#chronicillnessVOICE | Morning Edition | 21 June 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.


Twice Daily!   #carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

News from Focus on Disability 

Their mobile-friendly websites provide online support, information and products for disabled people, the elderly and their carers in the UK.

For disabled people, the elderly and their carers in the UK

Why not visit and opt-in for their newsletters  >>>

Please help their wealth of information and resources reach the disabled community by visiting them and sharing. 

Visit the link above to find all their social media links! 

Don’t forget to check this evenings edition for their next update!



Twice Daily!   #HealthNews #ChronicPain  #Autoimmune  #Systemic #Dementia #Arthritis #Lupus #Sjogrens #PatientAdvocacy  #chronicillness  #invisibleillness

Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

This paper is great for variation, and health related news for disorders that are invisible or not generally heard of.  

Rhia Steele

All aspects of autoimmune/chronic pain illnesses, fighting to survive & grow past them, as I now stand alone to disallow these to get me down.  Published author, writer, activist, Platinum Ambassador for the Arthritis Foundation, Advocate for WEGO Health, blog Lupus, RA, Sjogrens’, Health, patient with autoimmune illnesses, and how they can wreck life, or you can make it better, love helping others.

The Latest Health News & Related Subjects from Rhia at your fingertips

Why not visit and opt-in for newasletters  >>>


Don’t forget to check this evenings edition for their next update!



Twice Daily!   #carenews #careguide #care #homecare #elderly #disabled #chronicillness  #invisibleillness

News from UK Care Guide 

A UK care news site designed to help both those going in to care and those supporting a loved one going in to care.  Their aim  is to bring together all the important information that people will need.

Follow the link below for Uk Care News  >>>

Why not visit and opt-in for newsletters  >>>

Don’t forget this evenings edition for their next update!




Daily! #disability #disabilitynews #chronicillness #DWP #PIP #socialcare #Disability Pride

My Disability Matters News & Opinion Digest |  See the latest headlines  | 21 June 2018

Headliners  >>>  

Main Headline >>>
TransPennine performs sharp U-turn on train access after protest threat
It probably won’t surprise many of you that I am commenting on this main headline, ‘TransPennine performs sharp U-turn on train access after protest threat‘.
I have been a frequent user of Transpennine for well over a decade, since the Liverpool Lime St route ended.  The service is always impeccable, I never have a problem with their services, or staff, and in fact they go out of their way to ensure I have a safe and comfortable journey every time.
Just in case you don’t know my story I travel by wheelchair on the train all the time and Transpennine are by far the best at catering for the disabled.  Yes, I was initially shocked to hear about the introduction of new trains that wouldn’t allow wheelchairs.  Well, who wouldn’t be, what’s the alternative, urm…. no pushchairs, or bicycles!?
It’s time people started being realistic, when it comes to travelling on the train puschairs, wheelchairs, bicycles and luggage all travel in the same space.  Now doesn’t it make sense to add extra trains that give people with bicycles an opportunity to know they won’t lose their space to a wheelchair.  Or the single mum hopping 2 stops up to drop a kid off to school but has no-one to take the baby where does she go? of course these are just basic examples but I can tell you many stories about disabled travellling by train, basically I don’t drive so I rely on trains and buses.
The one thing to remember here is that this is my own personal opinion and I don’t write it to support, or not support the decisions made by Transpennine. 
However, this whole scenario has thrown up yet another ‘patient need’ from outside medical healthcare sector!  YES!! I am pleased they have U-turned on their decision for ethical based reasons.
Personally speaking they should redesign the trains to suit modern day needs.  I have been on a train where there were three of us in wheelchairs, for example, placed in the middle of the aisle in amongst everyone else, and their luggage.  They have safety measures that we must comply to as travellers including where to position our wheelchairs.  It was a ridiculous journey.  Also, luggage racks are not pretty to look at and being placed by toilets is handy but the smell is awful, they place us by the doors, naturally and correctly but it’s draughty. 
They can’t solve all these niggles, but surely redesigning the inside of the train to be more disabled friendly would help to appease the #chronicillness communities, #wheelchairuser communities etc Remember a lot of wheelchair users travel with a companion who is acting as carer so there has to space for them as well but the way that trains are designed inside there are the flip down seats, but then faced with, ‘where do you put your luggage?’.
It would help moms with pushchairs and prams aswell. Market a time when it’s cheaper for us to travel and have specially designed carriage for wheelchairs, pushchairs and bicycles.  Why give us the doorways and that’s it?
What bugs me on most trains is the fact that they are just not appropriately designed for wheelchair accessibility.  Yes, they provide a ramp but the narrow doorways and aisles make it complicated to get to where their allocted wheelchair space is.  Trains are badly designed full stop no matter what company it is. There is not enough space on them so why haven’t they designed a carriage that is more suitable yet!?
Carole’s #chronicillnessVOICE 21 June 2018

Read the article via this link >>>


Other Headlines for today >>>

  • DWP in disarray as fresh legal defeat could mean fourth trawl through its records
  • Young woman evicted from care home while critically ill in hospital
  • Suicide nation: What’s behind the need to numb and to seek a final escape?
  • Digital mental health drug raises troubling questions
  • Can yoga help treat mental illness?

Why not join the community? Visit the website to join and opt-in for Worldwide Disability Matters DAILY News  >>>




Twice Daily!  #Fibro  #ME #CFS #ChronicPain #invisibleillness

Fibromyalgia ME Chronic Pain is out!  

How it’s Costing You in Happiness, Financially and in Your Relationships!

Why not visit and opt-in for newsletters  >>>

“Life doesn’t have to be over when you are chronically ill, you just have to reinvent yourself and what you do… Fibromyalgia, ME, Chronic Pain… We can help” – Fibromyalgia & ME news

Don’t forget to check this evenings edition for their next update!



#brain #mentalhealth #chronicillness  #invisibleillness

The brain and mental health voice is out! | selection by Valeria Duflot 

Why not visit and opt-in for newsletters >>>

Valeria Duflot – Paper Li

  • #Socent
  • veneziaautentica.com co-founder
  • Striving for sustainable, community driven, eco-friendly innovation in the fields of health, culture, innovation and travel
  • paper.li/


Updates every couple of days!


 Latest!   #mentalhealth #depression  #anxiety #stress #chronicillness  #invisibleillness

Psych Central  |  Psych Central  Daily Newsletter  |  20 June 2018 

Headlines for today  >>>

  • When Stimulants Help With Anxiety
  • How to Use Yoga Therapy for Anxiety
  • Autistic Teens Prone to Depressive Symptoms – Especially if Bullied

Today I’d like to highlight this headline,and say that it kinda makes sense, it’s an interesting read

Opt-in for varying newsletters, bipolar; depression; anxiety and more > Home Page:

Taken from the site PLEASE NOTE >>>




#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>




DAILY!   #chronicpain  #chronicillness #painmanagement

The Chronic pain Daily |  Support from Coach Amber Rose  | paper.li

Editor’s note

Information is readily available but deciding what is important for you can be overwhelming. I hope that you find good information in these articles. Thriving with Pain has webinars, group coaching and individual coaching to support your 5 steps to Thriving with Pain. I have lived with chronic pain for over a decade. I am well now and know that a flare can happen.

Check out >>>> www.thrivingwithpain.com 


Visit the paper to find out what stories / articles Amber has selected for today  >>>




#NETCommunity #NeuroendocrineCancer #NETS 

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up | 7 June 2018


Ronny’s Community Newsletter  >>>

Blog Home Page  >>>

Living with Neuroendocrine Cancer



#patients #patientcommunity #patientsnetwork #chronicillness #invisibleillness

http://www.healtheo360.com | Register for a ‘PATIENT’ community and ‘Tell your story!’

Join a Caring Network:

healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.

About healtheo360  >>>

Opening paragraph:

‘The healtheo360 community includes patients, their caregivers, family members and friends who come to share their personal healing stories so that others may find inspiration and motivation as they go through the journey of living with their condition. Members share their health related stories and learn from each other through discussion. We encourage you to upload your story via video testimonies but we also offer blogging for those who are more comfortable with that method of sharing. At healtheo360 we believe in the healing power of story telling and how beneficial it is to share your story as well as to learn from other people with similar experiences.’

Follow this link to join in  >>>




#Healthcaare #HealthReviews #Eurpean #Medical #Journal 

European Medical Journal | EMJ 3.2 Now Available!  | paper.li | DAILY UPDATED

We review all of the breaking news from the major healthcare congresses across Europe

Read  via this link to the EMJ paper >>>

A link to keep you going >>> 


Innovations 2.1 2018
MEDICA 2017, Düsseldorf, Germany

This eJournal is a fascinating exploration into innovations from the pioneers of medical research, detailing not only the latest developments from 2017, but also those advances destined to change the future of medicine. Alongside an intriguing array of peer-reviewed articles and interviews with experts at the forefront of medical innovations, you will find our independent coverage of MEDICA 2017.

Editor’s note

“EMJ 3.2 has entered the building! This truly multidisciplinary eJournal returns for its 10th issue and its second of 2018. EMJ 3.2 includes a plethora of high-quality peer-reviewed articles that detail a myriad of fascinating topics across seven therapeutic areas: urology, haematology, oncology, gastroenterology, hepatology, neurology, and reproductive health. This eJournal must not be missed.”

As written in the paper!

Very soon EMJ will have their own spot on the website where you will have access to the links to their community as well as their journals and information.  ~ Carole 



Other Newsletters / Magazines / Blogs of interest

(not in chronological order) 

including  > > >

In the Chillout Lounge!

Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 |  NuMeditationMusic |  10 May 2018



 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!




Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com





#GlobalSurvey #Research #Rheumatic # Musculoskeletal #RMD #SoMe #SocialMedia

Shared via Simon Stones | Twitter | 28 May 2018

Do you have a rheumatic and musculoskeletal disease ()? If so, you’re invited to take part in a global survey looking at what people with RMDs think about using for health-related purposes.

To take part follow this link to the study >>>


About Simon >>>

Follow on Twitter >>>  Simon Stones  @SimonRStones

BSc (Hons) • Doctoral Researcher in Child & Family Health •  &  Member •   Trustee • Patient Consultant/Leader




#technews #technology #amputees #prosthetica #medicaldevice #medicalinnovation #mobility #disabled 

New 'e-dermis' brings sense of touch, pain to prosthetic hands
Engineers at the Johns Hopkins University have created an electronic skin and aim to restore the sense of touch through the fingertips of prosthetic hands. Credit: Larry Canner/JHU


New ‘e-dermis’ brings sense of touch, pain to prosthetic hands | Johns Hopkins University  | 20 June 2018

Excerpt / Quote:

‘”After many years, I felt my hand, as if a hollow shell got filled with life again,” says the anonymous amputee who served as the team’s principal volunteer tester.’

Read the article via this link >>> 

Other tech news via Tech Xplore  >>>






Connecting You to the Chronic Illness Community

#sponsored post / #productreview

#hempoil #HempOil #healinglotion #musclerub #chronicpainrelief #alternative #complementary

My Reviews on The FayFarm Hemp Oil Healing Lotion & Warming Muscle Rub | Blog: I Told You I Was Sick | Jaime Heidel |  18 June 2018

Opening paragraph:

‘Two years ago, I had the pleasure of reviewing The Fay Farm Serenity CBD Lotion, and I loved it! This year, I’m back with two more reviews of their amazing products. One is a hemp oil lotion and the other is a warming muscle rub’

A Healing Lotion and Muscle Rub to Relieve Pain Naturally

Other >>>  Sponsored Product Reviews  by Jaime

Jaime’s Disclaimer:

I have been given these products as part of a product review through the Chronic Illness Bloggers network. Although these products were a gift, all opinions in these reviews remain my own, and I was in no way influenced by the company.

You can find out more about Jaime via this link >>>




RELIEF Newsletter  |  June 19, 2018

RELIEF is a service provided by the IASP Pain Research Forum

New This Month

  • When the Immune System Attacks Its Own Proteins, Pain Can Emerge
  • Studying Sleep and Pain in Mice: A Chat With Alban Latremoliere
  • NIH Announces HEAL Initiative to Combat Opioid Crisis

Did You Miss?

  • Could Cannabis Legalization Help Ease the Opioid Crisis?
  • Sex and Gender Differences in Pain: A Chat With Edmund Keogh
  • Stopping a Pain Memory Before It Forms: A SPOT-ON Approach

You can read all of the above by following this link >>>

RELIEF Newsletter – June 19, 2018

June 2018 Highlight:
NIH Announces HEAL Initiative to Combat Opioid Crisis

Spread the Word about RELIEF

Please let your colleagues and friends know about RELIEF. 

Please pop along and sign up for the newsletter and content alerts HERE.

Copyright © 2018 RELIEF, All rights reserved. RELIEF is a service provided by the IASP Pain Research Forum.



#hearthealth #bhf  #healthmatters  #healthyheart #heartdisease #younghearts

#food #nutrition #recipes #healthy #summer #patientjourney #patientVOICE #greentea

British Heart Matters – magazine |  Does green tea really help your health? | British Heart Foundation  |  16 June 2018

Intro > Does green tea reduce your heart risk?:

‘Recent news stories have suggested that drinking green tea could reduce your risk of heart attack or stroke. Before you put the kettle on, we look at how reliable the claims really are.’

Headlines  >>>

  • 7 healthy recipes to enjoy this summer

Now that the weather’s warming up, it’s time to make the most of fresh seasonal fruit and vegetables. Why not try out some of our delicious heart-healthy summer recipes?

  • A patient’s diary of heart bypass surgery
  • Does green tea reduce your heart risk?
  • Should you sign up to an online GP?
  • Learn how we support young heart patients
  • Recipe of the week:  Fresh strawberry scones


Popular in the last 7 days >>>

1. Watch: What are free sugars?

2. 10 things to do in a park this summer

3. Quiz: How healthy are you really?

4. 6 things you need to know about high blood pressure

5. Can eating an egg a day reduce your risk of heart diseases?  (see this post from the last ‘Heart Matters’ underneath the post below)

Do you know someone who could benefit from receiving Heart Matters? Encourage them to sign up here.

Sarah Brealey

Heart Matters Editor


#hearthealth #bhf  #healthmatters  #healthyheart #heartdisease

British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018

It’s not too late to choose a fundraiser, so get your FREE FUNDRAISING KIT get going and make your summer count! Every pound you raise will help fund vital research, giving hope to the 7 million people in the UK living with heart and circulatory diseases, including stroke, vascular dementia and diabetes.

You can get you fundraising kits via the following BHF newsletter link  >>>

Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters  >>>

The British Heart Foundation >>>

British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426


#hearthealth #bhf  #healthmatters  #healthyheart #heartdisease

#nutrition #educational #freesugars #cardiacarrest #patientvoice #recipe 

British Heart Matters – magazine |  Could an egg a day help your health? 🍳 | British Heart Foundation  |  4 June 2018

“Information, inspiration and support for a heart-healthy lifestyle”


Headlines  >>>

  • Could an egg a day keep the doctor away?
    • New research has suggested that eating an egg a day could help to reduce your risk of heart disease and stroke. We delve deeper to discover the truth behind the headlines.
  • Watch an animation discussing The truth about ‘free’ sugars.
    • We all know we need to avoid eating too much sugar. But do you know what types to avoid? Our animation explains.
  • What I’ve learned from my cardiac arrest
    • In a letter to her younger self, nurse Sarah Woodford shares what it feels like to think you’re dying, and the things she wishes she’d known before her cardiac arrest.
  • What really counts as your 5-a-day?
    • Knowing what counts as one of your 5-a-day – and what doesn’t, can be tricky. We debunk some of the myths with a list of 12 things that really shouldn’t count as your 5-a-day.
  • Recipe of the week |  Salmon with honey-roast beetroot salad
    • Create this light and fresh salad for lunch or dinner – it’s perfect with crusty bread and a tangy lemon dressing.
  • Tell us what you think of Heart Matters
    • You could win a £50 John Lewis or Marks & Spencer voucher by telling us what you like about Heart Matters, and what you’d like to see more of in the magazine. Take the survey, help us improve and you could be a winner!

Popular in the last 7 days  >>>

  1. How much salt is in your restaurant meal?
  2. 8 ways to stay slim for life
  3. Watch: What’s the difference between a heart attack and a cardiac arrest?
  4. 10 surprisingly sensational salad ingredients
  5. Blood pressure research

Read all the above via the following link  >>>

Why not visit the website and register for ‘British Heart Matters’ magazine and newsletters  >>>

The British Heart Foundation >>>

British Heart Foundation is a registered Charity No. 225971. Registered as a Company limited by guarantee in England & Wales No. 699547. Registered office at Greater London House, 180 Hampstead Road, London NW1 7AW. Registered as a Charity in Scotland No. SC039426



#chronicpain #patients #research #sleepstudies 

Chronic Pain Sleep Studies Indicate the Issue Is Widespread | Ed Coghlan | via National Pain Report | 19 June 2018


‘Two studies presented at a recent European rheumatology conference provide some insight into the role of sleep in chronic pain. One study shows a predictive role of sleep difficulties for people with chronic pain, while the other provides insight into chronic pain and sleep among teens.’

Read more by the Author  >>>

Visit the National Pain Report website for more readables and opt-in for their newletters  >>>



Lentils significantly reduce blood glucose levels, U of G study reveals
Dan Ramdath of Agriculture and Agri-Food Canada, U of G Ph.D. student Dita Moravek and U of G Prof. Alison Duncan. Credit: University of Guelph

#nutrition #bloodglucose #foodresearch 

Lentils significantly reduce blood glucose levels, study reveals  | FIRST EVER STUDY ~ University of Guelph | | Medical Xpress | 13 June 2018


“Pulses are extremely nutrient-dense food that have the potential to reduce chronic diseases associated with mismanaged glucose levels,” said Duncan, who worked on the study with Ph.D. student Dita Moravek and M.Sc. students Erica Rogers, Sarah Turkstra and Jessica Wilson.

Read more via this link  >>>

Find out about the University of Guelph via the following link  >>>

For more Medicine & Health related news visit the medicalxpress website where you can also opt-in for newsletters  >>>




#EDS #raredisaease #ehlersdanlos #webinar #international #EDSnews


CONNECT ~ The Ehlers-Danlos Society International Newsletter | Medical Professionals Directory, Gut and EDS Webinar, and more!  | 17 June 2018

Headlines  >>>

  • Introducing our Medical Professionals Directory
  • VEDS Focus: To Shine Forth, Head Held High
  • Free Webinar, “Gut Involvement in EDS”
  • EDS and Exercise | by Jeannie Di Bon
  • Register for the 2018 Ehlers-Danlos Society Global Learning Conference
  • Register for Rarer Types Day
  • New Ehlers-Danlos Society Stores Launched
  • UK Women Build EDS Awareness

You can read all of this by visiting the following link >>>

CONNECT ~ The Ehlers-Danlos Society International Newsletter

You can keep up to date with all the news via Ehlers-Danlso Society by visiting their website and opting in for their newsletters >>>






“PatientsLikeMe is the world’s largest personalized health network that helps people find
new treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.



New evidence sheds light on how Parkinson's disease may happen
Dr. Hugo Bellen. Credit: Baylor College of Medicine

#Parkinsons #NewEvidence #Medicine

New evidence sheds light on how Parkinson’s disease may happen | Baylor College of Medicine |  14 June 2018, 

Opening sentence:

‘Researchers at Baylor College of Medicine and Texas Children’s Hospital have identified unexpected new key players in the development of an early onset form of Parkinson’s disease called Parkinsonism.’

Read more via this link  >>>

Follow this link to find out about Baylor College of Medicine >>>

For more Medicine & Health related news visit the medicalxpress website where you can also opt-in for newsletters  >>>


#opioidcrisis #drugrestriction ##onlinedrugtrading #illicitdrugtrades 

Credit: CC0 Public Domain

US painkiller restriction linked to ‘significant’ increase in illicit online drug trading | British Medical Journal |  13 June 2018

Opening paragraph:

‘The US Drug Enforcement Administration’s decision to restrict prescription drugs containing hydrocodone (a popular opioid painkiller) was associated with a ‘significant’ increase in illicit trading of opioids through online markets, finds a study published by The BMJ today.’

Read more via this link  >>>

Follow this link for more articles from the British Medical Journal >>>

For more Medicine & Health related news visit the medicalxpress website where you can also opt-in for newsletters  >>>

Other Medicine & Health news via Tech Xplore  >>>

For more news visit the Tech Xplore website where you can also opt-in for newsletters  >>>

More information: www.wandercraft.eu/en/exoskeleton/ 

© 2018 Tech Xplore

The 4 posts above were all selected from > Science X Newsletter Thursday, Jun 14




#BookReview  #chronicpain #paincompanion #painbook #productreview

Book Review: The Pain Companion |  Ribbonrx | 12 June 2018

An Introduction to ribbonrx.com   >>>


I would like to thank New World Library for contacting me and providing a copy of The Pain Companion by Sarah Anne Shockley in exchange for an honest review.

Visit Ribbonx’s blog on wordPress for most posts >>>


#survey #bbqsurvey #BBQ

Patient ~ Take part in our BBQ survey | 15 June 2018

Summer is upon us, and so is a new wave of people opting for a meat-free diet. We want to know if vegans and vegetarians are well catered for at traditionally meat-heavy barbecues.

The survey shouldn’t take more than a couple of minutes to complete and questions are relevant whatever your dietary choices. All responses are completely anonymous.

To take part follow this link  >>>

Patient ~ Take part in our BBQ survey

WORLD CUP SPECIAL & Common Football Injuries / Sports Injuries

#Patientcare #Patientnews #NHS 

Patient Newsletter  |  Subject:  Football injuries that could scupper a World Cup victory |  12 June 2018

Main Headline:  Common Football Injuries 

‘Patient’ asked the fine folk at the Football Ramble podcast for their views on some of the most notable injuries in World Cup history.

Listen to the PODCAST via the link below, then take a look at our other expert features covering the phyical and mental aspects of football.

Other Headlines ~Know the score :  

  • Can football tackle mental health stigma? | Heads together
  • When is it safe to return to sport after an injury? | Wait it out
  • What to pack in a sports first aid kit | Be prepared
  • How to recover from a sports injury | Regain strength

Join our mental health forum

Join the Patient Mental Health forum

Read more articles / posts from the newsletter by following this link  >>>

Patient Newsletter 12 June 2018

Visit the Home Page and register for patient access as well as newsletters >>>


Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.

#neurosciencenews #neuroscience

Neuroscience News via ~ Neuroscience Newsletter | Headliner:   Genes Associated with Infantile Forms of Schizophrenia Identified – Neuroscience News – Neuroscience News| 20 June 2018

Genes Associated with Infantile Forms of Schizophrenia Identified  2018-06-19
Researchers have identified gene mutations responsible for childhood onset schizophrenia.
Dogs Understand What’s Written All Over Your Face  2018-06-20 
A new study reports dogs use different parts of their brains to process negative and positive emotional cues in human facial expressions.
Shared Genetics May Shape Treatment Options for Certain Brain Disorders 


Researchers report common symptoms of bipolar depression and schizophrenia, such as depression, psychosis and mania, have shared and distinguished genetic risk factors. The findings could help with the development of more effective therapies for these neuropsychological disorders.
Robotic Bloodhound Tracks Odors on the Ground  2018-06-20 
Researchers have developed a new robot that can detect odors from sources on the ground.
When Wandering Minds Are Just Fine  2018-06-20 
Contrary to popular belief, researchers report allowing your mind to wander in some situations does not result in failure of executive control or a dysfunctional cognitive state. People are able to strategically allow their minds to wander without impacting performance on a task.
Important New Piece in Huntington’s Disease Puzzle Identified  2018-06-20 
Researchers have identified a reduced exchange of glutamine between astrocytes and neurons in a new Huntington’s disease study.
Reading Risk Behavior in the Brain 2018-06-20 
EEG technology allows researchers to predict risk taking behaviors in people. Researchers say higher frontal midline theta power is linked to higher cognitive control, allowing people to weigh up options more intensively during the decision making process.
Study of 800 Millions Tweets Finds Distinct Daily Cycles in Our Thinking Patterns  2018-06-20 
Using AI to examine over 800 million tweets, researchers reveal how our mode of thinking alters during the course of the day. The study reports early morning tweets tend to be correlated with more logical thinking patterns, while middle of the night tweets tend to exhibit more existential concerns.
Weak Brain Nodes Have Strong Influence on Memory Network  2018-06-20 
Researchers report that for memory formation, the nucleus accumbens is both upstream and influential.
Planned Movements and Spontaneous Reactions are Processed Differently in the Brain  2018-06-20 
A new study reports both planned and spontaneous movements have the same neural activity during the action, but the preceding brain activity differs.
Mechanism Controlling Multiple Sclerosis Risk Identified  2018-06-20 
Researchers have identified a new mechanism of a risk gene for multiple sclerosis that triggers the disease via epigentic regulation. The study reports a protective genetic variant can reduce the risk of multiple sclerosis through the same mechanism.
New Insight Into Infant Handling by Young Bonobos  2018-06-20 
Researchers report young female bonobos prepare for motherhood by helping mother apes to take care of their young. Findings also show elevated levels of oxytocin in the urine of young females who help with parental style care of baby bonobos.

Read more neuroscience news via this link where you can also opt-in for newletters like this one>>>


Neuroscience News |  Neurology  |  Robotics |  Psychology  |  Submit News


Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381



World Health Organization Newsletter |  Hot topics this week in health  |  15 June 2018

World Health Organization ~ Hot topics this week in health

The following link will take you to the World Health Organization website for more World Health news  >>>




#PHARMA #pharma #pharmanews #pharmaphorum

#medicalinnovation #blockchain #healthcare #nanotechnology #medicine #realworld

Deep Dive Magazine ~ Future Pharma 2018| Pharmaphorum  | 6  June 2018

“As pharma’s model is increasingly disrupted, how will health care and drug development progress? Click the button to read our preview article from the Medicines Discovery Catapult.” Quoted from the cover

What you can read about via the link below  >>>

  • Chris Molloy, Medicines Discovery Catapult, explains why the future of medical innovation lies with the industry’s SMEs
  • Karen Taylor, Deloitte, offers six predictions for the course of our industry into 2022, both evolutionary and revolutionary
  • How Blockchain could enable a truly global healthcare ecosystem
  • And a look into real-world examples of how nanotechnology is now advancing medicine, and the challenges faced
  • Sign up here to ensure you receive our next Deep Dive Oncology special report from ASCO when it is published at the end of this month, and future issues free on publication.You can read our previous editions here: Deep Dive: Patient CentricityDeep Dive Market Access II.

If you like what you see then you can subscribe to the ‘Deep Dive’ magazine and daily updates via the Pharmaphorun website.

Link to the magazine >>>

Sign up for the pharmaphorum daily newsletter and /or the ‘Deep Dive’ magazine via this link  >>>

Kind regards
Adam Jeffery
Commercial Director, Deep Dive

Copyright © 2018 pharmaphorum media limited, All rights reserved.
Subscribed to receive Deep Dive via registration form.

A fabulous pharma magazine!


#clinicalresearch #patients #patientparticipation #clinicaltrials #painmedicine #futureofpharma #whywedoresearch

Patients, Power, Participation: How Enrolling in Clinical Trials Can Help Ensure That The Future of Pain Medicine is Now | SKILLFULLY WELL & PAINFULLY AWARE | KATARINA ZULAK  | 7 June 2018


‘Participants in clinical trials have the opportunity to access cutting-edge therapies before they are made widely available, often at leading medical facilities. Experimental treatments can be appealing to individuals who have failed to benefit from conventional treatments. There is no cost to participate in medical research and health insurance is not required. Additionally, some studies compensate individuals who join the clinical trial.’

About Katarina  >>>

This piece has been entered in the Patients Have Power Writing Contest run by Clara Health designed to raise awareness about clinical trials.

Visit the homepage for more blog posts by Katarina >>>



Annual European Congress of Rheumatology

How to keep up with the #EULAR2018 news if like me you were not lucky enough to be there in person.

EULAR websites

EULAR Congress website: www.congress.eular.org

EULAR Congress 2018 documents: www.congress.eular.org/download.cfm

EULAR website: www.eular.org

EMEUNET website: emeunet.eular.org

EULAR Young PARE website: www.youngpare.org

Welcome message from Johannes W. J. Bijlsma who is EULAR President  >>>

Welcome message from the EULAR President

There are a few ways that you can keep up to date with what went on.

The (EMJ) European Medical Journal will have a full congress review of in their next edition of EMJ which is FREE to subscribe to via this link >>>

You can see all of EMJ’s Rheum content by visiting this link, please share. Please opt-in & help me to get proper peer reviewed articles out there  >>>


Copyright © 2018 European Medical Group LTD trading as European Medical Journal. All rights reserved. European Medical Journal is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.

#healthcareprofessionals #MedicineMatters

Medicine Matters | medwireNews@EULAR2018

Medicine Matters is developed for healthcare professionals as a premier resource for the latest clinical information in medicine.

Keep an eye on this page for their live #EULAR2018 coverage  >>>

FREE registration for Medicine Matters ~ Rheumatology, you can opt-in via this link >>>



The European League Against Rheumatism (EULAR) is the organisation which represents the patient, health professional and scientific societies of rheumatology of all the European nations. EULAR endeavours to stimulate, promote, and support the research, prevention, treatment and rehabilitation of rheumatic diseases. In line with UEMS, EULAR defines rheumatology as including rheumatic diseases of the connective tissue, locomotor and musculoskeletal systems.



#spoonie #spooniewarrior #ehealth #ehealthcoach #fibromyalgia #patientjourney #patientvoice #chronicblogger 

My past will not change, but I control my future  |  Julie Ryan  | Counting My Spoons  | 11 June 2018


‘My past will never change and I’m OK with that, because I control the future.’

Julie is a wonderful, lovely and friendly healthcoach and Counting My Spoons is an excellent blog to visit with lots of great posts by Julie, and her guest interviews as they discuss the trials and tribulations of living with fibromyalgia and / or other chronic conditions.  Also, great product reviews too!

Visit the site via this link  >>>


About Julie taken from the website:

Spoonie. Fibro Warrior. E-health advocate. Located in Huntsville, AL.

I’ve been diagnosed with Fibromyalgia, Endometriosis, Hypothyroidism, TMJ, Migraines, and Cluster Headaches. I share my journey here in an attempt to educate and inspire others who are dealing with similar health issues.

Blog title inspired by The Spoon Theory, by Christine Miserandino, an excellent explanation of what it’s like to live with invisible illness.




OA and your lifestyle
constantly texting?!

#arthritis #osteoarthritis #lifestyle #knucklecracking #texting #highheels #vitaminE

Arthritis Foundation E-news | Lifestyle Factors & Osteoarthritis Outcomes | Five lifestyle factors that may be linked to OA.

Here are five lifestyle factors researchers have studied to see if they’re linked to OA:

  • Besides possibly irritating those around you, can knuckle cracking lead to the disease?
  • If your child is constantly texting, is the development of OA more likely in his or her future?
  • Can wearing high-heeled shoes contribute to an OA diagnosis?
  • Is high-impact, weight-bearing exercise helpful or harmful?
  • Can a diet rich in vitamin E reduce the risk of OA or its progression?

‘Managing your arthritis – and the pain and restrictions that come with it – is much easier if you know what to avoid and what can be beneficial. We want to arm you with useful information that helps put you in control!’

Arthritis Foundation

Original posted on Arthritis Blog Home »  Osteoarthritis Blog Home  » Can Lifestyle Factors Influence Osteoarthritis Outcomes? | Arthritis Today Magazine  June 2017.

Visit the ‘Arthritis Foundation via the following link for more useful information, blogs, blog posts and there are also newsletters that you can opt-in for >>>


© 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309




Try This, Not That: JA Complementary Therapies  |  Arthritis Foundation E-newsletter | 6 June 2018

JA Alternative Treatments

Complementary Therapies for JA  |  Try this, not that: find out which therapies to try and which ones to avoid.

Many families turn to complementary therapies to help ease the pain of a child with arthritis.

That can be a good thing – just be sure whatever you’re considering works for your situation.

  • Exercising with free weights and activities like jumping rope can improve both physical and emotional health without increasing pain. But avoid high-impact sports.
  • Relaxation exercises may diminish pain intensity … and they cause no negative side effects.
  • Water therapy is a good way to limber up stiff joints in the morning, and relax tight, aching muscles at bedtime.
  • Massage can relax muscles, lessen pain and improve circulation.

Learn all about complementary therapies for JA.

They may provide you with new methods to help manage your child’s pain.

© 2018 Arthritis Foundation. All Right Reserved. 
1355 Peachtree Street NE – Suite 800 – Atlanta, GA 30309




Happiful Magazine E-newsletter | Help us help you | 7 June 2018

Happiful Magazine Help us help you

Visit the Happiful website to read past issues online, FREE, and you can also opt-in for newsletters  >>>




#diabetes #highbloodsugar #bloodglucose #selfmanagement #symptoms #diabetesawareness #diabetesinfo

High Blood Sugar Symptoms  |  Diabetes Self-Management  E-newsletter |  6 June 2018  


‘Signs and symptoms of high blood glucose are often what lead people with undiagnosed diabetes to visit their doctors and, consequently, get diagnosed. But signs and symptoms of high blood glucose can also occur after diabetes is diagnosed and treatment has been started. It is a signal that your diabetes has slipped out of control.’

  • High Blood Sugar Symptoms
    • Updated March 31, 2017
    • Wil Dubois BS, AAS, CPT, is a diabetes columnist and author of four books about diabetes that have collectively won 14 national and international book awards. He has Type 1 diabetes, and is the diabetes coordinator for a rural nonprofit clinic.

Visit the ‘Diabetes Self-Management’ website for more posts / articles, information and advice related to diabetes.  You can also opt-in for E-newsletters  >>>



#patientfocussed #chronicpain #drugdevelopment #public meeting

Public Meeting for Patient-Focused Drug Development on Chronic Pain |  Ed Coghlan  |  National Pain Report  | 4 June 2018

Opening paragraph:

Over 1,000 people—many of whom are National Pain Report readers—have filled out a survey designed to inform an FDA Patient Meeting on July 9, 2018. The official title of the event is a Public Meeting for Patient-Focused Drug Development on Chronic Pain.

About the Author: Ed Coghlan

If you haven’t completed the survey yet, it only takes about 30 minutes to take and you can do that via the following link  >>>




Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | June 2018

Harnessing a collective focus to transform MSK services

Who are ARMA? >>> 

About ARMA

Link to the newsletter where there are lots of things to read in this issue! >>>

  • To see previous issues of the newsletter, click here
  • Follow us on Twitter:   @WeAreArma
  • To include items in the ARMA newsletter, please contact us.

Heard about the new MSK Hub ?

It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.




2018 Migraine Awareness Month

#Migraine #migrainesymptoms #patientvoice #bloggers #ChronicPain #chronicillness #caregivers

Main Headline: 2018 Migraine Awareness Month| Migraine.com weekly | 6 June 2018

Headlines >>>

2018 Migraine Awareness Month| By Editorial Team | 1 June 2018

Little Joy, Big Impact | Kyky Knight | 31 May 2018

Gravity Blankets – Are they Worth the Hype? | #purpleproject | 29 May 2018

What’s Your Secret: Travel Tips | Holly Baddour | 27 May 2018

Coping Mechanisms | Steven Workman \ 25 May 2018

When that Little Voice in Your Head Is Mean | Holly Baddour \ 24 May 2018

Featured story  >>>

Migraine For The Past Five Months. Really struggling! |  By stephckj | 18 May 2018

Featured poll  >>>

How do you raise awareness for migraine?

Read all of the above via this link >>>

Migraine.com weekly

Check out their website for information and more posts / articles.  If you enjoyed this newsletter you can opt-in for the magazine or newsletters via this link  >>>




J U N E is Migraine & Headache
Awareness Month!

#chronicillness #healthadvocacy

#Migraine #ChronicPain  #Migraineawareness

The Migraine Mantras | May E-Newsletter | 16 May 2018

The Migraine Mantras ~ May E-Newsletter

The Migraine Mantras have partnered with Chronic Migraine Awareness Inc.

for #MHAM18!

Find out how you can get involved via visiting the link above

#Migraine #ChronicPain  #Migraineawareness

Weekly digest for The Migraine Mantras  | 4 June 2018

Headlines  >>>

Ways I’ve Healed My Mental Illness  | By   Alisha

You Are Not Alone | By   Winslow 

Being a “Zebra” with Migraine   |  BY JORIEJEANNETTE,SARINA

Chronic Pain & Yoga: My Journey  |  By María –

Visit the ‘MigraineMantras’ WordPress blog for more posts and opt-in for their Weekly Digest newsletter  >>>



#pharmanews #eyeforpharma #pharma #tech 

Artificial Intelligence: The Counter-Argument |  Adam Chapman | eyeforpharma |  7 June 2018

AI is being touted as the doctor’s new lifeline — we put this proposition to a skeptical doctor.


About the Author  >>>

Get the latest industry insights in your inbox:

Sizing Up Pharma’s Tech Maturity |   Andrew Stone | eyeforpharma |  1 June 2018

About the Author  >>>

Get the latest industry insights in your inbox:

Follow eyeforpharma on Twitter:

Like eyeforpharma on Facebook:

Subscribe to eyeforpharma youtube channel:


eyeforpharma logo




#NHS70 #NIHR  #IAmResearch

Please sign and support new research

Thunderclap ~ NIHR I Am Research & NHS70 |  by The National Institute for Health Research (NIHR) |

Thunderclap ~ NIHR I Am Research & NHS70

NIHR I Am Research & NHS70

I share this campaign as a Patient Research Ambassador for NIHR #PRAI

Carole Sian Scrafton ~ CEO FibroFlutters / Founding Five Member FibroFlutters / Patient Group Leader / Patient / Patient Expert

#ResearchAdvocacy #HealthAdvocacy #PatientAdvocacy



#EatingDisorders #diversity #bipolardisorder  #bipolar  #selfcare  #mentalhealth  #mentalhealthawareness  #patientvoice  #themighty #depression

E-news ~  Mental Health on The Mighty  | Theme  ~ Why does diversity matter in mental health anyway? |   16 June 2018

 Headlines  >>>

Take care of yourself

Mental Health Editor at The Mighty

If you visit ‘The Mighty’ Home Page you can join in by opting-in for e-newletters, follow specific health conditions and / or different writers / contributors.  You can post your blog posts and contribute too  >>>





#The Big Leap #MS
Take a leap on the wild side and help stop MS.  |  MS Society

‘On Sunday 2 September, join our team of daredevils and take the leap of a lifetime at our brand new and exclusive MS Society skydiving day, the Big Leap.’  MS Society

The Big Leap Take a leap on the wild side and help stop MS.

Visit the MS Society for more news and events  >>>





#MEAction Indiegogo campaign

“We need to raise $100,000 through this Indiegogo campaign to support our work for the remainder of the year to expand our reach, build community, increase our advocacy, educate doctors and scientists, and inspire new researchers and clinicians to join the field. Here is what your support can help us achieve.”

#MEAction Indiegogo campaign

#ME It is way past time for recognition, ME must be taken seriously!

Visit #MEACTION website and join many other ME and CFS patients >>>





#chronicpain #backpain #paintreatments  #patientvoice #chronicwarrior #fibromyalgia

Ice vs heat for pain, which works for you ~ Infograph | Barmac5 | backpainblog UK | 20 May 2018

Check our Bar’s WordPress Blog for more posts and useful reads >>>




#digitalhealthnews #digitalhealth #AI #analytics #digitalpatient

#clinicalsoftware #sharedrecocords #healthCIO #LHCRE #digitalNHS

New!  Digital Health Newsletter | Digital Health | 15 June 2018

News Headlines  >>>

  • FEATURE:  Calling time-out on WhatsApp: The need for secure and integrated clinical messaging service
  • FEATURE: Another view: of cryptography and proving our identity
  • NEWS:  Digital Health to disrupt health IT events market with launch of ‘Rewired’
  • NEWS: NHS England heavily criticised for misdirected clinical correspondence
  • DIGITAL PATIENT:-Apple opens up its core health records API to US developers

Link to the newsletter and links to news sections >>>

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>

Registered No. 9257440 | Vat No. 198 3531 71



#elderlycare #healthcare #postopcare  #advancedsurgery  #AgeUK  #domiciliarycare #HomeCareSolutions #HomeCare

‘What good is advanced surgery if we can’t even offer proper homecare?’  |  Anna Bawden and Nicola Slawson | The Guardian  |  30 May 2018

Opening paragraph:

‘Almost 1.2 million people aged over 65 do not receive the support they need with essential daily tasks such as getting washed and dressed or preparing meals, according to Age UK. The perilous state of the domiciliary care sector, which provides support in people’s own homes, is one of the main reasons for this, the charity says.’

Read more via the following link  >>>

About the Authors  >>>

Visit The Guardian for more news via the following link where you can also opt-in to subscribe, and be a supporter, like I do and be kept informed of latest news and also their latest offers >>>

Note taken from ‘The Guardian’ website to its readers
“Thank you to the many people who have already supported us financially – your contribution is what makes stories like you’ve just read possible. We increasingly need our readers to fund our work so that we can continue holding power to account and producing fearless journalism.” From the Guardian

Even as little as £1 can help them make a difference!



#Healthcare #health #care #NICE #socialcare #evidencebased

Latest issue!  NICE Newsletter | May 2018

Including their latest PODCAST:  Managing multimorbidity: putting patients at the heart of their care

National Institute for Health and Care Excellence – NICE –  provides national guidance and advice to improve health and social care.

‘Improving health and social care through evidence-based guidance’

Visit the website for other news and you can also choose to opt-in for alerts and newsletters >>>



#Campaign  #Petition #CarersTrust #GreenPaper2018 #elderlycare #careworkers #support

Meet your MP about the social care Green Paper 2018 | Carer’s Trust

The Government has promised to consult in 2018 on a long-term solution to social care funding for older people in England in a Green Paper.

If you’re a carer – why not meet your MP and tell them why the Green Paper has to include support for carers?

Meet your MP about the social care Green Paper 2018

Visit the ‘Carer’s trust’ website for more care news and opt-in for e-news  >>>

Carers Trust believes in a world where the role and contribution of unpaid carers is recognised and they have access to the quality support and services they need to live their own lives.


#CarersWeek2018  11th – 17th June



#CarersWeek2018  11th – 17th June

Get involved with events near you,why not check out if there is something happening close by?

Individuals and groups all over the UK are organising events to raise awareness for Carers Week 2018

If you’re planning an event or activity for Carers Week 2018, add it to the Carers Week map!


Visit the ‘Carer’s Week’ website for more care news & opt-in for e-news updates  >>>





#healthcare #healthcareprofessionals #HCP #MSA

 Multiple System Atrophy Trust | Health and Care Professionals Study Day

We are pleased to announce our next study day for Health and Care professionals will be held in Newcastle on 11th October 2018.

Multiple System Atrophy Trust | Health and Care Professionals Study Day

About the Multiple System Atrophy Trust  >>>




#NOTjustPatients #socialmedianetwork #digitalhealth #advocacyplatform #MAYOclinic #MCSMN

Mayo Clinic Social Media Network (MCSMN)

“After being, recently, introduced to this advocacy platform I can thoroughly recommend folks joining and making use of the Network to help empower themselves, and those of others.

I have been a fan of MAYO clinic for years so am really grateful to have access to such a great platform, especially not being a US resident but rather from UK.  However, FibroFlutters do have many readers from the US and helping to provide you with safe places to go to online holds as much importance to us as finding safe places for our own UK readers to go to.

There’s access to discussions, webinars & MCSMN Blog  depending on membership selection from Free, or, Premium.  Please note that e-patients and students receive a special rate.

I certainly look forward to using it more, and hopefully making a few new friends along the way.”

Carole Scrafton ~ CEO FibroFlutters / Founding Five Member


Do you think this is a network for you?, or maybe you know someone else who might benefit from it’s services?

You can join the MCSMN via the following link >>>




#HealthAdvocacy #healthcare #patients

Health Hats  |  You say you want a revolution  |  By Danny van Leeuwen  |  27 May 2018


‘One of the things that Victor said was that reformers are important, but healthcare is not designed for health and wellness, care and kindness. The entrenched forces will not fundamentally change with reform. It needs a revolution, a patient revolution. I’ve never been good at putting other people’s labels on myself – I don’t know if I’m a reformer or a revolutionary. During my professional and now activist career, I’ve seen myself as a catalyst for change – sustainable change that continues when you’re gone.’

Visit Health Hats and opt-in for their new posts via e-mail >>>




#MEActionDaily Digest: It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two   | 23 May 2018

Read: Volume One here. 

Other headline:

  • Who is advising the Australian government on ME and CFS research and treatment guidelines?

Catch up on the latest actions and news:

  • The NIH Plan for ME is Dismal
  • Calling all Patients: Fill Out the Research Survey about PEM
  • Just Invisible: Medical Access Issues for Homebound/Bedridden People
  • Inquest Rules Merryn Crofts Died Due to Severe ME
  • UK Call to Action: Ask Your MP To Sign EDM 1247!

Visit #MEAction website and register, you can also opt-in for the ‘Daily Digest newsletters  >>>



Get involved with #healthresearch in #Salford and #Manchester

Are you interested in #research?

Would like to get more involved, or know what research is going on around you?

Visit The ‘Citizen-Scientist’ website and take a look around, if you like what you read you can opt-in for newsletters  >>>


About #CitizenScientist  >>>


A CURRENT study opportunity:  Testing a new technology to reduce chronic pain

Study summary
The Human Pain Research group based at Salford Royal is trying to develop new technologies that can measure and treat changes in the brain that might contribute to chronic pain.

The research team are exploring a new approach aimed at reducing the unpleasantness of pain for people living with fibromyalgia and/or osteoarthritis using sound stimulation.

 Citizen-Scientist Tags ~   , , 

Read more via this link  >>>


Posted on 14th March 2018 by Jess Zadik


A study update:  Cloudy with a chance of pain – preliminary findings

Citizen-Scientist Tags ~    

Cloudy with a Chance of Pain is a large smart-phone based research study examining the link between weather and pain. 

Read more via this link  >>>


Posted on 14th March 2017 by Natalie Balmain




Im-patient UPDATE 

Thankyou to everyone…

…who has participated in the design of ‘Impatient’-London event in October, and the ‘Impatient’ Philadelphia event also in October.

You can now take a look at the brochures for ‘Patient Summit Europe’, ‘Patient Summit USA’ and book your places via the following links >>>

Get your copy of the brochure now – for the full details of the agenda and “im-patient” summit

Get your copy of the brochure now – for the full details of the agenda and “im-patient” summit.


We’re putting on a pharma conference where patients are the ones to design, create and implement the programme. This way, patients really are setting the agenda.


The Im-Patient Summit - Logo



#Diabetes #advocacy

Diabetes Blog – Happy-Medium.net | WEEKLY DIGEST | StephenS  |  4 June 2018


  1. One at a time.
  2. My turn.
  3. You do You.

Read more via this link >>>

Visit Stephens blog for more posts >>>



#GDPR & the new Privacy Laws.  What do they mean for you?

What’s changing and what’s not under new data privacy rules | Anick Jesdanun  | physorg.com  | 18 May 2018 


‘Not much will change for you, at least right away; companies will keep on collecting and analyzing personal data from your phone, the apps you use and the sites you visit. The big difference is that now, the companies will have to justify why they’re collecting and using that information.’

Read more by following this link  >>>



fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!


#PsoriaticArthritis  #Arthritis #PatientVoice #Patients 

Meet 3 People Living with Psoriatic Arthritis | Arthritis Foundation | 11 May 2018

Meet Richard, Nandi and Andre

If you have PsA, you might be inspired by the stories of three people living with the disease. 

Follow this link to read more  >>>

Visit The Arthritis Foundation website to subscribe to their newsletters and to find all kinds of information and support >>>



Latest!  #stressresources #stress #mindfulness #meditation

May 2018 Newsletter from Stress Resources  |  Pamela Ressler  |  May 2018

Quoted from the home page:

‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’  

For more articles and information visit the Stress Resources website where you can also sign up for their newsletter  >>>







#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

Visit Rock Off Fibro on Twitter  >>>


Newsletters via News Medical

Latest!  News Medical |Diabetes Newsletter | 11 June 2018 

News Medical |  Endocrinology  Newsletter |  10 April 2018


Latest!  News Medical |  Respiratory Diseases  |  11 June 2018


Latest!  News Medical |Sleep Disorder Newsletter | 4 June 2018


Latest!  News Medical | Pediatrics Newsletter | 1 June 2018


Change around in the Chill out Lounge!

Indian Meditation Music: 20 minutes Indian flute music, Yoga music, relax music, soothing music 49Y1 |  NuMeditationMusic |  10 May 2018

Why not visit NuMeditationMusic to see what other tubes they have?  >>>



Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂



FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018


MANY THANKS in advance for your understanding –

from the administrator – fibrofly73


Got something you’d like to suggest or even just talk about please contact us via this form