#chronicillnessVOICE | 20 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events



In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018

Psst!  It’s at the end!!


paper.li newsletters have also moved to their own ‘digested’ post and they update themselves.   The list includes >>>

DAILY! European Medical Journal

The Patient Registry Daily News & more on patient registries and their impact on healthcare today


The Immunology Daily

Twice Daily!   |   News from Focus on Disability 

Daily! Above The Fold in Healthcare is out!

Daily!  Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide 

Don’t forget! if you like what you read, share and opt-in for e-news!!



Digital Health Digest | 17 August 2018

FEATURE  | Why we’re gathering around the NHS wireless at my GP practice

CYBER SECURITY |  Davey Winder: How healthy is NHS app security? Not very, I fear.

CLINICAL SOFTWARE  |   New integrated child health system goes live in Wales

NEWS  |  Redundancies loom over major restructure at NHS Digital

DIGITAL PATIENT  |  NHS England to have a say on GP at Hand Birmingham rollout objection

AI AND ANALYTICS  |  DeepMind AI system ‘able to identify eye diseases and make referrals’

White paper

CLINICAL SOFTWARE  |  The Impact of Consumer Messaging Apps in the NHS

Special Report

CLINICAL SOFTWARE  |  Radiology Information Systems

Read the above and more via this link  >>>

Digital Health Intelligence Limited
China Works
Black Prince Road
LondonLnd SE1 7SJ
United Kingdom
Copyright (C) 2018 Digital Health Intelligence Limited All rights reserved. 


How to Overcome Common Exercise Hurdles  |  Mind, Body Spirit – Arthritis Foundation  |  16 August 2018

  • Exercise: It’s What Your Doctor Should Order
  • 11 Common Exercise Hurdles to Overcome
  • Go for a Ride
  • 3 Simple Weightlifting Moves
  • TOOLS AND RESOURCES  |  What’s Your Fitness IQ? 


Read the above via this link  >>>

How to Overcome Common Exercise Hurdles

Arthritis Foundation National Office1355 Peachtree St NE
Suite 600
Atlanta,GA 30309
Home Office
Customer Service 

Carole’s selection from

Science X Newsletter  | Aug 17 2018

Sign-up for Science X via this link  >>>

Science X home  >>>



National Center for Complementary and Integrative Health (NCCIH)

Register for Chronic Pain: The Science of Complementary and Integrative Health Approaches

National Center for Complementary and Integrative Health sent this bulletin at 08/15/2018 01:56 PM EDT

This is an exciting opportunity to participate in a research symposium on chronic pain, as well as network with colleagues. Join us Tuesday, September 11, 2018 in Boston, MA in advance of the World Congress on Pain. You can register for the symposium even if you’re not attending the Congress. The cost is only $20.

There will be a great lineup of speakers and topics

Follow this link to find out more  >>>

Register for Chronic Pain: The Science of Complementary and Integrative Health Approaches


Blood test may identify gestational diabetes risk in first trimester | News Releases for National Institutes of Health (NIH). | 16 August 2018

NIH analysis suggests early screening could allow for lifestyle changes before condition develops.



#stressresources #stress #mindfulness #meditation

August 2018 Newsletter from Stress Resources |  Pamela Ressler |  August 2018

A great newsletter with a mix of things to help you live with less stress

Quoted from the home page:

‘Stress Resources specializes in providing individuals and organizations with strategic, sustainable tools to build resilience and mindfulness. Our goal is to empower your creativity, productivity and leadership’  

For more articles and information visit the Stress Resources website where you can also sign up for their newsletter  >>>

By joining their mailing list, you will get a monthly e-newsletter that focuses on  >>>




Thank you Pamela

BioPharma Dive’s Top News

Weekender: Main Headline – Roche’s Genentech planning to lay off 223 employeesWeekender 
| Aug.​ 18,​ 2018

Headlines  >>>

  • Roche’s Genentech planning to lay off 223 employees
  • Biogen’s Spinraza gets an early no-go from NICE
  • Regeneron quickly clears up 12-week Eylea CRL
    Transforming life sciences sales and marketing with personalized insights
  • Drugmakers say R&D spending hit record in 2017
  • Pfizer puts up $425M in flu vaccines deal

Read the above and more via this link  >>>

Weekender: BioPharma Dive’s Top News

BioPharma Dive is a product of Industry Dive, Inc.. 1575​ Eye St NW, 4th Floor, Washington,​ DC 20005



Patientcare #Patientnews #NHS 

Patient Newsletter  |  Subject:  What your dreams could be trying to tell you |  14 August 2018

Main Headline:   What your dreams can reveal about your health

Other Headlines >>>

  • Why is it so hard to sleep when it’s hot?
  • How to sleep-proof your relationship
  • Could this be the reason you feel tired all the time?
  • The link between anxiety and insomnia
  • Is it time to ban your phone from the bedroom?
  • Can a new bed improve your insomnia?
  • Creamy chicken and lentil korma
  • Chilli and ginger salmon with asparagus

Join our mental health forum >>>

Read more articles / posts from the newsletter by following this link  >>>

Visit the Home Page and register for patient access as well as newsletters >>>


Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.



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#chronicillness #rareillness #invisibleillness #anxiety #mentalhealth #chronicpain 

A selection of posts by chronic bloggers via The Mighty 

CHRONIC ILLNESS • August 13, 2018


Who We Are – The Mighty


The Mighty — 210 N. Glenoaks Blvd, Burbank, CA 91502
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MedicineNet ~ Newsletter  |  FEATURED: Persistent Depressive Disorder (Dysthymia)  13 August 2018

Persistent Depressive Disorder (Dysthymia)
Dysthymia is a less severe form of chronic depression. Symptoms and signs include insomnia, suicidal thoughts, guilt, empty feeling, loss of energy, helplessness, sluggishness…

Other headlines  >>>

  • SLIDESHOW  |  Healthy Living: 20 Common Health Myths Exposed
  •  NEWS  |  From Pigs to Peacocks, What’s Up With Those ‘Emotional-Support Animals’?
  •  NEWS  |  Health Tip: Fight Frequent Fatigue
  •  NEWS  |  Opioid Addicts Turning to Unapproved Antidepressant to Get High

Read all the above via the following link  >>>

MedicineNet’s Depression Center

‘MedicineNet’s Depression Center gives you all of the tools necessary to maintain a healthy body and mind…’

Read more and access the Depression Centre via the newsletter link above

MedicineNet respects your privacy – view our Privacy Policy

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© MedicineNet, Inc. All rights reserved.


Latest NIHR funding opportunities |  NIHR  | 10 August 2018

Latest NIHR funding opportunities

Public Health Research Programme
18/124 researcher-led; including the following highlight notices:
London Devolution
Complex health and care needs in older people
Brain tumours

Copyright © 2018 NIHR, All rights reserved.


Mayo Clinic Social Media Network | 13 August 2018

Sign up and join in the conversations

Already a member then follow these links>>>

This Week’s Highlights


Why Are Healthcare Consumers So Angry on Social Media?


Tools for Promoting Your Research on Social Media

You can sign up for ‘Mayo Clinic Social Media Network’ by following this link >>>




Neuroscience Newsletter |  17 August 2018

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary. 

Working Memory May be More Flexible than Previously Thought
Researchers report working memory doesn’t have fixed limits, as previously believed, it adapts itself to tasks currently being performed.


CRISPR Helps Target Mood Boosting Receptors in Brain
Researchers use CRISPR gene editing technology to target GABA receptors in order to help treat mood disorders.


16 Going On 66: Will You be the Same Person 50 Years From Now?
According to a new study, personality is both stable and malleable across our lifespan.

Neuroscience News | Neurology | Robotics| Psychology | Submit News

Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in

fibroflutters mental heal discussion group cover pic

For the #Professionals

Psychiatry Advisor’s Daily Updates  | Featuring:  Short Forms of Questionnaires Reliable at Identifying Youth Mood Symptoms |  August 15, 2018

Psychiatry Advisor’s Daily Updates email features the latest NewsClinical Features, and Opinions for psychiatric health-care providers.

Featuring >>>

  • Short Forms of Questionnaires Reliable at Identifying Youth Mood Symptoms
  • Marijuana Use Associated With Poorer Depression Outcomes, Increased Suicidal Ideation
  • Atypical Symptom Presentations in Pediatric OCD
  • Antidepressants and Bleeding Risk: What’s the Link?
  • Depression Associated With More Severe Disease Activity, Functional Impairment in axSpA
  • Marijuana’s Uncertain Status: Closing the Gap Between State and Federal Policies
  • Preschooler’s Perfectionism May Predict OCD in Adolescence
  • HerbList App Launched Provides Information on Herbal Products
  • AMA Proposes Policy Opposing Medicaid ‘Lockout’ Provisions
  • Steps Taken to Increase Use of Electronic Tools in Medicine
  • Unsheltered Homeless Have High Mortality Rates


  • Pediatric Mood Disorders: A Comprehensive Overview


  • Bipolar Disorder: Is There a Hereditary Connection?
  • Study suggests that family history of psychiatric illness may be related to a younger age at onset of bipolar disease. See details.


  • Managing Mania and Mixed Episodes of Bipolar Disorder
  • This activity highlights the latest advances in diagnostic and therapeutic issues in patients with manic and mixed episodes in bipolar disorder.

Read all the above via this link  >>>

Psychiatry Advisor’s Daily Updates

© 2018 Haymarket Media Inc | 275 7th Ave, 10th Floor, New York, NY 10001


MSK ~ Rheum ~ Arthritis ~ Pain

Arthritis Action eNews  | Despina Koniordou  |  August 2018

Headlines >>>

Meet Ruth Smith, who joined Arthritis Action in August, as the new Area Coordinator for the Midlands and the North of England. Ruth will be playing a key role in helping Arthritis Action set up more Groups in the region, bringing local communities together, in the area.

Musculoskeletal Core Capabilities Framework – Education for healthcare professionals

Arthritis Action are pleased to have been involved in this initiative and you can read about it along with other headlines and discover what events are going on via the following link  >>>

Thank you Despina 🙂

Arthritis Action 2018 eNews All Rights Reserved – www.arthritisaction.org.uk
Address postal inquiries to:
Arthritis Action
56 Buckingham Gate



#ESHRE2018 Reviewed Inside: EMJ Reproductive Health 4.1 Out NOW!

European Medical Journal

Reproductive Health 4.12018
ESHRE 2018, Barcelona, Spain

Inside you will find…

Interviews with EMJ Reproductive Health Editorial Board

Abstract Reviews

Feature: Uterine Microbiota: A Role Beyond Infection
by Signe Altmäe

Editor’s Pick: Children After Cancer? Meeting Male Patients’ Fertility Needs During Cancer Care
by María Belén Herrero, Peter T.K. Chan

A Powerful and Universal Preimplantation Genetic Diagnosis Protocol for Cystic Fibrosis
by Victoria Viart et al.

Read the above and more via this link >>

#ESHRE2018 Reviewed Inside: EMJ Reproductive Health 4.1 Out NOW!

European Medical Journal | Part of the European Medical Group (ID: 08198092) | 88 Wood Street, London, EC2V 7RS (+44 (0) 1245 334450) | VAT No. GB144219234





When you have Polymyalgia Rheumatica you feel pain and stiffness in the muscles in your shoulders and upper arms (shoulder girdle) and hips (pelvic girdle). This feeling often comes after you’ve spent time resting, and is most severe upon awakening from sleep.

Read more via this link  >>>




Fibromyalgia News Today Weekly Digest  |  13 August 2018

See below for a brief overview of last week’s articles. Click through to read each piece in its entirety:

  • Increased Pain Sensitivity Reflects Cognitive Difficulties in Fibromyalgia Patients, Study Suggests
  • Fibromyalgia Patients Show Poorer-than-Usual ‘Selective Learning’ of Pain Triggers in Study
  • Self-reported Symptoms Can Detect Fibromyalgia in RA Patients, Study Finds

Read all the above via the link below >>>

Fibromyalgia News Today Weekly Digest



#EDS  #EDSUK  #Toolkit

The Ehlers-Danlos Syndromes Toolkit  |  Ehlers-Danlos Support UK | Sourced via Royal College of General Practitioners

The Ehlers-Danlos Syndromes Toolkit

This toolkit has been developed in partnership between the RCGP Clinical Innovation and Research Centre and Ehlers Danlos Support UK led by Emma Reinhold and with contributions from Lisa Jamieson, Lesley Kavi, Kay Julier, Hanadi Kazkaz, Alan Hakim, Nikki Praiba, Gemma Pearce, Philip Bull and Jan Groh.

Please send any feedback or suggestions to circ@rcgp.org.uk

©2018 Royal College of General Practitioners




#NETCommunity #NeuroendocrineCancer #NETS 

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up |  30 July 2018


Ronny’s Community Newsletter  >>>

Blog Home Page  >>>

Living with Neuroendocrine Cancer



eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech

Why Patient Organizations Are No Summer Fling For Pharma

By Adam Chapman |  8 August 2018

Opening paragraph

‘Breaking news: Protestors from patient organizations gather en masse outside a pharmaceutical company’s headquarters wielding placards emblazoned with the words TRANSACTIONAL and TOKENISTIC.’


‘A patient expert’s contribution may not always be considered but letting them know the reasons why is essential to maintaining a healthy and transparent relationship, adds Foote.’

eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.


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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.


Disability Rights UK is pleased to announce that we are working in conjunction with UNITE Magazine.

NEW! Disability Rights Magazine Out Now!

Disability Rights UK Training  |  UNITE Magazine

‘UNITE is your new disability rights magazine. Out every month, UNITE covers a wide range of topics from accessibility and housing to universal credit and mental health campaigns.’

From the Disability Rights UK Training newletter 8 July 2018

Click here to subscribe, a fee may be required  >>>

Visit the magazine website home page  >>>

Visit the Disability Rights website for all kinds of information, advice and also opt-in for e-news  >>>


Disability Rights UK

14 East Bay Lane
Here East, Queen Elizabeth Olympic Park
StratfordLondon E20 3BS
United Kingdom

020 7250 8181


#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>


 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com



Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers


“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>




FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

PLEASE help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

ROCK OFF FIBRO, Fibromyalgia Awareness concert. Public group

Visit Rock Off Fibro on Twitter  >>>

Rock off Fibro   @rock_off_fibro


Something new

In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018


Why not visit Meditation and Healing to see what other tubes they have?  >>>


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog,  instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂


FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73

Got something you’d like to suggest or even just talk about please contact us via this form