Category: Patient Advocacy

#chronicillnessVOICE | 26 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

My Story: Love the One You’re With  | By Cynthia Toussaint | National Pain Report |  25 September 2018

WOW! it’s WEGO TIME already, are you prepared for 3 days of virtual celebrations? | WEGO Health Awards Schedule Of Events

The LATEST! NIH Research Matters  |  25 September 2018

NIH-funded genome centers to accelerate precision medicine discoveries | 
National Institutes of Health (NIH) |  25 September 2018

Neuroscience Newsletter |  25 September 2018

Psych Central Newsletter |  Psych Central Daily |  25 September 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection  |  Treasures On The Sand | 24 September 2018

UPDATED LIST
paper.li newsletters have also My favourite health related paper.lis and they update themselves.   … Read More #chronicillnessVOICE | 26 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

fibrofly73

#PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness… Read More #PAM2018 Fundraising to raise £20,000 for Fibro drop-in centre  |  Rock Off Fibro ~ Fibromyalgia awareness

fibrofly73

Heart Matters  |  Learn all about the fats in your blood  |  13 September 2018

Watch: How fats in your blood affect your health

An animation well worth watching as it is very educational as well as a fabulous use of digital technology to help with educating patients,  and non-patients, about heart health related matters.… Read More Heart Matters  |  Learn all about the fats in your blood  |  13 September 2018

fibrofly73

UPCOMING EVENT | SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER… |  BARMAC5 | BackPainBlog  | 10 September 2018 | #PAM2018 |

‘At this show, you can get exclusive access to expert advice, innovative new products, specialist exhibitors, multiple interactive workshops and immersive classes – all designed to help you understand how to improve your sleep and give you and your family a fun day out!’… Read More UPCOMING EVENT | SOMNEX- THE FIRST DEDICATED SLEEP SHOW IN THE UK 12th-14th OCTOBER… |  BARMAC5 | BackPainBlog  | 10 September 2018 | #PAM2018 |

fibrofly73

#chronicillnessVOICE | 24 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

EverSleep Wearable Sleep Tracker: Product Review and Interview with CEO |  MICHAEL BATISTA  |   Medgadget  |  21 September 2018 – commentary by Carole

Psych Central Newsletter |  Psych Central Daily |  22 September 2018

ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

My Medical Musings | A Spine Tingling Saga | Sam  |  7 September 2018

#PAM2018
DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018

UPDATED LIST
paper.li newsletters have also My favourite health related paper.lis and they update themselves.   … Read More #chronicillnessVOICE | 24 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

fibrofly73

#PAM2018 | Weekly digest for The Migraine Mantras  |  The Migraine Mantras  |  10 September 2018

‘Blue light disrupts the sleep-wake cycle, so downloading a free program like F.lux will change the blue light on your computer screen to match your sleep cycle. You can also use it on Android phones, but you have to manually change to night time mode in the settings on iPhones.’… Read More #PAM2018 | Weekly digest for The Migraine Mantras  |  The Migraine Mantras  |  10 September 2018

fibrofly73

Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.

The Im-patient Conference which is new, and its bold.

No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.

Come and see me take part:  17th October | 17:00 – 17:40 (Day 2) 

Panel: Candid patient perspectives on the good, the bad and the ugly of service design… Read More Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

fibrofly73

Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

fibrofly73

#chronicillnessVOICE | 21 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

UPDATED LIST
paper.li newsletters have also My favourite health related paper.lis and they update themselves.   The list includes >>>

DAILY!  | European Medical Journal

The Patient Registry  |  Daily News & more on patient registries and their impact on healthcare today

A WEEKLY paper | The Receptive Sound Therapy Daily
DAILY! | PHARMAGEEK NEWS, le Journal 

The Immunology  | DAILY!

Twice Daily!   |   News from Focus on Disability 

Daily!  | Above The Fold in Healthcare is out!

Daily! | Brainless Blogger News

The Chronic pain Daily |  Support from Coach Amber Rose 

The brain and mental health voice is out! | selection by Valeria Duflot 

Twice Daily! Fibromyalgia ME Chronic Pain is out!  

Twice Daily! Life Chronic Pain & Autoimmune Systemic Diseases & Dementia® 

Twice Daily!  News from UK Care Guide … Read More #chronicillnessVOICE | 21 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

fibrofly73

#chronicillnessVOICE | 20 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

Creating 3-D printed ‘motion sculptures’ from 2-D videos | 19 September 2018

Body support device helps people learn to walk again after a stroke, trauma | Purdue University  |  19 September 2018

TINY cancer detection device proves effective in Uganda testing  |  Cornell University  | 17 September 2018

I can’t sleep. What drugs can I (safely) take? |  by Ric Day And Andrew Mclachlan, The Conversation  | 19 September 2018

Customer Journeys Start With Smartphones, But Brands Still Don’t Get Mobile | Brian Solis   | 13 August 2018

Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there?
#pharmanews #eyeforpharma #pharma #tech
Patient Summit Europe
16-17 October 2018, London UK

paper.li newsletters have also My favourite health related paper.lis and they update themselves.   … Read More #chronicillnessVOICE | 20 September 2018 ~ a health newsletter for everyone! #chronicillness #notjustpatients #PAM2018 #EDS

fibrofly73