#chronicillnessVOICE | Morning Edition | 14 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events



In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018

Psst!  It’s at the end!!


paper.li newsletters have also moved to their own ‘digested’ post and they update themselves.   The list includes >>>

DAILY! European Medical Journal

The Patient Registry Daily News & more on patient registries and their impact on healthcare today


The Immunology Daily

Twice Daily!   |   News from Focus on Disability 

Daily! Above The Fold in Healthcare is out!

Daily!  Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide 




Morven May MacCullum was struck down with Lyme Disease in her teens and it’s debilitating nature stopped her in her tracks and changed the course of the life she planned. Morven talks about finding new purpose and how despite adversity she is finding…

Visit Morven’s blog >>>


Link to the article  >>>

Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose

Sourced via @RareRevolutionM on Twitter and today I have shared their feed for you to follow  >>>

Rare Revolution Mag and all things about it, what it does and Join the #Rare Revolutionaries Community , can also be found by following this link  >>>



Photo credit: Laura Palmer

Join the #RareRevolution

***Free DIGITAL Subscription***

A BRAND NEW digital magazine giving a voice to patients affected by RARE conditions and the charities that represent and support them.

Sign up via the website link above to subscribe for this free quarterly magazine and receive it straight into your inbox every quarter.


Rare Revolution is affiliated with the charity Teddington Trust SCIO (SC045465), providing valuable support and work for patients with the rare disease of Xeroderma Pigmentosum.

​To find out more visit www.teddingtontrust.com 


Patientcare #Patientnews #NHS 

Patient Newsletter  |  Subject:  What your dreams could be trying to tell you |  14 August 2018

Main Headline:   What your dreams can reveal about your health

Other Headlines >>>

  • Why is it so hard to sleep when it’s hot?
  • How to sleep-proof your relationship
  • Could this be the reason you feel tired all the time?
  • The link between anxiety and insomnia
  • Is it time to ban your phone from the bedroom?
  • Can a new bed improve your insomnia?
  • Creamy chicken and lentil korma
  • Chilli and ginger salmon with asparagus

Join our mental health forum >>>

Read more articles / posts from the newsletter by following this link  >>>

Visit the Home Page and register for patient access as well as newsletters >>>


Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.



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#chronicillness #rareillness #invisibleillness #anxiety #mentalhealth #chronicpain 

A selection of posts by chronic bloggers via The Mighty 

CHRONIC ILLNESS • August 13, 2018


Who We Are – The Mighty


The Mighty — 210 N. Glenoaks Blvd, Burbank, CA 91502
© 2018 Mighty Proud Media, Inc. All Rights Reserved. Privacy Terms



MedicineNet ~ Newsletter  |  FEATURED: Persistent Depressive Disorder (Dysthymia)  13 August 2018

Persistent Depressive Disorder (Dysthymia)
Dysthymia is a less severe form of chronic depression. Symptoms and signs include insomnia, suicidal thoughts, guilt, empty feeling, loss of energy, helplessness, sluggishness…

Other headlines  >>>

  • SLIDESHOW  |  Healthy Living: 20 Common Health Myths Exposed
  •  NEWS  |  From Pigs to Peacocks, What’s Up With Those ‘Emotional-Support Animals’?
  •  NEWS  |  Health Tip: Fight Frequent Fatigue
  •  NEWS  |  Opioid Addicts Turning to Unapproved Antidepressant to Get High

Read all the above via the following link  >>>

MedicineNet’s Depression Center

‘MedicineNet’s Depression Center gives you all of the tools necessary to maintain a healthy body and mind…’

Read more and access the Depression Centre via the newsletter link above

MedicineNet respects your privacy – view our Privacy Policy

903 Calle Amanecer, Suite 300 San Clemente, CA 92673 USA

© MedicineNet, Inc. All rights reserved.


Latest NIHR funding opportunities |  NIHR  | 10 August 2018

Latest NIHR funding opportunities

Public Health Research Programme
18/124 researcher-led; including the following highlight notices:
London Devolution
Complex health and care needs in older people
Brain tumours

Copyright © 2018 NIHR, All rights reserved.



Neuroscience Newsletter |  13 August 2018

Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary. 


Amputees Feel as Though Their Prosthetic Limb Belongs to Their Own Body
A new study reports amputees often feel as though their prosthetic limb is part of their body.


Angry People May Not Be as Smart as They Think
Researchers report those with trait anger, those who get angry as a disposition, are more likely to overestimate their intelligence level. Interestingly, researchers say, trait anger is linked to grandiose narcissism.


Neuroscience News | Neurology | Robotics| Psychology | Submit News

Neuroscience News
4747 Research Forest Drive, STE 180
The Woodlands Texas 77381


Please note that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.

Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

If you like what you read PLEASE remember to share and opt-in


For the #Professionals

Psychiatry Advisor’s Daily Updates  | Featuring:  Brain Region Connectivities Mediate the Association Between Depression and Sleep Quality | August 13, 2018

Psychiatry Advisor’s Daily Updates email features the latest News, Clinical Features, and Opinions for psychiatric health-care providers.

Featuring >>>

  • Brain Region Connectivities Mediate the Association Between Depression and Sleep Quality
  • Clinical Inertia May Explain Lack of Medication Adjustment Despite Indications in Bipolar Disorder
  • Sudden Parental Death Significantly Increases Incident Depression in OffspringCDC: E-
  • Cigarette Sales in the United States Climb as Prices Fall
  • Cohesive Teams Can Help Blend Clinical Care With Education
  • Many Youths Believe Gun Control Would Decrease Mass Shootings
  • Female Internists Consistently Earn Less Than Men
  • AMA Calls for Greater Electronic Cigarette Regulation
  • Variation in Specialty Drug Coverage Across Health Plans
  • Parent-Child Interactive Intervention Cuts Depression


  • Normal Sleep Physiology and Its Assessment


  • Predicting Quetiapine Response in Adolescent Bipolar Depression
    • Investigators examined the neurofunctional effects of quetiapine to predict improvement in bipolar depression. Learn more.


  • Managing Mania and Mixed Episodes of Bipolar Disorder
    • This activity highlights the latest advances in diagnostic and therapeutic issues in patients with manic and mixed episodes in bipolar disorder.
© 2018 Haymarket Media Inc | 275 7th Ave, 10th Floor, New York, NY 10001



Latest from MSWorld, News, Events & More! |  MSWorld, Inc. ~ MSWorld Newsletter | 13 August 2018


The Magic of Helping Others Started Here, Happens Here, and Will Continue Here!

MEMBERS OF THE WEEK | Katherine Minden
Katherine has submitted her Wonderful Poem titled:
Multiple Sclerosis: Acrostic

MEMBER OF THE WEEK | Stephen Harris

Stephen has submitted his Wonderful Photo titled:

MSWorld’s 22nd Anniversary Celebration!
Inspiring Others While Living with MS!
Join in MSWorld’s Anniversary Celebration by sharing how you Inspire others while living with MS!

Plus more via this link  >>>

Latest from MSWorld, News, Events & More!

Information published online by MSWorld volunteers is not intended to be used toward the diagnosis or treatment of any medical condition. For specific information and advice, consult your personal physician.
– MSWorld Management

Our mailing address is:
MSWorld, Inc.
PO Box 2643
Sarasota, FL 34230-2643



Fibromyalgia News Today Weekly Digest  |  13 August 2018

See below for a brief overview of last week’s articles. Click through to read each piece in its entirety:

  • Increased Pain Sensitivity Reflects Cognitive Difficulties in Fibromyalgia Patients, Study Suggests
  • Fibromyalgia Patients Show Poorer-than-Usual ‘Selective Learning’ of Pain Triggers in Study
  • Self-reported Symptoms Can Detect Fibromyalgia in RA Patients, Study Finds

Read all the above via the link below >>>

Fibromyalgia News Today Weekly Digest



Mayo Clinic Social Media Network | 13 August 2018

Sign up and join in the conversations

Already a member then follow these links>>>

This Week’s Highlights


Why Are Healthcare Consumers So Angry on Social Media?


Tools for Promoting Your Research on Social Media



How to Turn Authentic Stories into Social Media Sensations

August 14, 2:00 pm

Where: Online

You can sign up for ‘Mayo Clinic Social Media Network’ by following this link >>>




#EDS  #EDSUK  #Toolkit

The Ehlers-Danlos Syndromes Toolkit  |  Ehlers-Danlos Support UK | Sourced via Royal College of General Practitioners

The Ehlers-Danlos Syndromes Toolkit

This toolkit has been developed in partnership between the RCGP Clinical Innovation and Research Centre and Ehlers Danlos Support UK led by Emma Reinhold and with contributions from Lisa Jamieson, Lesley Kavi, Kay Julier, Hanadi Kazkaz, Alan Hakim, Nikki Praiba, Gemma Pearce, Philip Bull and Jan Groh.

Please send any feedback or suggestions to circ@rcgp.org.uk

©2018 Royal College of General Practitioners




#NETCommunity #NeuroendocrineCancer #NETS 

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up |  30 July 2018


Ronny’s Community Newsletter  >>>

Blog Home Page  >>>

Living with Neuroendocrine Cancer

Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018

Harnessing a collective focus to transform MSK services

Who are ARMA? >>> 

About ARMA

Link to the newsletter where there are lots of things to read in this issue! >>>

ARMA AUGUST Newsletter

  • To see previous issues of the newsletter, click here
  • Follow us on Twitter:   @WeAreArma
  • To include items in the ARMA newsletter, please contact us.

Heard about the new MSK Hub ?

It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.



eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech

Why Patient Organizations Are No Summer Fling For Pharma

By Adam Chapman |  8 August 2018

Opening paragraph

‘Breaking news: Protestors from patient organizations gather en masse outside a pharmaceutical company’s headquarters wielding placards emblazoned with the words TRANSACTIONAL and TOKENISTIC.’


‘A patient expert’s contribution may not always be considered but letting them know the reasons why is essential to maintaining a healthy and transparent relationship, adds Foote.’

eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.


Get the latest industry insights in your inbox:

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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.


Disability Rights UK is pleased to announce that we are working in conjunction with UNITE Magazine.

NEW! Disability Rights Magazine Out Now!

Disability Rights UK Training  |  UNITE Magazine

‘UNITE is your new disability rights magazine. Out every month, UNITE covers a wide range of topics from accessibility and housing to universal credit and mental health campaigns.’

From the Disability Rights UK Training newletter 8 July 2018

Click here to subscribe, a fee may be required  >>>

Visit the magazine website home page  >>>

Visit the Disability Rights website for all kinds of information, advice and also opt-in for e-news  >>>


Disability Rights UK

14 East Bay Lane
Here East, Queen Elizabeth Olympic Park
StratfordLondon E20 3BS
United Kingdom

020 7250 8181


#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>


 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com



Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers


“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>




FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

Help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

Visit Rock Off Fibro on Twitter  >>>

Something new

In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018


Why not visit Meditation and Healing to see what other tubes they have?  >>>


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂


FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73

Got something you’d like to suggest or even just talk about please contact us via this form