health #care #NICE #socialcare #evidencebased
Latest issue! NICE Newsletter | May 2018
Including their latest PODCAST: Managing multimorbidity: putting patients at the heart of their care
National Institute for Health and Care Excellence – NICE – provides national guidance and advice to improve health and social care.
‘Improving health and social care through evidence-based guidance’
Visit the website for other news and you can also choose to opt-in for alerts and newsletters >>>
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PLEASE SIGN AND SHARE, THANK YOU 🙂
#Campaign #Petition #CarersTrust #GreenPaper2018 #elderlycare #careworkers #support
Meet your MP about the social care Green Paper 2018 | Carer’s Trust
The Government has promised to consult in 2018 on a long-term solution to social care funding for older people in England in a Green Paper.
If you’re a carer – why not meet your MP and tell them why the Green Paper has to include support for carers?
Meet your MP about the social care Green Paper 2018
Visit the ‘Carer’s trust’ website for more care news and opt-in for e-news >>>
Carers Trust believes in a world where the role and contribution of unpaid carers is recognised and they have access to the quality support and services they need to live their own lives.
#CarersWeek2018 11th – 17th June
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EVENT
#healthcare #healthcareprofessionals #HCP #MSA
Multiple System Atrophy Trust | Health and Care Professionals Study Day
We are pleased to announce our next study day for Health and Care professionals will be held in Newcastle on 11th October 2018.
Multiple System Atrophy Trust | Health and Care Professionals Study Day
About the Multiple System Atrophy Trust >>>
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#HealthAdvocacy #healthcare #patients
Health Hats | You say you want a revolution | By Danny van Leeuwen | 27 May 2018
Excerpt:
‘One of the things that Victor said was that reformers are important, but healthcare is not designed for health and wellness, care and kindness. The entrenched forces will not fundamentally change with reform. It needs a revolution, a patient revolution. I’ve never been good at putting other people’s labels on myself – I don’t know if I’m a reformer or a revolutionary. During my professional and now activist career, I’ve seen myself as a catalyst for change – sustainable change that continues when you’re gone.’
Visit Health Hats and opt-in for their new posts via e-mail >>>
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#MEAction | Daily Digest: It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two | 23 May 2018
Read: Volume One here.
Other headline:
- Who is advising the Australian government on ME and CFS research and treatment guidelines?
Catch up on the latest actions and news:
- The NIH Plan for ME is Dismal
- Calling all Patients: Fill Out the Research Survey about PEM
- Just Invisible: Medical Access Issues for Homebound/Bedridden People
- Inquest Rules Merryn Crofts Died Due to Severe ME
- UK Call to Action: Ask Your MP To Sign EDM 1247!
Visit #MEAction website and register, you can also opt-in for the ‘Daily Digest‘ newsletters >>>
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Get involved with #healthresearch in #Salford and #Manchester
Are you interested in #research?
Would like to get more involved, or know what research is going on around you?
Visit The ‘Citizen-Scientist’ website and take a look around, if you like what you read you can opt-in for newsletters >>>
www.citizenscientist.org.uk/sign-up/
About #CitizenScientist >>>
www.citizenscientist.org.uk/about/
A CURRENT study opportunity: Testing a new technology to reduce chronic pain
Study summary
The Human Pain Research group based at Salford Royal is trying to develop new technologies that can measure and treat changes in the brain that might contribute to chronic pain.The research team are exploring a new approach aimed at reducing the unpleasantness of pain for people living with fibromyalgia and/or osteoarthritis using sound stimulation.
Citizen-Scientist Tags ~ arthritis, fibromyalgia, healthy volunteers, pain
Read more via this link >>>
www.citizenscientist.org.uk/study-updates/cloudy-chance-pain-preliminary-findings/
A study update: Cloudy with a chance of pain – preliminary findings
Citizen-Scientist Tags ~ pain weather
Cloudy with a Chance of Pain is a large smart-phone based research study examining the link between weather and pain.
Read more via this link >>>
www.citizenscientist.org.uk/study-updates/cloudy-chance-pain-preliminary-findings/
Posted on 14th March 2017 by Natalie Balmain
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Im-patient UPDATE
Thankyou to everyone…
…who has participated in the design of ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia event also in October.
You can now take a look at the brochures for ‘Patient Summit Europe’, ‘Patient Summit USA’ and book your places via the following links >>>
Get your copy of the brochure now – for the full details of the agenda and “im-patient” summit
Get your copy of the brochure now – for the full details of the agenda and “im-patient” summit.
Excerpt:
We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.
THANKYOU IN ADVANCE FOR READING AND PARTICIPATING
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#Diabetes #advocacy
Diabetes Blog – Happy-Medium.net | WEEKLY DIGEST | StephenS | 4 June 2018
Headlines:
- One at a time.
- My turn.
- You do You.
Read more via this link >>>
Visit Stephens blog for more posts >>>
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#GDPR & the new Privacy Laws. What do they mean for you?
What’s changing and what’s not under new data privacy rules | Anick Jesdanun | physorg.com | 18 May 2018
Excerpt:
‘Not much will change for you, at least right away; companies will keep on collecting and analyzing personal data from your phone, the apps you use and the sites you visit. The big difference is that now, the companies will have to justify why they’re collecting and using that information.’
Read more by following this link >>>
- What’s changing and what’s not under new data privacy rules
- Sourced via: ‘Newsletter Science X’ ~ ‘physorg.com‘
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Latest! #stressresources #stress #mindfulness #meditation
May 2018 Newsletter from Stress Resources | Pamela Ressler | May 2018
Quoted from the home page:
‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’
For more articles and information visit the Stress Resources website where you can also sign up for their newsletter >>>
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#Fibro2018 #FightFibro #Fibromyalgia #Fibro
![FMAUK SUPPORT GROUP LOGO WorkingWith-200_100[1]](https://i0.wp.com/fibroflutters.com/wp-content/uploads/2015/09/fmauk-support-group-logo-workingwith-200_1001.jpg?resize=274%2C137&ssl=1){kind=logo}
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#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
Visit Rock Off Fibro’s PUBLIC group on FaceBook >>>
Visit Rock Off Fibro on Twitter >>>
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Newsletters via News Medical
Latest! News Medical |Diabetes Newsletter | 11 June 2018
News Medical | Endocrinology Newsletter | 10 April 2018
Latest! News Medical | Respiratory Diseases | 11 June 2018
Latest! News Medical |Sleep Disorder Newsletter | 4 June 2018
Latest! News Medical | Pediatrics Newsletter | 13 June 2018
-
News Medical Home Page >
Changeover!
In the Chillout Lounge!
“Peace & Harmony” Beautiful Meditation Music, Relax Mind Body, Healing Music, Relaxing Music | Meditation and Healing| 23 June 2018
Why not visit Meditation and Healing to see what other tubes they have? >>>
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
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FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
