#chronicillnessVOICE | Morning Edition | 09 August 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients

A selection of online health related newspapers/magazines/newsletters/blogs/events



In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018

Psst!  It’s at the end!!

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Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!

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Paper.Li newsletters have also moved to their own ‘digested’ post and they update themselves. 


#Digital Health  #MentalHealthCare  #MentalHealth

Doc on demand service ZoomDoc extends offering to mental health care | Hannah Crouch Digital Health | 9 August 2018

Link to their homepage on WordPress where you can read more digital health news and opt-in for newsletters  >>>




#NETCommunity #NeuroendocrineCancer #NETS 

RONNY ALLAN – LIVING WITH NEUROENDOCRINE CANCER NETwork with ronny© | RonnyAllan.NET – Community Newsletter May round up |  30 July 2018


Ronny’s Community Newsletter  >>>

Blog Home Page  >>>

Living with Neuroendocrine Cancer


#Patientcare #Patientnews #NHS 

Patient Newsletter  |  Subject:  Find out what jet lag really does to your body |  7 August 2018

How jet lag affects your health

Jet lag can certainly put a dampener on a holiday but it may also have negative health implications for people who regularly experience it. We explore how holidaymakers and frequent flyers can minimise jet lag’s effects

How to adapt

Taken from the newsletter

Other Headlines >>>  Stay well on holiday

  • The warning signs of heatstroke and heat exhaustion
  • First aid kid essentials for your holiday
  • How to keep kids active over the summer holidays
  • Do trains and planes make us sick?
  • How to lose your body insecurities this summer

The recipes to try this week  >>>

  • Wholewheat pasta with rocket and almond pesto
  • Kale and lentil burger

Read the articles / posts from the newsletter by following this link  >>>


Visit the Home Page and register for patient access as well as newsletters >>>


Join our mental health forum >>>

Join the Patient Mental Health forum

Patient work in partnership with the NHS
© Patient Platform Limited. Registered in England and Wales.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.


News selected from ScienceX newsletter 8 August 2018 by Carole 

Anticancer drugs delivered by a new drug delivery system reduce tumor size
Outline of the drug delivery system (DDS) created in this study. Credit: Osaka University

Anticancer drugs delivered by a new drug delivery system reduce tumor size

By Osaka University 8 August 2018

More information: Reishi Toshiyama et al, Poly(ethylene glycol)–poly(lysine) block copolymer–ubenimex conjugate targets aminopeptidase N and exerts an antitumor effect in hepatocellular carcinoma stem cells, Oncogene (2018). 

DOI: 10.1038/s41388-018-0406-x 



Secretion of exosomes by tumor cells (lower right) to fight the T cells (upper left). Credit: The labs of Wei Guo, PhD, and Xiaowei Xu, MD, PhD, University of Pennsylvania.

Cancer cells send out ‘drones’ to battle immune system from afar

By Perelman School of Medicine at the University of Pennsylvania 8 August 2018

More information: Exosomal PD-L1 contributes to immunosuppression and is associated with anti-PD-1 response, Nature (2018). DOI: 10.1038/s41586-018-0392-8 , https://www.nature.com/articles/s41586-018-0392-8 




NIH researchers discover highly infectious vehicle for virus transmission among humans
Illustration of membrane-bound vesicles containing clusters of viruses, including rotavirus and norovirus, within the gut. Rotaviruses are shown in the large vesicles, while noroviruses are shown in the smaller vesicles. Credit: NIH

Researchers discover highly infectious vehicle for virus transmission among humans


By NIH/National Heart, Lung and Blood Institute |  8 August 2018

Journal reference: Cell Host & Microbe




A video game can change the brain, may improve empathy in middle schoolers
The game — developed in partnership with Gear Learning at UW–Madison and researchers from the University of California, Irvine — is only being used for research purposes and is not available to the public but has helped inform other games being submitted to the FDA for clinical applications. Credit: University of Wisconsin-Madison

A video game can change the brain, may improve empathy in middle schoolers

By Marianne Spoon  |  University of Wisconsin-Madison |  8 August 2018

More information: Tammi R. A. Kral et al. Neural correlates of video game empathy training in adolescents: a randomized trial, npj Science of Learning (2018).

DOI: 10.1038/s41539-018-0029-6 

Sign up to the Science X Network via this link  >>>  



Medical Xpress

Tech Xplore



#Alzheimers  #Dementia 

Alzheimer’s Reading Room Newsletter|  Can an existing Alzheimer’s drug stop Alzheimer’s disease if taken before symptoms develop?  |  Bob De Marco |  8 August 2018

Other headlines  >>>

  • 3 Ways to Redirect a Dementia Patient and Embrace Reality
  • Can Aspirin Reduce the Risk of Alzheimer’s Disease?
  • Spouses of Dementia Patients Pay a Heavy Toll
  • How to Inspire a Dementia Patient to Shower (Podcast)
  • Award Winning Knowledge Base
  • Articles

Link to the newsletter  >>>

For more news and information visit the site where you can also opt-in for e-newsletters  >>>

The Alzheimer’s Reading Room does not provide medical advice. The contents are for informational purposes only, and are not intended to substitute for professional medical advice, diagnosis or treatment. The views of the individuals that write on this website, contribute articles, or are quoted on this site are not necessarily those of the Alzheimer’s Reading Room. For specific, personalized medical advice we encourage you to contact your physician.
Unauthorized use and/or duplication of all materials and articles in the Alzheimer’s Reading Room without the express and written permission from Bob DeMarco are strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given and appropriate and specific direction to the original content is included.

Latest edition! 

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | August 2018

Harnessing a collective focus to transform MSK services

Who are ARMA? >>> 

About ARMA

Link to the newsletter where there are lots of things to read in this issue! >>>

ARMA AUGUST Newsletter

  • To see previous issues of the newsletter, click here
  • Follow us on Twitter:   @WeAreArma
  • To include items in the ARMA newsletter, please contact us.

Heard about the new MSK Hub ?

It’s a tool for sharing knowledge and collaboration, an online library of resources. If you know of reports, evidence, guidelines that should be posted, please let those authors and organisations know they can add content.



eyeforpharma logo

#pharmanews #eyeforpharma #pharma #tech

Why Patient Organizations Are No Summer Fling For Pharma

By Adam Chapman |  8 August 2018

Opening paragraph

‘Breaking news: Protestors from patient organizations gather en masse outside a pharmaceutical company’s headquarters wielding placards emblazoned with the words TRANSACTIONAL and TOKENISTIC.’


‘A patient expert’s contribution may not always be considered but letting them know the reasons why is essential to maintaining a healthy and transparent relationship, adds Foote.’

eyeforpharma Editorial Disclaimer
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.


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Eyeforpharma – Mission statement:
Our mission is to make pharma more open and valued
The ultimate driver for the pharmaceutical industry’s health is meeting the needs of patients, otherwise it will cease to matter. For healthcare to be as good as it could be, the strength, skills and resources of our industry need to be fully integrated into health outcomes and we need pharma experience at the decision-making table.
We believe the industry must focus on a business model combining service with product, with patients at the center.


#Healthcare #HealthReviews #European #Medical #Journal 

European Medical Journal | EMJ  Hematology 6.1! Review of EHA 2018 Now Available!  | paper.li | DAILY UPDATED

We review all of the breaking news from the major healthcare congresses across Europe

Read  via this link to the EMJ DAILY paper >>>


You can get access to EMJ  Hematology 6.1! Review of EHA 2018 by following this link >>>


Read EMJ RHEUMATOLOGY 5.1 2018 | JULY 2018 Via this link  >>>

Welcome message at the front of the journal:

‘The European Medical Journal has published the latest edition of EMJ Rheumatology, which includes a full review of the European League Against Rheumatism (EULAR) congress, a selection of peer-reviewed papers, interviews with members of our esteemed editorial board, and much more.’


EMJ Rheumatology 4.1 2017  |  Taken from Twitter  @EMJRheum | 9 July 2018

Prevalence and Significance of Anti-Saccharoymces    in Primary         

Read the article via this link  >>>


Editor’s note
“EMJ 3.2 has entered the building! This truly multidisciplinary eJournal returns for its 10th issue and its second of 2018. EMJ 3.2 includes a plethora of high-quality peer-reviewed articles that detail a myriad of fascinating topics across seven therapeutic areas: urology, haematology, oncology, gastroenterology, hepatology, neurology, and reproductive health. This eJournal must not be missed.”
As written in the paper!

Very soon EMJ will have their own spot on the website where you will have access to the links to their community as well as their journals and information.  ~ Carole 



Morning Rounds

STAT: Morning Rounds | Sponsored by Abvvie |  8 August 2018

Argentina’s abortion vote, Ebola vaccine prep, & Zika’s health impact

Talking points from the news

  • Ebola case count rises in Congo
  • 1 in 7 babies exposed to Zika in the womb have health problems, CDC reports
  • Argentina readies for landmark abortion vote
  • SPONSOR CONTENT BY ABBVIE | Endometriosis treatment is grounded in science, driven by commitment
  • Perinatal mortality rates have declined in just one state

Inside STAT:  

  • Can Democrats come up with a drug price plan?
  • Lessons for new parents promote healthy weight in kids

Also – What to read around the web today

Link to the newsletter >>>

Do you like the newsletter and enjoyed the read, why not ‘opt-in’ for STAT morning rounds, and others via this link  >>>


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©2018, All Rights Reserved.


Disability Rights UK is pleased to announce that we are working in conjunction with UNITE Magazine.

NEW! Disability Rights Magazine Out Now!

Disability Rights UK Training  |  UNITE Magazine

‘UNITE is your new disability rights magazine. Out every month, UNITE covers a wide range of topics from accessibility and housing to universal credit and mental health campaigns.’

From the Disability Rights UK Training newletter 8 July 2018

Click here to subscribe, a fee may be required  >>>

Visit the magazine website home page  >>>

Visit the Disability Rights website for all kinds of information, advice and also opt-in for e-news  >>>


Disability Rights UK

14 East Bay Lane
Here East, Queen Elizabeth Olympic Park
StratfordLondon E20 3BS
United Kingdom

020 7250 8181


BPS Research Digest | Opening headline:  The “beautiful mess” effect: other people view our vulnerability more positively than we do  9 August 2018

Other headlines  >>>

  • The most effective teachers turn to their colleagues for advice (while weaker teachers don’t bother)
  • People with strong self-control experience less intense bodily states like hunger and fatigue
  • New evidence for the “propinquity effect” – mere physical closeness increases our liking of desirable people and things
  • How kids shape their parents’ parenting style
  • Editor’s pick: Ten Famous Psychology Findings That It’s Been Difficult To Replicate

Read all the above via this link  >>>

BPS Research Digest Newsletter 9 August 2018

The Psychologist is the monthly magazine of the British Psychological Society. Visit their website for the August issue and latest online articles and letters, including ‘The role is not about me, it’s about the Society’
One on One with… Kate Bullen, incoming President of the British Psychological Society
. Also check out all our latest reports and feature articles and much more.

The British Psychological Society is a charity registered in England and Wales (SC039452), and Scotland (229642).
Copyright © 2018 The British Psychological Society,


#disability  #disabilitynews

Disability News Service (DNS) 

A great site for health and disability news 

Disability News Service (DNS) is run by John Pring, an experienced journalist who has been reporting on disability issues for nearly 20 years.

He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people. 

Read more Disability News Service – About us

Visit the website to check out their latest disability news >>>




 FibroFlutters continuously

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way! 

You all need to pitch in!!


Awareness Campaigns

Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com



Connecting You to the Chronic Illness Community

chronicillnessbloggers.com  | 2018/02/07 | new-era-chronic-illness-bloggers


“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”

I am Proud to be a member and Ambassador of

@patientslikeme, the world’s largest personalized health network
helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.

Join for free on PatientsLikeMe.com!

A chance to change the future of personalized health.

Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information.  ~ Carole



fibroflutters mental health discussion group cover pic
Don’t be afraid to reach out!

Why not join FibroFlutters Mental Health Group On faceBook and help us to grow a friendly place to talk about Mental Health  >>>




FibroFlutters in Support:

#Fibromyalgia #fightfibro #Fibro2018 #fibroawareness #shoutitloud #Patients #JustGiving

Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

Quoted from Just Giving page:

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness

Please can you help such a worthy cause, patients are trying to help other patients?!

Help raise awareness of join us as we launch our double album. fantastic night of     

Special guest appearance by

The Rigger , Newcastle Under Lyme

please share

Visit Rock Off Fibro’s PUBLIC group on FaceBook  >>>

Visit Rock Off Fibro on Twitter  >>>

Something new

In the Chillout Lounge!

“Remove Negative Thoughts & Subconscious Blockages” Meditation Music for Positive Energy

By  Meditation and Healing |  7 August 2018


Why not visit Meditation and Healing to see what other tubes they have?  >>>


Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post twice a day from here, our website/blog, Morning and Evening Post instead.

This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.

Here’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.

Let us help them by showing our support by sharing the news and stories that they share.

If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂


FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and across the globe

Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.

Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole   fibroflutters@gmail.com 


FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018

MANY THANKS in advance for your understanding –

from the administrator – fibrofly73

Got something you’d like to suggest or even just talk about please contact us via this form